Surgery

Okay, surgery tomorrow. No more waiting to miscarry.

O.o

Not ready. Ready, but not ready.

Today was full. I moved very slowly. I went to sculpture class a record 4 hours late. My tutor is away sick and we have a new one! I talked to them and two other lecturers about my miscarriage and surgery. I went into this weird slightly hyper state to get everything done without crying. People seem to keep expecting me to be emotional in public but I don’t have a lot of shades at the moment, it’s nothing at all or all of it. So I keep a lid on it until I’m home safe. I hate that breathless feeling though, the cheerful, slightly hysterical note in my voice, the way people misunderstand easily and think I’m being flippant.

I stayed until 6 and finished my sculpture projects for the term. They’re placed in a corner, labelled and tagged so they’ll count even if I can’t go in next week and present them. I have worked so hard this term to stay up to date with the course work in case something like this happened and I am so organised and ready. I’ve never done 70% workload at uni before and I’m managing it. I’m so proud of myself.

Tomorrow is going to be weird and hard. I’m going to ask the hospital to give us Tamlorn’s remains. I’ve arranged a cremation with a local funeral company. Rose will not be allowed to wait with me before surgery or come into the recovery area after surgery. She is going to have a very long, lonely day floating around the hospital. She’s not even allowed to wait outside the surgery area – those seats are strictly for patients. A lot about hospital procedure has left a lot to be desired in this process, such as having to wait on hold for an hour to get through to the antenatal department to cancel our first appointment tomorrow, while someone on a looped recording gives me advice about taking care of my baby. Trauma, trauma, trauma.

And then home. Not pregnant anymore. Tamlorn gone. After the high and the busy-ness, the crash, the silence. I’m not ready. I’m ready.

After the miscarriage

Home today and dazed. I feel like I’m picking my way carefully through a harsh and dangerous land, trying to find a path through. Stepping stones across rapids. I didn’t attend college today. Rose made it to work for most of the day. I’ve been tackling the admin in the wake of yesterday. Cancelling the antenatal appointment, informing college about my absences, contacting parents who had face painting booked with me this weekend, notifying the others coming together to work on the networks Hearing Voices Network of SA and the Dissociative Initiative that I’ll be in surgery when we were planning to meet. There’s a thousand small decisions to be made.

These are the most helpful resources I’ve found so far:

  • Management of Miscarriage: Your Options Rose and I decided on surgical management. What I’ve experienced is called a silent miscarriage, that is, I’ve had no bleeding or pain. My body still thinks I am pregnant although the baby has died. The hospital explained to us that it may take up to 8 weeks for my body to let go of the pregnancy. I’m finding it hard to be aware of a dead baby inside of me, and the thought of not knowing when it will happen is distressing. The 10 day wait between our ‘it’s not looking good’ scan and our scan confirming death was gruelling. I feel exhausted already by waiting. I’m afraid of more trauma, seeing blood, tissue, tiny body, of pain. So this time I’ve chosen surgery. If I’m ever in this situation again a different option may feel like the right choice. I don’t judge anyone else’s choices. This booklet was helpful and didn’t make any option sound superior.
  • On Miscarriage – a personal experience by Clare This article is a first hand account of miscarriage. I keep coming back to it. Her thoughts about the taboo of miscarriage resonate with me.
  • The Natural Funeral Company are my local creative funeral company. I already had tagged them as possibly helpful people back when we were preparing to get pregnant and I wrote Preparing for the death of a child. I contacted them today, embarrassed and confused, to ask about my options if I choose to take home Tamlorn’s remains from the hospital. They confirmed that they will perform a very low cost cremation so we have some ashes to scatter or keep.
  • Funeral Planning for a Miscarriage It’s hard to think clearly when things like this happen. Checklists and suggestions from other people who have been here are helping me know what my options are and feel out what’s right and fitting for Rose and I and Tamlorn.

There’s a new peach tree in my front yard, waiting to be planted in Tamlorn’s memory, shedding leaves as autumn creeps on. We chose a variety that will fruit in March, blessings every year to remember them. Our community – readers here, our friends and family and workmates and friends of friends have poured out messages of love and loss and support. We have come through the very outcome that people counsel you not to share because of, and we’re still glad we shared. (It’s okay if that’s not the right call for you though) We’re also glad that we decided to tell people what would and wouldn’t be helpful for us to hear. Rose has had a much gentler time in conversations this time around than after her other 6 losses, and we think that had a little to do with it. Sometimes it’s hard to know how to be helpful and having someone tell you can make it easier.

We are hearing that some others affected by this loss have had some tough times with other people and that’s sad and frustrating. Grief is contagious, it links us to other experiences of grief, it reminds us of vulnerability, mortality, that the world is not just. It touches deep wounds. Frequently unpredictable and always a legitimate need of the heart. We shouldn’t have to grieve secretly, justify grief, or be afraid of our tribe when we’re hurting. We grieve for things that happen in other countries, for tragedy suffered by people we’ve never met. We’re supposed to. It’s okay if you’re feeling affected, more than you thought you would be, more than someone else thinks you should be. Rose and I don’t own this pain, you don’t have to be close to us, or related to Tamlorn, or have experienced a miscarriage to justify your feelings. If you’re grieving then you need to be, so please be kind to yourself, please ask trusted people to be kind to you.

There are people who think grief is straight forward, clear, direct. Concentric circles spilling out from a central relationship. I don’t believe that. There are people who think we only deeply grieve people we have known and loved for many years. People who think miscarriages are not something that should ever be grieved. (you don’t have to grieve a miscarriage, you will feel grief or not, as your heart needs. It’s not wrong to not feel grief. It is wrong to try and quiet someone who is grieving) People who try to rank grief, this loss is worse than that loss. I believe none of this. Grief is a deep aching need of the heart to weep. I have grieved lost hopes and dreams. I have grieved lost health. I have grieved losses of people I have never met. I have grieved for characters in books. I have grieved for pets. I have grieved for suicidal loved ones, for their anguish. I have grieved for whole cities, whole countries, forests. When I was 15 the river dried up and left shrinking pools of dying fish. I prayed to every power I knew and wove every spell I could with my poems, and carried them in buckets to swim in old cattle feed troughs and bath tubs and they still all died. And I cried like the world had ended, cried for days and days with a profoundly broken heart because I had just learned that some things are beyond my control even if I love with all my heart. Grief is part of being alive, part of being human. I don’t believe you choose to grieve or to live, grief and living weave in and out of each other. If you have ever loved anything or anyone, then one day you will grieve.

I can’t tell you how sorry I am that our shared joy has become shared pain. I’m sorry for everyone who is hurting, remembering other losses, feeling helpless, feeling torn. I’m sorry for those of you who have had terminations – who found yourselves with life that was not the right time or with the right person, growing in the wrong places, growing broken and unable to live – who grieve even if the decision was the right one, and can’t speak of your grief. I’m sorry that your loss is so often hidden in the shadow cast by the loss of a wanted child. I want you to know that I don’t hate you or judge you, that you are allowed to not grieve or grieve as you need to also. I feel like my grief and my situation makes people think we are enemies, standing on opposite sides. I want to say we are not enemies.

I can’t tell you how much I appreciate that you care, that you reach out, tell us Tamlorn’s name is beautiful, remind us we’re not alone, share tears with us. I know it feels like there’s nothing you can do, but listening and caring are doing something, doing the most powerful thing you can. As we listen and care for each other, fumble through rituals of grief for a loss not often acknowledged. I’m sorry we brought this touch of death into your lives, but I’m grateful that we’re not here alone.

The passing of our Tamlorn

Tamlorn 9 weeks, 5 days wmOur baby has died. There is no heartbeat, no growth, no obvious abnormalities, they’ve just died. You can see them in this last scan, all curled up, head at the top and body tucked under in the dark womb. The painful wait is over and there’s no hope left.

We’ve had a very, very long day. We’ve just arrived home from hospital. We’ve spent all day in waiting rooms with pregnant women and new parents with tiny infants. We’ve decided we have waited long enough and will end this on Thursday with minor surgery to empty the womb. We’re exhausted and devastated.

I know it’s so hard to know what to say when people when grieving, and that grieving people are often distant, preoccupied, and angry. Here are things Rose and I are finding helpful and not helpful.

Not helpful:

  • At least you know you can get pregnant
  • You can always try again
  • At least it was only early
  • It’s natures way of protecting you from a damaged baby
  • Maybe you did something wrong
  • It’s God/The Universe telling you something
  • It will happen when the time is right
  • Cheer up/chin up/it will all work out

Some of these things we already know, others are attempts to cheer that just hurt more. Grief hurried through become lonely, twisted, dark. Grief given time will heal.

Helpful:

  • I’m really sorry to hear that
  • It’s okay to take time to grieve
  • Would you like it if I shared about my experience of loss/brought round some dinner/sent you a card/gave you a hug?

It’s okay to say nothing at all. It’s a beautiful thing to be able to sit with other people’s grief, to be silent and not try to make it to be anything but what it is.

We’re calling this little one Tamlorn, after a beloved child in a book by Patricia A McKillip. My Tam. Our Tam. We’re hoping to go out tonight and buy a tree to plant in their memory.

We will rest for a couple of months and then plan to start trying again. Our donor is still on board, so this is not the end of our journey. Thankyou all for your hope and messages of love and support.

 

Grieving after suicide

I received this heartbreaking anonymous comment on a blog post I wrote a while ago called “Caring for someone who’s suicidal

I cared for someone who was chronically suicidal and failed to protect them adequately. During a very short time of being left alone, while acting like he was feeling well, he did end up hanging himself and died. How do I reconcile my feelings of failing him? How do I ever find peace in his passing when I feel responsible for letting him be alone for any amount of time?

I sat with it for a few days trying to think of what to say. It’s really hard when you don’t know the person or the context, what they’re being told or finding particularly hard or helpful. I came up with this, and thought I would share it here for all the rest of us who are struggling with guilt and loss:

I’m so sorry to hear that. How do we find peace in something so tragic? I don’t know if anyone has told you that sometimes people work hard to protect us from their pain, they hide it and we are deceived. We question everything after they’ve gone, trying to work out if there were warning signs we missed and what we might have done. I don’t know if anyone has told you it’s not your fault, or if you are so sick of hearing that because it doesn’t make you feel any better. How do we live with the guilt and sense of failure of losing someone we loved? Is there any peace to be found?

Sometimes when we feel guilty we don’t even feel like we have the right to grieve. We are numb, or we hate ourselves, or we carry a weight around inside that is nearly impossible to breathe around.

It’s okay to grieve hard. It’s also okay to put them down from time to time, to lay them to rest and give yourself time to breathe and feel and laugh again. It’s okay to sit down with that sense of failure and look it hard in the face, very hard, and accept that this is part of what it is to love people, part of what it is to be human. There’s no peace to be found in this kind of violent loss, and yet there is a kind of peace in coming to terms with that, learning how to hold the pain and the conflict so it doesn’t kill us.

He didn’t die unloved. That’s a precious thing. I wish it was more powerful, so powerful that it saved all of us. But it’s still deeply meaningful. That’s a failure that’s not yours. You did care, and you did protect them, probably many times, through many dark nights. Sometimes we are not powerful enough to make the world be as it should be. To bring justice, truth, hope, light. We are small and mortal and life is large and some of it is brutal. It’s hard to forgive ourselves for not being able to do what our hearts so desire, to heal all the sick children and feed all the hungry people and give hope to those who can’t find their own. We are mortal, human, we face the darkness with love, and sometimes it is not enough.

So what now? You carry a darkness of your own now, a place where hope dims and pain waits like an ocean. You meet it with love and honesty. Reach out to people – some will not be able to talk with you or bear that pain, but some will. They will remind you you are not alone, that many of us have found our limits and grieve what we cannot change. Keep his memory alive but find ways and times to put down the searing pain and weight of his life. You carried him for a time, you will carry his name in your heart forever. But hearts are not made to be graves, there must be joy and new love, there must be spring again after the black winter when you are ready.

Much love xxx

Preparing for the death of a child

Rose and I are closer to starting to try for a baby. I’m down to 1/4 of the dose of hormones that keep my endo and adeno under control. We have a wonderful donor on board. I sleep at night cuddled up to a full body length pregnancy pillow and rub oil into my tummy to prepare dry skin for being stretched.

Hope and hopelessness grow in equal measure. “With dreams of a bright future comes also the dread certainty of loss.” You can try to ignore it, stuff it down, run from it, but it will speak to you in nightmares, it will wait for you at 3am, it will shiver in your bones and be a scream that only you can hear, beneath the humming of the world.

So we turn, and sit, and face the unthinkable thing. We are trying for a baby, who may die. Three weeks alive, or 6 months, full term stillborn, early death, accident, terminal illness, disappearance, suicide. To love on this earth is to open your heart to the guarantee of grief. My darling Rose has suffered the loss of six pregnancies. Each deeply desired, dearly loved and hoped for. Each child dreamed of and nurtured with everything that she had. Sometimes love is not enough.

Rose and I have struggled with grief. We’ve had very different needs and approaches and experiences, and this has torn us apart at times. We’ve navigated the loss of friends to suicide and sudden death, the anniversaries of miscarriage, loss of friendships and relationships dear to us. We’re been given many shadowed days to begin to understand each other in grief, to sit with the terror, and start to find our own ways through. We have often grieved alone. Grieving together with a partner or in a family is different. Denied grief, overwhelming grief, grief that shatters lives and tortures the mind is something we’re both familiar with in different ways. We know we’re vulnerable.

Everyone is vulnerable. Our culture often isolates the grieving. We do not speak the names of the dead, we do not know what to say, we visit avidly in the first month and when we’re most needed in the 6th month when the shock has worn off we’ve moved on to other pressing matters. We’ve pathologised much of the process of grief, and presented ideas of joy and sadness as being opposite poles a spectrum rather than separate, legitimate, and overlapping responses to life. Ask anyone who has lost a close friend the same week they gave birth to a child. Ask anyone who has fled an abusive relationship and grieved the loss of their hopes just as intensely as they experienced joy in their freedom.

You cannot ever be really ‘ready’ for loss, because when we think of this idea of being ‘ready’ we picture someone who will be unaffected and unchanged. This is not how grief works, any more than it is how love works. It changes everything in us and in how we see our lives. Some things suddenly become meaningless while others are lit up in the most intense way. You cannot be ‘ready’ when this is what ready means to you. But you can certainly be set up to fall hard. Beliefs such as ‘if god/the universe takes my child away it’s because I was not going to be a good parent to them’ will cause terrible suffering.

The way losses are explained can ease or deepen pain. Rose was once told by a doctor “your body is killing your babies, we don’t know why” which left her distraught and suicidal, with terrible self hate and conflict. Later on, coming across many other explanations for miscarriages, including things like “sometimes there is a problem and the body cannot sustain a pregnancy” or “sometimes babies are not put together right and they die early”, there were other ways to understand what had happened that were not personal and didn’t indicate intent to harm.

Not so long ago my sister’s beloved little cat Kiki died suddenly. It was horrible and a huge loss to her. It brought to mind our families rituals of grief around pets. Whenever a pet or rescued animal dies, we’ve always buried them in our yard. Sometimes wrapped in a cloth or placed in a box, but always in a grave that’s filled with flowers and leaves from the garden.

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Kiki’s grave before burial

We don’t permanently mark the graves, although we do often place rocks or tree stumps over them to keep them undisturbed. The gathering of the flowers has become a very gentle way of returning the bodies to the earth, of connection with the cycles of nature. Pippi and Tessa, my darling rats, were buried under winter lillies. Charlie under autumn leaves and the last of the roses. Kiki under snowdrops. There’s something much gentler about heaping earth onto the plants instead of directly onto a body.

Rituals and other things that mark the loss can be deeply important but also difficult to come up with in the shock of grief. Having a history of them can give us a connection to other losses that’s both painful and encouraging, raising past pain but also reminding us that this is part of life and that there will be new joys.

In early miscarriage there’s often the challenge of not having a body to bury. A ritual such as placing flowers, visiting a tree, lighting a candle, or choosing a date to remember the ones who died can all give a ‘home’ to the grief. In infertility, likewise there is no defining moment or ritual to share. When a previous long term relationship of mine became abusive and broke up, I grieved the children we’d planned together, but I grieved them silently and alone. Grief consumes us with loneliness when we cannot share it, and without a place, date, or name, we don’t have the language to.

People have found ways to work with this. I named the child I’d been planning for and wrote them poems. I lit candles for them when I felt them near and the grief was strong. Rose and I are collecting two lists of baby names, one for living children, and one, pretty but impractical, for any that die. I’ve found an Australian Not-for-Profit called Heartfelt who provide cameras and other services to families who’ve had a stillborn or terminally ill infant. I’ve come across other unconventional ways to mark loss such as this photoshoot of a wedding prevented by death of the groom to be. I’ve read about death and loss and grief, and watched heartbreaking documentaries such as Losing Layla and the follow up Regarding Raphael. I’ve come across instructions on arranging the funeral for a baby, and how to get a certificate acknowledging the loss of an early pregnancy. I’ve found a local funeral company who are creative and flexible and offer home funerals, The Natural Funeral Company.

We’re still not ready. It’s not possible to be ready. But it is very possible to be in denial, under-resourced, inexperienced, and paralysed by fear. That, I’m determined not to be. Grief can destroy relationships. Rose and I hope to journey together, without regrets, whatever the outcome. We walk into the future, full of hope and fear and love, death in one hand and life in the other.

Fear, grief, & chronic illness

I’m scared. I’m really sick, again, or still, depending on where we draw the increasingly fuzzy lines between one sinus infection and the next. The doctor I saw today confirmed I have laryngitis as well, and was worried I will not be well enough for my scheduled surgery this Wednesday. We’ve added steroids to the antibiotics and prescription for rest and fluids. With a present infection I’m also running a much greater chance of post op infection. I’ve experienced that before, severe secondary infection after having my tonsils removed at 10. I’d prefer not to do a repeat!

It’s hard to keep my spirits up. This week was set aside to get everything ready for my recovery period post surgery. I wanted to mop and clean and make sure there was blended food in the fridge and take as much of the load off Rose as I could. I also wanted to get my library books back, and finalise the essay and tutorial due next term in case recovery knocks me off my feet for longer than expected… So much for those plans.

I’m in a vulnerable place with my business. I’ve just emptied out the beautiful studio we had to close. I let a good friend down. I never even put a launch together for it. Everyone was really enthusiastic about it, but not enough to visit. I was sick and busy. Another learning curve, another failure. Something else to keep me up at nights. I’m so sick all the time. How am I ever going to make any business work? I keep trying. I’m working so hard and it’s just not enough. ‘I hate myself’ is a constant quiet drone in my head. There’s always so much fodder for it. There’s too much against me.

I’ve added mental health to all my promotional material but not had a chance to launch that side of the business yet to generate some work. In the meantime, my face painting business which was getting really busy has gone frighteningly quiet. The booked and cancelled surgeries are costing me work with long term clients, my bread and butter relationships. And maybe I’ve made a terrible mistake and people are too frightened by the new marketing to hire me. It’s too early to tell what’s costing me the most, I have to wait for surgery to be done then reassess, because the illness and hospital will keep destroying anything I set up in the meantime. A small business like mine is so vulnerable to any perception of unreliability. I’m so replaceable. My sickness is tearing apart everything I build.

So, hopefully, after I recover, I’ll find that place of hope again and keep building, and something worthwhile will come from all this hard work and heartache. And if I keep being sick, I’ll have to change it all again. Move to product creation instead of service delivery, something I can do even if my health keeps crashing. I’m so tired and so discouraged. 😦 I’m doing everything right and it’s not enough. If I could just disentangle the grief and self hate and overwhelming sense of failure and the gap maybe then I could breathe.

This really hurts. It’s like being down the bottom of a deep pit. It’s so painfully lonely. I know other people handle their pits with positivity, or that other people have deeper pits, but somewhere in claiming the right to my own pain and fear, to name it and call it what it is, to express some of the bitter disappointment at how things work out, I find strength. It’s my story. I don’t need to compare it to anyone else’s, I don’t need to win some ‘tragedy of the year’ competition to feel hurt, I don’t need to handle it in some publicly approved way to have the right to be hurting in public or to reach out.

The funny is, when I let myself own my pain, the loneliness eases a little. The gap becomes a thing I can navigate again. I can find humour, wear the loss a little more lightly, present the face of disability the world tolerates better – articulate, insightful, optimistic, discrete. Carve myself some space to grieve. There’s so much grieving in sickness.

Finished pendant: ‘Vision of motherhood’

Today was a rare day. We had terrible nightmares and someone woke to an unfamiliar world. We live so much in the day at the moment, our strange poets have been pushed into the shadows of life. Full of intensity and desperate to make art, she tried to stay out but couldn’t shake the sense of displacement from being out in the day. Rocked in their wake we reached for stillness and tried to listen closely.

We worked through last weekend so were due a day off. We decided to stay home and hope to make art. We’ve been severely blocked, not short of ideas but unable to create, overwhelmed by an appalling inner presence who dominated and destroys the process. All our efforts to work around or reduce the impact of this introject have been unsuccessful. We’ve made no art unless required since our friend Leanne died and we sculpted a pendant in her memory.

Somehow today we found a way through. Someone turned up who is silent and who listens to silence. All through the day we didn’t speak or play music or do admin or touch Facebook. Out on our island another world descended and the block was left behind. We cleaned up or studio space until we could function in it, and then spent the day sculpting, painting, and carving. We painted the pendant we’d made for Leanne. It’s burnished silver which doesn’t photograph easily, with swarovski crystals, a pearl, and paua shell. I’m very proud of it, and deeply relieved to have found some way to create again.

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Goodbye Kiki

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There’s much sadness and heavy hearts in my world. My sister’s darling little cat Kiki was found dead a couple of days ago. A vet was unable to tell us if the cause of death was accident or intentional, only that it was a trauma, and probably mercifully quick.

Every now and then an animal comes into your life at exactly the right moment. Kiki was our cat Tonks’ sister, and she had an incredibly bright spirit, deeply loving and full of mischief. She and my sister shared a deep bond, and the shock of her passing so young and so senselessly is huge. My sister is a wonderful woman who has gone through far too much upheaval. Diligent, loyal, intelligent, fierce and gentle, she has endured much loss and disappointment. Kiki was a constant, a bright spark of warmth and life that cheered flagging spirits and made it easier to lay to rest long days and start new ones with energy. Whatever other changes were happening, there was Kiki. Curled up in bed at night, following her around the house, or riding on her shoulder. In many ways, Kiki was my sister’s home. Without her, everything is wrong, home is not home, there is no anchor holding fast. We all know it, and we’re all reeling.

We shatter apart and come together again, recognising the loss and the changes. Rose and I hold each other in the dark and whisper of her lost babies, of what it will feel like if we lose more. I remember Leanne and Amanda with an aching heart. We talk about grief, about life after death, about family. We feel the shadow of Death upon our lives, the senselessness of it, the sharpness of cut threads, the unknown timing to the ends of our stories. A cold wind blows.

We gather to bury Kiki, talk about good memories of her, honour a rare and special connection between human and animal. We wake to a new world, changed, sadder, grieving. Kiki’s body lies beneath snowdrops blooming. Life goes on, all around us, under us, over us, it hurts, and it is beautiful.

Let there be a dawn

Today was so hard. I am beyond exhausted and into dissociative. But I’m still here, and the day is almost over. I’ve curled into bed with a pounding head and a body that feels like it’s been kicked too many times and a heart that feels like it’s been put through a mangle. I know it will be okay, good things will come out of it, we will plant good seeds and do our best, and in some moments I’m able to find that sense of grace and compassion in amongst grief and pain. Rose and I have lost another friendship dear to us, not through death but by… Well it’s not easy to sum up and I don’t want to expose anyone. For the moment at least, people we care about have pushed us away. It was a big shock. I’m glad for moments of perspective and hope. The rest of the time, I feel like life just keeps crashing big waves over me. I’m not swimming at the moment, I can’t even tell anymore which way the shore is. I’m drifting with the tides and trying to keep my head above water. We kept everyone safe today, no self harm, no suicidal gestures, no ambulances called. We grieved and hurt and got angry and grieved some more and talked and switched and talked and found other safe people to talk to, and night fell when you’re allowed to go home and not be strong anymore or try to understand other people’s perspectives, when you can go to bed and curl into a ball and cry because sometimes life is very hard, and because you’re hurting, and people you care about are hurting too and you can’t make it better for any of them.

Funny how things that felt solid yesterday feel fragile today, the wind blows and the paving stones tumble down the road with the leaves. Pieces drop out of the bottom of your world and you find that you’re standing on air, nothing between you and the void. The threads of love that bind us here are soft as mist. You send a prayer flying like a bird from your throat, please let us all see out the week. Please let there be comfort and ease from pain. Don’t let the darkness last forever. Don’t let tender hearts break in vain. Keep us tender, as we were meant to be. Give us rest. Let there be a dawn to all hopes. May grief wash tomorrow new and green.

Sleep tight, strange and painful world. May the love that breaks us also strengthen us. May the cracks let the light in.

Dark & light

I’ve lost my voice again, the blog goes quiet. Funny how that happens sometimes. I’m grieving. I struggled awake this morning from a terrible dream about someone close to me dying. At the end, even as I started to realise it was a dream, I couldn’t help myself from reaching out, trying to hold on as it faded.

Depression comes and goes, a joyless, lethal lethargy with a bitter self hate.

There’s a pervasive sense of something being terribly wrong that’s hard to live with. I can’t tell if it’s the grief and sense of loss, or some other choice I’m making. I woke with it this morning as I wept into the sheets. Life is so fragile, what am I doing with it? What am I making of it? Suddenly I miss everyone, want to phone everyone, hold them all, tell them I love them. I restrain myself, I make tea and come back to bed. I let the animals touch me, I’ve disturbed them with the sobbing and they need to come near. It’s a beautiful impulse, the simplicity of the need for touch when someone cries out in pain.

I’m curled in bed, looking out at a white sky through the branches of my tree. This beautiful house. I won’t live here forever. There’s a sense of everything slipping away, of time stealing all. I try not to re evaluate my life, there’s been so much of that lately. I pat Tonks and think about a conversation with Rose last night, talking about how sick my dog Charli was, how I nursed him to the end but struggled to connect, how I bonded to the foster cat Abbie, but she died. Death and attachment. How strange it is that so much of what we want from life comes down to feelings. It’s not that we want success or career or to find love, it’s that we want to feel whole, content, connected, loved. I want those things. I think I’d how much work Rose and I have been doing lately and suddenly I want to run to her house, take her away, drive somewhere lost and lonely in the white sky, sit on the edge of an empty beach and fish. Sit by a fire and listen to the crackling, for hours and hours. Slow time down. More than anything I want to be able to feel the things around me, love and affection, grief, wonder. It’s the numbing detachment I fear. Living without being alive.

Rain glitters on the leaves of my tree. Rose is getting ready for work in her house down the road. Tonks is in the window, watching the birds flying black against the sky. There’s some kind of peace here. I still have a heart to break. I can still be moved by life, I know what I’m pursuing. Grief and terror rest alongside acceptance, a calm joy in the beauty of my world, my little home. The big searing questions of life and meaning and my life settle like tigers, resting behind me in the shadows, purposeful and waiting, but at rest. Rain falls silver. I lie by the window, between the dark and the light. My heart stops trembling and sleeps. Shadowed by pain and lit by joy. I’m still alive.

Dot paintings

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This was a four part project in my painting class at college, each panel we were given specific instructions about tone/hue/method of application and so on. This piece was my favourite, which surprised me because the colours were all so muddy and ugly on my palette, but together they are such a subtle blend. I had to work with round shapes, for this one I used large dry brush round, and tiny paint dots. I like the dots, they spoke to me.

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I’m relieved and a little sad to have handed in my final project and finished the class. Next week I’ll start photography which I’m sure will be interesting. Life is blurring by me at the moment, I’m taking off as much time as I can to rest before I get properly sick. I’m a little overwhelmed and dispirited. Nothing is simple with my business. Reminders of Leanne, my dead friend, are everywhere, like the way Amanda’s Facebook profile always shows up on my feed as a possible friend to invite to events even though she died last year. It doesn’t hurt as badly as it first did, but there’s a wrongness to her being dead that’s hard to reconcile myself to. I want her to be here so badly, to visit and laugh and tell me she loves me again. Life is fragile, and I’m sad.

The fear of dying

Today was a triumphant day. Rose and I saw our first dreadlocks client in our new studio, and spent 5 & 1/2 hours getting them looking great again and putting in about 50 extensions. We’re both trashed but on a wonderful high.

Last night I dreamed that my friend Leanne, who died recently, was still alive. In my dream our long drive interstate for her funeral was actually to see her, in response to a plea for help. When we arrived she told us that she was terminally ill and wanted assistance to kill herself. In the dream I was outwardly calm as we took her to the doctor for assessment (euthanasia was legal in my dream) while inside I was screaming with a kind of terrified despair – please please don’t make me do this to you! A desperate clash between wanting to honour her needs and wanting to care for my own.

I woke distressed and confused, it took a little time to untangle dream from reality, it had been extremely vivid. It’s easy in some ways to turn my face from the grief and the reality of her death, to let it slip past my mind. That’s why I have a photo of her coffin in my phone, a piece of stone from the graveyard where she was laid to rest. Not to wound and torture myself, but to inoculate me against dissociation of the kind that takes away life. So I get out of bed and I do the things that make up my day, and I always try to do them wholeheartedly. Then in quiet moments I remember my bright, lovely friend, and I realise her passing, that though she remains in my heart her voice is now silent and we cannot have any new conversations except in the constructs of my mind.

It makes me miss her and it makes me fear dying young. I have so much love ahead of me, so many dreams and hopes and so much love. Years of torment and loneliness have passed, made way for hard won insight, for love and friendship, for some kind of peace, for joy and hope. It makes me feel the farthest from suicidal I think I’ve ever been, to clutch to life with desperate desire to live longer and dream deeper. When the guilt and the self loathing crank into life like a carousel spinning in my mind I think to myself – I don’t have time for this. I don’t have time to waste on self hate, there is so much life to be loved, friends to love, so many dreams I’m hoping for. And it doesn’t feel dismissive, it feels like permission to stop torturing myself because I never get that time back. I feel a deep laugh, a joyful casting off of a heavy weight. I put it down and throw myself back into my strange, beautiful, tiring, complicated life, with joyful abandon. I am deeply blessed.

Grieving

It’s been a hard week. I’m home again and exhausted. I slept for almost 12 hours last night, and spent all today feeling very ill on the couch. Whenever I wake up the reality of my friend Leanne’s death is like a heavy weight falling on me. I woke at 5am and sobbed my heart out into the bedsheets. It’s overwhelming. There’s such a sense of being torn from a future I thought I was working towards. When the grief comes over me the pain is physical, tendons in my shoulders scream, muscles ache in my calves, I can’t catch my breath. It’s hard to bear.

I talk to Rose about her, about the ways they’re similar, how much I think they would have got along, how delighted she would have been to meet our children. When guilt creeps in and self loathing eats at me, I say to myself “I don’t have time for that” and I think of how brief life can be, and how quickly it can be taken from us.

No one knows yet what killed my friend, she was only in her forties. She died in her sleep, at peace, no mess, no pain, no waking to feel heart failing or stroke crippling the brain. Her eyes still closed, her face resting in one hand. It’s an image that stays with me.

I want her back. But I’m determined to grieve her loss in a way that doesn’t harm me. She brought so much to my life. My world is so diminished by her death. But I won’t be less for knowing her. I won’t add to my pit of self hate. I won’t withdraw from Rose and my friends. I won’t just push through and ignore this, or pretend it’s not a tragedy. I’ll remember her wonderful humour and how important it is to get together with friends and laugh. To be surrounded by books and music and animals. To shut out the world when it’s overwhelming, and find the courage to get back into it when you need freedom again. I am different for having known her. I am better for having known her. I’m going to hurt and I’m going to heal. I’ll hold all my memories precious, and I’ll love those I still have here. I’ll do my best to make her proud.

The funeral is over

I’m sitting in the graveyard as they remove the trappings from the grave and prepare to bury my friend. It rained through the service but now the sky is clearing. It was a long drive here. We just finished the house move the day before. My Mum and I drove over together, and got stuck with no motor oil left, in a small town late at night. A pub owner was astonishingly generous and loaned us his very nice late model car to go find a 24hr service station and buy some. He thought a nearby town would have one but they were closed and unfriendly. We argued through the glass but a clerk refused to let us buy oil. So we wound up driving all the way to our destination then back to the van, left fuel money in the borrowed car and tossed the keys over the pub fence as instructed. We finally arrived at our caravan park at around 3am and went straight to bed. Mum slept, I only caught a few hours. We were lucky, it was quite a pilgrimage to get here.
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The service this morning was beautiful. I knew very few people there except a few by name, people aged spoken of to me, sung their praises, told me how much she loved them. It was moving to be among so many people grieving, so many other people who loved her. I passed my contact details to a couple of them. They talked about grief and celebration. They talked about shock and loss and love. They talked about what an amazing, complex, vibrant, vulnerable, strong, generous woman she was.

Many people had the same story I had, that there had been distance and then a recent reconnection. Maybe, if she had known she going to die soon, maybe she wouldn’t have done it so differently. I could feel her so strongly, sitting next to me, embracing me, forgiving me, asking for forgiveness, making me laugh, telling me she loved me. She’s utterly irreplaceable. I loved her.

I wore the pendant I’d made in her memory, and a silver velvet dress she would have loved. I cried. There’s a big hole in my heart, in my future. She was so young. She will always be part of my family. I will remember us laughing together, raucous, raw with sadness and sharp with black wit. I’m not leaving her behind, here in this earth. I’m taking her with me.

And now, home.

Mourning in clay

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I sculpted this pendant today, in memory of my friend. She told me once that she’d had a vision of me holding a baby of my own. I tried to sculpt that vision, the gift of hope and dreams of a good tomorrow.

It’s still raw, I’m going to paint it yet. It’s made with polymer clay, a freshwater pearl, a piece of polished shell, and three swarovski crystals in the colour of black diamonds.

I’m heartbroken, and still too angry to hear people talking about peace. I took today off and stayed home. It’s a luxury to have time to grieve, I so rarely have had the chance in my life. I feel angry and empty and hurting and deeply depressed. I’ve watched episodes of Scrubs and the first Garden of Sinners episode which was strange and sad and fitting.

I’ve found out that her funeral is next week, interstate. I’m so relieved to not have missed it. That’s happened before and it left this terrible feeling. I’m making plans to drive over. Poor Rose is packing her house alone for the move. I’ve eaten and cried and showered and written and made art. It’s all I have at the moment. She’ll never read this. She’ll never read another word of this. Everything is wrong.

In movies, death is an ending of a story arc, a finale. Here, things are unfinished, there was no warning. We don’t even know how she died yet. It’s the most terrifying feeling, this awareness that we make sense of deaths like this only in the aftermath. That we edit and write into someone’s life some kind of ending. We view all the last years differently now we know they are the last. But you can’t see it coming. It could be me, or you, or anyone we love. And as much as I want to hope she made the choices she would have made of she had known, I don’t know. None of us can truly live as if we’re going to die tomorrow, we have to have one eye on the years, to be aware we might have to live with consequences for a whole lifetime. Trapped in that place, it seems to me, we’re so vulnerable to living out lives chosen for us by other people, lives that do not fit, that we do not want, that do not make us feel alive.

My friend struggled so much to find a life of passion and meaning. I think of us out to dinner, laughing so loud the whole restaurant would turn to look, our black humour perfectly matched. We should have had more time to laugh like that again. There’s so much I still wanted to say.

Death of a friend

I’ve just heard that a friend of mine has died. I have no details, only that she passed away in her sleep. She was one of my oldest friendships, but she herself was not old. I thought we had more time. She was in my plans. Her death is like another door closing, slamming shut, becoming part of a past that is full of closed doors. For someone like me, someone who had to run a long way to find some kind of peace, there’s already so many shut doors. She was not going to be part of my past, she was going to be part of my future!

I wanted her to meet Rose, to meet my children, the babies we used to write about in letters to each other, as she chose – ambivalently – to not have children, and as I  grieved my own dreams of children due to sickness and ended relationships. She told me once she’d had a vision of me with a baby of my own in my arms. I wanted her to be here to see it happen! She was there through so much of the shit, our relationship suffered, we fought, there was distance and pain. We’d just started to reconnect, to let go, we’d just decided to make a new friendship.

I want to scream! There’s a howling rage in me. We suffered so much when the old world burned. I wanted her to know me now, in a place where my skin doesn’t burn anymore, where I’m not all teeth and shadows. I wanted to hug her again and tell her I loved her and never forgot her.

She’s not supposed to be dead.

I don’t want to be okay, I don’t want to move on, I don’t want to grieve, I want to burn the world down. This is not fair. This is wrong. We deserved better, we’d earned it. I’m screaming. I’ll scream as long as I need to.

Remembrance Day

Today is a sad and special day; Pregnancy and Infant Loss Remembrance Day. This affects so many people and yet is so often a solitary, unrecognised loss. These are the people who are often invisible and in pain during celebrations such as Mother’s and Father’s day. Rose has experienced this loss, so it’s something very meaningful to us as a couple. Little rituals like this can bring a most private pain out of silence and into public awareness, can give an opportunity for people who often have no graves to visit, no family awareness of their sorrow, sometimes not even names for souls they have deeply loved. Tonight we light a candle in remembrance of the ones we lose, and with compassion for those who grieve.

Letting it go

I’m sad tonight. There’s been pain in some of my friendships lately. Relationships with other people who’ve come through trauma, or other multiples, can be deeply rewarding, but they can also be more troubled and under greater strain. Sometimes the risks I take don’t work out the way I’d hoped. The last two friends I grew close enough to to tell them I loved them are no longer speaking to me. My heart mourns. So many hopes about the future come tumbling down, the sadness is unbearable at times, and the gnawing fear. It’s hard to make sense of. Life suddenly takes a different path. Parts of me are distraught, other parts have more perspective. Tonight, it’s lonely in my unit. I can feel dreams flying away from me, like balloons with cut strings. It hurts and I let it hurt.

In the sadness I find two things; that all things change. That nothing at all takes away from the good memories, from the hope and care and growth and fun we had, the safe spaces we made for each other. I find it strange that our culture only deems those relationships that last until death parts them to be significant. What we had counted, and what we did mattered, maybe not to anyone else in the world, but for each other, it mattered. We will never be as if we had not met. We take it all with us.

And the other thing? That if you love something, you set it free.

Today I went to a second hand shop and I bought two beautiful baby wraps. They are the first baby items I have ever bought for myself. A long time ago, before I was diagnosed with DID, when I was very sick, a long term relationship ended and I found myself often stuck in the baby aisle of a shopping centre, with a hole punched in my chest so large I couldn’t breathe around it. The grief of the children I did not have stayed with me.

Now Rose and I are talking about children of our own. When things in my life I’d hoped would last much longer and be much stronger fade away like they have this year, having a child seems like madness. I don’t consider it because I believe my life and relationships are stable and unchanging. I am confronting my incapacity to work full time and support a family. I have no idea where I will be in 5 years time or what my life will look like. Life changes, takes wing beneath you, turns on a dime. Both opportunities and tragedy await, and only some can be predicted. I can consider this because I know I can survive my world breaking. Because I understand that life changes. And because I believe that some things do not change, and that I can continue to make choices guided by love and compassion. It’s all we can do.

Into Art

I’m writing from the SA Writers centre, where I’m attending an all day workshop about how to work with communities as a writer. I’m glad I came, despite my horrible lack of sleep and sense of total emotional exhaustion. It’s interesting to reflect on groups and dynamics as an artist rather than a peer worker. Always learning.

This week was incredibly difficult. Amanda’s funeral was beautiful and draining. I’ve had a bunch of big, emotional conversations with various people over the week. Bridges has been in a very painful place. I’ve worked hard this week. I’ve drained my capacity to the point where I’m shaking with exhaustion and feel like I’m going to throw up. Finally, now that it’s Saturday, I don’t have to be okay. I don’t have to be a peer worker, don’t have to make sense of anything, don’t have to be responsible for anything except my own head space.

I woke up this morning drowning in self loathing. Deep in the pit, a place I retreat to when the only way I can feel safe is to try to hate myself more than anyone else possibly can. Shutting myself down from blogging, from reaching out to my networks on Facebook, because I’m afraid of any of the people I’ve shared a crisis space this week reading themselves into my words, being hurt or angry, of undoing all the effort I’ve put into reaching out and building connections. Trapped in a space where I can’t speak, can’t connect, and cannot myself be deeply wounded.

Today I could have stayed home, tried to rest, and collapsed deeper into the pit. Instead I found Nine Inch Nails and the brutal liberation of being only my own person, the freedom of being allowed to be a little bit brilliant and a lot messed up.

So, on goes the blue lipstick today. Today I’m an artist. Don’t follow me anywhere. Don’t listen to me. Don’t look up to me. Don’t need anything from me. I don’t speak for anyone else. I don’t have answers. I have rage, passion, joy, insight, longing. All I promise is to be real.

Can I finally breathe again?

Honey, like this, I can fly.

Preparing

Yesterday I woke up to cancelled work gigs. I’d spent the early hours of that morning rejigging my art website sarahkreece.com.au – go and check it out, it’s very pretty – so losing work was particularly depressing. I dragged my bones of of bed feeling very discouraged and found a bunch of flowers and a sympathy card on my doorstep from friends. It turned my day around.
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Rose was still awake after a night shift and feeling sleepless and rough, so I sat on an old couch in my front garden and read to her. This seems to work for both of us when we’re not able to sleep, particularly books that have a lyrical style of writing. I moved this old couch from my porch to a spot by my studio window. I’ve had some help with my garden lately and it looks a whole lot better than the over grown neglected mess it has been. My awful neighbour is very loud, she leaves her front door open and harasses me whenever I’m out the front. The studio window is a little further away and sheltered at least from sight. I can still hear her, she’s very loud, but if I play music as well its not so bad. I love being able to sit outdoors, it’s very grounding for me. I’ve been out there every day since I moved the couch. It’s good to sit there in the drizzle and my beautiful plants. Sarsaparilla loves it and comes and sits on my lap.

It turns out I picked up a whole lot more work today, teaching art classes, which I’m really excited about. I love workshops, they are interactive and supportive, encouraging people to learn and enjoy new skills. I’m very happy about it. I’ve been developing new glitter tattoo designs and experimenting with different colours patterns, which also brings me joy. Funny how such small things can make such a big difference to my outlook on life, feeling loved, feeling hope about my future.
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In the evening I went and cuddled my goddaughter, who is going to turn 1 shortly. She is so beautiful, my hands itch to hold her when she’s in the room. I can’t wait to be a mother myself.

In the early hours I’ve been cleaning. I’ve had a hot bath, sat in my garden, read, keep company with my pets. I’m as ready as I can be for the funeral tomorrow. We’re ready.

Boat over black waters

I sail my little boat over black waters at the moment. Old wounds in me suppurate, old rage is fresh again. I find myself grappling with new questions – how to be wounded in community? Where do I take this pain? If I hide it all I build a wall between my heart and the people I love. I live alone with it, in a cold place where love does not reach me. If I share it all, I spread it, like a disease. There’s so much loss in the lives of those I love, so many bad stories waiting in the shadows. I want to bring love, not fall like dominoes. I find myself tangled in dilemmas of ethics and honesty and respect. I know how to grieve, and I know how to suffer alone. I don’t know how to place my friendships. There’s a terror and a brutal loneliness in psychosis for me that hasn’t entirely gone. There’s gaps between my friends who grieve Amanda and those who didn’t know her I’m struggling to connect. I find myself struggling to move between sarah-in-community and sarah-alone, between the peer worker and the friend, one who offers and one who likewise needs.

Last night Rose visited. We were both fragile, we arranged; no heavy conversations, no reaching into that pain. Just companionship. Like boats rocking over black water, we knew but did not need to speak of it. I found poems to read her to sleep. She stroked my back, touch grounding me, writing me back into being. We were careful with each other’s brokenness, held our limitations gently in our hands.

There was no screaming spiral of pain that sings to pain, destruction unknitting all that we are, souls seared by scars. There was tenderness, acceptance, closeness. We didn’t ask of each other more than we could give. Somehow, instead of loneliness, there was love. There was love.

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Poets

Having lost myself I start to reach for those things that might be maps or guide, but gently so as not to tip the boat. I find my poets, people who’ve also grieved. Their words unlock my heart. Their words become my voice.

The moon lights a thousand candles upon the water

Douglas Stewart,  Rock Carving

It’s a nightful of ghosts, but then all nights are now.
It’s a long way on until dawn.

Ray Bradbury, Once the years were numerous and the funerals few

Where have you gone? The tide is over you,
The turn of midnight water’s over you,
As Time is over you

Kenneth Slessor, Five Bells

Oates in the pool of remembering.
And clambering out, like some water monster
Lumbering ahead through leaves and lanes and lovers –
Memories, memories, memories, faces like moons

Douglas Stewart, The Fire on the Snow

Waves of sadness

Tired now. Amanda’s funeral is Thursday. Last night I didn’t sleep at all. Got a few hours today after going to bed at 9am. Fragile and hurting, overwhelmed by waves of sadness. Today I can’t be the diplomat, can’t bridge the gap between myself and others, think through their perspective and mine and find a way to connect them. I do this a lot. Some days I’m just too exhausted.

Lay in bed last night with someone inside me begging to be allowed to self harm. Intense and distraught. Self care become alien, painful even, unsettling, impossible. It takes all day to talk myself into breakfast, having a shower.

Woke up tangled in grief and anger and frustration and called lifeline instead of venting on friends or in any public spaces. Struggling to navigate pain and vulnerability in the context of a community. Are we not all on some level alone with our pain? It’s not easy to face our limitations. I’m under no illusions that if Amanda had only reached out to me, she’d have been okay. What then do I believe?

Some days it feels to me that how I manage my pain alone at 3am is then brought before my world at 10am for judgement. We can’t always be there for each other. (and yet we say it, we need to believe it, need to extend hands of friendship over the chasm and hope they will never lean on it too much for us to bear) Trying to understand the chill in my heart, the way my bones grow cold. Is it me, or them, or all of us? I hate myself. I can’t let love in, but indifference and disdain I eat off the floor. I’m lost. Trying not to need, not to lean, not to bleed out, not to disconnect, lash out, break everything apart, walk away from it all.

I’ll find a way through, but tonight I’m lost.

Dazed but loved

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Yesterday I went to the Adelaide Show with a bunch of my favourite people. They took care of everything including the driving, and generally spoiled me. One of my younger, less traumatised parts spent most of the day out and had a great time. We were exhausted from lack of sleep and the fibro pain was pretty severe but it was a good day.

My dissociation level is incredibly high and I’ve been having a lot of flashbacks the past couple of days. Lying in bed that morning having a stressful conversation on the phone, I could feel my sense of my own body dissolving, fraying, like oil spreading over water. I’m not driving until it settles. Tonight is a friends birthday costume party, I’ve gone along in my purple dragon onesie and eaten a lot of sugar. People have been kind. Gradually my sense of self will return, like scattered birds flying home. The flashbacks will go back to rest, ghosts back to graves. I’ll be patient.

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Losing a friend

After a lovely anniversary dinner with Rose last night, we went back to her place, settled in front of the tv to look for a movie to watch, and I picked up my phone for the first time in a few hours to discover that a friend has died by suicide.

The loss is terrible. Amanda was my age, a beautiful caring person with an amazing childlike sense of humour. We first met through this blog and became online friends about a year ago, meeting at events here and there. I was hoping to get to know her better over time. We have mutual friends who are also hurting.

Rose and I, it turns out, are both sensitive to grief and suicide and react to it in very different ways. Last night was painful and fractious. Today is tender and raw. I feel dazed.

There’s an inclination after suicide to think that the person, in a sober mind, looked at their life with a detached eye and concluded that it was not bearable. Those of us who are vulnerable ask “If they couldn’t make it, how can I?”, “If all their wisdom/support/resources/insights were not enough for them, what can save me from my pain?”. I think this approach supposes a level of rational thinking, and a capacity of looking at life as a whole that many of us lack when we are suicidal. Sometimes it is not a summary of their life, it is a bad night. It is overwhelming pain, a loss of hope. It doesn’t take away from all that they’ve done, their kindness, joy, insights, tenderness, humour. Their life’s story is still about everything dear to them, the values they lived by, the way they loved, their passions and sorrows. Suicide is a part of that but not all of it, pain is part of that but not the whole of it.

This may not be Amanda’s story. I don’t know what happened at the end, if mania or despair took her. I only know my loss.

Death shatters us. Each is unique, suicide is different from accident, which is different from murder, or negligence, or long illness, or sudden loss, one person or a whole car of loved ones, a child, a parent, a lover. All have their own deep pain. All make us feel very alone. We struggle to find ways to unite deeply divided responses – I forgive you and I hope you are at peace / Please don’t go, it will tear my world apart. I love you / I hate you / I should have done more / You should have done more/ How did I fail you? / How could you do this to me? We try to find ways to speak that don’t glamorise or demonise ending your life, and it’s not easy. There’s a sudden ending to their story that we were not ready for. We haven’t said all we wished to. We didn’t know that hug would be our last. We review the past weeks and months with a new eye, jaded and worn by grief. Every word and gesture is imbued with new and terrifying meaning. We try to judge the tipping points, the final straws, the real reasons. We try to weigh your life in the balance, to work out why you left it behind. We feel sometimes that we have inherited, like unclaimed mail, the burden of pain that overwhelmed you. We feel stripped bare by the loss that love has brought into our lives.

Our culture is not good with grief. We have no shared days of mourning for lost loved ones. Grief often isolates rather than connects us. Our lives are structured in such ways that it’s difficult to find time to grieve at first, we’re numbed by work and funeral arrangements and all the administration of a life ended. Then there is too much time, alone and absorbed into a pain so deep and enduring we know in our hearts that we will never be the same and never be without it. We grieve in different ways, so that’s it hard to share, our cycles of needing to go into our pain and move away from it do not exactly match any other person. We fear death and pain and loss and withdraw from those who have been touched by it. It overwhelms us, takes us into dark places, cuts us off from life, and hope, and loved ones, and the needs of the living.

I don’t believe this has to be the way we mourn. Life, love, and death are deeply intertwined. Today, on facebook, another friend has given birth to a daughter. Her joy is palpable. With grief, we can warp around it in ways that wound us. I’ve felt this – it’s R U OK day today and I’m grieving the loss of a friend. I’d briefly thought about writing about R U OK on this blog a few days ago but let the idea go. I’ve been busy with art and business plans and relationships. I feel guilty for that. I wonder if Amanda was reading my mental health struggles here and they added to her burden. I wonder about our mutual beautiful and likewise vulnerable friends. I wonder about how to navigate a loss that is personal and public, as Amanda was a member of groups I look after. I wrestle with trying to find ways to respond that are respectful, that give everyone space to react as they need to. If I don’t take care, grief will tell me stories that harm me, like I am responsible for things I am not, or that life is brutal and without hope, or that I will never be happy again, or that love is too painful to bear. Without these wounds, grief isn’t lethal, it doesn’t destroy me in the same way.

For myself, I seem grieve best when I give myself to it. Grieving is like dying. Pain, numbness, apathy, rage, anguish. If I can accept it and make space for it, it makes me feel like I am dying but does not kill me. I make time to hurt and weep. I accept the numbness as a relief without fear or judgement. I accept the times of peace or even happiness without hating myself or wondering if I did not care enough. I move into and out of grief as my heart dictates. No one to tell me to move on or get over it, and no one to judge me for shock, dissociation, or still finding pleasure in life. I do not run from it in fear, and I do not hold myself in it to torture myself. I hold to two beliefs: they were deeply important, their loss, and my pain, must be marked and recognised. Life is also deeply important, and to be lived rather than shunned, both pain and joy. Grief then, is less a garrotte around my throat, barbed wire biting into my heart, and more a tide washing in and out, overwhelming me so deeply one moment that the world turns black and I cannot remember what life was like before it, and another moment withdrawing into a vast ocean and leaving me laying on the sand beneath an endless sky of dazzling stars. Like Persephone, my heart goes down into the underworld, and rises into spring, over and over.

This is only one way. There are a million ways to grieve. This is how I have grieved in the past, when I finally let go of the impulse to use death to terrify and torture myself. I may grieve differently in the future. I have lived in the fear of death, where in nightmares I lost all I loved. Since a small child I have attended my mother’s funeral many times in dreams. I used to drive home and see in my mind vivid images of my family slaughtered in the house and lying in their blood. My heart would pound until I laid eyes on a living person. I have been chronically suicidal and have cared for other suicidal people. I try to make peace that some of my friendships may have a short time in this world. I also rage against it, hold tight to my belief that hope is precious and essential, that our love for each other makes a difference. I remember the studies that talked with people who had tried to take their lives but survived, most later were glad to have lived, had lives they loved. Things had changed and hope had come back to them.

So, I’ve cleared a couple of days off. I’ve cried and slept a little. It’s raining softly here, I’m going to go and sit in my garden and plant some tiny plants into the earth. I’m going to give myself time to understand that Amanda is gone. I’m going to tell her how wonderful she was anyway.

Go gently.

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