A Better Morning

I woke yesterday from strange dreams where I was homeless again, running from people who wanted to hurt me. I was living in the streets in a dark, crowded world, trying to stay hidden and find somewhere safe. When I woke I found the fibro pain was present but the sinus pain easing, and a melancholy message from Rose on my phone. I sent her poems about sadness and hope. Then I got up, made a cup of green and cranberry tea, turned my armchair to face my garden through the window, and got out my pen to write. For this, I had more company than perhaps I would have wished. It had been wet the night before so the garden was pearled and fragrant. Poems and ink flowed. I’ve had some very interesting conversations lately and things are starting to gel in my mind about why this depression has come. It’s calming my heart, helping me find ways through. Sometimes it helps more to talk with old friends who know me well than the shrinks who do not. Things are moving inside, my system is shifting and responding. I’m starting to see a path. I’m writing again.

It’s not over. There’s still anguish inside. I’m still moving slowly, underwater, fragile and lost. I don’t recognise friends, I’m disconnected from my life, choices, goals, dreams. But I perceive a relationship between hope and hopelessness. With the dreams of a bright future now comes also the dread certainty of loss. Listening to both those voices, both songs, the dark and bright, the singing and the screaming in my heart.

Yesterday I sat by my window and remembered what it was like to live in a caravan. Permeable to sound, cold, heat , mosquitoes. Cramped, delightful, stressful with noise in the early morning, people walking past my windows, garden dying in the heat. But I loved it, the river nearby, the solitude, the bath a short walk away, pots of basil and of jonquils. I can find that again, that joy in an imperfect and temporary home. It’s not what I’ve been dreaming of for this house, not my safe forever home, but I can find that acceptance again. I can let my dreamers enjoy the space, the studio, the garden. It’s not so rotten and tainted that there’s no stars at all here. I can live more lightly in the space, less fear, I’m a temporary warden only. Garden for those who will come after me. Climb trees, go camping, sleep under stars when I need to. It need not be a cage or trap. I can let the old dream go, the hope for years of security go. It can be imperfect and beautiful.

Pets And Stress

Sarsaparilla has stuck close to me for days. He follows me from bed to couch and back again, snuggled up really close. It’s lovely. Zoe however is anxious, and is obsessively licking and chewing her feet, resulting in several sores. It’s very distressing. I have a cream from the vet that numbs and prevents swelling and infection, apart from that I’m bathing them in salt water twice a day. I hope she stops soon 😦

I’ve been in bed all day, I still have a sinus infection and I’m sore and a bit miserable. I had an appointment with my psychiatrist this morning. We talked about trying to get me into an intermediate care center if I am really struggling at home this week. The thought fills me with relief and fear in equal measure. I’m going to continue to try and create safety at home for the moment. I’ve cancelled everything this week and touched base with some friends and booked in some social time which I’m really looking forward to. Rose came over on the weekend and kept me company. We had a really wonderful time, visited some friends, spent all Sunday in our pj’s watching movies. I felt much better, had some giggles, enjoyed the trans show and the Dr who finale. Even so I spent at least three hours crying on her shoulder, and that was one of my good days this week. So, taking it slowly. Lots of my friends are sick, injured, or struggling with bad news at the moment which is really sad. As soon as the fibro and sinuses let up I’m hoping to do some gardening, and buy a new fountain pen as my lovely Parker had been missing for the months now and I badly need another for ink paintings and wrist poems.

It could be worse. I’m safe, I’m loved.

Staying safe in a crisis

I’m still in crisis mode here, working on staying safe until I’m in a better head space. I haven’t worked out what’s triggered this mess – that can happen and it can take some time to put things together. The task at the moment is staying safe. I have at least one severely depressed part, which is new territory for us. Anxiety is also sky high, I’m struggling to eat (or keep food down), fighting off a cold and sinus infection, and feeling very unsafe about self harm.

If the mental health system was less toxic, I’d be in care. But because it’s such a mix of good care and abuse, it’s high risk. For someone like me with my diagnoses, it’s likely that I’ll struggle to get any care at all, and that’s not a struggle I have energy for. On one occasion previously when homeless, on the run from domestic violence, exhausted at caring for another mentally ill family member, and seriously suicidal I turned up to ACIS and asked for help… I was told that I had a better chance of surviving alone than I did with their assistance because they do not treat people with DID well.

So that leaves me with trying to manage using my own resources and networks, to create something as safe as I can in my own life. I shut down to the bath if the self harm impulse is overwhelming. I’ve borrowed two bags of books from the library. This gives me something else to focus on. Sometimes they’re a useful escape. Sometimes I read things that help me in some way. There needs to be something to ease that dangerous, frantic despair, the kind that has you running into the night looking for anything that might make you feel differently. I also have movies to watch, preferably long involved ones I already know. The flavour of the week is Harry Potter movies.

Sleep and food are critical. If they are both interrupted I will degenerate into severe dissociation and borderline psychosis. I’m fortunate at the moment in that I’m sleeping. Keeping food happening is more challenging currently. When you’re very anxious your digestion shuts down, the thought, smell, and taste of food becomes unappealing. If I force myself to eat I will vomit. So I have to find small, filling meals of things that tempt me, where the smell or texture don’t turn my stomach. Sometimes this means I eat the same thing every meal – like a bowl of cereal. Sometimes this means I need a different flavour and texture for every meal for a while. This gets very difficult if you’re not well enough to drive and stock the fridge. I need to drink enough fluid that I’m not dehydrating.

I need to keep enough admin going that my life doesn’t crash. This one is hard. I’ve cancelled almost every appointment this week. I’m getting by at the moment. Yesterday I was up to cleaning all the rotten food out of the fridge. I’m keeping up with feeding the pets and sorting out the cat litter tray. I’ve paid my bills. I’ve actually contacted people to cancel appointments instead of just not turning up. I’ve taken the dog to the vet when she was ill. I’ve removed all the clothes and linen the cat has peed on to a big pile in the laundry. I try not to think about all the big things worrying me about my life plans for the next few months or years, or I become hysterical. The goal is just one day at a time. Today I’m hoping to buy milk, cordial, and maybe hang out with some friends this evening if I feel safe enough to drive and have a chance of passing for normal.

I try and stay in touch a little with other people. Facebook can be good for this, if you’re comfortable with that and know how to use your privacy settings. It gets hard to communicate. I’m mixed up. I stood at my kitchen window yesterday and simultaneously felt rigid, bitter despair about my life, and simple childlike joy. That’s hard to explain to other people. In between jags of the kind of distressed crying that we never see on TV because it involves a truly horrifying amount of snot, I look fine. Maybe a bit tired and jumpy. I spent 5 hours yesterday morning trying to work out how to reply to a text from Rose asking me how I was, while she got increasingly concerned. Don’t do that. We’ve since decided that an empty text with an asterisk in it means ‘I’m not about to kill myself, but I’m not very good and I can’t think straight enough to write to you. But I am awake and alive.’ In between thinking about dying, I’m okay, just very flat and tired. There’s even been some confusing but welcome good hours where someone happy turns up. After the first few days I’ve stopped hoping that this means the whole mess is over and getting devastated when I go down again. I also have to be careful because when I don’t feel like a complete mess, it’s easy to over reach and take risks I actually can’t afford to manage at the moment.

I’m short fused and low on tolerance. It’s important to stay away from people and situations that stress me, whether that’s unwelcome advice, overbearing cheerfulness, people who don’t get that I’m touch sensitive when stressed, whatever. Kindness goes a hell of a long way, as does feeling like it’s okay that at the moment, you’re a useless friend and a mess.

I need to not listen to the internal chatter that says things like “You’re just lazy and weak and pathetic and useless and looking for attention and could snap out of it if you really tried”. It helps when I can share that with someone who doesn’t believe it. There’s a sting in being able to confess stuff like this with someone who can say ‘well so what if it is true? I still love you’ and bring you an icecream.

I need space to be honest. My journal, a shrink, friends, somewhere I can pour out all of how messed up I really am feeling, instead of sticking to how I am being told I *should* feel in the hope that will help. Even if that means pouring out pages of reasons I’m a failure or why I hate myself. I need to be damn careful not to drown any one person in this stuff, especially not anyone who’s already vulnerable themselves – or anyone’s who’s inclined to argue about it instead of just being kind, because I might throw things at them.

I need to make sure if I can that at least one other person knows what’s really going on so that if it turns out that my assessment of where I’m up to is really off, someone else will step in.

I need a backup plan and other options in case this doesn’t work. In my case at the moment if next week is still bad I’ll be talking to my shrink. I also run a scale of stress-reduction behaviour according to degree of harm. So for example at the moment I’m struggling with a strong drive to self harm. I’m managing this using distraction, writing, wrist poems, hanging with other people when I don’t feel safe to be alone, and long baths. If I become seriously suicidal and can’t get help, I’ll change focus and let myself self harm if that reduces enough stress and generates enough dissociation to reduce the risk of a suicide attempt. I keep shifting the goals as I need to. If I’m having a good day I try to connect to my networks, get urgent admin done, and go somewhere nice. If I’ve fallen apart I consider that if I’m still breathing at the end of the day that’s a success. In the middle there is an attempt to self care and reduce stress with as little damage to myself, my relationships, and my life as possible.

On that note I’m going to fill a water bottle and watch the Order of the Phoenix.

Sadness

I’ve hit a rough patch the past few days, really distressed and overwhelmed. I’m not sure what’s going on, this year has been tough with these. I’m still sleeping and somewhat eating for which I’m grateful. The dog is restless and the cat has taken to peeing on the rugs, towels, and any clothes left on the floors. I have a lot of washing to do. I seem to pick up for a few hours here and there in between panic attacks and depression. I’ve been canceling most of my commitments and I’m just keeping my head down until it eases, my next shrink appointment, or things crash badly enough that I look for more intensive help somewhere. Rose is looking out for me, took us down to the beach tonight to let Zoe have a run and talk about how we’re going to manage this. I’m lucky. I’ve friends, a home, a lot more than I’ve had when I’ve been in trouble some other times in my life. Just got to stay safe until I come through it.

Hearing Voices Links and Information

If you’re looking for support around the experience of hearing voices, here are all the resources and links I’m aware of. Firstly a few from this blog:

The International Voice Hearing Community has a website at www.intervoiceonline.org and a facebook group for anyone to join to share and discuss experiences at www.facebook.com/groups/intervoice This is open to people who hear voices as well as friends and family looking for information and support.

For children and young people who hear voices, Voice Collective is UK based and found at www.voicecollective.co.uk they have a number of free resources including this online booklet: For Parents Carers and Family Members of Young People who Hear Voices or See Visions.

Here’s a list of Australian based organisations and groups:

Here in South Australia, we have currently one group meeting every week, called Sound Minds. Details on the Mental Illness Fellowship of SA website here: www.mifa.org.au/voice-hearers-group This is run by Ben and Anna, you can ask to speak with them on (08) 8378 4100. If you experience your voices as parts, there’s a group called Bridges running weekly you may wish to contact. That’s run through the Dissociative Initiative who can be found here: dissociativeinitiative.wordpress.com. There’s also a number of books on voice hearing in the DI library which you can borrow free if you live in SA.

There are many other Voice Hearing Activists who themselves hear or have heard voices and now work in Mental Health sharing their experiences and resources, a couple are listed here:

If you’re in a crisis situation, please reach out for help. In Australia you can call 000 for a life threatening situation, or ACIS on 13 14 65 for mental health crisis, or to speak with someone urgently Lifeline www.lifeline.org.au are available on 13 11 14. These are all available 24/7 and although they’re not specific for voice hearing if you or someone else is in danger they are the fastest support available. If you’re struggling to get support from ACIS, I would suggest reading

If you’re still struggling to find something local or you’d like to talk with me about your situation, you’re welcome to send me an email to sarah@di.org.au, but please be aware I’m extremely busy and may take a week or more to get back to you. Best wishes and take care x

Acceptance

Had a pretty good day today. It was hard coming home from the Fair to my stressful housing situation and my anxiety had been sky high lately. Rose visited and kept me company through a stressful appointment. I took her out for a treat at my favourite cafe. In a burst of energy I pruned, mowed, swept, and tidied my front yard, then re-washed the load of wet laundry that had been sitting in a basket for several days and yet to be hung out, this time it actually made it into the line. We all went down to the beach and did an hour of training, Zoe has her test for Basic training class this Saturday. She’s going very well with one small but significant glitch – she has almost no capacity to pay attention when other dogs are around, they’re just too interesting. This is going to make the test in class rather interesting.

The evening was spent lying on the couch watching the Hobbit. My pain levels are down, I’ve Zoe sleeping on my legs, I’ve decided to sleep on the couch tonight so she can sleep with me. My neighbour has done nothing more antisocial than chuck a bunch of leaves and garden debris over the fence in a week. My psychiatrist was nice to me when I went in on Monday very stressed and teary. Things are challenging but okay.

I’ve been working on a new mental health approach… Learning to accept even my own lack of self acceptance on my rough days. To have a less perfectionistic, and a more compassionate stance towards my mental health troubles. It’s okay to have issues, even the self loathing kind. If I can’t always stop me from hating myself, maybe I can at least break the spiral where I hate myself for hating myself. So far it’s helping.

Why bother blogging?

Sometimes I find myself wondering about the value of spending my time blogging. Especially when I’m trying to make a business work as a face and body painter, having so much deeply personal information out there on the net really seems like shooting myself in the foot. In the wake of recent homophobia, I’m wrestling with conflicting impulses to wear my rainbow throw everywhere like a cape – or strip my public online world of every reference to my sexuality, relationship, and mental health.

Whenever I feel like this, I go into my blog and have a look at one area of the stats collected about how this site gets used – the words that people are typing into search engines like google to find my site. Here’s a short collection of things people have been searching the internet for when they found this blog:

    • How to be comfortable with intimacy
    • Grounding techniques for dissociation
    • Adults who lack object constancy
    • Do you need to speak about your trauma?
    • Therapist wants to talk about my childhood
    • I hate positive thinking
    • Dissociative identity disorder pamphlet
    • Safe sex
    • Afraid of my psychotic neighbour
    • Self harm tools
    • Intense self loathing
    • Chronically feeling suicidal
    • I hate myself

How can I not share?

Cape it is.

Homophobia & despair

I’m tired. It’s been a very difficult couple of days and I’ve shut down. Depression is protective sometimes, when the alternatives are frantic and destructive.

I’m 4 months in to a 10 year lease, signed with Housing SA for my lovely unit. That followed a 1 year probationary lease. I’ve had hassles with a neighbour since moving in, which despite my best efforts have escalated into minor vandalism, and harassment in the form of hostile letters and verbal abuse. There’s a history of difficulties between other tenants and this neighbour, some of which is frighteningly dangerous (none of which involves witnesses or can be proved). Last night blew up badly, she harassed me persistently as I ignored her and tried to get from my car into my house. For the first time I lost my cool and shouted at her to leave me alone. She dumped a tirade of homophobia on me. She told me I was a dirty, filthy, deviant, freak lesbian, who should be exterminated.

I waited a very long time to get into this unit. Years of unstable housing and periodic homelessness, waiting for the dream of a home of my own. Somewhere safe and permanent, to plant my roses. Somewhere I could have a dog and a cat, work on my degree and my business, bring home a date in peace. This dream of security is being destroyed.

The reality is that my circumstances – female, disabled, poor, queer, make me vulnerable. I don’t have money to fix problems like this. Our safety net services don’t protect people like me very well. I remember when homeless, sitting outside a shelter that could not accommodate my electric scooter, having been kicked out for the cleaners to come in, and told to walk into town. I was too sick to walk to the end of the street. I sat in the gutter and wept. There is no security. Life turns on a dime.

This is the first time I’ve been personally abused since coming out. Oh, there’s been issues here and there. A waitress so uncomfortable with Rose and I that she could not make eye contact and avoided our table. An intimidating group of guys that prompted us to drop hands and walk home faster. People in our close circles who still refuse to meet the girlfriend. Friendships that randomly blew up after we started dating. A training facilitator asking us to ‘stop obviously being in a relationship’ during classes. But this, to have someone spitting with loathing as they tell me I should die, this is a first.

It’s horrific.

I feel dead inside. Because I have to. Because the alternatives were unsafe. The scream rising in my chest, the images in my mind, of running into the night, of slashing my arms and smearing the blood on her door, the despair that having run from the threat of violence and homophobia years ago, I’m still not safe. That I pay such very high prices to be safe in my life, and safety eludes me.

Last year a very dear friend of mine was attacked by a group of strangers who assumed they were gay. They escaped, hurting themself in the process. Their car was burned to the ground. This is the stuff of nightmares, the stuff that has you waking up screaming. It’s real and it’s still happening now. This is the world I live in, and the world my children would live in.

I’m used to mindless vandalism  I once lived in a unit where every week, something would be stolen from my yard. I made a game of it, bringing home broken or misshapen statues from my work to leave in the front yard to be stolen. One mother’s day, half of my irises were dug out and stolen overnight. It’s demoralizing.  It’s also not so hard to pity the person so broke and hopeless that stolen irises are their gift for mother’s day. This is different because it’s personal. It’s not mindless, it’s malicious. The intention is to hurt, the motivation is a narcissistic belief that they have the right to punish. It’s gutting. It’s impossible to know what it feels like to be hated if you’ve never been hated.

I have been hated and abused before. I’ve been threatened, I’ve been hurt, I’ve been screamed at, had property damaged or stolen, been touched when I said no, been told the world would be a better place without me. I’ve been given all the advice – hit them back, ignore it, don’t show fear, report it, record it, move away, try to befriend them, try to scare them, try to humanise yourself to them, fight back, turn the other cheek, disengage, empathise, deescalate, don’t make yourself a target.

I’ve followed it all, at one time or another. I’ve frozen. I’ve not shown fear or pain. I’ve cried. I’ve cut myself. I’ve reported and recorded. I’ve downplayed it and hated myself for being over sensitive. I’ve protected their reputation and kept the secrets. I’ve run.

I’ve been told “Until they touch you, we can’t intervene” (not unless, but until). I’ve been told “without witnesses it’s just your word against theirs”. I’ve been told “you bring it on yourself”. I’ve been told “it takes two to tango”. I’ve been told “you need to toughen up”.

They’re wrong, of course. It’s always easiest to blame the person being hurt, to make not being hurt again their responsibility, to offload the anger and frustration that powerlessness makes us feel onto the easiest target.

Abuse has only ended two ways for me – someone with power came along and decided I had enough value to protect me, or I ran. Hence the homelessness. I wonder, at times like this, if it was worth running if this is where I have run to? I have sacrificed so much following a dream of a life without violence or abuse, when that dream evades me like the end of the rainbow. There’s a scream in my chest that’s so loud it would tear the world in two. Not only for me, but for all those like me. The ones I’ve outlived, and the ones who live maimed by memories of torture and terror. Why run, if there is no safety? Because you cannot stay without imbibing the belief that you deserve this. That they are right, that you are perverted, pathetic, vile. That the world would be better off without you. When I ran, when I lost everything, I gained back the self respect that denies all those claims.

I don’t know what I’m going to do yet. My options are limited. Both Housing SA and the police have been involved, neither are offering me answers. I am vulnerable, and I am hated by some people, for things I cannot change or help, for things I do not wish to conceal, for things about myself that are not flaws or failings or perversions. This used to be my whole world, growing up. Now it’s a vicious corner of my universe. Those invited into my world love and respect me. It’s the uninvited who are doing the poisoning.

Rose and I are reeling, quietly. Hurt, scared, stressed. I’ve a lot of face painting coming up, which will be a welcome relief from thinking about this. Making kids happy – there’s no better thing. Admin is on hold, plans of all kinds are on hold. I’m just putting one foot in front of the other. I need to eat, Zoe needs a walk, I need a shower. I feel dead. On the phone to lifeline last night I moved out of hysterical and into numb. They were pleased and moved on to more urgent cases. In my mind I’m back at school again and I can’t escape, back in relationships that terrified me. In my mind I feel the despair settling in – that nothing works out for me, that everything falls apart, that there is no real hope.

There’ll be a way through this, somehow. I’m creative and resilient and I have much better networks these days, friends who care, counselors. But I think that dream of reaching a safe place some day, I think that’s gone. Nowhere is ever really safe like that. And that feeling – it’s like being profoundly homesick. The loss of that dream aches so badly, like a child longing for a home that has burned.

Looking for self compassion

A few hours ago, I was sitting on the floor of my psychologist’s office, choking on tears as I talked about what it felt to like to want to hurt myself. Something that started at 10 as a way of escaping the unrelenting misery of my experiences at school has stayed with me throughout life. My longest stretch without cutting or burning myself is 8 years. I was devastated when I fell off that wagon, and even more so to realise that for me, denying the impulse does not stop me wanting it. A desire that divides people immediately – those who simply cannot grasp the sense of need, the intensity of the urge, and those who have felt it too. It’s difficult to explain to anyone who hasn’t been there.

I remember the first time I went and bought blades. The build up was appalling. I was in year 12, under massive pressure, with no opportunity to find emotional support. I had PTSD but had been offered no treatment and no possibility for recovery. That day I walked to the newsagents and I didn’t feel broken by pain. I felt powerful, I floated. I had found another way out of the trap, of the pain of bullying and loneliness and alienation, of being forced to spend hours a day in a place I hated, where I felt without value, where I longed at times for the physical abuse because at least that left a mark I could show. At least that garnered a response from the adults. I couldn’t escape my situation, but I stumbled onto a way out where my body stayed but I broke out of the rules instead. The rules about decorum and what is appropriate, about how to live and what to value and that the little people must learn to ‘take it’. Alone at night my body became my thing again, mine to do with as I chose, to use as an instrument on which to play out my pain, to prove my agony. I felt powerful and defiant. I felt less suicidal. It was a way to stay, to settle into the trap and obey the path I’d been given to walk. I felt above pain.

There have been days when I wake up and look at my wrists and feel so revolted by myself, such intense shame and self loathing that self harm is not enough, I want to annihilate myself entirely. There are days my wrists feel so naked and vulnerable, shivering before my rage, that I have to cover them. I wear sleeves or gloves or cuffs. I sit and find my fingers stroking stroking stroking the skin, like you stroke a distressed child or a hurt animal – it’s okay, it’s okay, it’s okay, I won’t hurt you. There are days when I see self harm marks on someone else and there’s such a leap of longing inside me, such desperation – ‘how come they get to do it?’ ‘How come they can be hurt and they are still loved?’ And then I feel so very small, and ugly, and alone.

I’m so tired of the struggle. I’m tired of the shame. Trying to walk carefully around the things that trigger the impulse, trying to find other ways to ease the pain. I sat on the floor today and talked about what it was like to be at school, what it was like to be so desperate to escape it that at 10 years old I was bashing my writing hand with a brick so that I wouldn’t have to go in. “It’s still so raw” she said to me. Yes.

Somewhere, between a house to live in, and pets and friends and a garden and a wonderful girlfriend, I feel like I’ve lost the rights to my own pain. How can I paint scenes of anguish and despair now? How can I write? Too many confidences to betray. Too many people looking to me to see if it’s possible for life to get better. So instead, there’s the longing for blood, the need to see scars, to prove pain, to connect to it and disconnect from it. To find a way not to drown in the pit of self hatred. I’ve lived my hell in the daylight, in a world oblivious to it. “You survived” she said to me. “Parts of me died!” I snarled. “Things were taken from me they had no right to take.” Nothing makes up for that.

There’s good days. There’s so many good days, things I’m excited about, new hopes and dreams. How quickly we begin to speak the language of the daylight, to conceal the wounds, to deny the pain that lingers. I’m trying to listen. I’m still here. I’m looking for self compassion beneath the fear. I don’t want to go down. I need a better way through this. I’m looking. Ink, not blood.

Bullying

I follow The Blogess who recently linked to a post about bullying and self harm on EPBOT. The word poem moved me particularly.

I was bullied at school. A lot. I’m a connoisseur of bullying, I’ve been bullied by girls and boys, by peers and teachers, by lone individuals and whole groups, by kids who saw me every day and kids who’d never met me before, by the wealthy privileged kids with power, and by the alienated loners who were victims themselves.

The very word bullying bothers me a great deal, because it is so innocuous. It has no impact. What would be assault or abuse in another context becomes bullying if it happens on school grounds.

People like the big stories. The time this or that happened. They are the stories we tell when we talk about bullying. There’s a hierarchy of horror – sexual, physical, emotional. I have those stories. But they’re not what did the damage. Kids are resilient, surprisingly so. They get through big impact crap if they’ve got support. The boring story of my bullying, the ugliest and most damaging side of it was simply the alienation. The sheer, relentless loneliness. The daily rejection by my peers. It wasn’t the presence of the abuse that left such scars, as much as the absence of friends and care. It was being forced to spend days in a place where I had no value that eroded my spirit. I hated myself, I hated my situation, I hated the bullies, I hated the bystanders. Everything hurt and there was no escape. I spent hours sitting by the fence with my fingers laced through the wire, knowing that more than a fence stood between me and freedom. A whole society that believes in schooling the way we do, a whole culture that calls what was being done to me ‘bullying’, a whole school that fervently believed that it did not have any bullying there, a world in which hurting the principal was wrong but hurting me was fair game, stood between me and escape.

I suffered, and my whole world denied the reality of that suffering. While adults lectured us about the evils of drugs and sex, I was dying of loneliness.

It stays with you. The impact lingers long. It takes courage and faith to believe they were wrong.

It also, perhaps, takes a modicum of common sense and cynicism to realise that sometimes the most interesting, brilliant, and unusual, the ones we fear or don’t understand, or envy, are the ones we torture.

More thoughts on bullying and empathy.

Should we be afraid of mental illness?

Being a peer worker in mental health I’m often caught in a certain tension between the reality of my own experiences, and the ‘party line’ I often feel a certain pressure to toe. One of the areas this occurs in is the many current efforts to reduce the stigma associated with mental illness.

A couple of years ago I listened to a presentation about research and psychosis that was very interesting. After the talk, I asked the presenter what I, as a ‘consumer’ could do to help. He told me that research indicated that stigma reduction campaigns that relied on increased education actually often backfired. Giving people more information about the nature of experiences such as psychosis sometimes just gave people more information about something they were already really frightened of. What did help was humanising these experiences. Putting a face to these conditions helped people to see that we are still human, that we are deserving of care and dignity, and there is so much more to us than ‘illness’. This conversation was one of the motivations for my passion for peer work.

Currently I’ve been aware of an attitude I feel I’m supposed to express, along the lines of “Mental illness is nothing to be afraid of”. Slogans like this are really difficult to get right, because you are trying to sum up a huge concept and idea into a phrase. This is like trying to communicate advanced physics concepts through haiku. It takes rare talent!

I get where this idea is coming from.

I just find it difficult to subscribe to.

I live in a funny corner of the world where most of my personal networks are peopled with people who experience, or support someone who experiences, a mental illness. In my world, issues are the norm. This is cool, I prefer it. I fit in, I get the people, we speak our own shorthand language, complain about sleep deprivation, are sensitive about touch, navigate life with a painful awareness of our own vulnerabilities. I get that the idea of telling people not to be scared is what I’m trying to communicate when I give mental health talks and say – so, guess what, I have multiple personalities and none of them are axe murderers! It’s what I’m trying to say when I give talks about voice hearing and try to get across the message that we are not some strange, terrifying, alien species; we are regular folk, who happen to hear voices. What we’re all trying to say with messages like this is that common myths about violence, insanity, psychopathy, do us harm. They’re needless and harmful fears. They alienate and damage whole groups of our communities, leaving them alone with their demons, without help or comfort. Mental illness is nothing to be afraid of.

Here’s the other side though, I know what it’s like to be suicidal, constantly, deeply, permanently thinking of death. I know what it’s like to be afraid of myself. I know the shame of waking up and finding fresh self harm wounds. I know the misery of panic attacks, of ‘ugly days’, of ‘non-food’ days. I care deeply for others who battle things like this. I’ve been the full time carer of someone who spent 6 months in hospital in a state of intense emotional distress and a constant drive to die. I’ve cared for friends who cut, or starve, who hate themselves, who experience paralyzing depressions, horrific trauma stress, chronic nightmares… To tell you the truth, ‘mental illness’ our strange, impersonal term for so much hurt and suffering, scares the hell out of me. I don’t want it, and I don’t wish it on any of the wonderful people I care about. Watching people you love suffer, watching the cycles, the decent into their own personal hell, it’s terrifying, and it’s painful.

Here’s the thing, the people are nothing to be afraid of. They’re still people. If they were assholes before, I doubt that a mental illness has improved matters. If they were decent people, in many cases it makes them difficult to live with, but not dangerous. There’s nothing to fear from them. There’s much to fear for them. And even there – there’s hope. There’s paths through these things. There’s ways to reduce their impact, to limit their capacity to destroy lives. People change, grow, heal. It’s not a life sentence. Mental illness isn’t the grave of all our dreams for our lives.

But people suffer. And people die. You can’t work in this field and not be aware of it. The situations some families are living in is horrifying. When we paint a rosy image, when we put photos of calm, happy, beautiful people on our banners and pamphlets and say – mental illness is nothing to be afraid of, we deny the reality of a lot of people who are suffering terribly. Their pain is devastating and it is something to be afraid of. Not the kind of fear that paralyses, the kind that makes us speak up about better resources. The kind that makes us research our options, get help early and get good help, look after ourselves, stay connected with our mates, fight stigma and discrimination, count our blessings.

People are suffering, and people are dying. I think it’s okay to be afraid of this. I think that in the face of this fear, we chose to act and live with courage.

Quietness

This morning I remember things I had forgotten. I remember that when we are hurting, and try to be strong, everything becomes brittle, frantic, and broken. I remember that fears we are too afraid to voice, those that stick in the throat like fishbones, they tears holes in us, through which strength bleeds. I remember that if I do not try to hold off the storm, but bow before it, speaking truths that burn my throat and blister my tongue, then it passes. It passes and I find mornings like this. Waking late, to a white sky and the wind gentle plaiting and unplaiting the slender branches of the tree outside my window. My hands feel like doves, laid gently by my face in rest, in my lap in wakefulness. There’s silence and thoughtfulness, my mind moves gently like a woman combing the beach after a storm, lifting a shell here, a branch of wood for the fire. I drink tea and eat porridge, and in their simpleness there is a peace. No more the screaming excesses. The burden has passed, the pain has eased.

Today I shall do what I can and no more. I shall work with my hands to make my world whole, to sew up the tears and sweep out the shadows that cloy at the mind. I had a nightmare, and it came over my face and my eyes, it screamed and would not stop screaming. I screamed within it and my world went dark, full of fire and fear. It bound me a future I could not bear, to a fate that twisted me, a destiny that compelled me to become a twisted thing. Such is the burden of those who have been wounded as I have, such are the shadows that follow at our heels. When we name them truly, they run from us, for a time. Today I can see clearly. There’s a wind in my soul, a peace in my heart. All is as it should be. I rest my heart in the hollow of the hill.

It’s all happening!

College has started again (my Bachelor degree in Visual Arts and Design), the Cert 3 in Microbusiness Operations has started, and everything is moving fast. I’m a week into being off a med I’ve been on for over ten years and so far my head is still attached which is a good sign.

The People Painting business is coming along in leaps and bounds. I’ve started a blog on that website where I’ll now be posting my pictures and information about upcoming events. Check it out at sarahkreece.wordpress.com. The training on one-stroke techniques was really interesting and I’ll be posting pictures about that soon there too.

The microbusiness cert is interesting and relevant and starts painfully early in the morning which is killing my sleep routines. Nonetheless, very much worth it and thrilling to access it free on the Skills for All scheme.

College is jaw droppingly awesome and my little heart is singing to be back again. I hit major issues with the timetable and wound up shifting a class and dropping one class. I just can’t pull off three classes and the microbusiness at the same time. As it is, tomorrow I will start study at 9:30am with the Microbusiness course, work through to 4:30pm, run off to college to start my Digital Media class at 5pm, and finish up for the day at 8:30pm. So I’m going to be moving very slowly and being very careful with my sleep and energy this week.

The classes I’m taking are Digital Media and Art History. Digital Media is tempting me tremendously as a possible major, the opportunities to play and create are awesome! I’m in love with it all. I also adore handing in a journal that is actually a Tumblr account… go and join me there at sarahsdigimedia if you’re interested.

I’ve also been working hard on new resources for the DI… and the new website is starting to look smart. Have a look at dissociativeinitiative.wordpress.com. This year one of my major goals is turning Bridges into a day/evening group on alternating weeks – we have a number of people keen to participate in the group who have found that working 9-5 excludes them. We are in talks at the moment and things are looking very promising to be able to make this change very soon!

Stay tuned! 🙂

Safe Sex 4. Take Your Time

There’s a lot of skills involved in the process of making sex emotionally safer, particularly for those of us who have experienced relationship violence, or sexual abuse, or emotional abuse about our appearance or bodies. We need to learn how we work, what we need, where our own limits are. It’s a process of trial and error to find the line between anxiety that’s background noise and anxiety that needs attending to. It also takes time to learn how to communicate about things like ‘please don’t touch me that way, I like to be touched like this’ or how you can best be supported during a flashback. It takes time to learn how to communicate about your needs and preferences. There’s often pressure to ‘finish what we start’, but when there’s stress about sex this pressure isn’t helpful. Building all this self awareness, ability to communicate, and sensitivity to your partner takes time, attention, thoughtfulness, and dedication. 

Breaking the experience down into smaller components can help to keep the stress manageable. So you have a partner and you’re both keen to have sex but one or both of you is really stressed. Moving very slowly gives you both time to get used to each other, to take in the experience, to learn what is and isn’t enjoyable. Maybe you start with massages or with sleepovers in pajamas. One night there’s some skin to skin contact, hugs and kisses. Another night there’s nakedness. No sex, just nakedness. Getting comfortable with each other, with being seen, with seeing. Maybe you shower or bathe together, or cuddle under a blanket and watch a movie. Maybe you ask what they think of your body, or show them your scars and tell the stories about them. You experience intimacy as safe, as something you control, where you have rights, where your feelings count, where nobody makes you do anything you don’t want to, where nobody treats you with anything less than respect and care.

You also have a chance to see how you and your partner cope in the charged space of physical intimacy. Some people don’t handle this space well, it’s intense and deeply personal and they’re not comfortable with it. Sometimes otherwise decent and caring people react badly in this space, they snipe about you or belittle you or intimidate you or pressure you. Sometimes you may find that you are not handling it well and are doing or saying things you wouldn’t otherwise. Moving slowly gives you both a chance to see how safe you are about sex. It gives you time to see whether you can handle their anxiety graciously or if you get angry with them about it. It gives you time to see if they are safe to be naked and vulnerable with or if they will make humiliating remarks about your body. It also gives you an opportunity to see how well your communication, negotiation, and boundary setting skills hold up. Sometimes you find that you may have a superb skill in one area of your life that seems to go completely missing in another area.

There are some dumb ideas about sex floating around many cultures. One of them is the idea that you are innately good or bad at sex. You find someone, have sex to see what it’s like, and are either excited or disappointed by it and nothing can be done about that. New couples are often under pressure to have sex and share the details with friends. Newlyweds in many cultures are expected to go from minimal physical contact to sex overnight, with little to no education or support or chance to become comfortable with each other. Sex that is safe, loving, enjoyable, and fun takes skills, and skills take time to create. It takes time to learn the needs of a partner, and it takes maturity to be a safe and sensitive partner. Sometimes there’s a gap between how we want to be and the skills we currently have. We love the idea of being caring and supportive about our partners physical disability, but we’re scared to death we’ll do or say something wrong and instead come across as defensive and uncaring.

Time isn’t seen as sexy in our culture but it can be just what you need to blossom into a wonderful sexual partner, and to make sure the person you’re thinking of having sex with is safe and trustworthy. There’s actually something deeply erotic about languid afternoons in bed giving massages and talking through things that make you nervous without any pressure. When you prepare the context so well, sex when it blossoms can be amazing.

Time can help make things safer, but there’s also a place for jumping in and I don’t want anyone to think I’m judging those who find that approach empowering. Sometimes the opposite helps us, there’s a wall of terror between us and sex. Some of us dismantle it brick by brick, some of us pole-vault it. Whatever helps you navigate your stress is a good idea, with two caveats – that you’re not setting yourself up for bad experiences (see, I knew all women were heartless, or men are brutes, or whatever), and that you’re not harming anyone. My observation has been that even those who find pole vaulting more to their nature often need to come back and kick a few bricks out of that wall at some point. It’s much easier to have sex without the hangups that stress us out, than it is to keep having to find ways around them. Give yourself permission to take your time to make sex safer and as the things that are stressing you get resolved sex can feel less like a 3 mile crawl through barbed wire on the promise of something better up ahead, and more like a soaring inside, a desire that calls you on and draws you towards another person.

This article is part of a series about emotionally safer sex. Try also reading

Safe Sex 3. Bringing down the Stakes

If stress or anxiety about sex is intense, then ignoring that and going ahead anyway can make sex emotionally unsafe. The stakes are very high under these circumstances. Some stress is okay, it can co-exist. Loads pulls you into a place where you’re not listening to yourself or keeping yourself safe when all your internal sirens are screaming. You may be safe – with a loving person you trust, in a beautiful safe environment, in a situation where you are very keen to have sex such as a night away you’ve been planning together. But if you’re screaming with distress inside and not doing anything to settle that, you’re at risk of blowing your circuits – whether that’s through a big overload like a panic attack, short circuiting through major dissociation and numbing, or a subtle effect such as exhaustion from working so hard to suppress such strong emotions so often. Being overwhelmed emotionally makes it harder to connect with and be sensitive to your partner, and often more difficult to focus on the moment and feel pleasure. Anything that is experienced as a failure to protect yourself or a betrayal of yourself is risky.

What brings down the stakes? It depends on what things are driving your anxiety. It might be one thing or a whole knot of them. A lot of what drives up the stakes in sex are when we are using it to answer a whole bunch of questions about our lives – Am I too damaged to have sex? Are they really attracted to me? Is our relationship on the rocks? If I really want it does that make me a slut? Does not liking this particular thing mean I’m weird? Am I ugly? Marty Klein goes into this in excellent detail in his book Sexual Intelligence. His assertion is that sex is about pleasure and closeness. Everything else you can’t answer through sex – you have to work it out in your head, with your shrink, a good friend, or by talking it through with your partner. You bring down the stakes and help sex to be safe by getting back to those two things – pleasure and closeness – and clearing the rest of the clutter out of the way.We stop having sex, or wind up having sex that doesn’t feel safe or good when the stakes are too high. If you’re terrified your partner won’t like your body, or won’t be comfortable with your disability, or will be hurt if you ask them to stop, or might have a panic attack… if there’s a whole bunch of ways you feel like you could ‘fail’ at sex, and the outcome would be really painful – rejection, distance, an argument, embarrassment, then sex is scary. It doesn’t take many of these experiences to shut us down. People are left thinking longingly about how wonderful sex might be, but bitten once and twice shy about how painful it can also be. Even between caring partners, when the stakes are high, sex can be lonely, depressing, humiliating, and miserable.

Part of what’s raising the stakes is this idea of failure. Sex is not a sport. You don’t win or lose at it. This is another area Klein explores in his book, and something I found very useful to think about. It’s worth thinking your ideas about what sex is ‘supposed to be’, and what ‘failure’ means to you. If you can expand the first category, and collapse the second, you bring down the stakes. If there’s lots of ways sex can happen that are good outcomes, and the idea of failure is reduced to the Big Deal stuff – coercion, manipulation, belittling, cruelty, then sex becomes a whole lot safer. If you can’t fail through any of the things that make you anxious about sex – your appearance, ‘performance’, confidence, stamina, and so on, sex can become something fun to explore instead of a stressful ‘moment of truth’ where you succeed or fail. If you can’t fail (because you’re not about to harm your partner) then sex isn’t risky. You can go chasing that good feeling and that closeness, and however it works out it will be okay. The stakes are back to something manageable and the outcome isn’t so potentially frightening.

This has been a helpful concept for me, and now whenever my anxiety spikes I think about what’s raising the stakes for me and what I can do to bring them down. Some really helpful conversations have come out of this and I’ve been able to ease that frozen place inside me and find lightness and joy. Bringing down the stakes feels like being able to breathe again, being able to fly again. It brings me closer to delight and helps me to nest sex into a space that is very safe, very intimate, beautiful and fun.

This article is part of a series about emotionally safer sex. Try also reading

 

Business growth and other news :)

I have started a new facebook page for my People Painting business! Come and look and like it here. I’ve been posting pictures of my work, especially those of my own designs such as this lovely glove:

Things are moving on the business front! I am currently studying a Cert 3 in Microbusiness Operations through Learning Potential International as part of the Skills for All program. This course has been designed to help people with some kind of disability to turn a hobby into a home business. I’m learning a lot, making some new friends, and spending a lot of hours thinking and planning my business. There are some areas (paperwork, record keeping, and suchlike) that I’m really struggling with, and others (marketing, social media, customer relations) that I feel a lot more comfortable with and inspired about! We’ve just finished three full days with early mornings and a bit of warm weather and today I am a bit trashed. The next block of  classes isn’t for a fortnight but it will be interesting as I’ll also be starting my college classes for the B. Visual Arts and Design by then too, and this term I’m trialing doing three classes at once which is the most I have ever tried to do since I first became really sick back in 2003. I’m nervous and excited and spending my days off mostly in bed feeling like my skull is shrinking and crushing my brain, and watching episodes of Would I lie to you? on Youtube.

I have two People Painting events booked, I’ve made some great contacts in the local face painting industry, have found an inexpensive class to upskill my one-stroke techniques (I’m not expecting you all to follow that, it’s a body painting thingamy), and I’m also booked in to deliver a (voluntary) presentation about Dissociation and DID to a local group of mental health staff. This all makes me very happy.

On the scary front, I’m just starting a trial of not taking one of the meds I’ve been on for the past ten years, so that my doctor and I can assess how it’s been affecting me and how my illness has progressed in that time. This is rather nerve wracking and may turn out to be wonderful and clear up frustrating side effects, or may leave me curled up in bed crippled with pain. Only one way to find out!

I am hoping to find a Cert IV Training and Assessing course through the Skills for All program later this year to add to my skills base/resume as a Mental Health Peer Worker and Consultant. I’m also keeping my ear to the ground about a proposal by Shine SA to develop a new course about healthy sex/uality specifically for people with a mental illness that sounds very exciting.

The rest of the time, sleep and study are high on the agenda. Looking forward to autumn and cooler weather,  and hoping to find a new and better home for my lovely dog Zoe very soon. 

Safe Sex 2. Expectations

You don’t need to have a completely perfect stage set for sex to be safe. There can be awkwardness, embarrassment, anxiety, body memories, little flashbacks, all going on like background noise. It’s okay to be aware of them and still be following that thread of desire. You don’t need a completely empty mind, free of memories or triggers to have sex that feels safe, loving, intimate, joyful, and amazing. These things can all co-exist. I think a lot of us trauma survivors don’t get this idea. We feel – dirty – damaged – soiled. We think to have good sex we have to get back to something resembling ‘purity’. We work very hard on ourselves hoping to get to a place where we have eradicated our past. It’s devastating when it intrudes.

It doesn’t need to be like this. Ever had great sex while you were injured in some way? A twisted ankle or stitched up hand or just an elbow that was protesting because you’ve been leaning on it for too long? There was pain – in the background – not intense pain like a migraine or calf muscle cramping, but there and present. Then there was also pleasure, in the foreground, consuming your attention. They can co-exist. I live with a chronic pain condition so this something I really understand. It’s the same with emotional pain, with memories and anxiety. If they’re not intense they can be background noise. If they become intense, they need some attention.

The form this attention takes might be as simple as changing what you’re doing because the anxiety has become high or body memories have become strong and confusing. I get this problem, sometimes they’re so intense that I can’t work out anymore what’s happening now and what is just a memory. (or to use the clinical terms – a tactile hallucination) So I move away from touch in that area and find somewhere else that feels nice to have touched. Sometimes those of us who struggle with stress about sex find that some things are higher risk than others – things that make you feel exposed, or feel trapped, or new things that make you feel uncertain and so on. Sometimes you may find that there are certain positions, acts, and locations that can become your safer sex to retreat back to if you’ve tried something else and become stressed.

Sometimes it means pausing for a little while to settle whatever has been stirred up. This isn’t a bad thing – it’s a chance for healing. Having feelings and memories come to the surface gives you a chance to address them and to break cycles of ignoring and depriving yourself. This time everything stops the moment you want it to. This time you can ask for non-sexual contact while you settle. This time you wont be hurt, ignored, or abused. Maybe you realise that a certain touch is making you struggle, or that the music on the radio is triggering you.  If your stress isn’t about abuse, this is a chance for growth. You have a clash between some things you believe (such as sex has to be perfect, or that you are ugly, or that you’re not good at sex, or that you’ll be rejected by your partner) and what you want to experience. You’re giving yourself a chance to develop a different way of approaching sex and navigating the stress. Maybe you sit together and talk for a bit. Maybe you put things aside for that night, or only for 20 minutes while you settle. Maybe you go watch a DVD or find some icecream in the freezer. There’s no rule that says sex has to happen all within a certain time frame. There’s nothing wrong with breaks to get something to drink, empty your bladder, change the CD, find a snack, have a giggle or a cry, get a hug, and start again later. This whole experience is intimacy, safety, and care. Our culture has a very crude idea of what constitutes sex, but it doesn’t have to be broken up into a single act like that. Sex can be woven through the whole evening, it can be the back rub when you have a cry, it can be your partner ducking to the shops for a new packet of condoms, it can be you understanding that a shower will help them feel more comfortable or that keeping a sheet over them will make them feel safer. It doesn’t have to be perfect to be safe and wonderful. You don’t need a perfect body, you don’t need ‘movie sex’ where no one gets the giggles, or drops anything, or farts, or needs to rush off for a pee, you don’t need an entirely clear mind. You can have trauma issues, anxiety, and all kinds of mental health challenges that may certainly complicate sex as well as the rest of your life, but if you can make a space in your mind to accept that your sex life will include having a panic or needing to stop or lots of showers etc and that is okay! then you can work to create a safe space to have a  good sex life.

This is part of a series of posts about emotionally safer sex.

Body painting stencils

I’ve been curious about using stencils to paint on skin and decided yesterday to stop over at my favourite face painting shop Kool4Kats and try a couple out. I came home with two mini Bad Ass stencils:

 Using a small sponge and keeping it fairly dry, the stencils come up like this on the skin:

It takes a little practice to get the paint quantity correct – too much and you smudge the design, too little and you don’t transfer any paint. A smaller sponge helps with controlling exactly where the paint goes too. Here’s both stencils used over a solid colour base:

The reptile skin design is very versatile, could be used to add texture to butterfly wings and many animal mask designs.

 The floral stencil was trickier to master due to such tiny cut outs, but the effect is superb! I would not want to be whipping this out for very busy parties or markets, it does take time to let the underpaint dry, and hold the stencil still particularly around curves on the body. If I have time however, this makes for excellent lace, wings, and gives a velvet brocade effect if painted over a lighter or darker tone of the same colour (light/dark pink for example).

 I’m looking forward to playing more with them, it’s been a fun day of painting today and I’m feeling inspired and excited!

Safe sex 1. Checking In

I want to put aside for a moment the important considerations of STI’s, unwanted pregnancy and so on, and share for a moment some thoughts about making sex emotionally safe. I find myself having a lot of conversations about sex at the moment, partly because I’m very frustrated by the lack of these conversations in mental health! I’m not some kind of expert. I’m certainly not someone who has everything together. In fact, my knowledge base and my passion for this topic comes from being a person who’s had some terrible sexual experiences, huge distress about my own sexuality and identity, and who has big struggles in this area. I’ve gone into sexual health counselling to get support through accepting myself, coming out, learning how to navigate my distress, and my first gay relationship. I’ve very carefully ended many years of voluntary celibacy because I finally felt that I had enough tools and had done enough work for this to be a positive experience. I’ve read a lot of books and done a lot of talking and thinking. I’ve also done a lot of listening and what I’m hearing distresses me.

I’m hearing a lot of confusion, pain, grief, and resignation. I’m hearing people who do not believe it is possible to ever have good sex after rape or abuse. I’m hearing people who do not believe sex can be anything other than a manic, shame-based compulsion. I’m hearing massive anxiety about how to communicate about sexual things or during sex. I’m hearing people who feel stuck with sex that is empty, painful, lonely, violent, or emotionally abusive. I’m hearing people who feel broken, scared, ashamed, repulsed by themselves or their desires. People who feel rejected, guilty, beholden, that they ‘owe’ sex to their partner, and that they are failures. I’m hearing people for whom sex is a secret topic of personal torment and misery.

So I want to talk about it. I want it not to be secret anymore. I want to challenge the mental health system that pretends these are not important issues for us. I want to challenge those terrible fears that for such as we, the ruined ones, there is no possibility of a healthy sex life. When I’ve talked about the idea of emotionally safe sex, I’ve had people tell me there is no such thing. This breaks my heart. I want to tell people this is not true.

I’ve done a lot of thinking about the ways I’ve worked to make sex emotionally safer for me. I’ve been able to come up with a specific set of ideas I want to share in case they’re useful to someone else. There’s a few of them so I’ll break them up into different posts. The very first one is how you make the call that you’re going to have sex.

1. Checking In
Think about the ways you’re assessing whether you have sex. You’re checking in with yourself, noticing how the idea makes you feel. You’re probably asking yourself questions inside your mind. This is a great process to use to work out what you do and don’t want. For some of us, this process of checking in with ourselves is quite long and thought through. For others of us, it’s a split second instinctive glance at some internal alarms just long enough to notice that none of them seem to be screaming. For some of us, we’ve been trained through trauma or abuse that our needs, wishes, and preferences don’t matter, so we’ve never really developed the skill to do this check in with ourselves in the first place.

Babette Rosthchild’s book 8 Keys to Safe Trauma Recovery has a chapter about developing this kind of check in skill to help you make decisions. If you’re feeling in the dark about this skill you can borrow it from many libraries including my own. For those of us who have some capacity to do this, I’d still suggesting fine tuning the process a bit. For example, if you’re trying to decide if you want to have sex, try picturing in your mind the details of your choices – in this place, with this person, in this way, and see how it makes you feel.

Pay attention to the kinds of questions you may ask yourself during this check in. I noticed a little while ago that my standard internal question when making this decision was ‘Can I handle this?’ – a question clearly born out of my own trauma history. Answering ‘yes’ to this question does not make sex safe! It doesn’t mean I want to be involved, doesn’t mean I will enjoy it! In fact it’s a set up for high risk sex – the kind that often leaves me feeling lonely, scared, or empty, even with a loving partner. I’ve changed this question now – to ‘What do I feel like?’ I may be feeling anxious but there’s also that impulse to kiss that soft skin in the fold of their elbow, or that hope that they’ll take off my top. If the anxiety is low I can follow these impulses.

The questions you ask yourself are a powerful way to set you up for safe sex or risky sex. Learning to check in with yourself is also part of how we follow our own pleasure. It’s not something to be done once at the start of things, it’s an ongoing process of listening to ourselves and noticing what we do and don’t want or like. People who are stressed about sex can be so numbed, so anxious, so overwhelmed by what’s going on in their mind that they can’t feel what’s happening in their body. Checking in is about noticing that this kind of touch makes your skin tingle, or that your knee is starting to get achy and needs to be shifted. Being focused on your feelings is how you will discover what you like. It’s a good skill to work on.

Checking in only really works for us if we have the ability to follow what we want and need. If we know we don’t want something but we can’t say no, there’s a miserable sense of betrayal and failure that only adds distress to a situation we didn’t want in the first place. It takes strength and commitment to notice how we feel and act on it – whether that’s saying “I don’t feel like this”, or saying “You look amazing tonight, can I kiss you?”. But it all starts with connecting to yourself and noticing how you’re feeling, and asking yourself what you feel like. It’s also really important to check in with your partner and find out where they are at, even if you are ‘the one with the problem’ in your relationship.

This article is part of a series about emotionally safer sex. Try also reading

Coming home

Back from the holiday and trying to find some equilibrium  The last day was lovely, wandering about Sydney, a ferry ride under the harbor bridge, chocolates to take home. The flight back was beautiful, we skirted the storm. Clouds lay out beneath the plane like a fresh, wrinkled fleece. Out in the north, massive thunderhead clouds rose like huge anvils into the sky. I spent the entire flight watching them burst with lightning, and writing down ideas for paintings. Inspiration at last.

I haven’t made any art for months. Something is wrong when this happens. I’m poisoned by something in my life, or I’m starving for something I need. Just one day in the rain, free and flying with my heart open filled me with joy and new ideas. I’m not spending enough time in Narnia. Too much grief, too much time in the world. Not enough flying.

Coming home was painful. My house feels, not like a home, but like a trap. My life choices hurt, chafe, cut, bite into skin. Everything is difficult. There is so much I must do and it is all so difficult. On the train from Newcastle, in the tiny sewer-stinking toilet, the old scars on my wrist catch the light and I suddenly want a matching set on my other wrist. Grief catches in my throat. The first day home and working on urgent admin – phone calls, emails, enrolling in tafe classes, I’m three hours in before the sense of self loathing kicks in so strong it’s like a punch to the gut. It’s like coming home to find mental illness waiting for me. My life hurts.

So I take a step back from the edge. I spend time alone. I read. My cat comes and cuddles up to me for the first time in months and it feels like a blessing. I watch the rain. I go and buy big canvases from the art shop, hoping the inspiration wont leave, wont collapse, hoping the strength will stay long enough that I can paint. I move slowly, I’m silent, even in my mind, silent. Letting thoughts flow through me very slowly, very quietly. Waiting in the stillness for the pain and sadness to ease, for the joy to settle. For clarity and hope.

I’m working on a set of blog posts about sex which are important to me but very difficult to write. My blog post about it has reached a few thousand words so I’ve decided to break it up into parts. Some days I can think clearly to write and others I edit and rewrite endlessly. I’ve also been revamping the blog, adding new pages, changing the colour scheme. There’s more to be done but I’m happy with the progress so far. I’m also planning to upgrade the DI website which is painfully out of date. I was too busy to keep up with it last year but I’ve a little window now to get some more work done on it. My facepainting page on my wordpress blog is looking good too, although the rest of that site is mostly empty. It’s all a lot of work. Little bits at a time. 

I’m in love

I’ve had the most wonderful day. It’s been cool and rainy here in Newcastle, much more to my tastes. I am sleeping on the top bunk on the second floor, by a large open window with no screen or bars. There’s no bars on the bed either, nothing to stop me rolling out, falling through the window and down to the pavement below. Which gives me the shivers, but is also wonderfully like sleeping in a tree house, all breezy and up among the lovely tropical foliage. I lay in my bunk at night and watch the stars and city lights and rain and the trees dancing in the wind. Not far is the sea, just a brief walk, and I can smell it and feel the salt in the air. In the mornings it’s very warm and still, and I can’t sleep for the light coming in and the heat. But this morning it was perfect, cool, raining, breezy. I lay under my sheet, waking from nightmares to watch the rain falling through the trees, sleeping and waking and sleeping.

My beloved is napping now with her head in my lap as we rest in the lounge at the backpackers. Today we went again to visit her elderly relative for lunch, and it was sad for her. It’s always painful to see someone you love ill, or old, to be aware of time passing, of mortality, of the cruelty of distance and the inadequacy of words. There’s always so much to say and no words to say it. I’ve been here with my beloved grandma who died a few years ago. I can sit with this sadness, I know how to bear it, how to stay present with it. There’s so much beauty in it, joy within pain, love beneath sorrow. Such a simple thing it is, to be present.

Then we visited the Newcastle art gallery, and were lucky enough to stumble into an exhibition of Oscar Wilde’s The Nightingale and the Rose by Del Kathryn Barton. It was stunning. I spent an hour in front of the huge, intricately painted canvases, trying to shelter that tiny flame of inspiration that lit in me. I find it so hard to keep believing in myself, in art, in the value of my work, in the possibility of success. One of my greatest limitations as an artist is my lack of confidence. Strangely enough, the cause of this; poverty, hardship, is also one of my great strengths as an artist; I have experienced so much and have so much to say. I’m also painfully afraid of the times I shut down and can’t create art, and terribly impatient with myself.

This exhibition was an artists response to a work of writing, something I’ve often thought of doing. The size of the paintings was powerful, and the technique; combining inks, paint and watercolors, was appealing. I was very taken by it all, and found myself blossoming with hope, that if she can make such splendid works, I can also. I’m excited about my projects planned for this year. I so want to keep that tiny sense of hope alive, it dies so easily in me and then everything is such a struggle. I bought a beautiful big art book of the exhibition to take home and display, hoping to keep this feeling alive. Others have walked this road. It is possible.

Once the gallery closed, we sheltered under the eaves on the doorstep and picnicked on snacks and talked about life and cried a little and held each others hands. Then we walked until we found a lovely Vietnamese restaurant and ate prawns and red rice and soft shell crab. It rained and we wandered the streets in it, finding paths around puddles, water shining in our hair. Night fell as we walked.

Sometimes there were loud groups of drunk guys or someone hassling passerbys for money and we stopped holding hands and walked faster. My part who handles violence comes out, walks tall. ‘We won’t be easy victims, leave us be.’ Nothing happens. My girlfriend and I have a rule that either of us can stop holding hands (or anything else that clearly marks us as a gay couple) if we feel unsafe in public, no argument, no recriminations.

We find a store that’s open, and buy exotic icecream; filled with brownies and cookie dough. Back at the hostel, we lay about on a big couch in the lounge, legs tangled, reading Sabriel to each other, sharing the icecream and enjoying the freedom to be a couple in a public space and feel safe and accepted. We laugh and play and talk. It’s so sweet, sweet to be in love.

I’m off On a Holiday!

I’m writing to you tonight from the top bunk of my room in Newcastle. I’m thrilled. My girlfriend and I are on a trip to visit some of her people and have a break from the heat and illness that have taken up a lot of the start this year for us… So ironically enough, at around 2am this morning, I had a sudden flair up of an extremely painful mystery skin condition, when I needed to be on a 6am flight! The pain was terrible, and I wound up booking an appointment with a GP in Sydney this afternoon. My frustration was so great that at 3am I was sobbing into my girlfriends shoulder. But we actually pulled of a great day today anyway!

I coped really well with the flight, no phobic stress or troublesome switching, although I did become distressingly travel sick. Virgin airplane staff were super kind and helpful with ice and ginger beer which was lovely. The Sydney doc thinks I’ve developed another form of dermatitis that burns like acid on my skin and has prescribed a cream and anti inflammatories. I seem to be collecting unusual skin conditions, which I’m frankly furious about. I would like at some point to trade them all in for, say, a cat run.

I spent a wonderful afternoon trundling around Paddy’s Market and buying lovely little items to add to my personal grounding kit (search for this term in my blog if you’re not familiar with it) foodie nibbles, and gothy jewellery. It was wonderful. Then we caught the train over to Newcastle (here I am on it)
ate some instant pasta and lovely fruit we bought at the markets, showered, applied creams and bug spray liberally, and crashed out by the cool breeze coming in the open windows.

You know something I’m still getting used to, dating another woman for the first time, is the way you share space differently. Picture yourself out on a date. It’s going well, you’re feeling excited. You decide to duck off to the loo to toilet, fix your hair, check for food in your teeth, text your best friend, talk to yourself in the mirror, whatever, and as you excuse yourself and leave, your date says ‘that’s a good idea’ and follows you in. o.O It’s a little bit of a different dynamic! I still find it a bit surreal to be showering in the cubical next to my girlfriend on holidays and the like. Not bad, just different. Sometimes less convenient, and sometimes more intimate. You have to put care into creating thoughtful partner space because cultural gender segregation hangups won’t do it for you. It’s certainly been very interesting noticing things like this.

I’ve also come to the conclusion that gothic proclivities have prepared me well to cope with public stares, discomfort, and occasional rudeness when you’re obviously in a gay relationship. I’m used to those reactions when I’m done up goth, so it hasn’t hit as hard to be getting them for holding my girlfriend’s hand down at the local pool, or taking her out to dinner. A lot of the time I simply don’t notice. Sometimes it hurts. Sometimes it makes me feel sad for the other person and where they’re coming from. Sometimes it makes me angry. And sometimes it makes me laugh, especially when people seem to think that their disapproval is going to cower me! It can be funny, the power people think they have over you. 🙂 If they’re particularly obnoxious I amuse myself by irritating them by being particularly affectionate with her as they stare daggers, mutter, snort, or pretend not to notice. It certainly gives me something to do on long train trips ha haa!

Flour on my hands

I’ve had a good day. Which is especially nice as my life has been rather up and down lately. I’m writing now in the peace and quiet of the early hours of the morning. I have a load of freshly washed laundry hanging about the house and smelling clean and wonderful. I’m showered and enjoying actually being able to wear my warm winter robe as the weather has been perfectly cool today. Sarsaparilla is being smoochy and trying to head rub my keyboard. I’ve washed all my dishes and my kitchen is clean. My dining table is clear, my bedroom is tidy, the study room has been sorted.

I cooked today. I’m so pleased, it’s been ages since I cooked. By which I mean something more complicated than toast. I made ham and zucchini pasta for dinner, and brownies for dessert.

It’s been an erratic start to the year for me. The past couple of months have been tiring and challenging. My fibro flares quickly at the moment so I’ve been in a fair amount of pain many days. I’ve also been anxious and stressed. A lot of my friends have been struggling with their mental or physical health, I’ve been rocky and getting overwhelmed. Some nights are pretty peaceful with decent sleep, others have been terrible. My girlfriend told me recently that sometimes when I’m having nightmares, I moan in my sleep, recoil if touched, and weep. That’s the saddest image in my mind, it seems so lonely to be crying in your sleep, sailed out in a world of dreams, beyond comfort.

I had such a rough day the other day, I worked out afterwards that I’d spent 7 (non-consecutive) hours in a 24 hour period crying. Some days everything is too much. I’m tired, tired in my aching bones, tired in my soul. There’s no strength left in my spirit, no hope left to light my lamps, no inspiration in my hands to paint or sculpt or tend. There’s yearning and grief and fear for my future.

So I cry. I hurt, weep, curl up in bed and hold my broken heart in my hands. My tears, they slowly dull the edges of the broken glass in my chest. I cry the despair out of me. I speak the black things that are gnawing on my bones, that have teeth sunken deep into my heart. Desperate to be hopeful, to be bright with joy, to be at peace in the dawn, I name my demons instead. I still my hands, I let the depression take me. It’s a blessing. It keeps me safe, the lethal lethargy eases me from frantic need. I seek no relief, blades do not tempt me, the sirens of death are far off. Here is just the frozen despair, the paralysing sense of inadequacy, the raw, overwhelming awareness of pain.

Then the tide goes out and the fire dies down, the pain ebbs. I get a day like today where I wake and my mind is quiet and clear. The rain falls softly on my face, washing away self-loathing, easing the grief. I walk without pain. There’s no burning in my skin, my eyes don’t throb, the knives that were in my muscles have fallen out overnight. I can dance. I can dream. There’s delight in simple things. I watch a favourite French movie (La tete en friche), I get flour on my hands, I let the rain scented air into my home. And it’s okay again, it’s okay, I remember life’s sweetness, I remember the songs of the little birds in the morning.

Poem – In The Paper Moat

In bed
I build
A little fort of books
To keep away
The bad dreams
And the memories.

My paper moat
Is filled with people of courage
Compassion
In the face of brutality
Wisdom,
Patient rage,
Love-
All the things that are monsters
To the monsters that hunt me.

Here I lay, naked
In the dark, and alone
But not without defence
My authors speak on my behalf
When I am lost with weeping
They shape the dark
Give it name
Whisper to me
The limits of its lies.

What bisexuality is, and 9 things it isn’t

What does it mean to be bisexual? I’ve been surprised by how many people have asked me what the word means. Wiki defines it as romantic or sexual attraction or behaviour towards males and females, which is a good start. It’s probably easiest to define if I disentangle it from some of the misconceptions:

1. Bisexual doesn’t mean wanting to have more than one partner at the same time. This preference is called polyamory, or poly. It’s been a bit startling to have people assume that I’m in an open relationship on the basis of my bisexual identity! Some poly people are also bisexual, others are straight, others are gay.

2. Bisexual doesn’t mean lots of sexual partners. Without judging anyone who enjoys casual sex, these are separate concepts. Some bi people do, some don’t. 🙂

3. Bisexual doesn’t mean that I can’t make up my mind about what gender I like. It doesn’t mean I’m really gay but not properly out of the closet. It doesn’t mean I’m really straight but want to experiment or get into the cool nightclubs. 🙂 Being with a partner does’t mean that I’ve gone straight or gone gay.

4. Bisexual doesn’t mean that I’m attracted to all men and all women, any more than being straight means being attracted to everyone of the other gender. One of the ways I explain what bisexuality means for me, particularly when kids ask, is that I am capable of falling in love with a very few men in this world, and a very few women.

5. Bisexual doesn’t mean being equally attracted to men and women. I’ve read bizarre reviews of openly bisexual celebrities’ lives where the number of months they’ve been in relationships with men and months with women were compared and used to assess that they were ‘really’ gay or straight unless they exactly matched. Let’s put sexual preferences on a scale for a moment – on one end we have entirely straight, on the other, entirely gay. Many people strongly identify with one or the other end of this spectrum. Some people are right in the middle. Some people are more up side than the other, perhaps they mostly date men but have fallen for one or two women. Because there is a political aspect to how we identify ourselves, some people are attracted to men and women but choose to identify with their strongest, primary focus – women who identify as lesbian but have the occasional fling with a guy for example. If being mostly into one gender means you’re more comfortable identifying yourself as straight or gay instead of bi that’s absolutely your right, and it’s an accurate description of your tastes most of the time, even if occasionally you surprise your friends.

However, you can be anywhere in this spectrum between totally straight and totally gay, and identify as bisexual. It’s not something you have to prove by having sex or lots of relationships. It’s not just a dead-centre third category between straight and gay. It’s all the ground between straight and gay, even if that means ‘mostly into guys and sometimes into girls’ or vice versa. You can live and express that any way that’s right for you.

6. Bisexual doesn’t mean sexual predator, paedophile, or sociopath. Enough said!

7. Bisexual doesn’t mean unfaithful. It doesn’t mean ‘pining’ for the gender your partner isn’t. It doesn’t mean being dissatisfied in any relationship. It doesn’t mean betraying and hurting people. Certainly there are bisexual people who do these things, but that is not a result of their orientation. There’s a deep distrust of bisexual women within the lesbian community where being hurt by partners – especially those who have been left for a male partner, has been ascribed to the orientation and led to a lot of distrust and discrimination.

Bisexuality can be difficult. There are some unique pressures, a lot of misunderstanding and hostility from the straight and gay communities. Social and family pressures can lead to poor decisions and hurtful behaviour where bisexual people walk out of same-sex relationships to find partners who’s gender won’t make them stand out for such strife.

8. Bisexual doesn’t mean binary gender. Gender is different from sexuality. Men can be bi. Women can be bi. Manly men can be bi. Femme men can be bi. Genderfluid people can be bi. Trans women can be bi. Androgynous people can be bi.

Bi people can also be attracted to other people who are non-binary. Non binary simply means anyone who doesn’t identify within the boundaries of ‘manly men’ and ‘femme women’. Some bi people are attracted to androgynous men and butch women, for example, or have a particular passion for high femme trans women as well as shy sweet gay guys.

Personally as a multiple, I find people most sexy when they are comfortable expressing a range of gender identities – and enjoy me doing the same. I vastly prefer people who can be masculine and feminine and androgynous and move between them as they want. People who stay with one gender expression all the time kind of bewilder me.

9. Bisexual doesn’t mean being attracted to “only two” genders. There’s a bit of an argument in the queer community that bisexual people are attracted to only two gender identities and pansexual people are attracted to all of them. I’ve been hanging out in the bi community for a few years now and I’ve learned that very, very few bi people are okay with that definition. Which is a surprise as that’s what I thought it meant too, when I came out!

For a great article about this, check out Bisexual vs Pansexual.

A better way to frame how most people use bi-sexual is being attracted to “more than one” gender. There’s so many gender expressions out there! Some of us are super specific about attraction, we have a really narrow band. Think – slender, white, redhead, femme women and men. Or you probably know someone who’s ex’s all look pretty alike. Others of us are attracted to a wider range of qualities – women, however they present, or all genderqueer people. Some of us find specific groups most attractive – eg. femme bi men, ‘bears‘, butch bi women, and androgynous men. Some people describe themselves as ‘gender-blind’, meaning their attraction isn’t geared around bodies or gender, but other qualities such as personality instead. Gender identity has different levels of importance to people when it comes to sparking attraction.

When you explore a little more in the marginalised communities of intersex people (those who have both male and female characteristics) transsexual people (those who have a gender identity different from their physical sex) and transvestites (people who dress in clothes of the other gender), you start to see gender differently. There’s a term for this – genderqueer. It’s a big umbrella term that basically means – anything outside of the gender binary of men born in male bodies  who dress like men and like ‘male’ things and likewise women. A common form of genderqueer you’ve probably come across is people who have an androgynous look.

If you’d like to learn a little more about people who identify as genderqueer, I’d recommend the blog The Felt Fedora. For some more information about the differences between gender identity and gender expression, check out this great infographic, The Gingerbread Person.

Genderbread-Person-3.3

I hope that’s been helpful and cleared up a few myths. People who are bisexual can also be many other things obviously, but it’s helpful to pull apart what the word itself means and what it doesn’t.

It’s been a really interesting process for me since coming out and dealing with people’s reactions, and also learning more about the history of the bi movement and the challenges of being a part of a community that is often invisible. As I am with Rose, I am usually mis-identified as lesbian, which sometimes I don’t mind and other days really grates. Mono-sexualities (straight or gay) are more visible and both can demand that people fit in one of their boxes, or treat people as tourists – gay for the duration of this relationship, and now straight for that one. It’s rather bizarre how often the media labels as ‘gay’ people who have outed themselves as bi, and how often coming out stories are told as ‘then they went gay/lesbian’ when the story really is ‘then they realised they were bi’. So I’m finding myself with a sense of sympathy for a people group who are often struggling in both queer and straight communities to be seen as real and legitimate.

Personally I identify as bi/pan, and genderqueer. I care a lot less about how someone fits into boxes than I care about how they connect with the aspects of themselves that don’t fit. As a multiple, our system spans straight, bi, gay, lesbian, and asexual, as well as male, female, non-gendered, and genderqueer. We chose bi and genderqueer as our group identity because they contain the broadest range, but that’s not a perfect fit and sometimes there’s a need to express and be seen as individuals. Sometimes one is out who is a straight woman and doesn’t identify at all under the umbrella of queer. That’s okay, we can navigate that. 🙂

The comments refer to an earlier edition of this post where I mislabelled bi as being attracted to 2 genders.