It’s been brought to my attention that I am flailing about online in a pretty distressed and intense matter and generally freaking out a lot of folks. I’m going to totally own this one! I’m in an unprecedented (for me, I suspect it actually happens pretty often) mess, and I hadn’t got around to mentioning it yet but surprise! I’m autistic. So I’m currently freaking out most of the non autistic people and most of the autistic folks around me are getting it. I can’t do all this shit and keep all these people going and try to keep you, the general public, feeling calm and soothed and comforted and safe too. I kinda need to, because half of New South Wales currently thinks I’m having the most public psychosis ever lol (funny that when I do have actual psychoses, I am public about them!), all the bastards who are blocking what Jay needs are flinging some mud, and I’m generally careening around doing my best to juggle 1,400 things while on fire. So my capacity to hide that I’m on fire is a bit shall we say, reduced.
Sorry about that – deal with it.
Feedback about how to handle this more effectively welcomed. 🙂 Feedback that amounts to “have you tried being less autistic?” not so much.
Help me with:
I need a GP or physician with experience with complex disability and spasticity. Anywhere in Australia. Frankly I’ll take anywhere in the world. We need specialist competent guidance please and we can link you in with tech. If Jay doesn’t qualify for telehealth with you, we will cover the cost through business/donations. Please get in touch with me asap with your qualifications and availability.
I need someone who can edit my youtube channel, I am using videos to communicate with my team and having trouble loading longer ones. The obvious option is to stop waffling so much but that’s never been my strong suite. Paid, obviously.
I need the NDIS medical clearance for accessing a hospital guidelines. What exactly do my staff need to do to be cleared?
I need a way to get Jay tested for Covid without moving them from their bed. Thoughts?
I have stressed, vulnerable people in shutdown because people keep phoning them. Can someone help me arrange new phones and sim cards with new numbers so they can turn the old ones to silent and address calls as they can. They can’t do this now because this family is trying to stay connected to each other. We need to split up the lines of personal safe communication from the lines of more public and stressful communication. I really like amaysim – can they help? They are both used to iphones. Will pay, obviously, from donations!
I need advocates. Autism, disability, mental health, queer, whatever. Throw them at me. I can’t do this alone, but we can do this together.
How to Stand with Jay
- Boost our signal! Share this post. Tell someone about Jay. Use the hashtag #standwithjay If you are media, contact me for more details of the story, or watch this space.
- Help resource us: we need help to do and get these things and people!
- Donate to us: all funds will go to Jay and the team, not me
- Join us: bring love, help, make suggestions, take on tasks and all your cat pictures please!
4 thoughts on “Brains Trust – give me some referrals”
You don’t seem at all psychotic, just worried, as anyone would be. You have a lot to carry right now. Is it possible to share the load across multiple senior support coordinators, given the complexity?
I know you’re trying to organise and fund a team, but you probably need respite too?
The word is getting out, things are happening. Take heart.
Yes I’ve been working hard on getting more people on board to share my roles with. I’m thrilled to say we now have a NSW specific specialist support coordinator on board who will start on Tuesday, and a something I can’t remember right now title, but basically local to Jay person who will dig up local resources.
Yes I’ve been working on that, I’m so happy you say we have two new folks starting on Tuesday, a specialised support coordinator and a team leader. Both are local to Jay and know the resources in that area thankfully.
Double yay! That’s brilliant news. I’m so pleased. 🙂