Dealing with Trauma during a Pandemic

Hey folks, I know many of us with trauma are having a rough time at the moment too. Some of us are not safe in our homes, are facing increased risk of harm from people close to us, or are struggling terribly with awful triggers such as feeling trapped, abandoned, and not having enough resources to survive. Shops don’t feel safe anymore, many of us are losing access to essential supports and are finding our brains are blowing up under the strain.

I’m very busy at the moment supporting my family and clients, but some of my beautiful contacts have been swiftly responding to create free resources for people.

A friend of mine, Jade, is running beautiful resources such as reading kids books online particularly for little’s and kids in multiple systems – check out her work here. Jade has been co-admin of the Dissociative Initiative facebook discussion group for many years, she’s incredibly thoughtful and compassionate. She wrote a huge blog and has published a range of stunning books on trauma, multiplicity, and recovery.

Another friend of mine, Raven, is part of a huge free online conference for survivors. It is accessible from anywhere, and takes place between 23rd-27th of March. Raven is well known for her amazing Puppetry (R)Evolution using creative techniques and hand made puppets to discuss issues such as child sexual exploitation. Her 25-minute video is about using creativity and activism in healing on the 26th March, and I’ve been assured it will include puppets. Here’s the schedule and list of speakers with their topics: http://walkingwithoutskin.com/rape-and-resilience-summit-speakers .

I’m hearing a huge surge in self harm, suicidality, eating disorders, and PTSD symptoms. Anxiety and depression are high, right when everyone around us is telling us to not panic and go out and do a lot of things. Executive function skills are in short supply and bad memories are looming large.

Some of us know that if there are shortages, we’re not on the list of people who will be prioritised. That alone is a kind of social shame and rejection that can send people down a dark spiral. It’s hard to put into words, but we all need to feel like our lives have meaning and purpose, that we’re not just here to consume, and that we’re not expendable.

If this is you, or someone you care about – hold on. If the old stories have kicked back in and death and self destruction feel like valid – or the only – reasonable response to such widespread terror and shortages, hold onto the knowledge that we need you. If the ‘broken people’ trauma narrative has you feeling that you’re not destined or worthy of survival, if the idea of taking up essential resources that someone else might have to go without makes you want to run rather than fight for a place in the world, if it all feels too hard to hold on while the planet tips into darkness anyway…

I’m so sorry. I’m so sorry for what you are going through, and for the people who don’t understand. I’m so sorry that at the point where you want to stand up and shine brightest you’re falling apart. I know what it is to feel tuned to the agony of the world, to feel the death of every person, every creature, in your own skin like a million needles. I know what it is to be seduced by the idea of scapegoating yourself, that perhaps the world would be a better place without you in it. That perhaps someone more worthy would have a meal or medicine. That perhaps you could take with you all the darkness and anguish and dive over the edge of the world with it clutched to your heart and vomiting from your mouth and dripping down the inside of your legs and leave behind you a brighter and gentler dawn.

These stories are like parasites that eat us alive and turn our minds against ourselves. I say to you – what kind of world do we want? Because if you want a world that is a little kinder to the so-called broken people, we need you in it. If you want a world that is loving to those in pain, we need you to bear the pain and find the love. You cannot make any of it better or reduce the suffering even one mite by tearing another hole in the fabric of the universe on your way out of it. Stay here. Hold it with us. Mourn it with us. Love it, with us. Stay.

Reflections on ‘Better Together’: coming to grips with Diversity, Inclusion, and Access

What an impressive event Better Together 2020 was. I have a particular soft spot in my heart for people who aim big. An inclusive LGBTIQA+ conference intending to tackle difficult topics is a seriously ambitious project, and I wonder if anyone involved had much sleep the fortnight of it all! It was messy, excellent, imperfect, exhausting, brilliant, frustrating, and absolutely worthwhile for me.

During the conference I shared my personal reflections called Safety and Diversity.

A couple of my newer roles are doing community rep work on behalf of LGBTIQA+ folks through the Freelance Jungle, and SALHN (the Southern Adelaide Local Health Network), so a big reason for me attending was to learn more about some of the queer community I don’t know so much about. It’s very difficult to rep such a diverse and complex community and I take it pretty seriously that I need to have at least basic knowledge across the whole spectrum to be effective. A conference is perfect for this, I can engage more than I can with books, and I’m not putting too much of a burden of emotional labour on friends or acquaintances to re-explain their lives 101 for the umpteenth time.

So I’ve come home equipped with far more knowledge about the critical challenges that need support for the Intersex community, the Asexual community, people in non-traditional relationships, and folks who are both queer and autistic. I’ve also got contact details for other advocates who have offered to cast an eye over anything I’m not sure of and help me find my way. Why is this so important? Well here’s a statistic that blew my mind – of all the funding that goes to LGBTIQA+ organisations in Australia, less than 1% is spent on the specific needs of the Intersex community. The distress around being surgically altered to better fit a gender without their consent is intense. As one person said with passion and eloquence “My gender was taken from me with a knife – this kind of inclusion harms people”. People assume this community is being supported because their initial is in the title, so other funds are not provided. This is heartbreaking and we must do better.

Many difficult topics were discussed and a wide range of people were given a platform from which to speak. A huge number of attendees were given bursaries to support their involvement (including me), and outside of the 2 day conference, a collection of caucus’ on specific themes such as trans and non-binary gender were held as private spaces for those communities only. The efforts towards inter-sectionalism were huge, we heard from a lesbian police officer, survivors of ‘corrective rape’, migrants, people of colour, survivors of conversion therapy, parents of trans children, teachers, and so on.

One of my favourite topics were the sessions about being allies. I’ve only ever heard this spoken of as an insider/outsider divide between queer and cis/het (nonqueer) folks. This conversation was much more nuanced and talking about many marginalised identities and communities, the need for allies to support each of us and our obligation to be allies to each other. A woman spoke about her efforts to support organisational change in her workplace and how she has been able to sustain it partly because she has had her own allies she can call on in need or frustration. They are webs and networks. I’ve come home a better ally of some, with more allies of my own, and excited to support others to take these steps themselves.

Another topic I got a lot out of was the sessions about cultural and organisational change efforts through mechanisms such as Rainbow Tick Accreditation. It was especially helpful to hear how they have been put together, the research behind them, and the challenges organisations can struggle with. I really appreciated the speaker from one of those organisations, a Jewish Care community, speaking honestly about their efforts through Rainbow Tick. He spoke about the difficulties when “virtuous intent (is) let down by human error, not malice or phobia” and acknowledged the challenges this poses for people struggling for acceptance, and those learning new practices, terms, and processes to be inclusive. 

Image description: 2 people sitting on a stage in front of a digital presentation. The title is: Working towards “cultural safety” for LGBTIQ people. A large rainbow coloured arrow with small text describing steps in a change process, points to the Rainbow Tick Accreditation symbol.

Better Together was not without challenges however. Inclusion can be full of good intentions and just as many missteps. When you are trying to be inclusive for a community you are not personally part of/know much about, missteps are also inevitable. Especially when you are trying to create inclusion for very diverse communities, there’s a real challenge. For example, the Disability caucus was attempting to meet the access needs of such a wide range of folks – mobility needs, vision impairments, Deaf and hard of hearing, sensory sensitivities, chronic illness and pain issues of exhaustion, and so on. It was a medley of contradictory access needs. When we changed from clapping out loud to using the Auslan for applause, the Deaf and signing folks, and those who find applause unbearably loud all appreciated it. The vision impaired and blind folks however, could no longer tell what was happening during the applause because no one realised to describe it. The app used for communication was super helpful for some and bewildering for others. The loud purring air conditioner was perfect for some, too cold or not cold enough for some, and distressingly too loud for some.

This is such an important aspect of inclusion. There is no such thing as universal access. Access – defined as whatever you need to show up and be included – be that sensory quiet spaces, ramps, a creche for kids, etc – is not a one size fits all but a buffet of various tools and options, some of which fit well together and some of which blatantly clash. The interfaith conversation for example? Was scheduled on the seventh day of the Jewish week, Shabbat, where observant Jews could not attend. The 8 hour days were exhausting for folks with chronic illnesses and pain conditions. The small rooms with locked doors were stressful for folks with trauma histories. Folks with mobility aids struggled to push through crowded corridors between sessions, and if they arrived late often couldn’t fit into the next session and missed out. Access is challenging. Access needs we are unaccustomed to is basically a guarantee for messing up somewhere.

Access is a universal need. But those in the cultural majority or with the most power have created cultural norms that fit best with their access needs. It’s not that some of us have them and some of us don’t, we all have needs. Some of them are fitted so neatly into our regular lives we’ve never thought about them. Some of them are neatly able to be fit together – most folks can ascend a gentle ramp with a hand rail, very few are excluded by that design. Some access needs are near universal with age – most of us will need a mobility aid at some point due to injury or illness and it’s helpful if we can fit through the doorways of our home and into our own toilet. Most of us will experience some level of change in our eyesight and hearing, in our stamina and the strength in our hands as we age, for example. Some access needs clash – such as sensory avoidant autistic folks who need quiet spaces and not too much visual bright clutter, and the needs of parents of young kids who need child safe environments with engaging toys and activities. (at times those needs are reversed for those communities!)

This doesn’t mean giving up on access and inclusion. It means ask for help. Assume we will fumble. Get allies and peers to support our efforts. Be humble when it doesn’t work – take criticisms and feedback on board for next time. Have a strategy in place for warmly supporting anyone our access choices exclude. It’s inevitable that access choices will exclude some – the larger and more diverse the community, the more inevitable this is. In those cases, it’s crucial to anticipate this and have a respectful response ready. Some of those people are very hurt and very angry because they are so marginalised and so tired of being excluded. Not being able to access even a so called ‘inclusive space’ will be salt in the wound, and we need to be honest about this. Diplomatic engagement with such communities is essential, as is offering to share resources where possible and inviting them to ‘fix’ the issue themselves – plan their own caucus, set up their own spaces, put their skills, knowledge, and capacity into it too. Rather than a minority trying to solve all the problems, the organisers become the facilitators of a diverse range of spaces and opportunities, supporting cross communication and respectful engagement. We cannot ‘fix’ each other’s problems but we can build solutions and pathways together.

Navigating criticism in community work is a topic I’ve written about before because it such a challenge and such an essential skill set.

For a conference like this I’ve been tracking the feedback and conversations online and I can see that many are contradictory (wanting the conference to be low cost to remain accessible to the many LGBTIQA+ folks on low incomes or welfare, and wanting spacious, centrally located venues with many large rooms. Wanting shorter days for folks with folks with lower endurance, but longer caucuses, and not having multiple events running at the same time where people belong to both communities. Asking for better input from diverse communities, also wanting people’s time and expertise to be valued and paid, and wanting to keep administrative costs low…) Like the fabulous good/cheap/fast: you can have any two out of three dilemma, all things are valuable but they are rarely all achievable at the same time. Compromise is a painful but essential aspect of any community resource and that can be hard to swallow. Like values, all are important even when they are in tension. There will not be consensus about which are most important, and when the folks actually carrying out the work make calls, it’s up to them to decide which are most achievable and how to navigate that compromise. It’s not okay to allow criticism to crush something that is important and meaningful – while not able to be all things to all people, or for angry people to crush the capacity of those who are not yelling across the divide but putting their skin in the game and trying to create something that helps. It’s also not okay to blanket refuse to acknowledge the costs bourn by those we exclude, and the unthinking patterns of our exclusions that fit the systemic racism, sexism, rankism, ageism, etc already embodied so often in our culture. Between these two poles lay allies, growth, hard conversations, good intentions, calling out, calling in, and an acceptance of the imperfection of our resources while also celebrating them.

At the end of Better Together, I wrote notes on what I’d seen work and where things could be improved. I also did some informal interviewing with people I didn’t know and took down their ideas, the best of things they loved, and what they’d love to see changed. The next conference will be Adelaide and I’m hopeful that we can learn and grow and make something fabulous, safer, imperfect, more inclusive, and just as valuable in 2021. I’m happy to have come home with great new contacts and a lot more information, and I’ll be putting it to good use to better support our fabulously diverse communities. 

Safety and Diversity: Better Together conference

Day three of Better Together caucus and conference. This is my favorite sign here.

ID sign outside toilets, by The Equality Project. Text in black and purple reads Gender Neutral Toilet:

Sometimes because of how people look, they aren’t allowed to use the toilet. We can do better.

Real Impacts: There are real impacts when toilets are labeled for women or men only.

Trans and Gender non- conforming people often face discrimination, harassment, arrest, or violence in toilets!

Everyone should get to do their makeup, change their clothes, change their babies, and use the toilet failures in peace.

Everyone who needs help should be able to use the facilities with their family members, friends, or guardians.

It’s important that we proactively work to create safer spaces whenever and wherever we can. We realise sharing a toilet could feel new and different, we appreciate your understanding.

The Equality Project
ID short haired person in a car, wearing a fluffy violet coat and teal lipstick, looking out the passenger window.

What it is to be different, to not fit the boxes and structures and assumptions of the world around you. I’m here to learn more, to better represent and include the types of queerness and diversity I know less or knew nothing about. To question my own assumptions and challenge my own internalized and unquestioned perspectives and norms and phobias.

What does best practice look like in inclusion work, in policy, in community engagement? Who can I learn from, ally with, and share my knowledge with? What are the range of differences, and how do they intersect with other communities?

It’s been my first queer conference. I’ve loved being here and met many wonderful folks. I’ve also found myself overloaded at times by noise, pain, fatigue, crowds. Having to be patient with my own limitations and let go of my desire to soak up all the knowledge, speak to everyone, justify my time here. Learning is a life long process. Community grows like a relationship, it cannot be forced or snatched.

Whoever I’m sitting next to knows something I can benefit from if they want to connect and share. I don’t need to chase anyone but to do what I need to be present.

Holding a space for my own sense of discomfort, the way I do and do not feel part of this community, my risk of self exclusion, the deep heartbreak of being a multiple in stealth mode, wishing we had this too, conferences and resources and pride. (we do, we are starting to, but that’s a post for another time)Listening to people glowing with a sense of belonging and remembering what it was to stand in Bridges and hear those feelings from other multiples.

What is it about conferences that makes me want to cry? That deep old wound of exclusion and rejection aches, fills up with tidal tear water and I’m a child again. Lost and terrified at school, trapped between anguished invisibility and agonized exposure. Loneliness that burned like fire. We were all that child, we all carry that child. Remembering another Sarah, at another conference, who first taught me this.

Someone walks up behind me and rubs my arm with affectionate welcome, our minds react on all levels, understanding it is prosocial touch, intended to bridge and create safety, wanting to touch back, needing to run, the screaming that starts beneath my skin. Keep breathing, loves.

Accepting that the path that’s open before me right now is about other more validated understandings of diversity. That it’s not a betrayal of my community to focus on the doors that are open and the opportunities that are sustainable. That this is my community too, that all identity is multifaceted and complex. That I do not owe suffering to the world. That mutuality is an essential aspect of community. That it’s okay to belong, to belong to more than one space, to hold membership across many communities, imperfectly and with gratitude and pain. To recognise the universality of these tensions and extend a hand to each other, the autistic folks struggling with the quiet space that’s not quiet, the folks in wheelchairs trying to get through the crowds to the lift, the young person standing awkwardly on the edge of the room.

Rose messages from far away and the memories of being on fire calm beneath her hand, go back to sleep. I write notes, share jokes, make space. Share meals, make connections, not – god forbid “networking”, but relationship. Nod through a talk, catch an eye and smile, hold someone’s hand when they cry, accept a hot drink with gratitude.

The wounded child in me begins to see the wounded child in everyone and the sense of being alone and on fire in the middle of the crowd passes like a breath. We all walk with ghosts too complex to put into words and in the end this is the essence of diversity, the fragmenting of experience into smaller and smaller categories until we stand alone, and the rebuilding into larger and larger overlapping groups and venn diagrams until we are all together under the umbrella of human. It is an oroborous of forming and breaking down and reforming, like a life cycle that honors both our difference and our commonality. Both need room to breathe and support each other.

Complexity is one of the hidden faces of Authenticity and Diversity – it deserves defending

Complexity is very difficult for human brains, and we don’t much like it. We much prefer single cause-effect thinking and ‘this or this’ options to systemic thinking and ‘this and this’ options. Hence the vast quantity of memes and concepts widely shared, largely contradictory, and all intended to help guide our attitudes and behaviours in conditions of uncertainty. Complexity is confusing and stressful. We need the memes, the simple concepts, the straightforward protocols. They are the shortcuts that help guide us, over simplifications that function as maps to make it possible to navigate without overwhelm.

The shortfalls of over simplified ideas are all around us – they are like blunt tools misapplied to delicate situations. You should be a decent friend and stick by people through thick and thin but also weed out obnoxious and negative people from your life. Somewhere in the middle lies the messy complexity of real life, real relationships, and your own level of obnoxious and negative impact on the people around you. Over simplifications occur when we are overwhelmed by complexity and retreat to safe platitudes or rigid guidelines, or when we fail to engage with the topic or people with sufficient depth or empathy to understand it.

The New Zealand study has come to be what I term a ‘‘research-has-shown’’ moment in the public discourse, where the results of one study are overextended to reach an unwarranted conclusion.

Steven M Schnell

The risks of this ‘research has shown’ approach are huge. It is a soothing idea and one that is often used in training – I’ve used it myself when talking about diversity in the workplace and myth busting ‘common wisdom’. But it’s so easily a tool that misrepresents complexity and reduces it to something over simplified and destructive.

Complexity has many shortfalls too, too much of it too often leads to decision fatigue, decision paralysis, confusion, shame, and hopelessness. If we can’t find guiding principles in difficult situations we are at risk of collapse or disengaging. This is incredibly important when the complexities are social, and a common dilemma for anyone working or designing interventions in the community sphere. I know how exhausting it feels to pull all of the issues on to the table and try and really grasp the context of problems. It’s tempting to give up and return to ‘business as usual’ even if we know it has serious limitations. Complexity can be too much to deal with and break our spirit if we feel doomed to failure no matter our intentions.

Complexity is also magnificent. It is nuance, shades of grey, texture, authenticity. It is the realness so often missing from curated and risk adverse stories and services. It’s the stories that don’t fit, the diversity not captured by the ‘normal template’ on which our world is built. It’s why we are not cogs in a machine and not replaceable to each other. It is part of the astonishing depth, the contradictions, and the richness of our lives. It’s one of the reasons people love art, which refuses categorization.

All the quotes in this post come from this delightful article analysing the “local food” movement and backlash in my public health studies this week, Food miles, local eating, and community supported agriculture: putting local food in it’s place, by Steven M. Schnell. While it is a very interesting account of that topic, it is also a defense of complexity and the process of deeply understanding the nuance of topics and communities.

What is missing in many of these discussions is recognition of food system participants as fully rounded individuals, balancing many different, sometimes contradictory concerns, and making decisions about food within the complexities of the real world. Any attempts to understand what the idea of ‘‘local’’ means to consumers must not discard this complexity in favor of rhetorical,ideological, and quantifiable simplification.

Steven M Schnell

The approach I’ve found most helpful in my work and speaking is to give value to both complexity and simplification. When I illustrate my presentations and use a combination of text and image, that’s a deliberate choice to help to capture a complex idea or important topic in a way that fits easily into our brain – the meme. Each contains a ‘halo’ of the complex information it was embedded in, but where that knowledge is swiftly lost, the meme remains and holds a place for it. It’s like a process of loops – we dive into complexity, then surface into a place holder – a principle, premise, learning, or guideline that stands in place for it. They are the nutshell ‘key take away ideas’ that lose value on their own, but when presented with the complexity are retained in a way that represents much more complex shifts in mindset and belief than a questionnaire check box evaluation could assess. For example, much of my work in mental health speaking is about humanising the person in pain. It’s not always explicit but is embedded throughout the materials and part of the more subtle shift in how we feel about and engage such people. Mindset shifts are the trickiest but by far the most effective changes we can make, and making complexity safer to navigate is a crucial part of that.

I’ll finish with this lovely one-liner, so applicable in community and health which are often uncomfortable bedfellows with neoliberal ideas of individual responsibility and free markets.

Doctrinaire free traders, it seems, are all in favor of freedom, unless consumers are using that freedom to choose values other than low prices to guide their decisions.

Steven M Schnell

Gender, diversity, and health

Recently in my public health studies, I was asked to explore some ways in which gender has an impact on health. Here’s some of my thoughts:

Experiences, health conditions, or personal identity that deviate from cultural gender norms can expose people to considerable health risks. Stigma, rejection and/or victimisation from family, peers, and community, and lack of access to resources such as education, work, and medical care, each compound in a vicious cycle for many people. As a result, they then face all the health risks of people exposed to unemployment, loneliness, poverty, mental illness, and so on.

There’s a range of ways people can violate gender norms. The norms themselves vary from culture to culture and at different historical times. Cultures are more flexible about some variations and more rigid about others. Some cultures have more overlap between qualities seen as ‘male’ and those seen as ‘female’, and the value placed on each varies. Many cultures have third gender, transgender, both gender and other options. When gender is a rigid organising principle it often determines opportunities, risks, and the power permitted in various life spheres.

In many cultures ‘female’ identified skills, roles, and behaviours are associated with less power in their personal and political lives, less access to the market economy, and are seen as less essential. Some cultures (such as ours) permit women to identify or behave in ways seen as ‘male’ more readily than the reverse because of this disparity. So it is now largely acceptable for girls to wear trousers, while boys wearing dresses/skirts/kilts is a source of controversy.

Women are more likely to operate in a gift/barter economy alongside the men in their lives, performing more unpaid work such as child raising, care giving for sick and elderly, housekeeping. When women are employed they are more often part time and unemployed, and more often working in the lower paid ‘welfare workforce’ using ‘traditionally female skills’ such as child care and support work. They are more vulnerable to poverty, domestic abuse, depression, homelessness, and lack of control over their bodies and choices.

In such an arrangement, men are less socially connected, have more options for education and wealth without having to choose between paid work and having children, and are less likely to participate in unpaid work. They are more vulnerable to loneliness (particularly once retired), less likely to seek support, slower to access health care particularly in matters that contradict ‘male’ stereotypes such as for concerns about virility or mental health, more likely to be assaulted by other men, and much more likely to kill themselves.

The health risks and vulnerabilities are considerably higher for those who do not or cannot fit this binary. Binary transgender people (those who were identified as male at birth but experience themselves as female, and vice versa) for example are at much higher risks of suicide, violence from strangers and family, rejection, homelessness, mental illness, and unemployment. Non-binary people (who identify as agender, gender fluid, both genders, multiple, and so on) are likewise disadvantaged. People who are attracted to their own gender are often also the recipients of social rejection and stigma as attraction to the ‘opposite’ gender is often a key aspect of the gender norms: ‘manly men’ are ‘supposed’ to be attracted to women, not men, for example. Same sex attraction violate gender segregation norms that presume same sex spaces are free from attraction. People who identify as the gender they were assigned at birth but who diverge from it in choices such as career, interests, or appearance also face risks.

Intersex people and those with hormone variations and disorders can experience severe medical trauma within health services that seek to ‘normalise’ them and fit them back into a gender binary they may not identify with.

Many of the groups already experiencing some other form of disadvantage are more represented in gender diverse communities, such as autistic people. Experiencing more than one form of diversity such as being disabled and queer, or indigenous and queer puts people at much higher risk due each community not understanding the other. For example for many years ‘bisexual privilege’ was spoken of with the assumption that being able to blend in and ‘look straight’ gave bisexual people an advantage over monosexual queer people (lesbians and gay men) who were constantly dealing with the stress and risks of being outed. More research suggests the opposite, that the stress of being invisible and feeling unwelcome at times within both straight and queer communities seems to be the cause of the much higher rates of physical and mental illnesses suffered by bisexuals than straight or queer monosexuals. Bisexuals who are in same sex relationships and are validated as queer face fewer health risks than those in binary relationships who are usually assumed to be straight.

This suggests that not only does each gender experience health risks differently, but some forms of divergence from gender norms are associated with greater risks than others. Some resources are safer and more accessible for some forms of ‘validated diversity’ and may be hostile or harmful to others who are divergent in other ways. There is for example, conflict at times between binary and non binary trans people about the legitimacy of their identity and how they are perceived by the wider community.

A final group who face severe health risks due to gender are often forgotten about. In the book ‘Dead Boys Don’t Dance’, a study found that suicide rates were higher for queer boys than straight boys. But the highest rates of all were in a largely unstudied subgroup – boys who had been perceived as and labelled by their peers as gay, but who did not themselves identify that way. These straight boys experienced all the risks and rejection from the straight community suffered by queer boys, and also lacked the protection of a sense of engagement and belonging with the queer community. Their invisibility, misidentification, and lack of peers was frequently a lethal combination.

So when we talk about gender and health, the costs of a rigid gender binary, norms, roles, we are talking about costs for all these people. Different levels of risk and types of vulnerability, but no one escapes a troubling cost to losing access to some aspects of what it is to be human and what we need in order to thrive. There’s no winners in this list,but some of the people paying the highest prices are also the most invisible and overlooked in conversions about gender and health. We can do better.

Podcast: Keeping Mum

I’m excited to share this project in which I played a small role.

This beautiful podcast sensitively explores the largely untold story of the experience of children of LGBTIQ parents. It’s a lovely interview of the now adult child of a lesbian mother who navigated raising her family in a conservative community. The marriage equality plebiscite in Australia last year often aired concerns about the effect on children of being raised by queer parents. While there’s excellent research that shows these families are just as safe and nurturing, it’s also helpful to hear personal experiences and accounts.

Produced by Suzanne Reece who conceived the idea, conducted the interviews, edited, and created the sound scape.

I provided a voice over for Suzanne’s poem, some of the background chatter, and the illustration.

First aired on Radio Adelaide, you can find ‘Keeping Mum’ here. Please feel welcome to share it.

TEDx Talk & Art: Emotionally Safer Sex

Here it is at last. 🙂

It’s big, it’s scary (for me, hopefully not too much for you), and I’ve only watched it once because it’s the mother of all vulnerability hangovers and makes me tremble for hours.

But I’m so proud of it. I hope it feels safe, a friendly invitation to think differently about things and see safety and freedom and pleasure as interconnected. We can take better care of each other.

Please share it freely as a resource anywhere.

Free – find more of my writing about Emotionally Safer Sex.

img_20180205_131501972_wm1445019766.jpg

‘Haven’ embellished with 24 karat gold

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TEDx Video Launch: Emotionally Safer Sex

The video of my TEDx Adelaide talk is coming online! Happy dance!

SHINE SA have partnered with me to celebrate the launch, and everyone is invited!

There will be a screening of the video, and an exhibition of the beautiful artworks I created to illustrate the talk. There will be nibbles, wonderful people, and an opportunity to hear more about the topic and behind the scenes of the TEDx talk.

I would LOVE to see you there.

  • Friday, Feb 9, 5:30pm
  • SHINE SA, 57 Hyde St, Adelaide

Grab your free ticket here (to help me cater, I hate running out of lamingtons!)

Facebook Event here.

For those who can’t attend, I will be sharing the video online and popping some gorgeous prints up in my Etsy shop. 🙂

“I believe that just as there are ways we can prepare for sex that make it physically safer for ourselves and our partners, there are things we can do to make it emotionally safer, too.”

More info:

Summary of TEDx video
‘Safer sex’ can be about much more than preventing unwanted infections. For many people, sexual experiences risk leaving emotional bruises, and sometimes our struggles and differences can make good sex seem out of reach.

Sarah K Reece shares personal stories, beautiful artwork, and practical advice about how seeking to make sex emotionally safer has helped her navigate challenges such as a trauma history, anxiety, queer identity, mental illness, chronic pain, and physical disability.

Art Exhibition
This intimate exhibition of 8 ink paintings explores our physical relationship with our own bodies and our partners. The artworks are hand gilded with 24k gold embellishments and show very human, diverse experiences of the joys and sorrows of sex.

*The artwork does not display graphic sex acts, nudity, or abuse and is suitable for viewing by children.

Bio
Sarah K Reece is an artist, writer, trainer, and community development consultant, managing or contributing to projects with a wide range of communities such as prisoners, rural carers, queer youth, and psychiatric inpatients. Sarah specialises in working with people who are vulnerable due to experiences of adversity or diversity, and has founded local and international networks that support more than a thousand people.

My experience of self harm

Obviously this one is going to be totally unsuitable for some people. I talk about self harm frankly. I do not describe graphic accounts, but some methods are mentioned. There are no images. Please take care. 

I rea​d an article yesterday, called But Still, by Samantha Van Zveden. It reminded me of my own experiences, the fear, the ambivalence, the sense of compulsion, driving inexplicable need. It’s taken me most of my life, but it no longer has me by the throat. It’s an experience that bewilders people, and into the gap in our understandings pour myths, fears, and a kind of casual brutality that can still bring me screaming to my knees. 

They’re just doing it for attention. Doing it to be cool. Doing it for acceptance by other kids. Doing it to annoy her parents. Doing it because he doesn’t have enough to do. Doing it because it’s ‘in’. 

Falling far down the rabbit hole of trying to prove pain to people who do not believe you. Their belief, their compassion, their acceptance of your sincerity is an unwinnable thing. So many years and so much suffering poured out seeking it. Every day going down, deeper into self destruction, closer to death. I grew up in a world where pain was only real if someone else believed in it. Many people still live in that world. It took me a long time to escape it and reclaim my own mind.

Self harm is complex and full of contradictions. Something I often remind people is that it is common in the animal kingdom. Animals and birds experiencing inescapable pain – loneliness, captivity in an unsuitable cage: too small, too stressful, too close to predator species, overcrowded, or physically ill and suffering, many will head bang, pluck their own feathers, chew or lick off their skin, tear out nails and claws. On one level, self harm is a nearly universal response to certain kinds of suffering. This is the context, the broad picture. We are mammals, part of the world, nervous systems wired this way. 

Zooming right in, we get vast diversity in who, how, and why. Some find a single cause and many more a complex web of reasons, needs, struggles. 

Some harm to punish themselves. Some to break out of dissociation and stop feeling numb. Some to reclaim their own body. To mark important events, the way some cultures ritually scarify children becoming adults. To discharge suicidal distress and make it safely through the night. To trigger numbness when feelings are overwhelming. To push the boundaries of skin and self and rules of what is acceptable. To prove their pain to themselves or someone else who isn’t listening or doesn’t believe. To ease the screaming panic. To mark the empty days. To annihilate, piece by piece, every last bit of themselves. To get revenge on those who think they own us. To be ugly so we will not be desired and harmed. To make ourselves beautiful. To let out the badness. Because it simply, inexplicably, felt right. 

What it is not, and has never been, is the circle I hear so often. They self harm because they are mentally ill: we know they are mentally ill because they self harm. 

We self harm because something is wrong, because of pain, because it is the best way we’ve found to meet a need we don’t understand or accept or can’t express. 

I remember the first day I bought blades with the intention of self harming. I was suffering from severe PTSD and my world had become nightmares and panic and rage in a bed of grey, empty, exhausting apathy. I felt so utterly weak and damaged, all the time. Buying blades I felt powerful, defiant against all those who required that I show no sign of my suffering. That I should not be changed by my experiences. Breaking those rules felt like being true to myself. That link between owning my own pain and harming myself was powerful and took many years to understand and find an alternative for. Because for me, it clicked so strongly self harm immediately became an intense, consuming addiction. 

I experienced such relief from my anguish in self harm it was electric. Physical pain created an intense focus for my thoughts, it shifted me out of the mundane world into a deeply needed altered state and created a powerful sense of ownership over my body and proof of my pain to myself. It eased suicidal despair and sated my constant self loathing. For a short while the internal litany of how stupid, ugly, selfish, pathetic, and what a miserable freakish lonely failure I was would go quiet. It was peace. I felt strong instead of weak. I felt I’d proved something to myself. I felt like I could finally take off my armour and rest for a little while. 

The next morning I was drowning in shame, and the self loathing intensified beyond anything I’d previously experienced. The sight of the wounds would trigger rage at myself. Why was I so weak and pathetic? Such a drama queen. I sided with others brutal assessment of my character and motivation. 

Once the wounds healed and were less visible, I would feel panic. I needed to see them. I would desperately want new wounds. The longer I went without seeing my own blood, the more compelled I felt. I tried to meet this need in other ways, considering I have endometritis and adenomyosis and was bleeding heavily literally half of my life I couldn’t understand why that wasn’t enough blood, why it had to be this, too. 

So the experience, like all addictions, created the conditions to feed itself, becoming its own trigger and containing both the problem (shame, pain, self hate) and the remedy. Once inside the locked room I was trapped. The compulsion felt simultaneously too powerful to fight, and extremely minor, a mere suggestion that I was choosing to indulge. I could snap out of it anytime, stop anytime I wanted to. I felt divided.

When others reacted with intense anger, shaming, and minimising (you’re just copying someone else because you think it makes you interesting), I merely switched from my preferred methods of self harm to things that caused pain and distress but left no marks on my skin. They were a poor substitute for the rituals but not doing anything felt impossible. 

I read books and articles about it, talked to my doctor and shrinks. Nothing made the hunger go away. I tried ‘behavioural extinguishing’ where you simply refuse to engage the behaviour no matter what, and over time the urge will disappear. It did not. In 8 straight years of not harming at all I still struggled with the urge often. Some days it was louder and some quieter but always there. I often dreamed about it in terrifying ways, saw images of it unbidden in my mind when close to blades or while cooking, and when distressed or on seeing wounds or scars on others would intensely yearn for the release. 

I remember a friend confiding in me their teenage child had been self harming. I come home from the conversation to howl in bewildering agony – why do they get blades and not I? As if I was deprived of something essential to my survival. Part of my mind listening in, in absolute confusion and disgust. How could I be this messed up? 

I remember another friend confiding in me that they’d been to see a shrink and shared their awful compulsion to cut with them, and the shrink had brightly and inanely suggested wearing a rubber band on their wrist and flicking it when the urges come, to simulate the pain. It was like comparing a glass of water to a tsunami. I needed to scream so loud it tore my world apart, set the sky on fire, turned the rain to blood. I was drowning in unspeakable suffering, dying in plain sight, and the world of psychology offered a rubber band. My friend and I were mutually speechless at the gulf between our experiences and their understanding. The trivialising of the darkest hours of my life drove me further into darkness and further from understanding myself. What the hell is wrong with me?

I stayed away from medical care, aware that other’s responses fed the need on me, their callousness filled me with violent rage against myself, their compassion made me want to do it again to be treated with warmth and gentleness again. I listened to a young peer who turned up at ER one day, wild with pain and afraid she would self harm. They told her they would not admit her unless she had current wounds. So she walked out of the hospital and gave herself some, then walked back in. Then they admitted her. In that context, it was simply the admission fee for ‘care’. I noticed you often had to increase the dose over time to get a similar response from mental health staff. I called this ‘the language of symptoms’ and I fought not to speak it. With some peers, self harm was treated as the ultimate proof of your pain. It bypassed skepticism and got you into the club of people who had done it tough. I fought not to internalise this either. I read frightening books that made suicide seem the ultimate way to show other people you were genuinely hurting, and make them regret their indifference. I fought that framework too. 

I learned that for me, self harm was often about proving my pain, not only to other people in my world who were minimising my distress, but also to myself. It was a way of proving the suffering of the night before to whoever woke up the next morning. A kind of memo, written on my skin, that said: pay attention, we are hurting. Something that I could not ignore, could not find a positive light for or put a good spin on. Something animal and savage the intellectual part couldn’t explain away, something dark and forbidden the rule abiding part couldn’t condone or ignore. 

On bad days I spent hours in the bath, in self imposed quarenteen until I felt safe to walk past the knives in the kitchen. The longest bath like this I’ve taken was 9 hours. Letting out the cold water and adding more hot as my fingers and toes wrinkle. Waiting until the need reduces to manageable or the dissociation numbs it.

Substituting the need was my best approach. Less instant and complete, I learned to be patient with the alternatives and put up with partly met needs. It was by far the best relief I’d found. I developed Ink not Blood and discovered in a strange way that I was equally ashamed of simulated self harm as I was of actual wounds. The shame was more about the visibility of my pain than it was about the taboo of self harm. I felt deeply embarrassed I needed such a thing. Wrist poems continued to weave their way through my life as an alternative too. Talking to myself on my skin.

Psychosis resolved through body painting, full body art with simulated blood. Gold drips from my mouth, splashes of red across my hip. Simulated self harm and altered state on a massive scale with not a blade in sight. A wound in me heals, the need weakens. 

I read about the Bloggess, she discusses her self harm frankly, with neither pity not rage, simply that she ‘fell off the self harm wagon’. She dusts herself off and climbs back on. No one screams at her or takes her kids away. I can’t see anyone forcing her hands over to show mutilated wrists and dropping them with a lip curl of revulsion. I envy her. Self harm as a bad night, not a moral failing.

Then I’m pregnant and the proximity of children quietens the need. Star and Poppy arrive and it continues to fade away. The self hate stays, a near constant companion, the daily voice “I hate myself”. The nightmares of graphic self harm; dismemberment, self immolation, degloving, stop and don’t come back. The triggers lose their power, evoke a pang rather than a desperate thirst. I watch it drain out of my life with relief and confusion. I take less baths, wear less gloves and wrist cuffs, write fewer wrist poems. 

I still don’t entirely know why it’s gone, or if it’s ever coming back. Has it gone with some wild part of me I’m losing touch with? Is it a good thing that it’s eased? Has it been replaced by the depression, the sense of choking failure that haunts me? Health is not merely the absence of a symptom. Why didn’t it take the self loathing with it? What does it all mean? 

I don’t know. I’m glad not to be struggling with it, it was a many headed hydra that seemed to grow stronger the more heads I lopped off. Most days I’m glad my scars are so invisible. Some days I regret my restraint a little. I’m glad to have found that the symbol of harm, the imitation of it, has so much power for me, and learned that self harm is in itself a symbol of something else, a word in language you don’t yet speak but must learn to decipher. 

I don’t hurt like I used to hurt, stuffed full of secrets and bewildered by my pain. It’s in the open now and I have names for it (queer, trauma, multiple, altered state, creative). I’ve got other ways to scream and I don’t ignore myself so much. 

It’s such a victory, and yet, while the self hate remains it seems in many ways a hollow one. However far I go, it’s not enough. Have I won the war, or just stopped caring enough to bother fighting? Is it still a blessing if the screaming stops but the pain remains? I don’t know. I’m still working on it, feeling into it, trying to understand it. I’m glad to be out of the shame spiral, the snake vomiting its own tail. I’m glad my girls don’t live with it as a daily reality for their parent. I’m under no illusions though, I know exactly what it feels like to live with people who hate themselves and I try to be mindful of that, to decode it when I must and protect them as I can. 

I’ve come a long way. I’m not done yet. Self harm, for me, met a need. It also fuelled that need. Finding other powerful ways to meet it broke the spiral. (you don’t break addictions, you replace them) It’s nothing to do with the drug of choice, and everything to do with the environment. I had to make very hard, very painful choices to change my environment. In some ways much more painful than merely cutting myself. It was a substitute, a symbol, a signal of how trapped I felt in that life. 

I left. I severed relationships and found new ones. Came out as multiple, then again as bisexual, and again as genderqueer. Made art. Nurtured others. Found self compassion. Stopped trying to find my salvation in my own blood. Learned to live with the scars and the places where there aren’t scars. Go home and scream when people tell me self harm is attention seeking, but in the moment try to validate their bewilderment and anxiety, gently correct attention seeking to connection seeking. Try to bridge the gap and make the incomprehensible make some kind of sense, engender some kind of compassion. Try to make people rethink their instinctive revulsion, to question their belief self harm is always fundamentally wrong, that it deserves involuntary disgust of the kind usually reserved for rapists.

Our skin, like our bodies and our lives, is our own. It’s shame that kills us. Loneliness that destroys our lives. Love that saves us, that makes the pain bearable and heals the screaming wounds. It’s not always enough, but is always necessary for life. 

Marriage equality vote: yes

Australia has returned a majority vote of yes to marriage equality! It doesn’t mean the legislation has changed, it doesn’t currently mean anything for our family. But the cultural change is clear. One day my daughters will live in a world where it is normal that their mothers can be married. We danced and cried and celebrated in the rain in the city after the announcement yesterday. 

Then we spoke with a reporter about how hard this has been and the road yet to come. It was published at InDaily as A bittersweet victory, after months of heartbreak.

 

Post TEDx and life is good!

TEDx was amazing. One of the most challenging experiences, akin to giving birth (but much quicker and with more laughing). I’d only managed to finalise my script a week beforehand and I knew in my bones that I was too rusty to have a 14 minute monologue memorised in that time. I did my best, but still had embarrassing blanks on the red dot. Fortunately it still went well!

The rehearsal was terrifying. My first time standing on the red dot I spoke the first page of my script until I blanked, then I had to sit down right there because I was about to faint and/or vomit. I felt like a needy, insecure diva, which was not particularly nice. I’m more used to being the person holding things together than the ‘talent’ in the middle and I was very conscious of that different role and found it a bit awkward. 

But it was also wonderful. I gave myself permission to soak up all that extra care and nurturing. I felt like a star! So much love came my way. Friends attending on the day, gift bags and flowers, my family putting up with the talk consuming everything else for the week. It felt extremely special to be in the middle of it all, and I realised that it’s not wrong or bad to be in the spotlight like that, is merely that everyone should get it some of the time. We are all the talent in some way, all experts in something. So I soaked it up and hope to share it around. 

On the night itself, complicated arrangements happened to look after Poppy, and I changed into my new dress, pinned the top shut, ran my lines one more time, got fitted with the mic, and went on stage. 

There’s a moment where you flip from terror to connection, and standing in front of nearly 1,000 people I could feel them all, like a warmth, the weight of their attention and the questions they are asking of me. Can you be trusted? Will you hurt us? Can you show us what you mean? Will you take us somewhere we haven’t been before? Can you bring us home again? And I say to them with word and hand and smile and joke, yes. Come into my world for a little while. And so we did. I talked about sex and being human, and I lost my place and blanked so badly Rose had to rescue me and call my lines out from the audience. We lived what I was sharing about: that it’s possible to be imperfect with grace and humour, that a great partnership can navigate tricky situations. That a sensitive discussion can feel safe. People seemed to really connect with it, nodding and paying close attention. I muddled through and made it safe to muddle.

I had a heckler, which I did not expect! I heard later the people seated around him were angry with him and shut him up quickly. Apparently someone told him people like him where why I was doing a talk like this. I feel so honoured to hear that, there was such a sense of unity, of common ground. 

The messages afterwards from people there or over email have been very affirming. All the way through I’ve done my best to hold tightly to my reasons for doing something so extraordinarily difficult – that it is meaningful and needed. I watched a lot of TED and TEDx talks about sex while preparing and most were what we are used to about this topic- clinical or research based. That’s valuable for sure, but when I’m sitting in a bed in my underpants there’s a big gap between that knowledge base and the conversation and experience I’m about to have. I could have written that talk and it’s a lot more removed and protected, a lot less intimate and exposing. But I have found there’s value in sharing and talking about this on a personal level, and it seems I’m not alone in that.

Poppy and I went off on a bus adventure yesterday! Here we are nibbling on plum leather from Grandma’s garden, and life is good.

I haven’t yet hit my anticipated post performance crash. I’m not sure why, I have some guesses…

  • It’s on its way but I’m still too excited currently. Maybe after the videos go up online? It doesn’t really feel over for me yet. 
  • I outsourced it. Rose had a couple of intense tired anxious feel awful days afterwards.
  • I did it before the performance. That sounds ridiculous, but to be honest the lead up was so difficult and since doing it my overwhelming emotion is relief. Intense, delightful relief! I did not enjoy the preparation much, but having gone through it I’m extremely glad and happy to have done it. I feel very fortunate and privileged. 

    We’ll have to wait and see what happens next! My awesome Office Manager suggested that I write down all the projects I could do next so I can start exploring my options, and it’s making my heart incredibly happy. I’ve had so many dreams for so many years and they all feel suddenly tangible and possible.

    I’ve so enjoyed taking the last few days off completely and absolutely soaking up my lovely family. Extra support and scheduling are making so much difference to my life. I can’t wait to sink my teeth into the next projects. And I can’t wait to share the TEDx video with you all. 

    Come and sample TEDx for free

    I’ll be in Rundle Mall today with the TEDx team, as part of an open mic event (details here). 11.30am, free, come along to meet the speakers, get a taster of the talks, and pitch your idea worth idea sharing. 🙂 

    I have finally finished my script about Emotionally Safer Sex, and have whittled it down to within my time limit! I am very excited about this, it was starting to feel impossible. I have a suite of artworks ready for the PowerPoint and only one left to paint today. I’ve reassured myself that all the beautiful stories and ideas I had to cut out of the talk can go into a book at some stage. It’s been a huge project, and it’s coming together at last. Next step is to memorize the script and digitally process the artworks. Onwards!

    TEDx – Emotionally Safer Sex

    My topic for TEDx Adelaide is close to my heart. Personal, meaningful, at times uncomfortable and vulnerable, but very precious.

    POSTCARD

    This is not easy. A friend noted yesterday that there’s some irony in what I do – working to make difficult things feel safer for others, in a way that so often feels risky and stressful for me.

    It’s not easy but it is an amazing opportunity. I love sharing ideas that make a difference in the world, that help free people from ideas that were harming them. I love to give people permission to examine what they think they know. I love to validate people’s real, often unspoken experiences. I love to talk about complex concepts in plain language, and use words that describe experiences from the inside, not as a detached observer. I love to ease isolation and needless suffering, and to help people find ways to bear the pain that is the unavoidable cost of loving and being alive.

    I don’t believe I have the answers, the map, the definitive guide, the solutions. What I do have is the capacity and willingness to share my personal experiences, the ability to absorb and synthesise a lot of research and written knowledge, and the opportunity to gather feedback from others and add it to my ideas.

    I can’t tell you what what emotionally safer sex, or mental health, or connected relationships, or a meaningful life will look like for you.

    But I can start these conversations in a compassionate and authentic way, and invite you along.

    Let’s talk about sex.

    Join me at TEDx Adelaide.

     

    Poem: Marriage Equality

    Here, we are having a postal vote about marriage equality- equal rights for same sex couples. It’s been a nightmare, triggering abuse from strangers and bringing up terrible memories. Both Rose and myself come from backgrounds where who we are and how we love was not at all okay. There’s deep wounds there. It’s hard to understand what that feels like if you haven’t lived it. So here’s a small extract from my journal, recently. 

    I’ve no words for this, no words
    No persuasion, no speeches, no points strung together in sequence
    What I have is a strangled cry
    Tears I can’t weep
    I’m frozen and desiccated
    An old tree curled over itself
    Here is where my heart broke.

    This is me, as a child, curled on the floor
    Weeping and silently screaming as I beg god
    To make me other than how I feel.

    This is me, wanting to die
    In my body is still the memory of that shape
    Laying on the floor, wrapped around myself
    My hands like claws, the taste of vomit in my mouth.

    My body at night remembers the shape of that pain and returns to it
    I lay on my side, curled around a self hated so deep, a terror so profound
    I have no words or even tears, just the deep grieving in my bones
    The void in the pit of my gut
    The sickness in my heart, a kind of keening
    Oh, oh, ooh
    Let it not be
    Let it not be like this
    Let me keep my face turned from those days
    The voice in my head that tells me I’m worth less and should die
    Don’t make me look at the fear and loathing in your heart
    The darkness in your embrace, the disgust in your eye
    The purity of your sacrament that is not for me
    Let me keep my arms around the peices of my heart
    Don’t tear me open like this
    Don’t tear us open where
    All your hate falls out
    All your brokenness.
    How am I to bear it?

    I’m asked to speak
    To write, to share, to show
    We are normal/sane/loving/safe
    To lead from fear to hope but
    I’m not here anymore, I’m long gone
    I’m the little girl on the floor and I don’t have those words
    I’m stuffed with darkness and the night and the violence of your rejection that leaves no bruises
    I’m broken on the floor while the most sacred parts of my life
    The deepest and most beautiful things in my world
    My love, my beloved, my children, my friends
    Are tossed around me by
    People who are not choking on a memory of pain so vast
    It still reverberates in my mind and binds my tongue
    I’m still on the floor, screaming in fear.

    My little girl nurses at my breast
    Through the small hours where my sadness
    Demands company and keeps me awake
    She will not know this anguish
    It will be alien to her, outside of her
    One of your voices, perhaps, but not
    My voice
    Not her own voice
    Taken and used against her
    Not set into her blood or bone
    A wound from outside perhaps, but not
    Swallowed and poisoning from within.

    That is the world I want for her.
    No hand turned against itself
    No bloodletting agony or self flagellation.
    Where I know your rejection so intimately
    I want her to know only bewilderment, only confusion.
    To be outside of it,
    To have grace for it,
    To know for certain that she is loved.

    Sharing Beyond Gender Exhibition

    Gender is such a loaded concept, so embedded in our lives and self concept that it’s invisible to some of us, and profoundly, painfully important to others. As a multiple with male and female parts I identify as genderqueer. This has been a very hidden and at times painful aspect of my life, which I’ve only begun to explore and be open with over the past 5 or so years. Last year I was nervous but intrigued to be invited to be part of this group, creating art about gender in the context of social media.

    At times I’ve struggled to locate myself within the trans community, feeling like I’m intruding into territory where I have no right to be. So I attended the first meetup very nervously, feeling somewhat like an impostor, wondering if to disclose the multiplicity and confused about how to present myself with clothes. If I dress too female will I discredit myself? I always wrestle with my sense of people’s expectations and confusion when the trans story is usually understood as being binary and involving a clear transition. As always, the more I feel the pressure to conform to a story the more I want to pull back from it – so I don’t usually wear all black to goth events and I tend to wear some signifier of feminine identity to trans events, sometimes I dress more feminine for these than I usually do… simply because there is always someone else in our system also craving identity and recognition – no matter how much one thing we may appear to be, there is so often a counter story under the surface. And because there’s nothing in the world like a multiple system for tripping each other up and getting under each others feet.

    As usual, I’ve been able to claim my space by realising that I’m not the only one hiding in the wings and wondering if my experiences count. Trans identity as part of multiplicity is pretty common, and neither trans nor multiplicity resources tend to handle it particularly well. There’s tremendous tensions about visibility for trans people as well as for multiples, and in some ways I struggle with both. Being out in one area doesn’t make it easier for me to be out in another. In some ways it can be harder. So, I wrote some info about trans and multiplicity on the Dissociative Initiative website, started sharing a bit more about my experiences here on this blog, and turned up to this project.

    It was wonderful in a way to be the new nervous person again. I was vividly reminded of people’s intense anxiety about attending Bridges, the face to face group I ran for a couple of years for people experiencing dissociation and/or multiplicity. Remembering what that feels like is always, I think, a valuable thing, a reminder of what it feels like to be the people I try to create resources for. I wish I had been able to be more involved in this project, I found being pregnant a really challenging time and my system went underground for most of it, along with my sense of gender diversity and trans identity. We were very afraid that there might be changes in hormones when the males parts were around that could threaten the pregnancy, so everyone stayed in lockdown – and continuing to be part of this project felt too awkward to manage at the time.

    There are some amazing people involved in this exhibition, people I have deep respect for and feel very privileged to have met or worked alongside. Some I have since given talks with, or got to know more closely, or encountered at other events and I’m struck often by their courage and generosity. If you can attend I think you’ll find the same.

    Opening Night Friday

    28 Oct 2016
    5-8pm
    ‘Raj House’ Feast Hub Central, 54 Hyde St, Adelaide

    Facebook Invitation

    There are large prints of memes, digital art and prose, there will be DJ Marc Thomas, nibbles, drinks by Gill Kupsch… and gender-queer play as Brian North gets made-over as orange bearded Brenda. There is space for personal dress-ups if you are inspired!

    We have some words from Harry Coulthard-Dare, Jenny Scott, Natalya Gee and Tammy Franks. You can buy one of our zines to prompt more reflection later… or get a raffle ticket to go in the running for a beautiful work of art by Amanda Lee Angel.

    If you can’t make it you might like to come Saturday between 10-6 or attend our artists’ talk from 330-430. We’ll be drawing the raffle and awarding 3 participants with digital devices then too!

    If you live too far away to visit you can see a lot of our creative activism on the inter-web at www.storiesbeyondgender.com

    IDAHOT Picnic & 28 weeks pregnant

    image

    I volunteered to cut the rainbow cake. I usually do this at family events – I took over from my grandpa when I was a young teen, because he used to do that cut a random size slice and then another random size slice thing, and we’d all pass the slices around the table as he went… thin slices got passed on quickly, thick slices were lingered over like a game of musical chairs but with cake. Inevitably some were deeply disappointed with the slice that settled on them. A quick head count and a little math solves that issue!

    IDAHOT is the international day against homophobia, biphobia and transphobia. I waddled up following a morning at the printer and framer putting in the final orders for my exhibition, which comes down this Friday! It was a good, fun event and nice to see friends there I haven’t caught up with for awhile. Rose stayed home and used the time to get lots of homework done on my computer. I stayed out and pretended I’m not possessive and territorial about my computer. I’ve coped pretty well with sharing the rest of my home with everyone else, but my computer and studio (ie table) do bring a slightly crazed one-eyed barky critter out in me.

    There was a cool badge maker there so I made this for Rose:
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    Pain levels are still very high, I’ve been re-reading Explaining Pain which was a good refresher, but woke at 3am to cry about how hard this is, and sad, and all the wasted years being sick and swamped by pain. Sometimes even the encouraging and helpful triggers such grief and regret. Bubs is head down most of the time, which is causing bad sciatica, hip pain is bad, and heartburn is bad. I have finally put a bit of weight on this pregnancy though, which is great news. Fibro is a bitch, I’m getting bad facial pain, a twitchy bladder (not the same as pregnancy needing to pee every few minutes), muscle cramps in my calves, chronically irritated skin, and fun new sensitivities. I’ve asked for a referral to the psych team at the hospital as I’m getting nervous about how well I’ll recover from birth and worried about being stuck in hospital needing support. The psych team are the only ones who can override the usual rules about partners being kicked out overnight. The prospect of being forced to be left alone overnight in severe pain with our little baby to care for as well as me is a bit harrowing. If anything has gone wrong and I’m feeling emotionally fragile too, hospital is a horrible environment for me. I recall once waking to find night nurse trying to do obs in the small hours of the morning following my appendix being removed. She touched me while I was sleeping and I woke the whole ward with a blood curdling scream and had clawed my way to the far side of the bed before I’d even opened my eyes. When I did I found I was perched on the edge of the bed about to fall/leap out, and the poor nurse was flattened against the far wall. Following that was the slow wail of all the infants in the ward protesting. I don’t know what adding a small baby I feel intensely protective about might do to that reaction but I suspect ‘downgrade it’ isn’t the usual answer.

    Baby is growing well, I’ve been doing finger-prick tests and my results are all great re gestational diabetes, and there’s loads of movement and kicks. We’re into the countdown now and I’m looking forward to having more of the house and sheds sorted ready for arrival. In other news, having made us wait an extra 6 or so weeks for our assigned midwife to come back to work, it turns out she’ll be on maternity leave when our baby is due, so we’re being reassigned anyway. There’s a strange sense of hype and disappointment about the whole process with our hospital. We’ve only had two appointments with our midwife so far, the first we spent talking about delivery options and preferences and worries, the second we discovered she’s not going to be here anyway. It’s odd, because I know that we’re very, very lucky to have access to the healthcare we do here in Australia, but there’s this sense of indifference that’s unpleasant, being very small parts of a much larger machine and having very few choices and little power to influence anything. It makes me want to run away and give birth in the bush.

    On the plus side though, my appt with the hospital anaesthologist was surprisingly excellent. I’ve never had a good appt with an anaesthetic doctor before, usually they don’t beleive me about my allergies, or they freak out and make me undergo procedures like endoscopies without any. This guy was excellent, he listened, asked intelligent questions, gave me good information about options and how to get the most out of them (did you know gas and air works best if you start it at the beginning of a contraction, count through them, and stop it about 2 breaths before the peak? This allows it time to be effective but lets you ride the last of it without having much in your system for the rest periods, which reduces the chance of side effects). We wound up talking about self hypnosis and he walked me through a short technique for self hypnosis which I took to. It was a good appointment to follow the others with, I felt like there was actually a point to turning up and that in among the grinding machinery of a big public hospital, the endless waiting and being shunted from service to service, there were little treasures of useful information and ideas. Hooray for those.

    In memory of our Tam

    Tamlorn was due today.

    It seems so much died with them. A fork in the road and a different path forced upon us. I don’t know how that can be but it seems it is. Somewhere out there, in a different universe, two happy ladies are so bouyed by the pregnancy the work stress doesn’t tip one of them into ptsd. We don’t lose our donor, we go to the pregnancy expo full of excitement, we don’t push the business hard and wind up falling down a hole of broken expectations and pressure. Such a little thing and yet our whole year is different. Our whole world.

    My sense of faith or meaning about life and death, any possible afterlife, has splintered. Sometimes we comfort each other that if they all still exist somewhere, Leanne and Amanda and Grandma would take excellent care of Tamlorn. I can’t imagine three people with more love and skills and care and humour. And maybe all the others I didn’t know so well would help too; Bethy, Tash, Nana, Bradbury, Pratchett… Somehow every possible answer seems to hurt more than it comforts. This loss makes me need a certainty about death I simply can’t have.

    We are still trying to get pregnant, and it’s one of the hardest things I’ve ever done. It seems so little, but it’s so consuming! The roller-coaster emotions make me feel crazy and I work hard to hide and suppress them. Rose and I are so gentle with each other, constantly making room for both hope and grief, reminding ourselves life is still wonderful without a child, that whatever the outcome is we have each other, and yet it’s like trying to calm a storm by talking to it. Beyond our power by far! It consumes everything. Our whole world becomes balanced on pinnacles between ecstacy and devastation.

    I’m always trying to manage fear. I’m frightened of losing our donor again, frightened Tam was my one and only baby, frightened of getting pregnant and losing another one by miscarriage or stillbirth or leukaemia at 3 years old. Life feels like a lottery and the bland reassurance of those who’ve won and spun it into some kind of ‘just world’ (don’t worry, of course it will work out) is balanced by the raw pain of those who’ve lost and are childless following eleven miscarriages or other patterns of tragedy and loss.

    The best feeling in my world is that moment before getting up to do a pregnancy test. Everything glows with possibility. Our bodies fit together, skin warm and soft, and the morning is gauzy with the film of dreams. We promise not to be devastated, that it’s early days only, that it’s okay to grieve, we can do this. We feel strong and settled and ready.

    The worst feeling is another negative test. Coming up with all the reasons we might still be pregnant anyway. Trying not to feel that empty pit inside. Patting each other – it’s okay to be disappointed, we’ll be okay, we’ll try again, while inside we’re both dying. Wastelands and ruin and fears that we can’t counter that perhaps all this is futile. It might be. The only thing that would be harder than trying, is stopping trying. What started in joy begins to feel like a trap. We can’t let go of the dream but the dream is all fire and pain. We surface from misery briefly to remind each other that life will still be worth living if we can’t have children of our own.

    We claw for balance, serenity, perspective, and it’s a veneer only over so much shameful intensity. We glory in our roles as aunties of others children, come home feeling blessed to be trusted and embraced, remind each other it’s significant and meaningful and worth putting effort into. And cry as quietly as possible when we’re alone, trying not to be ungrateful. We try to protect each other from our anguish and find gulfs open between us that we have to work hard to bridge with something other than raw hurt.

    The very worst of it – worse even than platitudes or instructions to worry less or being told it will happen if we’re really meant to be parents – like a divine benediction, like the gods blessing the ascension of kings – the worst of it is feeling so alone and ashamed by how incredibly hard it is, so disinclined to let anyone know because it seems crazy, and if we seem crazy maybe we shouldn’t be parents after all. The pain of longing reinterpreted to prove our lack of worth and fitness. We’re not so far into this that I can’t recall my own bafflement at ‘baby-crazy women’ and wonder why they can’t just live their life and let it happens if it happens. It so seemed like such needless fuss, such obsession, but on this side of the fence it’s the dream that drives you and it burns.

    On bad days I’m glad of a negative pregnancy test because at least that means I won’t miscarry again, or break our hearts with a stillbirth, or lose an infant to an accident. I like to take risks where I feel I can survive them not working out and I’m beyond that place at the moment. I can’t bear the thought of another loss and I don’t know how I’ll find any contentment in the moment or belief that things can work out. I read of women who’ve suffered catastrophic losses and their stories leave me gasping for air, completely unable to fathom such grief. I reach out to Rose and she tells me we’ll take this one miscarriage at a time if we must and my throat closes over and I can’t breathe at all.

    What helps is sitting in the night with Tamlorn’s ashes or going to stand by their tree. What helps is spending time with other people who have walked this road or walked roads like it and seeing that the trauma and pain and sense of being crazy and need to hide it are nearly universal. They are normal responses, not well understood by those who’ve not been there usually, but very much the norm, especially for those of us with losses, fertility issues, a donor, and a culture that can be harsh about queer parents. Our sense of fear and vulnerability and exposure is strong. Our need for swift blessings to show the benediction of the universe is much higher.

    The pressure on us to be highly emotionally invested but at the same look calm, balanced, and even slightly indifferent, is high. We feel crazy counting days and tracking cycles and collecting clothes, and we’re aware we mustn’t look crazy because it’s only recently that queer parents were even allowed to live openly together, to both call ourselves mothers of our children, and that is still being argued in courts of public opinion that talk about deviance and harm to innocents. (homosexuality was only decriminalised 40 years ago in South Australia) We’re still being held accountable for other people bullying our kids because of us. We still get looks of revulsion when we walk hand in hand. And we are some of the luckiest queer women in the world!

    We lost so much with Tam, far more than I realised at first. My cycle is still unpredictable, which apparently is common following a miscarriage. We can’t track it accurately at all – on one set of tests I apparently never ovulate or produce any hormone surges, on another I’m about to ovulate constantly – we gave up testing after 9 positive days in a row. My cycle is now a different length each month. We guess the relevant week and scatter insems through it and hope, and try not to think about it. I try to imagine a future where things work out okay, and I stop reading the anguish of the women in my miscarriage support group. Being pregnant was the most wonderful experience. Trying to get pregnant has been a kind of hell. Normally dreams sustain me and only hurt when they fail. This one cuts deep as you hold it, brings life and death unbearably close, gives me joy and takes my breath away with pain.

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    White poppy

    On Monday this one white poppy bloomed in the sea of red in our garden. Rose found some comfort in taking it as a token of Tam’s nearness. We talk back and forth to our garden, to Tam’s tree. It bloomed with a thousand blossoms, none of which set fruit. Red poppies in memorial, white poppies for peace. Today we’ll take flowers down to the ocean and set them in the water. (we hold hands like widows over graves)

    Oh darling Tam. Do we mourn you or ourselves? You were loved every moment of your short life, we tell each other that. At times I think all the ills of the world could be righted if we could but love it and each other the way we loved Tam. In my minds eye I see myself as a bringer of death, my womb as a coffin, a portal through which souls come into the world to die, and there’s a stream of dead babies flowing away from me to the afterlife. My soul is twisted under the weight of knowing I’m not supposed to care this much, think this way, feel these things – and of not wanting to, either. Spare me the burning intensity, the clinging awareness, the cloying emotions. Spare me 3am and nameless dread. The stakes are high, the bets are placed, and each month the dice rattle in the cup like old bones; I wear a scarlet dress to hide the blood.

    Darling Tam, who sometimes seems so close, when I close my eyes I can almost see us together in another world. You are nested between our bodies, fat and pink and milk-drunk, with eyelashes soft as moth wings. Our hearts are like ripe grapes on the vine after rain, overfilled and torn open. It’s a sweet pain.

    Dearest Tam, tell my people that I love them. Love them fiercely from this side of the valley. Forgive us that we could not keep you here or hold you longer. Help our hearts tear open with love and heal again with the same love, every day. Happy birthday, darling unborn. I hope you are at peace. May we find some too.

    Everything is New

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    My beautiful, kind, lovely sister broke up with her partner this week and urgently needed somewhere to stay. Rose and I have welcomed her with us. My family rallied and gathered to pack and move her and we now have three people, four cats, and a dog living in our 2 bedroom semi detached unit! It’s a little cramped but it’s also rather wonderful to have the chance to live together again. We all get along well and Rose and I have put a lot of time into our family culture, it’s healthy and strong and flexible, and probably just what my sister needs to recuperate.

    Yesterday we overhauled the sheds, dug out our washing machine, and shifted a lot of my art supplies into drawers in the new shed. We’ve also been doing lots of caring and calming things to settle the nerves, the raw emotional pain of a breakup, and the bad memories that get unsettled. Camp-fires, games nights, online gaming, good home cooked food, music. It’s been beautiful to see in action.

    Rose and I were talking about the sudden change in our circumstances and laughing that if we couldn’t deal with suddenly being a three person household we had no business trying to get pregnant, and that if we couldn’t handle sudden plan changes gracefully we were never going to cope with teenagers! 😉

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    One of our new residents: this is my sister’s lovely cat. She is so sweet and relaxed and right at home already. Zoe is desperately excited, Tonks is chilled out, Bebe is sulking a bit, and Sarsaparilla hasn’t come far enough into the house to have met her yet. He loves sleeping in the lounge room by the heater in this weather. (it’s freezing in Adelaide)

    Her name is Kaylee with an Irish spelling I wouldn’t attempt unless I had it written down! She’s adorable.

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    We’re a family! We’re trying to get pregnant again the end of this month! And my business is blossoming! I have my first ever art prints back from the printer and they are so beautiful I cried! I have a buyer for one of my favourite paintings. I have mental health talks booking in. I have safe communities to nestle into – I’ve been getting to know the wonderful people in Community Health Onkaparinga, and I’ve just joined a trans and gender queer social activism group which was… Well it was like being in Bridges, the face to face group for people with dissociation and multiplicity I ran for a couple of years. It was magic, like being home, like being among my own kind, diverse as they are. I felt my heart open up and knew these are the places I need to be. This is where I put my energy.

    College starts again today – a class on Installation Art that I’m so excited about I can hardly think straight!

    I have overhauled my online home too, not as a finished product but to try and better reflect where I’m at and where things are going… Go and explore the menu, I’ve added new pages and rewritten old ones and nested a lot of my paid work information on this site with great care and caution and I’ll see how it goes. Tell me what you think?

    I’m so bursting with excitement I got hardly any sleep last night. I feel like stars are burning so brightly in my chest that there’s almost no room for my heart. Someone wants to cry out with joy, loud! To weep with it. To pour it out of us like a river. My life is unbearably beautiful and I’m drunk on hope.

    And someone else wants to be still. To sit and watch the bees in the basil. To sit under the cold winter sun and feel the wind on our skin. There’s children playing up the street, and the wind chimes outside our window singing softly. The breeze tugs a lace curtain into a kind of dance, puffs it up as if it’s a gown over a body so translucent I cannot see her, fae and trembling she stands by my window and drinks the breeze, and dances.

    I love my sister very dearly and it’s hurt my heart to watch her struggle in a home where she was not well loved. I feel a fierce, deep joy to have her home, for a little while, to hold her close and cook for her and try to help her taste and feel again – this is what being loved feels like. So she can be nourished, so she has the sense of it alive in her, guiding her. It shouldn’t take such courage or cost such pain to pull back from places where we are not loved well. She, none of us, should have to be that strong. We should be well loved by those around us so the dance we must do around each others broken places is a movement from light to light, from home to home, from warmth to warmth, never fleeing into the night and the darkness, never broken by the cost. Always free. She’ll fly on again but we have a precious time where we’ll make our home together, where I can share the home I’ve been blessed with.

    I’m not the only one sharing. I have been overwhelmed with donations the last month, often little amounts that I KNOW are costly to give, are, percentage of your income wise, very big indeed. I am buying resources for the networks, and paying for prints, and husbanding every dollar with care. A Blog reader contacted me recently to offer a regular gift of money over the next nine months. I took to bed and wept, Rose holding me gently. How overwhelming it is to receive such support, to feel such… Connection… Gratitude… Such belief in what I’m doing. You share my dreams! And like my art! And read my blog… And help with my networks.

    I had a dream, back when I started this. To be useful in the world, and to express myself creatively. I have come through so much and learned so much in the pursuit of that dream. And Rose changed everything! Suddenly I’m dreaming of family and a baby too, my own tiny community within my much larger community. So I started dreaming a new dream, of being useful in the world, and expressing myself creatively, in an ethical and sustainable way. Transitioning my business and networks from a charity model to one of mutuality. I give and I receive, and together, we thrive, we dream, we bring more kindness and honesty and hope into the world.

    Stand with me, please

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    Well, I’m here at the conference. Well… In the vicinity of the conference anyway. I’m in the lobby trying to coax breakfast down me. It’s a very nice breakfast, but I feel particularly ill.

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    Cold water and porridge with stewed apples. Good slow burning carbs and not too rich. I’m doing my best to pay close attention to what my body needs on this trip. I’ve put myself under considerable physical pressure – very long drives, long hours of sitting, cold weather, and often missed meals, and very little sleep. That last one is a killer. Sleep deprivation and fibro do to me what an all weekend bender does to a 60 year old.

    My hotel room was beautiful but I’ve only had a couple hours of sleep again – cold weather, many many hours of sitting, and then sudden flurries of rushing around are pretty much a recipe for disaster with fibromyalgia. By 2am the pain my knees and ankle was severe. I wound up spending a lot of the night in hot showers and doing stretches trying to open up the joints again.

    This morning I feel badly hungover, with nausea, slight tremors, body aches, that cold sweat, especially on my face and lip, a bad headache, and really heavy head. The only hangover symptoms I don’t get are the thick saliva and fuzzy mouth because there’s no dehydration component to fibro. (unless I’ve also forgotten to drink, obviously)

    So I’m moving very slowly. I’ve taken a couple of ibuprofen which is as strong as my pain relief can get due to my drug allergies, I’m sipping cool water and gently spooning mouthfuls of porridge into me as I feel I can keep it down. I’m resting but also walking around and slowly pacing when I can to ease the body pain. Massaging the trigger points above my eyes gently.

    Pink Floyd comes on the radio “did you exchange a walk on part in the war, for a lead role in a cage?”. And then Neil Finn. Familiar music, my music. Something knotted eases a little inside me. So much of this weekend is about being in a different culture, the minority stress of being queer, multiple, alternative, a stranger, a long way from home. People are being kind, which helps. One new friend is indigenous and she gets it instinctively: like her  I’m a long way from home. I have no idea what is like to be her but we’re united by own experiences of constantly being the minority representative in a dominant culture that doesn’t understand, or particularly value a lot of what we do. The pervasive indefinable heart ache that comes with speaking in a different language too much, too long, being the alien. It’s a big Gap. I’m grateful and deeply moved by such acceptance – as Brene Brown puts it in her book, not fitting in but belonging. Different but accepted. There’s been a lot of love around this training, and I’m grateful I’ve been doing all that work on accepting and connecting because I’ve been able to hug and connect and let people be kind – to be genuinely reciprocal, which is beautiful.

    Mentally I feel mazed. It’s hard to focus my eyes and I can’t take in what’s going on around me very well. I’m thankful I know so much about fibro and dissociation these days. I know what’s happening and I know what I need to do. How many years it’s taken me to be able to do this! And it’s still hard, days like today. And – all my friends with a disability will get this – there’s a slight reluctance to tell anyone how rough I am in case they think I can’t handle conferences and don’t invite me again, or try to exclude me and caretake in intrusive ways. So I’m doing what always do when I feel that pressure to keep quiet – I’m here, telling the world. You guys, and this platform, keep me sane. Keep me free from the lead role in the cage. Thankyou.

    I’ve set up some artwork, our ‘healthy multiplicity’ poster for the DI, postcards for the DI and HVNSA, and a grounding kit for the conference attendees to try out. I’m here representing my tribe; artists, people with lived experience, peer workers, people who have been through trauma, freelancers, people who are poor, queer people, people with a disability, social entrepreneurs, multiples, counter culture people… I hope I’m doing right by each of these communities. I’m doing my best.

    Most of us never get a voice at events like this, and everything I’m going through is why. It’s almost impossible. So I’m here, being present, holding a space, representing us. Unpaid, unelected, with all the usual risks: that my voice because a substitute for your voice, that I go native in the dominant culture, or that I burn out. Be with me, all of you. Help me do this. Help my message be – not just my voice but many voices, not my experience alone but the experiences of my tribes. Hold me, I’m so weak. Stand with me. I’m building friendships and powerful alliances that will enrich us and connect us and bridge those Gaps.

    But I’m so vulnerable. Help me stay human. Witness me. Love me. I love you. I’m in the clinical mental health sector holding a space that love is the essential response to human suffering, and that dignity and freedom are fundamental human needs that services often accidentally destroy. You know how much we need that message in this culture! And I’m not the only one, I don’t mean to sound like a lone hero. There’s thousands of us trying to build a better culture. But we’re struggling to hear each other and understand each other, and people like me don’t often get a voice or a presence – and without people like me – the ones so often in need of services, those with good intentions but no intuitive understanding of my life will keep pouring out their hearts, our money, and their lifetimes of effort to still not speak my language or create a genuinely safe, mutual, dignified systemic response to human suffering. The gatekeepers don’t understand us and we need them to, because they have the power and the resources. They are dehumanised by these systems too, in subtle ways they can’t see but that threaten their humanity as much as – perhaps more than the threat to service users. No more, please. No more. All voices, all cultures present. All tribes heard.

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    Looking for a donor – part 2.

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    We’re looking for a donor again. We’re ready to try again for a bub, but the donor who helped us get pregnant with Tamlorn has had a change in circumstances. We were very lucky to get pregnant very quickly with Tamlorn – in just three cycles (months) of trying. Unfortunately they died in utero at only 9 weeks.

    My body has had some time to recover, as has our hearts, and we’re ready to try again and just need to find someone willing.

    In our original ideas about donors (which has a lot more information about us and the process) we were keen for a known donor if possible – someone with an ongoing friendship with our family. We’re more open now to a range of preferences, really the most important to thing to us is that you are free of STI’s, major genetic issues, and can be honest and communicate clearly with us. Bringing a child into the world is a journey – sometimes an ordeal – and it can take you places you never expected emotionally.

    Sex will not be involved under any circumstances, but apart from that we’re happy to talk with you about what would suit best – discussions ranging from totally anonymous through to very involved are welcome. Each family defines the donor relationship differently. We don’t mind what nationality, sexuality, or gender identity you are, but you do need to be between 25 and 40.

    So, if you’ve ever thought about being a donor, or know someone who might be appropriate – please share this and get in touch.

    skreece1@gmail.com or facebook: sarah.k.reece

    Buck Angel – trans and diversity

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    This awesome dude is Buck Angel. He was in Adelaide recently doing a number of shows at part of our Feast Festival, which is our annual queer pride event. I was fortunate enough to get along to several of them. I first met Buck as an amazing life size golden statue of him by artist Marc Quinn, that’s in our Art Gallery of South Australia.
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    Photo from this blog.

    I was blown away when I first saw it, that confidence, the way his tattoos have been carved deeply into the statue… So beautiful. To display his unusual body (Buck went through ‘top’ but not ‘bottom’ surgery) with such a sense of contentment and certainty about who he is just blew me away. Apparently it’s not unusual for people to be deeply moved, particularly trans folk.  Then I heard the subject was coming here and I got to hear some of his life story, his transitioning, to hear about how this statue was made and brought all the way to SA. It’s been amazing.

    I talked with him a little about the overlap between the trans and multiple communities, the need for more understanding and acceptance. I’ve been building more links between these communities in my work on the Dissociative Initiative. My experience has been that there’s a lot of trans people who experience multiplicity, and a lot of people with multiplicity who have trans parts/personalities. The mental health and the trans supports however, don’t always get along.

    Buck got it. His messages of loving your body, and embracing your identity, and not letting the world tell you you have look a certain way or have certain body parts to be who you know you are is a powerful one, especially for trans members of multiple systems. Some of us transition and some, like me, never will. (More about my experiences in What is a man?) I live as a male in a system full of female personalities and a body identified as female. Learning to be comfortable with this is so much easier when you have a hyper masculine, “I love my vagina”, pro diversity role model like Buck.

    We talked a little about the massive changes legally and socially that have happened, just in the time since he’s transitioned. It makes me hopeful that things are going to change for those us with multiplicity, who currently are seen as mentally ill, treated as dangerous, or the punch line of a joke. There’s a whole community of trans people who can relate to our experiences around those issues! These are people who understand fears of being outed, how our relationships, housing, and jobs can be at risk, the pressure of trying to pass so no one will know we are different. That’s the reason I’m public about being multiple, to start that change happening. We shouldn’t have to hide! We can find ally’s in communities like this and support each other.

    Buck told me – it doesn’t take many of us speaking up to change things. Just a few voices make a difference. I believe that.

    Trans Day of Remembrance

    Today was trans day of remembrance, all around people are lighting candles and holding events to remember those trans people who have lost their lives.

    You may be trans or have friends or family who are. You may know a little about it or nothing at all. You might understand it intimately or find it deeply strange and unfamiliar. It doesn’t matter, you don’t need an in depth knowledge of gender to get that violence against this community is wrong. Horrifyingly common and deeply wrong.

    When trans people are constantly ‘othered’- treated as freaks rather than people, when they’re talked about in the media in a sensational way, when they’re always the serial killer, always the punch line of the joke, when the worst thing in the world that could happen is discovering the person you’re out on a date with is trans, we set the context in which this violence occurs. People are bullied, harassed, beaten. More subtle but just as devastating, finding and keeping employment, safe housing, maintaining connection to family, all can be so much more difficult. Rates of homelessness, mental illness, and suicide are frighteningly high. In healthy, inclusive, safe environments, they’re not! But so many trans people have to live in anything but safe places.

    So, be aware. You don’t have to understand a lot if you don’t want to, that’s fine. But notice the sense of threat, fear, and revulsion that underlie the jokes and ridicule… They’re the same things that feed the violence. People are hurt, and every year, people die. Help your spaces; your family, your college, your church, your playgroup, your workspaces, be safer. These people are not victims or freaks. Trans people are highly diverse, just like all people, ranging from angels to scumbags. But no one deserves to be killed for using the ‘wrong’ toilet. We can do better.

    Looking for a donor

    Not since I once sat in a church, covered in rat piss and hoping desperately to fit in with my new lesbian friends, have I felt so damn awkward. Searching for a donor is an astonishingly strange process. It involves using the word ‘sperm’ in conversation more frequently than I have in the entire rest of my life. It’s nerve wracking and vulnerable and exciting and sad and weirdly similar to dating, if dating involved no sex and unusually frequent references to sperm.

    Let me take you through the process so far. Rose and I need a donor as neither of us produce sperm. Plenty of couples find themselves in this boat for many reasons. Our first idea was to cross the genetic lines of our families – as we are both keen to carry a child, to ask for support from male relatives on both sides. Sadly that hasn’t worked out for us. Our second idea is to find a known donor that we are already friends with, or whom we become friends with, to help us have a child – maybe more than one with the same guy if that works out. Anonymous donation doesn’t appeal to us. There’s upsides, for sure! A total lack of drama for one. Less anxiety about relationships fragmenting. But Rose has never known her father. We know what it feels like to have a big empty space in your biological history. We don’t want that for for our kids. We’d love someone who we can point to and say ‘that’s the guy’. This is your donor. He’s not your parent, he’s not responsible for you, he doesn’t pay your medical bills or sit up with you when an assignment is due the next morning, but he’s a family friend. You can ask him questions. You can figure out how you want to relate to each other over the years. We’re not scared of him or threatened by him and we don’t want to hide him or pretend he didn’t exist. He’s part of the story of how you came into the world. There’s no shame in that. In fact, he’s a pretty awesome guy. We chose him, just like we chose to have you.

    Being a known donor is a big ask. It’s a weird role. The closest parallel I’ve been able to come up with is that of an uncle. You’re involved in the child’s life to some extent, there’s a recognised relationship that may be closer or distant. There’s a biological tie. There’s no legal or social responsibility or rights. A fight with the parents could see you on the out. You’re kind of invested but also in a vulnerable position. If things go wildly wrong you may one day be asked to see if you’re a match for bone marrow for a kid that’s not yours. For many guys this role is a really poor fit. They want to become a donor anonymously and stay distant, or they really want to be a father, not a donor, and they’ll be intrusive and suffer greatly if their access to the child or their desire to relate as a parent is limited in any way. It’s a pretty unique kind of situation and it doesn’t fit everyone.

    So Rose and I have been casting our net wider, so to speak. We’ve put up profiles on local dating websites, and we’re sharing our search with friends and contacts. We’re moving slowly and seeking to have a good foundation of friendship in place before we start trying to conceive. Talking with strangers on the net about donors has been… Illuminating, entertaining, bizarre, funny, and creepy. We’ve met some really lovely guys. We’ve deleted a lot of wildly unsuitable ones. We’ve explained that sex is not involved in being a donor, a LOT.

    As I said, it’s oddly similar to dating. You get neurotic easily (am I talking too much? Too little? Am I mentioning the donor thing too often? Not often enough?). You get excited quickly and dream a whole future that dies a deeply disappointing death when things derail. You’re flooring the accelerator with excitement and hitting the brakes with anxiety at the same time. You’re keen for no one person to feel under pressure, so you’re still talking to other new possible guys, but that also feels weirdly like cheating or snubbing the ones you do like who have expressed interest in being involved. Communication is a challenge. Them reading this blog and having to process a whole bunch of stuff about someone fairly out of the norm is a challenge. Them worrying about being exposed when interacting with someone who lives a very public life is a challenge. The whole process is rather strange and fragile.

    So, this is our online profile:

    About Me

    Female 31 Australia

    We are 2 awesome ladies who have been together for nearly 2 years and are looking for someone fantastic to help us to have kids. We’re 29/31 and looking at starting within the next couple of years. We work in Youth Work/Alternative Education, Mental Health, and do face painting work on the weekends at kids parties. We’re smart, creative, silly, and a bit nerdy. Love reading, cooking, camping, card nights, and hanging out with our mates.

    Seeking Criteria

    • Members anywhere in South Australia.
    • Friendship with a man or a woman.
    • Between 25 and 40 years of age.
    • Members who speak English.

    What I’m Looking For

    Someone awesome to be a sperm donor and help us start our family. We don’t mind what nationality, sexuality, or gender identity you are but you do need to be between 25 and 40. Single or part of a couple is welcome. What’s important to us is that you don’t carry any known major genetic illnesses, that you’re happy to be tested so we all know that everything is safe, and that you’re a great person with similar values to us and excellent communication skills. We’d love to have a long friendship with our donor, and to have our kids know you and know their genetic history, so our first preference is to go down the DIY road rather than anonymous donation.We are also open to talking about supporting you to have children if you are gay or your partner is unable to bear children. We’re not in a rush, we’d love to meet up, get to know each other, talk things through, and make sure everyone is comfortable and on the same page.

    Also happy just to make some new friends. 🙂

    The process of donation involves coordinating with each other to pass along a sperm sample during the most fertile time of the month. Happy to talk about that in more detail. 🙂 Sex is not involved!

    It can be a little awkward to start conversations about being a donor dad, so we’ll leave the first move to you. It just feels a little odd to say to a stranger – hey you seem nice, can we have your sperm? Feel free to strike up a conversation if you’d like to chat! 🙂

    I’ve also taken to having the following spiel saved in a word document so I can copy and paste, seeing as it comes up in every conversation. It’s the basic run down of the process for when you’re using artificial insemination (AI) at home.

    The first step is making friends. Donating can be a bit of a process and it’s best if everyone gets along and feels comfortable with each other.

    The next step is getting tested. Sperm samples can contain STI’s such as HIV, so it’s super important to know no one will get sick.

    So once everyone has the all clear, some paperwork is signed to say that this is a donor relationship, and no sex is happening. That protects the guy from being sought after for child support, and allows us to try and get both of us legally recognised as parents on the birth certificate.

    The process of donating is quite simple. A couple of times a month the donor and we arrange a time that suits everyone on the days we know the biological mum is most fertile. The donor puts a sperm sample into a sterile cup that we provide. Then within one hour we arrange a handover – he drops it off or we pick it up.

    Sperm dies really fast outside of the body, so that bit can be tricky to arrange, especially if the donor and us don’t live close.

    But basically that’s it. This goes on every month until a pregnancy occurs, then if we’re lucky, all goes well and a baby is born. 

    Please be aware if you’re thinking of going down this road yourself that there’s some important considerations to keep in mind! Firstly, someone can have HIV but not show up as HIV positive in testing for a couple of months. So a clear STI test doesn’t always mean you are safe. When you’re using donor sperm and a clinic, the usual practice is for the clinic to freeze the donor sperm for 3 months or longer, with an HIV test for the donor at the start and end of that time. If both are clean, then the sperm is considered safe to use. Obviously you can’t do this at home, so you need good, honest conversations with a donor you trust about their risk of contracting HIV. Despite popular belief, the health of the donor is also very relevant to the chance of conception and a healthy pregnancy. It’s probably far more important to look at factors such as current drug use rather than education level or eye colour when you’re choosing a donor.

    Another important thing to consider is the laws where you live about donors and parental rights. Everywhere is different. Don’t assume that just because you’ve used AI instead of had sex that you’re all safe and legally protected. Not all the laws recognise donors outside of a clinic, and not all the laws recognise that a same sex couple can both be parents. There are occasional horror stories about donors being pursued by the state to pay child support, or a non-biological partner being denied access to their own children following the death of the biological parent, or breakdown of their relationship. Do your homework! You may need to lodge forms, sign stat decs, and jump through various bureaucratic hoops to make sure your relationships are all legally recognised the ways you’re setting them up. If you are trying to set up a poly relationship or clan with more than two parents being recognised legally, you need advice from a specialist lawyer because this is extraordinarily difficult to pull off within current legal frameworks. It’s also important to mention that, all jokes aside, please don’t use regular household items such as your kitchen baster for DIY insemination. You can buy single use, sterile medical supplies online discretely through sites like DIY Baby. The last thing anyone needs is infection at early stages of pregnancy.

    Another consideration is that around half of all fertilized eggs are lost to very early miscarriage. Women who conceive through sex are often not aware they were even pregnant because it happens so early in the process. But for those us using donors, we’re watching the whole process and often confirming pregnancy very early. So while our chances of miscarriage may not be any higher than anyone else’s, we can be aware of early losses other people aren’t and this can be very painful. It’s worth keeping this in mind and remembering that sadly, losses are to be expected as part of the process. (just as a side note, this is not what has happened with Rose, all her losses have been later, hence our care to go through fertility testing and work on pre-conception care to reduce our risks) There are things you and a donor can do (such as not smoking) to reduce your risks of miscarriage, but the base-line stats even for healthy people with low risk factors are still a lot higher than most people realise, and this can be a shock, both for you and your donor.

    Lastly, even with the best of care in tracking your fertile window each month, it can take a while before conception and pregnancy result. When you’re inexperienced and excited it’s easy to think of a sperm sample as being a magic ticket to a baby – especially so if you have friends who’ve been more fertile than they wanted and had pregnancies on the pill, or when you’ve all spent your whole adult lives being super careful to avoid getting pregnant and worrying that the smallest mishap will inevitably result in an unwanted pregnancy. Both you and your donor need to be prepared that this could take a little while, and that’s normal. You may be lucky, so be ready, but you may also spend months arranging collection of samples with a donor who needs to remain a low HIV & miscarriage risk throughout that time. It can be a lot more drawn out and inconvenient than anyone was expecting. It may be worth having conversations at the outset about how you will approach things if someone’s circumstances changes and they want to stop. Donors have lives, sometimes their kid gets sick, or they get an interstate work offer, or start a new relationship, and what was a wonderful idea six months ago has become a stressful imposition. Sometimes too, your circumstances change and you change your timetable, perhaps you need time to grieve after losses, or you suddenly have to move house, or find yourself caring for a sick parent. Putting this on the table at the outset can help those important conversations to happen early and calmly if they need to. This is doubly important if you have a reciprocal arrangement with a donor – ie two families assisting each other to have children via sperm donation and surrogacy. There’s a lot of opportunity for heartbreak and hurt in these situations, as well as connection and joy.

    If you’re curious to learn more about different family structures, including families with a known donor, I recommend (and own) the book Baby Makes More. There’s a wonderful range of families who have shared the good, bad, and ugly of their choices, their struggles for acceptance, and their efforts to find a language to communicate about their relationships. The legal trend is gearing generally in the direction of known donors after many years of anonymous donation. Some children born with the help of an anonymous donor experience the kind of dislocation that children born in closed, secret adoptions do, and go searching for information and history as they get older. In recognition of this, legislation is beginning to change in places and enforce that more information needs to be disclosed for secret donor arrangements, and that adult children conceived with a donor should be able to access identifying information. This is not to shame or judge those who have chosen to use an anonymous donor, merely to point out that we are moving in this direction culturally and we need to find more comfortable language for families and relationships like this. Where once it was thought that secrecy helped people, that children were more secure if they didn’t know their ‘big sister’ was really their biological mother, or that people would cope better with sickness if they were not told how bad it was, things are swinging more in the direction of disclosure and openness being essential to trust and a healthy sense of self. It’s no guarantee, and there’s certainly downsides, but we are starting to embrace that family comes in many forms, and that these complex ties of love and blood are part of all our lives – for good and ill.

    Motherhood with Rose

    Rose and I talk a lot about having kids. When, how, child raising values, options for donors, financial pressures, housing challenges, and the unique concerns and possibilities afforded by a pair of women in a relationship. (we are by far luckier than a pair of guys in South Australia trying to start a family – sorting out a donor is a lot easier than finding a surrogate) Financial is a messy, tricky one. I don’t want to raise kids in poverty. On the other hand, our poverty, here in Australia, is comparable to some pretty serious wealth in many other parts of the world. It’s a weird one. We’re working on various options for long term financial survival despite health and disability issues. Rose’s job is a blessing in this respect, and I’m trying to juggle my health, my business plans, study, and home life. Some days it feels like it’s all working out, others I’m buried by it all.

    I recently discovered that if Rose and I have a child together, that we cannot have both of us on the birth certificate as parents. I’m crushed. I’d been told that this was possible now in South Australia. Apparently there’s a time factor. Both same-sex parents can only go on the birth certificate if they have been legally recognised as defacto partners for several years. This seems arbitrary and ridiculous to me. One night stands resulting in pregnancy are recognised, while both of us loving and planning and being cautious about living together before we’re ready have to go to such lengths to prove we are parents. I hate it.

    One of the challenges I find is that culturally we have this idea of the real Mum. A lot of us don’t fit it. A step mum isn’t a real Mum. A transwoman can’t be a real Mum. An adoptive mother isn’t a real Mum. And the first time someone asked Rose which one of us was going to be the real Mum, I realised that we weren’t going to fit it either. One of us, the one who carries the child, is seem as the real Mum. The other of us will be the other mother, an oddly dispensable role, and one with eerie echoes of the creepy bad character from Coraline. The person who isn’t on the birth certificate, who has no automatic legal recognition, and who is often seen as a kind of watered down, inadequate father, or an unnecessary duplicate. A kind of spare Mum, in case something happens to the real one.

    Gender roles can be a real headache. I hate them when I’m in a relationship with a man. I hate them when I’m in a relationship with a woman. I hate being asked ‘which one of us is the man’ as if being male and being the ‘dominant’ partner are synonymous, and as if every partnership must have a man or a man substitute in it to be legitimate. I find it deeply offensive to be told that ‘all relationships, even gay ones, have a male and a female in them’, and Rose and I have encountered this idea more than once! Or to be asked which of us is the ‘butch’ one, or which is the man of the household. (obviously, that’s my cat, Sarsaparilla) One of the funnest things for me about dating a woman is that there are no clear social roles. Who pays at dinner? Do you open doors for each other? Who cooks the BBQ’s? You get to define all these between the two of you to be whatever you like. This is awesome! You can figure out what suits you with a whole lot less social friction around defying traditional gender roles. Unless of course, you’re in networks who need women to be ‘girly’, or need one of you to be clearly defined as the ‘manly one’.

    The same gender role issues happen when you start planning a family. I don’t like being seen as a castrated father to a child Rose carries and delivers. I am a real mother. The clearly defined roles of mother and father that have been inherited from a terrifyingly rigid 1950’s model, get instead broken down and parcelled out to each parent, each aunt and uncle and family friend and godparent and grandparent. Everyone brings something different, something unique, to the life of a child they care about. We’ve spent so much time in our culture having arguments about gender and how being a mother and being a father is different, more or less important to a child. Gender is important, if for no other reason than it is an intensely key aspect of how our society thinks about and treats people. But, like relationships, parenting roles work best when they’re fitted to skills, interests, and passions, rather assigned based on gender.

    People are often baffled or weirdly thrilled when Rose and I tell them we each hope to carry a child. On the one hand, this fits us neatly into the gender roles of female. On the other, it defies the belief that even queer relationships have strictly separate male and female roles. And here’s the real kicker – to both be legally recognised as parent of our own children, we would have to be living together in a defacto relationships for a number of years – which is assessed by welfare and would radically reduce my pension without considerably reducing our expenses. This doesn’t happen for any other type of relationship. I could live with my sister or any other family member, any friends, anyone else in the world, provided we’re not having sex. We could raise children together, share household responsibilities, in all other ways be a family… we could even be ex’s or one could be full time providing care for the other through sickness or disability. But if we are currently in a sexual relationship, I become immediately forced to be financially dependant on Rose, and both of us struggle to pay the bills. You know what – I realise that we’re so used to this idea it seems ‘normal’ to us, that we have spent a very long time building our notion of family around a sexual relationship between a single couple, but I’m repulsed by this. It makes me feel like my government is prostituting me. Rose and I could support each other as straight single Mums, raising each other’s kids together, we could relate as sisters, we could build our own family on any number of wonderful different ways, but sex is different. Sex means I can’t maintain my financial independence, my own balance of power, my separate self. We’re a halfway secular country still running on ideas of ‘becoming one flesh’. This makes people like me highly vulnerable. I have watched so many people, often but not always women (that’s another post!), become so vulnerable because of our ideas around housing, finances, and sex. It’s time for change. If we want to stop the merry go round of vulnerable people winding back up on the streets or in shelters, we need to make it much, much easier for them to explore new relationships without losing their housing or income! This bizarre privileging/excluding of sexual/romantic relationships apart from all other kinds of relationships is so unnecessary. Families come in many different formats. Love is what binds us together. There are platonic flatmates out there with 1,000 times the compassion and devotion to each other than exists between some mothers and their children, or some husbands and wives. Sex with someone should not collapse you into a single legal entity, financially or in any other way. We are beyond this now, thankfully, here at least. We are not property. We are not resources to be sold or bargained over. Marital rape is a real thing. Domestic violence is a real thing. Queer relationships are no longer illegal or mental illnesses. Fostering, adopting, kinship care, and step families are part of our normal family make-up now, as are extended communities of ‘family’ we may have no blood or marriage ties to. More than one sexual partner in our lifetime, casual sex, poly relationships, and defacto relationships are happening all the time. When our laws around tax, marriage, lineage, and legal standing haven’t caught up with the social changes, people are highly vulnerable, such as trans people having their marriages dissolved whatever their wishes. People get hurt!

    So, Rose and I live in separate houses, because it has worked for us. It keeps us both independent financially, it gives us each a sense of secure home that isn’t threatened by hitting a rocky patch in our relationship, (because we have not got our shit together around housing and homelessness in this culture!), it holds onto my public housing unit while we try to decide if we’re financially secure enough to let it go, and stops our cats from killing each other. We’ve made it work for us. We love our little commune of close friends. It’s unusual but not unheard of, Frida Kahlo and Diego Rivera lived in adjoining houses, as do/did Tim Burton and Helena Bonham Carter. We’ve taken the challenges and found a way to make them work for us. We’re now faced with the bizarre scenario that the only way we can both be entered onto the birth certificate of our child (and therefore legally recognised as joint parents) is to trek across state borders towards the end of pregnancy, and make sure that we give birth to any children in Victoria, where the laws are different. The only alternative is to give up on the birth certificate and pay lawyers a lot of money to draft parenting agreements. But that empty box on the birth certificate, it’s haunting.

    We’ll figure it out. We’ll be okay. We’ll make it into an adventure, a wild story to tell, I hope. We are so damn fortunate, we have so much protection and so many rights, bought through much struggle and courage by people who have come before us. We have some of the most beautiful friends and family in the world, people who see us as people rather than living embodiments of gender roles. People we love as family, who are excited for us and supporting of us. We are blessed indeed. But this mess around both of us being recognised as mothers makes me very angry. We deserve better.