Using language to support parent infant bonding

Language is so powerful. When Poppy was born we found many people would frame our experiences or her behaviour in ways that were not helpful for us. It’s amazing how many of our common phrases ascribe bad intentions to the child. It may seem like nit picking to fuss over a word, but words build the story that impacts how we understand each other. They create the filter through which we interpret each others intentions.

I first learned about attribution theory in uni, studying psychology, and a lot of things clicked in my mind about people I’d known. Most anyone when depressed or overwhelmed sees the world and other people through a filter that makes the innocuous seem hostile and the mildly difficult downright sinister. Some of us are more prone to this more of the time, living in a world where grey runs to black. How we feel can strongly change the way we interpret others and the world around us.

Many of the stories created by common phrases used about children would pit Poppy against us, as if she was indifferent or even cruel. People would say things like she was “being a jerk” if she wouldn’t stop crying, was “too smart for her own good” if she climbed something and fell off, “had us wrapped around her little finger” if we went to comfort her after she fell over.

On one level this is a way to be light-hearted about the stress of parenting, laugh it off, and validate how awful and exhausting it can be! But for some, in the context of stress and sleep deprivation, this can also take the relationship between parent and child into dark and risky places.

It can be difficult to understand just how painful things can get if you haven’t been there. In the early months of Poppy’s life, I was often sick, very sleep deprived, and feeling at the end of my tether. I’ve noticed that a kind of flip in thinking can happen when things are really bad. If you feel stretched past capacity enough, at some point it feels like it’s not possible for everyone to survive. Survival instinct and maternal instinct start to contradict each other. The maternal (or parental) impulse to protect and nurture is powerful and we tend to see it as the norm. But it’s not always the way, and when threat levels are high and bonding is distorted it may diminish or become secondary. The impulse to protect the child may dissipate next to the sense that there’s simply not enough resources for everyone.

Things can get really desperate if the child’s behaviour is framed as a threat in some way to your own survival. The shift in thinking from ‘we are all in this together, having a tough time’ to ‘they are sucking me dry’ is a risky one both for the relationship and the child.

This interesting article, the neuroscience of calming baby explores what’s going on behind a common phenomenon – babies are calmer when carried and held but will often become distressed when put down. It talks briefly about how important it is to understand that this is an inbuilt mammalian response, to “save parents from misreading the restart of crying as the intention of the infant to control the parents”. Soberingly, this is important because “unsoothable crying is a major risk factor for child abuse”. This is not in any way to blame a child for being harmed, or to excuse harm done to children. It is to examine the context in which otherwise devoted, well intentioned parents can find themselves struggling with furious impulses or not coping.

Ascribing bad intentions to a baby starts to activate a sense of threat, that the child is wilfully harming the parent, deliberately denying them basic needs of food, sleep, and relief from distress. When bonding is good and parent needs are getting met, these things don’t matter so much. But in harder times they can contribute to a sense of being tortured by the child rather than by the circumstances. It’s desperately important to see a child’s distress as distress rather than an attempt to control, manipulate, or do harm. Language is part of how we do this, helping to interpret and contextualise so we don’t distort what we’re experiencing.

It’s also critical not to set up impossible expectations such as “when you cry I will make it better for you” with a child. Overburdened by this sense of responsibility, parents are at risk of feeling intense distress in the form of failure, agitation, and frustration if confronted by distress they cannot sooothe or silence.

Rose and I translated a lot of common sayings when we encountered them. Someone would say to us things like:

  • “She’s fighting sleep” and we would agree but shift the intention- “yes, she’s struggling to sleep today”
  • “She’s not a very good baby” becomes “she’s having a hard time settling at the moment”
  • “She’s got you wrapped around her little finger” becomes “she sure is a little cuddle-bug”

This was incredibly helpful for me in a few instances where I was struggling. In early weeks I was prodromal (warning signs of psychosis) partly due to severe sleep deprivation. I would get Poppy confused with Tamlorn, the little one I miscarried. Rose and I would tag team Poppy all night to give each other some sleep. There have been times I’ve handed Poppy over in sobbing distress and Rose has taken her out for a morning drive because my nerves are shredded by her crying and my nipples are mangled from her biting and I’m losing it.

It makes a difference to understand that Poppy is behaving as she is supposed to, not to harm me. Human babies often want to be held all the time and use crying to signal fear, pain, hunger and every need they have. It’s also a biological norm for infant crying to send us round the twist, and being able to see our own limits coming up without hating ourselves for them is valuable. Infant needs can be more than a parent can meet, or impossible to understand at times. Nurtured infants need nurtured parents and few of have invested in those kinds of communities before bringing a baby into the world.

Parent needs are deeply important to meet in order to buffer that sense of threat and reduce the fight/flight response being activated in distress. Staying out of crisis mode is partly achieved by treating adult needs as real and significant, and using language wisely to tell the most helpful story about the situation.

So we found it helpful to say ‘squeaking’ instead of ‘screaming’ for example. “Our little person is squeaking again” sounded less dramatic and helped us keep perspective. We talked about “witching hour” and planned around the time every evening that Poppy would be overwhelmed and inconsolable. We used baby wearing to manage her desire to be close in a way that reduced our fatigue and back pain, learned how to rest her face on our shoulder so her screaming didn’t go right into our ear, and use as a mantra “I’m here with you, you’re not alone” in place of wanting to fix it when nothing was working.

In our case, ‘colic’ was managed by reducing stimulation. The lights went off every night at 6pm, Poppy had a warm bath as soon as she started becoming distressed, and we didn’t go out in the evening for many months until she passed through the phase.

Language is a big part of what helped us navigate these huge challenges well. The risk of psychosis in the early days, serious difficulties with breastfeeding, and a baby with undiagnosed functional lactose overload and colic caused by sensory overwhelm. Combined with 2 deaths in the family and a range of illnesses for Rose and I, it was not an easy start. We were and are ecstatic to have Poppy, she is an absolutely beautiful, loving, curious, adventurous child. Tending to the stories we told and the language we used helped us to bond together during those difficult times.

Love amidst pain

At times when I’ve been very broke, I’ve felt that a troubling and difficult to name challenge that has been not the obvious stresses – affording bills and medical care and food, but a subtle one. Judged according to choices it’s assumed I’ve made, my life, my clothes, my presentation fits me to a standard. If there’s only one pair of jeans in the op shop that fit me, their cut and colour says little about me except my lack of choices. When I’m with others who’s choices are also constrained, this is understood, and we envy each other when personal taste isn’t inhibited by limitations. It’s a joy when we can forge something close to our sense of self from what we have.

Today I have been resting. My mind is burned out trying to understand some things that are extraordinarily painful to me. I have read and watched movies and curled up on the couch under a blanket. The weather is glorious, late summer and soft sunshine. I am recovering from a horrible head cold that has made my whole body ache. And I am thinking about my life not in an abstract sense as if I could have done anything, but from within the constraints I have faced. The long and terrible illnesses, the homelessness, the loneliness, the terrible suffering and self loathing I am still recovering from, growing up queer and unsafe. I think about the cards I was given and how I have played them and I am at peace. I have an incredibly beautiful life. I adore my family. I have navigated such heart rending and terrifying challenges to be here and to love the way I do from a heart so starved and shattered. It is so far in many ways from what I wanted or hoped for. But it so glorious given how lost I could have become. Queer and Christian can be a death sentence, and when I return to my old home at times, I can see myself on the floor of the bathroom like a ghost. I am curled around myself screaming silently and begging god to undo what I am. I have faced the absolute terror of hell and exile to stand here today. I have faced suicide and self harm. I have faced a loneliness so deep and profound that it felt like it was erasing me from the inside out. I have navigated multiplicity and psychosis, caring and needing care, the loss of friends, the heartbreak of not finding my place in employment.

I would not have chosen this path. I would never have chosen homelessness, or chronic pain, or my string of failed attempts to haul my life back onto the track I was aiming for. I would not now choose our vulnerablity, our financial insecurity, our public housing. I aimed very high and where I’ve landed so far, it turns out, is incredible.

I adore my daughters with all my heart, and the joy in parenting them surpasses anything else in my life. My beloved Rose and I are restored to each other after the terrible strain of last year. We are learning that knowing each other for 6 years does not mean we know each other. That love is in asking the questions and listening closely to the answers. The hand reached across the gulf of miscommunication and expectations. There’s so much love here.

Yesterday I went to a wonderful talk by local artist/illustrators about how they navigated their work while raising young children. It was wonderful and I learned so much. I also realised that their process was only fitted around children, while I was trying to build mine around illness and disability and many other things. It has not been easy and yet I am finding a small slow path.

Yesterday I went to the funeral of someone I had not known very well, the husband of a dear late friend. I was not sure I would be able to go. Death is not something I am reconciled to since I had my terrible breakdown. I felt angry and humiliated by my vulnerability to it. Rose eased me into finding the thorn in my paw. I was terrified of my secret, nagging judgement that his life had been wasted. I recalled heartbreaking conversations with him about his lack of the spark of joy, his envy of my passion. He too, faced many challenges in his life. Only when I found this fear could I see that my block was little to do with him, but my own secret terror that in some way I couldn’t even find words for, my life has added up to nothing.

So I went to the funeral. They read a poem by my late friend. It hurt so badly it felt like I was dying for a time. My heart broke for his friends and family. My heart broke for my friend, and how hard friends can be to come by. How irreplaceable each of us are in the web of our lives. I thought of the millions of people in the world and how easy it is to be lonely. How hard it can be to listen as deeply and carefully as Rose and I are learning again to listen to each other. How life is neither all triumph nor all loss. I listened to the heartfelt eulogies by his friends and saw both his pain and his life in a softer and more loving light. I thought about my friends. I thought about how I would be remembered if I died today, the way I would not want my sorrow or my struggles to be the focus, but my love and the people and things I have loved and tried to learn how to love well.

I went to a therapy appointment yesterday to open in a safe place a big painful box about family and history and abuse and relationships. I cried so hard I couldn’t breathe or stay seated on the couch. I couldn’t stop. So much love and so much pain. Agonising dilemmas that are sunk deeply into my skin like razor wire. No easy answers or lights on my path.

When I left I splashed cold water on my face and hair and wrists. I took a cold drink in a small paper cup and I staggered carefully to my car. I sat with my journal in my lap and no words until the urge to vomit passed. I drove home carefully into the sun, taking the route with the most shade cast by trees, and crept into my home to hold my little girl and a hot water bottle for the rest of the evening.

Today I look at what I have built, what I have made of my life with what I’ve given, or found, or forged, and I am content. It is humble but no secrets rot beneath the floor. It is glorious. I am limping and dancing, both. There are many beautiful and wounded people I have built relationships with, of one kind or another, tended these like gardens that need work and effort and understanding. Learning how to listen, how to speak, and how to endure. Gratitude for those who came before me and made my world possible, those who changed my world so that queer people were not vile, those with disabilities were not repulsive, trauma was not a weakness of character, and that those who were sick or poor should be given a wage to allow them shelter and food. I remember their sacrifices and their work and I am thankful. I remember them when I choose to make sacrifices and to work towards a better and kinder world for my children and their children. There is so much love here.

Painting: Silver birch tree spirit

Poppy and I spent the day together at one of our favourite parks recently. It’s a chance for me to not multitask and to be focused and present in a way I don’t often find myself doing. It was hot and dry and I found it took several hours before I adjusted to that and felt comfortable. The same for not working or cleaning or doing something on my phone, there’s always a restless period where it’s not comfortable or easy, until something adjusts and stills. Poppy and I bounce off each other and have fun in between little person big feelings. There’s often a time when we start to click together like fish swimming along side each other in a school. An attunement occurs that’s wordless and smoother. We don’t get in each other’s way so much, it’s more fluid and trusting. I love it.

We played on the playground and swings and explored the creek. Then Poppy made some art.

She was slept afterwards so we walked around until she fell asleep in the pram. Then I made some art in the shade of a huge gum tree, while she slept peacefully in the cool breeze beside me.

I wasn’t expecting to paint anything significant. I’ve just set up my travel kit with new watercolours and worked out a formula for teal, my favourite colour of ink. I was entirely focused on connecting with Poppy, not looking to fit anything else into the day.

Yet somehow, this beautiful heartbroken women emerged. It’s about the fifth time I’ve tried to paint her. She emerged without planning, starting from her open, distraught mouth and spreading into snow and trees. Painting intuitively like this is a sacred part of my arts practice.

Her hair began to resemble the tree branches and tangle around the babies and her arms. At the end I suddenly realised she was a tree spirit, which has never been part of any painting I’ve made of her. But it fits perfectly.

Christmas is extra sweet this year

We have come through a lot this year in my family, eating disorder and breakdown and a lot of challenges. We’re approaching Christmas now with this sense of how lucky we are. Things could have turned out very differently. We came close to tragedy but we are all still here, and there’s a sweetness and joy in that. Making it a fun and special time of year for Poppy is a focus, so we’ve been doing lots of fun things but pacing ourselves so it’s not too much.

We’ve made our own Christmas cards, late. Baked lots of fun gingerbread – dinosaur shapes for Poppy. Made dairy and gluten free treats for friends with intolerances. Visited the pretty light displays. Wrapped gifts. Put up a toddler friendly felt tree. Had naps, swims, and bike rides to the park. Went to a queer friendly rainbow carols service at a local church. I’ve been happily embroidering gifts and getting loads of extra time in my studio gilding prints. It’s been a busy art month for me, I’ve sold a lot of work! It’s been wonderful. ❤️

I am absolutely loving reading more about book illustration and have begun to map out a couple of roughs for possible short books next year. I may launch into my multiplicity book instead though, and I’m keen to exhibit Smooth Seas never made Skilled Sailors locally, preferably before uni kicks back in. I’ll keep you posted. 🙂

Christmas can be a painful, exhausting and stressful time of year. It can be meaningless, overtaken by other troubles needing attention. It can also be time to celebrate surviving whatever the year threw at you, to remember our departed with love and light candles for them, to celebrate and reflect and wind down from the doing and the plans and goals.

Whatever you are dealing with, I hope you have some sweet among the bitter, someone who loves you, someone to share with. ❤️

Adventures with Poppy

One day a week, I remind myself that I can be tuned into my anxiety about the future, or I can be tuned into Poppy, but not both at the same time. It sometimes takes several hours of deliberately not being focused elsewhere for me to actually feel myself settle and connect. She changes from being one responsibility among many I am juggling, to a relationship I’m sensitive to, we speak in a shared language, track each other, are sensitive to minor changes in mood and state. She is a joy to be with.

Today we went into town and listened to a busker play beautiful music. Then we spent some time in the museum, looking at the butterflies and examining shells under a microscope.

Once Poppy had run off her morning energy, we wandered more sedately through the One Mountain, One River, One Sage: Treasures from the Shandong Library exhibition. The beautiful old handmade books were delightful. ❤ We wandered through the Royal South Australian Society of Arts exhibition on the way home, and Poppy carefully re-stacked the pram so the bags were in her seat and she could ride home tucked into the basket beneath. There’s so much joy here.

At the HealtheVoices Conference

The flight was beautiful, I journalled and watched the clouds. I’m resting, soaking it in.

I’ve been to the Museum of Modern Art and wept on the floor at Hoda Afshar’s 2018 exhibit Remain, about the experiences of refugees on Manus Island. It’s stunning, and as much as I love public health and all the many things I do, it makes me deeply glad to be an artist and to want to stretch myself further, build my work in these spaces of such vulnerability. This is our history, being preserved here, the forbidden stories being told. Art can do that and I’m so in love with it.

Walked in the sunshine with new friends.

Washed the day from me, and slept.

Put on a beautiful dress I’ve never had the chance to wear, (non binary, gender queer people can wear dresses too if they want to) and shared a fancy dinner.

It’s a delight to be here. The alienation I’ve so often felt – in galleries, hotels, places inhabited by people with wealth, isn’t so present today. This is not my world, but I don’t feel at war with myself being here. It’s okay to visit. There’s no rage or burning anguish. I’m able to take in the pleasures and enjoy the luxuries. I’m curious and listening. Other people’s stories and experiences are always so interesting, the overlaps and the gulfs between us such rich food to share.

I keep thinking of the Pt Lincoln conference where I slept in my van in the national park because the bare hotel room stressed me. How hard it was to be there, how excited and exhausted and far beyond my own limits I was. The beginning of my breakdown, falling into the void. Months of anguish to come.

I can stand in galleries now and I’m not in burning pain. I can sleep in the hotel and enjoy the smell of the hand soap. I can walk into and out of this world without losing myself. I’m not numb and I’ve not gone native. I’m just no longer responsible for everything that’s wrong with the world.

I cried a little during a video call home with Rose and Poppy. It’s my first night away from her since she was born, and alone in my room is very alone indeed. I can hear the building air conditioning, and the gentle rumble of the lifts, but no people. I feel insulated like a single bee in a vast honeycomb. If I can’t sleep I might go sit downstairs in the bar to be near to people.

Next time I so want to see the National Art Gallery too.

Tomorrow I’ll be listening and presenting. I wish I’d brought my loom work project, I want to do something with my hands. There’s too many people to talk to, I sit in the middle of it all and let it wash over me like a river. Some of it I can catch and touch and the rest will flow past.

It’s hard to sum up what I do, my advocacy work across many domains. I haven’t used the phrase ‘multiple’ yet, I will tomorrow. I feel tired. I remember being at a conference 8 years ago and discovering 2 other multiples there, the joy I felt! Some people here have a very clear message, a very specific advocacy focus. I admire that. I think in some ways my work around adversity is that for me, but there’s other threads I’m still finding words for.

I miss my little girl.

I love this life. There’s so much joy in it. I’m glad to be here.

Passion and Balance

One day each week, Poppy and I have an adventure. Last week we went to the museum and looked at dinosaurs and opals. I thought I might be mildly hallucinating at one point but it turns out one of the taxidermy animals is animatronic and occasionally flicks it’s tail. A little sign about that would be nice!

Then one of us chased pigeons, played in a very small but nonetheless very wet mud puddle, and fell asleep. The other one of us packed up lunch and went to look at all the interesting things in the art gallery in relative peace.

It’s been a very recent development that I enjoy the art gallery. I’m absolutely wild about artists studios but have often found gallery spaces alienating. It’s been weird and a little embarrassing. It’s assumed they are my home territory when actually I used to have a lot of meltdowns after visiting galleries and didn’t usually go there if I had the choice.

But I’ve been doing lots of work unpicking mental blocks and old injuries, and Rose has taken me to some exhibitions where I’ve felt less overwhelmed by my stuff and more about to enjoy them at times. They are not home territory by any stretch (even my own studio isn’t that yet) but they are also no longer hostile territory. I wish sometimes it was a bit easier to be me.

Nonetheless, adventure time each week with Poppy is an absolute joy and doing us both a world of good.

This is one of the last little things I made in my flame work glass workshop, a tiny bee. Unfortunately because he wasn’t annealed in a kiln, his little wings broke as he cooled down. I’m currently immersed in research about kilns and torch types and where to buy oxygen tanks from. I postponed a planned exhibition of small sculptures when Rose became really sick, but I’d love to be able to put it together for next year.

This bead worked perfectly: I was practicing a technique that traps air bubbles under the glass. My teacher said I was the most gifted student with glass she’d had in 20 years of workshops. It just clicked. I adored it and I’m so keen to set up a flame work space in my studio.

I’m also hugely enjoying my studies. Epidemiology suits me and I’m loving falling down rabbit holes of information and getting a handle on the big topics. Today I was digging into health prevention, surveillance, and theories of health promotion. It’s fascinating to see how frameworks that fit one scenario so well (such as smallpox) have been such unwieldy tools in other contexts (such as diabetes), and how poor evaluation can make health promotion interventions look successful (eg education leading to increased health literacy) when they actually backfire and fail on the important scales (eg increased stigma, greater reluctance to engage in prevention or treatment). I’m just enjoying it so much.

My other project at the moment is a couple of talks interstate. I’ll be traveling to Sydney and Melbourne next month to give presentations at big events. This always involves a fair bit of preparation, both for the talk, planning the event with the folks coordinating it, and planning the trip. I’ll be doing a road trip and bringing the family with me to Melbourne, which is very exciting. I’m really looking forward to meeting the people behind the emails too.

I’m still practicing Kaizen and being mindful of Barbara Sher’s types of scanner, hoping that I’ll learn what schedule suits me best and how to set up my projects so they and I both thrive. I’ve several more wonderful projects waiting impatiently in the wings, but right now I’m finding downtime is important and immersion time helps, trying to change hats all day long is exhausting. Hopefully in time I’ll learn more how to balance everything I love so much.

It was a wonderful week and I’m excited about the week ahead too. We continue to muddle through; work, study, friends, home, family. Learning, helping, creating. Good things are emerging. ❤️

Navigating overwhelm

Poppy and I spent the day together yesterday. We visited a festival in town, spent a long time learning how to cuddle bunnies, pat baby sheep, not to be scared of the chicks peeping.

It wasn’t one of the easier days. She had meltdowns about wearing clothes, and howled all through the bus trip because I wouldn’t let her kick the window. Sobbing hysterically on the seat next to me, wailing ‘Don’t touch me Mummy!’ as I dug deep for patience. There’s nothing like parenting an unhappy little person to make you doubt your competence! The best moment was when she was dancing to a choir, full of vim and delight and I could sit for a moment under shade and rest my tired brain from the high alert state of watching a small person running around an un-fenced area surrounded by traffic.

It wasn’t one of my easier days, wrestling a sinus infection and struggling to get up to date with the grad cert I’d been a late enrolment in… The challenge hasn’t been the content of the course it’s been the online format, which was a surprise to me.

So Wednesday for example I went into uni and hoped to get some work done after an appt, then discovered I couldn’t complete one assignment because the necessary information had been sent out prior to my enrolment, so I didn’t have access to it. So I hopped on a computer and figured I’d listen to a lecture, then realised I didn’t have earbuds with me so I couldn’t do that without disturbing others. So I came home and tried to access the lecture on the laptop I’ve been borrowing, but it’s embedded in a power point and the open office software messed so badly with the formatting I couldn’t follow any of the text. So I dug up a pair of earbuds and tested them in my phone to make sure they worked, then headed off to my office which has the microsoft office suite on my desktop. Where I discovered that desktops can’t process earbuds with inbuilt mics unless you have a splitter to separate the signals. So still no lecture for me. At which point I cried and came home.

The trickiest part is that I’m navigating these challenges I need to keep my mental space together. The more I struggle with things the stronger my sense of anxiety and displacement become – that I shouldn’t be in higher education, that I don’t belong and I’m going to fail (again). I’ve been talking myself gently through all the challenges for a couple of weeks and bouncing back well, but yesterday with uni and a work challenge not coming together I fell in a hole. I got back from my day with Poppy and couldn’t make decisions anymore. Should I try to get more done (everything is due on Sunday! and I’m late with everything!) or try to rest and clear my head? Bath for restoration or bed for sleep? Poppy woke me up hourly the night before and I felt like my head was a watermelon hit with a hammer. Am I getting sick with the cold everyone’s had, in which case this might be the clearest I feel as I go down over the weekend, or is this mostly sleep deprivation in which case don’t soldier through, rest and come back to it.

My mind obsesses about the problems, trying to solve them even when it’s clear I’ve no capacity left to think clearly. It adds in bigger, older ones I haven’t solved – what am I doing with my work life? How am I going to schedule everything? Where’s the next job coming from? Smaller problems get unimaginably large as the overwhelm diminishes my capacity. Everything clusters together into knots where I can’t assess priority anymore. It all feels urgent and impossible, the unmopped floors, the people I haven’t caught up with, the tax I haven’t quite finished, the assignments due in days… I notice the biggest anxiety is in thinking I’m supposed to look like I know what I’m doing but I’m scared it’s becoming obvious I’m unprofessional/incompetent/unskilled. I’m afraid this is the reason I’ve failed at all those job applications, and the more anxious I am that it’s my fault, the more desperately I try to show I’m competent rather than bewildered. A customer texts asking if I’m free for a gig and I seize up, unable to message back because I have a social engagement at that time and I can’t decide if I need the income or the time with friends more, can’t even work out how I would work that out, and my car died last week, very expensively, so if I say yes to the gig I’m also taking Rose’s car from her and making a choice about her access.

The longer I don’t text back the more my head is screaming with alarms about not being professional, and the worse the sense of failure and self loathing get. Once they are too strong, I can’t push through them enough to write back, can’t work out what to write, can’t make the decision, and everything I do, including continuing not to write back, is utterly utterly wrong, self sabotaging, and proves I have brought all the bad luck in my life on myself. I can see it happening but I’m swept along in a avalanche. Every move I make is wrong, and I can’t reach out for help because I think that’s probably wrong too. I open texts and messages and can’t work out what to write or who to send it to. I can argue all the cases (reaching out for help is a good thing, chasing being rescued is a bad thing, so and so won’t mind hearing from me, I’ve been leaning on so and so too much) and I can’t work out a fair or reality based guideline. I’m just lost and inclined to blame myself. My thinking spirals in on itself and the intelligence which is so useful and incisive in some areas becomes destructive beyond my control.

Overwhelm is such a huge part of dealing with parenting and mental health and yet I find it’s not talked about that often. It’s been a big part of my focus in my family for the past couple of months – what sets it off, makes it worse, makes it better? Carving up my life and rearranging it so it’s not part of my baseline anymore.

So yesterday I went to bed but couldn’t sleep, had a bath and felt physically a bit better. Visited friends for board games and found that I couldn’t do the games and run the mental programs of trying to figure out my study and business/work. That was desperately needed and nothing was engaging me enough to get me there until then. The mental break was restorative. Last night Poppy only woke a couple of times. Real rest, mental and physical. So today, I’ve read over the email from my lecturer that has bewildered me every time I’ve looked at it for two days and at last I think I can see what he wants, I think it’s just an odd grammar structure possibly part of English as a second language (wild guess on my part) where the the question asks What but really means How or Why. Maybe this is normal for public health? I don’t know yet. I’ll adapt.

These are the skills and patterns I need to get this cert. I am going to figure this out.

Deep breath. Soothing internal voice. We can do this. Back to it.

 

Ink Painting: We fall into the stars

A3 size. Ink on Arches paper.

A little while ago, Rose took Poppy and I camping, back to Rapid Bay. The place we used to go when dating. The place I went alone to mourn Tamlorn the Mother’s Day after the miscarriage. The place I fell off the planet into the void when running from the ‘real world’, but sent alone under the stars, in exile.

Together we watched the stars, a million million of them, brighter than I’ve ever seen. Satellite and stars falling and the milky way a mist across the sky. In the bay, dolphins swam with their young. Poppy asleep on my lap, my eyes wet with tears. I didn’t know if there would more nights like this for us. Somehow here we are, holding hands under the stars.

It is the work of our lives to find some way to stay alive, to still feel alive.

In Rose’s arms there, I felt so alive, it was like breathing stars that fluttered in my chest. We sat up in chairs opposite each other, held hands and looked up. It felt like the world tilted and we were looking down, into an ocean of lights. We held onto our chairs and each other and kept looking, hearts cracked open in wonder. All that starlight poured in. Love grows stronger under moonlight, feeds on poems.

We sit at the edge of the world and hold hands. Our child sleeps. The wind is warm and soft. We look up. We fall into stars. Love binds us to the world and each other. We do not fall.

Family Joy

My wonderful sister was married on the weekend! Rose and I were bridesmaids and Poppy was a flower girl. It was very beautiful, very moving, and I cried through most of it! We were not as helpful in months prior as I’d have liked to be, Rose being in hospital was unfortunate timing. But we were able to help a bit with their gorgeous newborn baby so preparations could happen, and I helped make a bouquet and the fresh flowers and pails for the flower girls and boys to scatter.

Most of the petals were harvested from my garden that morning, keeping to the theme of purple with a little white, pink, and red, and everything chosen needed to be soft for any bare feet to step on.

My clever sister designed her brooch bouquet with gift brooches from family and friends. I wired it up and helped secure it all in place.

This was the bouquet part way through construction: a bit less glam at this stage! Don’t ask me to make another one, I swear I’ve got more grey hair!

Funny story, I was finishing the handle with some small nails the night before the wedding when Poppy grabbed a jar of nails off my desk, tipped it up to her mouth like a cup, then coughed and spluttered. When quested she told us she’d swallowed a nail so we all had to trek into emergency again. There, the nurse stripped her down and discovered she set off a metal detector over her chest and back, faintly! We were facing possible surgery and most of us not making it back to the wedding. But the x-rays came back completely clear, so after many unhappy hours of nil by mouth, we were able to take her home and continue as planned. Lucky!

There was a surprise naming ceremony for my tiny niece at the wedding too, and I was so honoured to become a godparent. ❤️ My sister is a truly lovely, brilliant, and kind person, one of my closest friends. To celebrate and part of such a joyful (exhausting) time in her life makes me very happy. I can’t wait for our kids to play together. And maybe sometime for Rose and I to celebrate our family too.

Still kisses with saliva

You know it’s a good weekend when you wake up on an airbed on the floor of your mates place.

Rose was back in the ER last night having brain scans to rule out scary possible causes for severe headaches and really high blood pressure. I wound up driving all over the countryside and took her back up to the party late in the evening then decided to stay put. Her scans were clear, thankfully. Something’s going on but it’s for the local doc to sort out.

Apart from the health scare it was a great day. I even made it to the studio, bought some new paints, and started a new art work. Had some folks switch out who haven’t been around in ages. Felt liberating.

Rose and I celebrated 6 years together this week. We went out for ice cream together and have another camping trip planned. It feels like we reached rock bottom recently and are coming out the other side. Falling back in love. Making a life again, not just surviving and holding on. After the long downwards slide, engines on fire and screaming, it’s exhilerating. Still here. We’ll make it work.

Posted this on Facebook: Happy 6 years together, darling. What an adventure! You are the most amazing person, so kind, devoted and loving. You have such depth and complexity, so many contradictions and unexpected qualities. You give me great courage! Your patient and enduring love make you the most attentive and wonderful parent. Your honesty and bravery inspire me. Your dreams for our future make my heart happy. The humble way you learn and change your mind and explore life keep you open to new horizons and possibilities. You are beautiful and strong. I’m proud to be with you. I love you.

Waking up to find it’s all not as bad as it seemed. Counting the cost and tallying the things we still have. It’s enough. There’s enough here for a good life. There’s good earth here to grow in. Good memories to build on.

The household is still sleeping. Poppy is pressed into my back, warm and soft. The sunlight after the night’s storm is chill and white. My bones are full of happy conversations around the fire with friends, and chiming softly. It’s damn cold. But yesterday we switched and stretched and remembered the real world isn’t the only one out there. Stepped sideways into other places. Supped, cracked bones, sucked marrow from life. Ink on fingers, poems slyly in mind like sleeping snakes. She kisses me and I can tell she means it. I sit under the tree in the backyard and the world turns over in its sleep, I slip past and out some other door where my chest is a seashell holding the roar of the ocean. We drive in the night, Bowie, NIN, VNV, Numan singing of darkness. Into the company of people and we are not afraid.

Reconnecting with my daughter

Poppy is two now! She is one of the greatest joys of my life. I never thought I would meet anyone else who loves swings as much as I do! We spend hours on this little swing in our back yard, or bigger swings at the park. ‘Higher, Mummy!’ She sings to herself on them, her own complicated versions of Twinkle Little Star or Indy Wincy Spider, concluded with giggling. Sometimes like yesterday, she stays on so long so rocks herself to sleep. Her little head droops and eyes close. I gently bring the swing to a stop and gather her into my arms, soothing the storm of tears about wanting to be back on the swing until she calms back to sleep.

Most mornings we share breakfast together in the back yard. Porridge, cereal with banana, eggy toast, and tea. Under the tree my heart expands, wakens more softly and looks at the day with a hopeful spark.

All my life I have so deeply wanted to be a parent. I am so grateful and so fortunate. She is glorious. And over the past month, I’ve learned to my surprise that I love and am well suited to being a stay at home parent. When both Star and Rose needed great care I quit work and felt like my life had ended. A sense of fatalism and despair. But I also felt something I didn’t expect. Joy, relief, new hope. As I match my days to Poppy’s needs and rhythms, a life emerges that is splendid. There’s peace, and fun, and connection. So I keep building on it. I find that my ideas about work are deeply poisoned. I am trying so hard to understand and recover from them. It is slow, painful, frustrating. Full of flashes of insight (work is my punishment for being on welfare) and such profound shame and self loathing I cannot understand anything or progress anywhere. I sit in front of my shrink sobbing until I want to throw up and there’s no understanding.

I’ve quit work. My work now includes peace and connection. There’s moments I simply sit and look at the sky. There’s tickling Poppy while she shrieks and tickles me back. There’s holding her as she falls asleep and feeling my heart expand and burst softly in my chest. A hundred invitations to be present in my life in a way I haven’t been.

Softly softly, the carer counselor tells me. We lose connection with ourselves and want to change everything, make it all right, now. Little changes for carers drained to the last drop. Choose what I want for lunch. Sit in my favourite place. Don’t always offer to do, eat, watch what the other person wants. Undo the impulse to destructive self sacrifice one tiny decision at a time, a few times a day. Tuning back in to my self and owning my own choices.

Rose and I realise that I’ve also stepped back from her pain in a way that’s blocked me from connection. She’s vulnerable, as the non gestational, non biological parent. Even more so with a terrible history of losses. I am sensitive to her fear, her desire for closeness to Poppy. When Rose is around Poppy, I fade into the background, unobtrusively. I cook or clean and care but I do not play or adventure or adore. I don’t step into the place that makes Rose sad or afraid. And in this way, for the best of reasons, I step out of my own life in a tiny thousand ways. My own relationship with Poppy. I become a caretaker instead of a parent. Rose has always seen this and been puzzled by it. She would try to cue me back in touch, help me notice when Poppy was trying to get my attention, encourage us to spend time together. I would read her buried anxiety and unthinkingly step back. Love as sacrifice. A vicarious life. My needs last. It’s hard to have a relationship with someone so out of touch with themselves they are barely in the room.

Rose emerged from her breakdown to find what she’d been hoping for has happened. Poppy and I sing to each other, snuggle, connect. She invites me back in, learns to celebrate alongside the little wince when I’m connected. I pay attention to my pull off course, the inclination to fade back and make small course corrections, a hug, eye contact, a few shared words. This child has two parents.

I am discovering the power of limits as well as nurturing. That a deeply loving yes must be bounded by the capacity for a deeply loving no. A willingness to let the other hurt in pursuit of their own growth. I adore Rose but should never have withdrawn from Poppy to make her more comfortable. Nor would she ever have asked that of me! There’s a kind of nurturing that is life giving and a kind that stifles, incapacitates, infantilises, wounds. I have mixed them up together and not been wise in my caring. Those I love and tend have grown both stronger and weaker in my care. I did not mean to harm but I have harmed. Stripped of agency, responsibility, the belief in a person’s capacity, they drown in their own vulnerability. If we never hurt we are unable to learn or choose. My love and caring has set people free and eased loneliness and suffering, but also created a kind of institutionalisation I did not foresee, and trapped me in a dungeon alongside them, also being tortured by their demons. Most carers know these places, these dilemmas. They are deep and difficult.

We are taking many steps a to a new life. Small errors are turned by time into routes way off course. The power of leadership, parenting, caring amplifies our weaknesses and impacts those we’re responsible to. Growth is a lifelong process, and sometimes tiny changes have huge impacts. Poppy takes me by the hand and asks ‘Swing, Mummy?’. We go swing.

The tide starts to turn

It’s been an incredible week here. Rose took me camping to my favourite place last night, by the sea under the stars. My heart is so full.

Poppy had hand foot and mouth this week, poor love. Today she was recovered and no longer contagious so she could go back to day care.

We couldn’t take her anywhere near other children and she was very bored and frustrated, so yesterday while recovering from the conference I took her to the beach for a picnic. It was an absolute joy. One of the silver linings of the terrible crisis in my family has been getting a chance to spend more time with her and connect in a way I’d started to lose. I was doing admin and housework and running around being responsible but missing out on snuggles, and being told about dinosaurs in a very serious voice, and the warm fuzzy wonderfulness of parenting her.

Things are easing. I’ve handed in the final draft of the prison magazine project I’ve been working on and the feedback has been stellar so far. I’m starting to cast a careful eye over the next possible projects with dawning excitement.

Rose is healing from the devastating breakdown, a little more present each day. More stars in our skies. We both step back from the edge, baby steps. She’s exploring study options and thinking of retraining in a new field. We are starting to dream about our future again.

And Georgie, Beyond Blue CEO, has tweeted this, which feels like it belongs on a book cover or something. It’s a beautiful summary, I’m happy to try and live up to that.

Our week of birthdays

Star has her 18th birthday party tonight. Friends have generously opened their home to her friends. I’m currently resting on the couch while Poppy sleeps on me. I’ve made 36 small pizzas so far and I have another 12 to go. Star had severe tonsillitis earlier in the week but is looking much better and jittery/excited. She has cute balloons and a photobooth.

My family has a week of birthdays all in a row which is hectic to say the least. We are spacing the celebrations this year. Poppy’s was last weekend in a local park with hot soup, nature crafts, and umbrellas on standby. Rose will be in a couple of weeks in a cafe with delicious chocolate treats and boardgames.

I’m just so glad to be doing this. So glad Rose is still with us and able to be part of things. Happy Star is 18 and doing so well in her own recovery! She’s house hunting and excited about the next stage of her life. And Poppy is 2, fearless, loving, and funny. We are such a mess. And we are all okay. Such a beautiful, vulnerable collection of people I adore.

Our tribe have surrounded us with so much love. Some days I can’t feel it but no one seems to be taking that personally. Funnily enough it’s easier for me to feel the love around us when it’s directed towards someone else I love. A friend of a friend is making a cake for Star and I damn well cried when I heard about it. That we are trusted and loved and considered deserving of informal support when the formal family, health, and mental health supports have been so much less than excellent this past few months… To have not just our people care for us but have them draw on their own networks for us. To have people who are not in such pain welcome us into their lives in so many ways so we can rest in their peace for awhile… It’s healing. It gets us through the day, and that’s all I’m thinking about at the moment.

These birthdays are so worth celebrating because each of these people are so awesome in their own way and I’m grateful they are in my life. ❤️

Strings cut

Yesterday, I got stuck. At the mid point between home and studio, I turned off the road and parked. Unable to decide if I should go forward or back. I sat for two hours, while the rain poured down. I could not work out what I needed. I thought of calling Lifeline, or a friend, I tried to formulate text messages or status updates. I listened and asked inside for clarity. I worked through various options like a game of chess. I got cold.

Poppy was in day care and didn’t need me. Star was going to visit but was unwell. Rose was going to visit but was exhausted and rough and needing alone time. I felt I should go home but was also afraid of conflict and tangles. I felt I should go to the studio but could not make myself travel further away from home.

I came home in the end and tried to sleep. Everyone else slept. A bone deep chill had settled into me, fully clothed beneath blankets I still shivered. I gave up and crept into a deep hot bath, trickling in scorching water until my skin turned pink. The chill finally eased and the paralysis with it.

I often do not know what to say, what I need, what to do. I feel like a puppet who’s strings have been cut. With Poppy I’m purposeful, her needs are clear and straightforward, they sing a song who’s steps I know and believe in. With Rose I’m tangled tangled tangled. I struggle to shake the feeling that I’m destroying my life.

I write text messages and don’t send them. I don’t know what to say. There are no words. I don’t know who to tell. We are so surrounded by love and I am afraid. I try to reach out and find my hand still by my side. Then the moment passes and I can laugh again. My life does not feel so broken and her smile is not full of the ruins of our love. My world flickers between broken and whole. Star drives away for the night and candles gutter out in my heart. Rose does likewise and my anger dies like a wind blown out. I do not understand anything, but walk blindly in fog. Poppy curls up in my lap, wraps her hands around mine. I smell her clean hair, soak in her sweet smile. I have never felt so ill equipped to keep her world bright. Yet I am doing it, following the tides, come what may, cooking, cleaning, cuddling. She animates me. I am hers.

When all the threads unravel the simplicity of story and roles gives shape to the formless and meaning to the obtuse. They hold me like a vase holds water, and I am grateful. The kitchen is clean, the child fed, not all the world is formless chaos. It will not always feel this way.

Rose is back

Rose is home but not home. She was discharged from the psych facility on Monday. We are doing something that seems strange to most, I’ve asked her to keep spending nights apart. Not because we are breaking up or she’s awful to be around, but because I am so burned out I am on the edge of my capacity to cope. The last time she had a breakdown, so did I. This time I have kids and I desperately need to keep my feet under me. I have had many warning signs I’m on the edge, difficulty making myself get out of bed, or force myself to drive home, lots of crying, episodes of screaming (when alone), intrusive thoughts, intense anxiety and irritability, insomnia. I love her to bits and I’m very empathic. I can’t go offline when she’s with me, I’m so tuned in to her distress I pick up on it and feel it all myself. When she can’t sleep, I can’t sleep. I’m always on duty. I’m also chronically triggered. My history involves a lot of caring, and some very painful memories are very close to the surface at the moment. Helplessness in the face of suicide attempts, profound loneliness, fear, horror, torment. At times I feel like I’m trapped in a cage that’s been dragged underwater, and I’m drowning. Love is the cage, and madness, or trauma, is the water.

Nights alone have been a powerful restorative. I have an evening ritual. I clean and organise and cuddle Poppy and feel at peace and connected. The next day I can meet with my whole heart, however good or bad it may be. I’m not scraped raw and quivering with pain. This was my greatest regret in a previous relationship, that I equated the relationship to living together, and thought leaving one ment having to leave the other. I wish I had left the house but used the time to work on the relationship. Without living with their demons, feeling so unsafe and traumatised, I might have had more success recapturing what we’d lost. I intend to learn from that mistake.

Rose and I did this for a long time during our dating too, we lived 10 houses apart on the same street. That blend of together and apart suited us well and we flourished. Two partners with PTSD is an unusual challenge and needs a very specific approach. We are currently hunting for a room she can rent close by to replicate that time in our lives. Part of my plan to get as much of my life back on the easy settings as possible. We are not sure right now what the future looks like or how long we will do this. We spend time together every day, as a couple and a family. We will keep moving forward day by day, getting back into routines.

There are many hurdles yet before us. Welfare is one, they refuse to offer any rent support to Rose unless we formally, legally break up – absolutely the last thing we wish to do. Community mental health services are another, severely lacking in a sense of responsibility, compassion, or even basic customer service. It’s been a tough week but it’s also been so good to see Rose out in the free air again. Even in such a short time, the weight of institutionalisation was so evident. Out in the world there’s something more adult about her, more dark and wild and free and grounded. I fall in love all over again. Her beautiful eyes, soft hands, kind heart. She’s been so lost at times but she finds her way home. Darkness tears gulfs between us. Love bridges them. She is so precious and I’m lucky to have her.

Difficulty settings and disability

I have thought often lately, about the idea that some people seem to do life on a harder difficulty setting than others. I have been fiercely contemplating how I might be able to lower the setting in my own life. So far I have decided I am going to

  • Replace the jungle of mismatched containers in my kitchen with a set of no more than 4 sizes that stack with matching lids
  • Dig out most of the front garden, replace the shrubs with low maintenance succulents, and mulch it
  • Quit project based work and replace it with a smaller amount of gig based work
  • Meal plan for lunch and dinners
  • Have cooking days and freeze portions
  • Schedule all the chores
  • Create a nest space in the home for anyone coping with overwhelm – bed, laptop for movies, books, headphones, toys, blankets, Lego, and air conditioner
  • Limit Poppy’s access to toys and games, change the system to adults access on her behalf so not too many things can be spread across the home at any one time
  • Initiate a toy/activity rotation system
  • Limit the number of clothes Poppy has in each size
  • There are a range of significant disabilities in my home. It’s time we catered better for this.

    In other news, Rose is still in an awfully rough way but being discharged into my care on Monday. I’ve been instructed to simply ‘stop being her carer’ by mental health staff. When I’ve suggested she stay nearby instead of coming home where I have my hands full and a young child who shouldn’t be exposed to intense distress, I’ve been told by these staff that Rose is too unwell to be discharged to live alone, but not unwell enough for any other care option, and if I won’t take her they’ll send her to a shelter. Meaning I’m expected to care for her while being instructed not to care for her. I continue to value accruing my ‘lived experience’ in this sector. 🙄😒😠 {sarcasm font}

    Star has come down with bacterial tonsillitis and is incredibly miserable. And now Poppy has come down sick. I’ve spent most of day cleaning, meal planning, shopping, organising for Poppy’s birthday this weekend, and trying to keep my head together.

    It would be really nice if someone could unjam the difficulty setting from ‘hellish’ and move it back in the direction of ‘stroll in the park’. In the meantime I’m tremendously glad for generous friends, wonderful family, beautiful art buying customers, wonderful clients, and having a keen sense of the absurd. Because when you find yourself cleaning poop off a small plastic turtle after the least successful attempt to clean the toddler in a bath ever, you’re either going to burn down the house or laugh.

    Still choosing to laugh.

    Crisis

    My dearest Rose has had a breakdown, we are both exhausted and limping. She has been in a psych facility for over a week now. We were trying to manage the crisis at home while she crashed, until her distress became so intense she could not stop vomiting. 5 hours, 18 vomits later, some shots of anti-emetics and a lot of tranquillisers in the local ED and finally she could rest a little.

    Our poor little family is shell shocked and run down. Our tribe has rallied and surrounded us with so much love and support. We have both doubted everything hard. Our case worker tells me simply – you can be the strongest, most resilient people ever, sometimes things just go wrong.

    She is working so hard to understand how her world has collapsed, how to find her way back. Is she talking responsibility, a social worker asks me. I think of her desperately colouring in at 3am when the nightmares are so bad she can’t stop crying. Crawling into the shower clothed to find some kind of peace under the thundering water. They gave her a rubber band in the unit, she snapped it until her wrists bruised. Yes, I say, she is very responsible. She is overwhelmed. I am overwhelmed. Sometimes it’s more than we can bear.

    I’m lying in bed so deeply sad it feels hard to breathe. I type messages to people and don’t send them. I look at blank status updates and turn away without words. There is an ice cold patch between my shoulder blades, radiating a chill through my back, into my chest, like a spike into my heart. Aching with cold.

    We talk ourselves into hope. We talk ourselves into despair. Over and over. Holding tight, and on the edge of everything we have loved and built dissembling. We are on fire. We are broken and spilling into the night.

    Rose has messaged me from the unit tonight. She’s vomiting again, chronically, and her blood pressure has spiked. They are taking her back to the ED. I feel broken. They plan to send her home in a week. I cannot fathom caring her, as well as my children, and myself. I don’t know how to keep us all safe. She is the mother of my child. The heart of our world. I love her so dearly. I am so tired. So scared, and so sad.

    Morning in bed

    This morning both girls are playing on my bed, tickling and giggling. Star sits Poppy on her lap and they read a book together, Star doing the sentences and pausing for Poppy to fill in the animals.

    Outside my window our stubborn pomegranate tree is golden and starting to shed leaves. Through the white curtain lace it’s a spectacular sight. I’ve cut it to the ground several times over the years for not fruiting. It regrows each time. When I finally bought a replacement it suddenly produced 5 fat red pomegranates. It’s a pathetic output for a big tree, but I only eat about 5 pomegranates a year anyway. I gave the new tree away.

    There’s eggs and bacon in the fridge for breakfast, warm dressing gowns for trekking out to the cold kitchen to put the kettle on.

    After a month of feeling our family is on fire, it’s sweet nectar and I drink in every moment. I love this family with all my heart.

    Poppy continues to looks stronger and healthier by the day. Star has had her first stable week following 9 months of unfolding crisis. This morning there’s laughter in my house. Rose is away early to the markets, planning a baby shower for my sister. There’s life instead of fear and pain. My heart rests. My heart sings.

    Art book in a prison

    There’s a lot going on at the moment I haven’t found the right words to share about yet, my darling Star has been in crisis. I will, but I wanted to share some things that were wonderful today.

    Firstly, Poppy is recovering beautifully. ❤

    She is a changed kid since the surgery to remove her 4 rotten teeth. We are thrilled. Within a couple of hours of the surgery she was eating again! The ear and throat infections are gone, the very pale face is getting colour again, and she laughs again! We missed that sound so much. It’s been a delight to watch her recover.

    The other wonderful thing was today I was allowed to visit some women in a local prison and consult with them about a great project called Inside Voice, which I’m working on. I love consultation so much, it’s a real joy to listen to people’s experiences and reflect on their ideas. I took in my art book Mourning the Unborn, watercolours and a range of ideas and example styles to show them. They were a treasure trove of information which not only validated the approach we’d been planning (always a nice bonus!) but extended it with new ideas and observations that will add a great deal of value to the project in the future. They’ve chosen the style, theme, editorial approach, and illustrations that will guide the project.

    I’ve nearly got everything I need now to start the next phase of Inside Voice, laying out and hand making all the content into a beautifully illustrated art book. I am just waiting on a last batch of images and then painting and sewing can begin. I’ve had my sewing machine serviced, I have new threads and extra large needles, I’ve chosen the papers, everything is ready. I am very excited about it.

    Surgery was a success

    Here we are in recovery afterwards. Poppy is pretty unhappy and we’ve slept most of today on the couch, but it went very smoothly. The four top front teeth were extensively damaged with very intact nerves so we were in for a long painful decay had we not been able to get them removed. Once they could look around more thoroughly they also discovered two back molars were decayed, but able to be filled, so they did that at the same time.

    Nursing an infant with teeth removed is slightly disturbing. I looked a bit Germanic battle warrior earlier with blood smeared breasts.

    The hardest part of the whole thing was actually the fasting this morning, she was distraught at not being allowed to nurse. I left to go to the toilet at one point and while I was gone they came and took her in half an hour early, because she was so upset they didn’t want to wait. I got back to an empty waiting room while Rose was in theatre comforting her as she went to sleep, which was tough!

    She’s eaten custard for lunch and mashed potato for dinner. It’ll be a rough few days and then hopefully a much happier little frog.

    We’ve even had one smile this afternoon, gappy but incredibly sweet. What a relief.

    Surgery and Watercolours

    Poppy is scheduled for surgery on Thursday to remove her 4 front teeth. We’ve been so lucky to have folks rally around us with all kinds of care. We’ve been able to pay the deposits to book the surgery and our fridge is stocked with grapes and soup and pudding.

    I am so grateful, so depleted. Wrestling medicine into Poppy on the couch last night, both of us in tears. I am beyond over making my kids do things they find stressful and horrible. I think to myself ‘this is so horribly traumatic!’. Then I think ‘I’m the parent. Make it less traumatic’. So I stop crying, I tell her it’s not so bad, she can do it, it’s only medicine and will be over soon. I hold her when she cries, let her push me away and find refuge elsewhere, wait to cuddle her later. We play and tickle and hide and roar. Humour takes away the sting.

    Rose and I went to the studio today, not for work but because I’ve been drowning in caring and need to look after myself too. I sort and tidy and arrange and play and swatch colours. Rose took Poppy to a nearby park with Nana, then came back when she fell asleep in the pram. Rose fell asleep on a couch and I walked Poppy around the studio to keep her settled between labelling drawers and grouping supplies by category into boxes. It was incredibly soothing.

    I’ve been testing different brands of watercolour lately and attending information nights for them which are wonderful. I want a good set for my travel kit, and one for doing zine making workshops. I also use Marie’s Chinese Paints, which look similar to western watercolours but handle differently for blending with black ink. You can see them in the two rows on the right on that lovely palette. (My favourite palette! It was recommended by the lovely calligraphic artist Gemma Black during her gilding and watercolour workshop at the Calligraphy Society of SA. It’s Martin Mijello Airtight Watercolour 33 Well Palette)

    Swatched below, the Chinese Paints are bottom left on the page. The sakura mat watercolours are the left page long swatches. They’re very old student grade paint but quite lovely.

    The right hand page swatches are two travel kits I brought recently for my zine making workshops. The top set I don’t love, too opaque, dusty, difficult to wet, and generally just feel like poster paint. The bottom set I really, really love. They are Micador Brilliant watercolours for Artists, 24 set. For my zine kit they are perfect. Each tray of 6 can be passed around a table and shared, the colours wet quickly and are vibrant. The iridescent blends well with the other colours.

    I recently sent off another zine, this one created with the local queer youth drop in group. I’m always so impressed by what gets created in these. It’s also a delightful experience.

    Below on the right is my absolute favourite brand of professional grade watercolour, Sennelier. I was recently given a sample by the lovely folks at Port Art Supplies and I’m hooked! This colour is PY153, Sennelier Yellow Light, on its own on the right, mixed with Winsor and Newton Cobalt Turquoise Light, which is also a stunning colour.

    The Sennelier is a French brand and made using honey. I love the way it handles, it’s sumptuous.

    So, we’ve all come home again in the dark. There’s dinner and dishes and hanging washing, talking through homework, managing medications, cuddles and chats about a big sleep and the dentist taking away the teeth that hurt. We’re nervous, grateful, second guessing ourselves, and laying as much ground work as possible to handle a rough few days.

    Thank you so much for your support, donations, well wishes, prayers, and kindness. It’s made a huge difference to us, we wouldn’t be in this place without you.

    What I want for Mother’s Day

    Today has had its moments but overall I want a refund.

    I want infant thermometers to use standard batteries that are stocked by the chemist or the bloody hardware store. I want our road not to be the bloody detour for all the roadworks in the area. I want concentrated baby medications that don’t mean forcing 4 litres of the damn stuff down a screaming infant, and a delivery method that doesn’t involve most of it being spit up or vomited out all over us both. I want severe pain in a child to be treated as a medical emergency. I want all my t-shirts currently covered in spit, snot, milk, medication, and vomit to be magically clean and back in my drawer because wearing them for less than 2 hours shouldn’t count given how hard it was to get clean clothes happening this week. I want suppositories to be less freaky stressful and more effective at staying put and doing their damn job. I want a clearer sense of when to go back to hospital and when it’s just a waste of precious spoons. I want a way to painlessly kill the nerves in Poppy’s front teeth, bring down her fever, and stop having to put her through things she’s hating and distressed by, because I feel like having to hold down my screaming child one more damn time this week is too damn much. I want the sense of guilt and haunting uncertainty that maybe I haven’t done everything possible or made the right calls to go away. Should we have yelled at people last time we were in hospital? If only we’d called the dental service again while it was still a business day, maybe they would have changed their minds? Am I 100% sure there’s no faster way to do this? I want the stabbing pain from my sinus infection to go away. I want the bloody remote to be in reach. I want my girls to feel better. I want to sit out in the sunshine and eat something delightful and feel clean and smell nice and have a cheerful little person on my lap.

    What I have got for Mother’s Day has been the loveliest card I’ve ever been given, by Poppy. A picture book full of mother cats being amazing, a lovely new shower curtain with absolutely no mold on it, a pretty Spiral-lock to tie up my hair, a cool hat, and a light jacket that looks like the night sky. I’ve got family dropping by with beautiful cooked dinner, friends checking in over text, donations to help us with the surgery, hugs when I yelled at Rose for not answering her phone, a lovely phone call with my own mum, and a living, generally happy and healthy baby cuddled into my chest. I’ve laughed, cried, hugged, snuggled, fought, yelled, pinned down, been soothingly patted (by Poppy), cried on, and loved. It’s far from bad. It could be much worse. It could be a lot better. It doesn’t all even out. It’s just awfulwonderfulhardamazing. It just is.

    Poppy is sick

    We are currently arranging dental surgery for her. She’s in intense pain with 4 front teeth decayed, but the nerves still alive. Apparently that’s very rare in a child, usually the nerves die quickly and there’s little pain. So there’s no provisions in our public health system for her situation, she’s been on a waitlist to have those teeth removed for 6 months, and she has another year and a half to go! She’s needing constant pain relief and waking several times a night hysterical. Last night was by far the worst, she woke screaming and attacked me when I tried to comfort her, then crawled into the floor and started bashing her face into the lino. She’s never get done anything like that. Rose and I had to hold her down until the ambulance came. It was hideous.

    The hospital said her situation is so rare they were initially worried that it was something other than teeth. Rose and I nearly threw up with anxiety when they assessed Poppy for a brain tumor this morning! But the conclusion has been that it is her teeth plus a head cold and mild tonsillitis. She’s almost her usual self when the pain killers are working for a couple of hours, then it all goes downhill while we wait to be able to give the next dose. The emergency dental department refused to even see her and said that pain was not an emergency. They will only operate if she develops abcesses. So we’ve been sent home with instructions to keep pain relief happening and do whatever we can to get her the surgery as soon as possible.

    We are home again now, very sleep deprived and strung out, especially as we’ve all got head colds and sinus infections too. Our people are helping us out with meals, housework, and the money needed to book the surgery privately (we have to pay upfront to book it, which is causing troubles because the formal bank loans we are chasing take weeks to arrange and can’t be used to pay back a kind person, only to directly pay the medical bills). We’ll call first thing Monday when the clinic opens again.

    I’ve been carefully saving the money we were donated for traveling overseas for my first international talk. I was trying to honour the reasons people donated it to us, and to spend it on a ‘learning to fish’ thing that would have knock on positive effects on my business and our financial situation. I’m pretty sure no one would judge me or feel misled for using it to help Poppy (if you donated and you’re not cool with that, get in touch) so I’ll use it for this. There will be other opportunities for me to earn money and build my business, I’m confident of that (some of the time). I feel frustrated and guilty that I haven’t yet sorted out my business/work to the point where I can solve this problem without help. But I am so stretched right now thinking about that would consume resources I don’t have. I’m blessed to be part of a tribe who look out for each other, and helplines are helping me keep my head together. Star is having a really tough week of crises too, so both our girls are needing all the love and support we can muster.

    We are sleeping in shifts, watching funny things on Netflix, giving loads of hugs, venting frustration and fear in private, cleaning where we can, and just thinking a few hours ahead at any given time. If I never experience a week like this again, I’ll feel blessed. I hope the next one is better! I hope we have a surgery date soon.

    Sunday mornings done right

    Looks like this:

    Pancakes for breakfast

    Face painting to amuse bubs while teen sleeps in

    I’m reading again now I’ve figured out ebook aps on my phone. And I’m doing morning pages, and I’ve started a Daybook. Yesterday’s class was about more than art, it was about intuition and connection and community. It fed my soul.

    I was afraid when I stopped going to art college that I would lose out on learning, which I love so much. But I’m finding that workshops and informal learning is deeply precious to me, patchworking an education tailored to me and my community. I won’t ever stop learning. And now I’ve grasped it again, I feel so much more alive. 🙂