Toe kisses

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I’ve been waking at around 5 – 6am every morning for the past few months, which is incredibly frustrating. I’ve started using phenergan on nights when I don’t have to be very awake the next morning, which is helping although often leaving me feeling drowsy and dazed the next day. If Rose is sleeping over that night I’ll roll over and carefully snuggle up without waking her. If it’s warm or she’s already only lightly sleeping, I’ll usually gently put out a foot until we’re touching toes. The contact often reduces my anxiety about not sleeping and helps me get back to sleep.

This morning I reached out a foot and then realised Rose wasn’t sleeping over. Tonks however, was snuggled at the foot of my bed, and more than happy to kiss toes until I fell back to sleep. 🙂

Snuggles

Today Rose and I had the pleasure of heading out for a day with her three nieces. Rose has been incredibly blessed to have so many gorgeous kids in her life, although of course this had also been painfully bittersweet at times of her own pregnancy losses. I’ve lost or walked away from almost all of my social networks and found myself in a painful vacuum where kids exist only as a kind of abstract ideal, a hole in me that aches and make me cry in the baby aisle at supermarkets. Now I have an absolutely beautiful goddaughter, Sophie, whom I adore and who is about to turn 2, and I’m also getting to know some of the wonderful kids in Rose’s life. It’s a huge privilege. The kids reactions range from dismay at sharing their Rose with me to delight at a new interested adult. The face painting is of course a pretty decent bonus.

Today I have yet another sinus infection and bout of tonsillitis, but dosed up with meds and we all went out on a trip to a petting farm called Hahndorf Farm Barn. It was a great day, the baby chickens were a particular favourite and I think between us we cuddled every one there at least once. The kids also patted a snake, milked a cow, snuggled rabbits, fed kangaroos, and got a little spooked by the emus. At the end of it all we wiped out and I got cuddles on the couch at home from miss three. There’s really no greater vote of confidence in your hopes for parenthood than trust and affection from a child who has plenty of other loving adults to hang out with. 🙂

Now I’m off to bed and hoping to sleep this damn thing off.
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Absurdity is a gift

It’s been an exhausting week. Far too much bad news, challenging situations, and friends and loved ones under massive stress. Today, Rose and I were both fragile and depressed, with little left for each other. I collected her from work after a day of discouraging medical appointments and dull errands, and we drove home both in tears, at the end of our tether. We had friends visiting for dinner, so before they arrived we took a moment to touch base. Either we were going to reconnect and pull off a wonderful evening, or snap at each other and deepen the strain. We were able to sit with the triggers and hear each other and found as the tension lifted that our natural crazy sense of humour returned. We spent a wonderful evening playing board games, making jokes, and pulling silly faces at each other. In bed that evening we mused- we’d somewhat lost our humour lately. We had times of deep & meaningful conversation, or companionable connection, or heavy duty trauma territory, but it felt like it had been ages since we’d made each other laugh. What a gift it is, this simple thing. What a miracle that the world that weighs so heavy can be lifted by a laugh. Suddenly the road doesn’t seem so long or the night so dark. It’s the most simple and joyful form of mindfulness I know. It’s not about the destination, it’s all about the journey. There’s no better answer I’ve found to the scream trapped in the throat and the waiting for better years.

When have you last laughed? When have you last felt yourself step sideways out of crushing anguish and found the pain can make the humour sharp and black and driven and surreal but no less funny and no less freeing? I hope you disturb sleeping people and burst stitches and cry from the corners of your eyes and get a stitch in your side and blow chocolate milk out of your nose and gasp for air. I hope the absurdity of life helps you put down big rocks of pain and grief and play for a little while and pretend to be someone who isn’t dying inside, isn’t frozen by terror or crushed by pain or tortured by memory. And if you don’t have someone to play with, don’t forget that phones can record your silly faces and funny voices and baffling walks. Sometimes laughing is the bravest thing we do.

Drawing – ‘After’

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Mixed media drawing made in art class, primarily charcoal. We’re experimenting with different ways of layering and building up images. I like the ghostly landscape behind the charcoal one, it seems surreal and dream like to me. The whole work turned out surprisingly reminiscent of a landscape after bushfire. This process way of creating is very alien to me, I generally know exactly how I want something to turn out when I start an artwork. There’s something to be said for exploring and being surprised, it’s liberating.

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Families, abuse, & hope

Political systems have always been a facsimile of the predominant family dynamics

Parenting for a Peaceful World, Robin Grille

I’m about halfway through this incredibly challenging book. The most difficult and interesting part has been reading through a brief history of different approaches to children and child raising. The brutality and disconnection is truly horrifying. At one point Grille notes that the hysterical dissociation cases so common in the Victorian era are far less frequent now, probably due to very different child raising practices. Yet, I work with many people who’s childhood experiences were neglectful and abusive in probably very similar ways. Each family is like a tiny culture of its own, a mini country with its own customs and political structure. It’s interesting to also consider the reverse – looking at complex politics through the lens of a family. The same questions that can be useful to consider on the small scale are also relevant on the large – who exercises what kinds of power, and how? What is the cost of being the least powerful, or out of favour? How safe are the most vulnerable members?

Rose and I are talking a lot about families at the moment, as we plan our own. I find it interesting that our broader culture structure is capitalist, while our private family structure is closer to socialist, with much unpaid labour and sharing of resources. There’s a tension as we move between these frameworks in public and private spheres of our lives. So we have significant labour such as child raising, or caring for family who are sick, disabled, or frail aged, going largely unrecognised as they have neither job title nor a decent wage attached to them. Family power structures can be fascinatingly complex and subtle. Those who are obviously in power are sometimes only figureheads. Oppressed and brutalised family members are often the most brutal themselves in their enforcement of family traditions and rules. Families create their own mindsets, a framework through which members learn to view themselves and the world around them. When this framework is destructive, “You’re an idiot and you’ll never amount to anything”, “The world is dangerous and will eat you alive”, it takes massive effort to mentally and emotionally challenge these beliefs, break free of their hold, and construct new frameworks. Children basically grow up inside the ways their parents view the world. Many adult children of destructive families find that while they are trying to find their power to built and maintain their own beliefs, they are highly vulnerable to having their frameworks ‘switch’ to those of the family culture whenever they are anxious or in contact with them. Some families navigate such challenges with growth and new connection, others have harsh, rejecting, or even violent responses to what is essentially a war of ideologies. It can be a big challenge to maintain an individual perspective that does not mesh with the family perspective.

A task I once found incredibly helpful was to sit down and nut out the ‘rules’ of my family of origin – not the spoken ones, but the actual way we functioned. Sometimes these align, sometimes they don’t. This isn’t always a bad thing – in the case of a family with avowed ideals of patriarchy or harsh punishments, the reality may be modified and softened by genuine affection and care. No family gets it all right, and many have a combination of generous and altruistic practices mixed in with selfish and cruel ones. Those who have been raised with harsh practices may enjoy ‘their turn’ at exercising power rather than dismantling the abusive structure. But the process of deliberately choosing to observe the dynamics, to note the rules and the roles was extremely helpful for me. For example, many families have a role – the ‘lightning rod’. Whoever is in this role is available to be put down, made the butt of jokes, talked over, doesn’t get to make choices, gets less access to family resources, has to do the worst jobs or so on. This person is targeted as the source of family stress and they are available for the most powerful (not necessarily physically, but politically) family member to work out their frustration on. In some families the lightening rod is always the same person, in others it’s a shifting role as people go in and out of favour. In some families, being able to discharge tension in this way is the sole prerogative of the most powerful member, in others everyone must show their loyalty by treating the out of favour person badly. Sometimes there are factions and more than one lightening rod, with vulnerable members trying to maintain neutrality across all the teams and not find themselves in the least favoured role.

It can be useful to ask questions such as “Who gets their needs met?”, “Who has the most powerful vote?”, “Who’s plans get disrupted when something goes wrong?”, “Who does the most jobs they don’t like?”, “How safe is the least favoured family member?”. And then comes the most interesting part – how would you like your family to function? What rules did you wish your family really worked by? Many of us with challenging upbringings want to do better and can eloquently name the things we hated that hurt us badly – shaming, beatings, emotional detachment, poverty, and so on. Figuring out what we don’t want to repeat can often be much easier than figuring out what we’re going to do instead. For me, one of the things I really wanted my family to be was a nurturing place, somewhere it was safe to come home to when you were sick, hurting, anxious, or had failed at something. I want it to be normal for family members to be kind to each other, to help each other out, and to listen to each other. I sat down and nutted out a bunch of other values and ideas that are also really important to me. I found that they were pretty similar between family and friends too.

The next thing I found helpful was to start acting as if these values and ideas were normal in my family. Instead of instinctively obeying unwritten rules, I chose over and over again to operate from my own values. In my case, I had to do this with my eyes wide open because sometimes the results of breaking these rules were violent. People are often very invested in ‘the way things are’, even if they are suffering under it. Sometimes there’s a lack of hope, sometimes people are trapped by beliefs such as ‘If I was just a better person, everything would work out’. It can take time and coaxing for people to see that there is freedom and kindness possible in change. For those the current dynamics suit – those who are getting most of their needs met, or are comfortably placed within the power structure, or are so entangled with their own demons that they need a painful and chaotic environment around them – the protests can be intense. In some cases, change can expose people to life threatening consequences. This is one, of many complex reasons, that abused partners stay in relationships where they are suffering terribly.

Obeying abusive family dynamics will almost always require a person to violate their own morals and beliefs in some way. It might force someone to be a bystander when they find that intervening makes the situation worse. It might be that blaming and hurting the most vulnerable family member was the only way to be safe. There are often complex trade-offs where children may submit to abuse in the hopes of protecting their siblings, wives to rape in the hopes of protecting children, men to beatings in the hopes of protecting the women and so on. A complex network of attempts at self protection and protection of other family members often results in deep shame and a sense of failure. People in this position are embedded in the family dynamics and take on a sense of responsibility for them. With shame and guilt eroding their confidence in themselves, deep beliefs in their own worthlessness and incompetence, and a powerful and justified fear of the consequences of breaking the rules, it takes extraordinary means for people to start building new frameworks and escaping old dynamics. In some cases people will be harassed or rejected, in others they will be beaten, raped, or killed. In many situations I’ve observed, those who protest these changes do not even understand their rage, there is simply for them a sense that they are less safe, and they use whatever power they have to make themselves feel safer.

None of us is immune to this dynamic, and any of us who exercise any kind of power must consider this if we wish to handle it ethically. Even good intentions can take us down bad roads when we run solely on instinct and the desire to be safe.

The good news is that even the tiniest of gestures to break away from abusive dynamics start to generate a sense of identity and personal power. Within even profoundly abused people, a will to survive and to maintain identity is extremely strong. The entire ‘child abuse survivor’ movement is testament to that – as are the statistics on people – including children – who flee abusive families. While most will return more than once, within the deep conflicts of fear, hope, despair, and bonding, a desire for freedom remains intact. It may not be the most powerful voice, but it is still present. In violent families this change might be done entirely in secret – public obedience, but private kindness. It might be sneaking food to the child denied yet another meal, it might be covering for someone so they don’t get punished. Even secret collusions erode abusive power. They create a sense of personal agency that obedience to the rules takes away, and with that agency comes an awareness that you can and do disagree with what is happening. Environments that strip us of power and choice also reduce our possible responses to two options – we can comply, or we can rebel. In situations where the cost of rebellion is unmanageably high, most people will comply. In situations where the price of compliance is almost or is as severe as the price of rebelling – most people will rebel. Many of us actually alternate between the states, often instinctively trying to find a mid-line where we get the benefits of compliance such as approval, access to resources, protection from violence, some affection, and the benefits of rebelling such as freedom, the opportunity to connect with people outside this dynamic, and a sense of personal power and identity. Like abusers who do not understand their rage when change threatens, most of us engage both submission and rebellion instinctively and are confused and frustrated by our own drives for both.

Being able to truly disconnect from abusive dynamics is about being able to make room for a response outside of the submit/rebel dynamic. Some families (and other institutions for that matter – psychiatric hospitals spring to mind) make this extraordinarily difficult because every action of the members is conceived in a black and white framework of loyalty/disloyalty. They are for us or against us, they are one of us or not one of us, they are a good kid or a bad kid. For me, it helped to be aware of this framing of my choices, and not to mind them. While I engaged conversation about them, I did not initiate them, and I did not expect to persuade anyone. I simply identified what I wanted and acted from that. I wanted a family that was fair, so I resolved to treat members fairly, irrespective of whatever else was going on. This meant my actions were constantly misconstrued, because of course everything I did was interpreted through the framework the family was using. If I gave a gift to a powerful family member it would be assumed I was being compliant and currying favour, if I gave the same value gift to a disgraced member that was likewise a political act. This constant misunderstanding is often exhausting and debilitating to those who are trying to change the way they engage, and if their goal is to persuade people to a new framework, they can become deeply discouraged and give up, or increasingly defensive and get into massive rows. In situations where the stakes are high it’s important to be aware of the politics without subscribing to them. If an act could put you at risk of violence, homelessness, loss of job, custody, or other catastrophes, acting without thought for consequence is foolish. This process of being aware of possible or probable consequences can be immediate in some cases – “Father has always said if any of us drop out of school we’ll be kicked out of home” – in others it’s a slow process of observing the ways the stated rules “In this family we all love each other” and the actual rules “We don’t talk about your brother since he outed himself”, differ. Processing the reality when we’ve been fed a lot of lies and spin can be extremely challenging and confronting, and people are good at obeying unwritten rules while paying strong lip service to the written ones.

However, the freedom to choose your own response is powerful. Instead of merely reacting to what is present, you actually bring into being a new framework of your own, and live from that as best you can. This might cause minor friction or it might involve running to shelters and setting up new homes in new cities. Some of us pay much higher prices than others. Even with the best of intentions, you will at times fail to live up to your own values and standards. But the more you have set them for yourself instead of having them imposed upon you, the more congruent your beliefs and actions become, and the less internal struggling and weakening of identity occurs. It’s a powerful, gradual process, where the first tiny act can be nightmarishly difficult, but each subsequent one a little easier. Instead of being a pawn for the use of the more powerful, you become a player in your own right, exercising freedom of choice over your own actions and accepting the prices if you think they are worth paying. This may be profoundly unfair, involve intense grief and loss, and it can be extraordinarily difficult to maintain a minority perspective in the face of massive opposition or total indifference, but it can be done, and the gains are massive. Being able to have complex, deep, authentic relationships instead of living under the yoke of roles is an amazing experience. Claiming freedom to create a life that is personally meaningful is profound.

Learning to see the giants of our childhood as people who themselves live with the ghosts and shadows of childhood, is a perspective we can only reach when we have somewhere safe in our heads to stand. It can help move us away from attraction/repulsion, submission/rebellion, and into a place where we can see the people behind the roles. This is a much safer place from which we can feel the compassion for vulnerability and loss that may previously have trapped us or exposed us to harm, or likewise the judgement of narcissism or brutality. We can be freed from the black and white thinking where we can perceive only with compassion or only with judgement, which means our actions are more informed by the whole complexity that makes up a family, and less the instincts of ourselves as a stressed child. It can be the start of breaking away and getting out, or the start of reconnecting and making something real – or sometimes both at the same time.

Drawing using a ground

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Working on a new drawing in art class, familiar theme, had to make an Australian animal from brown paper, then draw it. We’re working a lot lately with preparing that paper with a ground. (That’s the background, in this case a mix of gesso, willow charcoal, and chalk pastel) I hate blank white paper, as an artist and a writer. Ruining it with random mess means anything I add to it can only be an improvement. That can free up the creative process a little.

The is only half way done, well be working on it more next week.

Finished pendant: ‘Vision of motherhood’

Today was a rare day. We had terrible nightmares and someone woke to an unfamiliar world. We live so much in the day at the moment, our strange poets have been pushed into the shadows of life. Full of intensity and desperate to make art, she tried to stay out but couldn’t shake the sense of displacement from being out in the day. Rocked in their wake we reached for stillness and tried to listen closely.

We worked through last weekend so were due a day off. We decided to stay home and hope to make art. We’ve been severely blocked, not short of ideas but unable to create, overwhelmed by an appalling inner presence who dominated and destroys the process. All our efforts to work around or reduce the impact of this introject have been unsuccessful. We’ve made no art unless required since our friend Leanne died and we sculpted a pendant in her memory.

Somehow today we found a way through. Someone turned up who is silent and who listens to silence. All through the day we didn’t speak or play music or do admin or touch Facebook. Out on our island another world descended and the block was left behind. We cleaned up or studio space until we could function in it, and then spent the day sculpting, painting, and carving. We painted the pendant we’d made for Leanne. It’s burnished silver which doesn’t photograph easily, with swarovski crystals, a pearl, and paua shell. I’m very proud of it, and deeply relieved to have found some way to create again.

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Frameworks in art

Art history fascinates me. Here, I find the origins of the tangle of ideas around art that have so confused me today. I was thinking about my initial approaches to psychology the other day. I started out both attracted and hostile to the field. The first time I saw a shrink, they terrified me. Each of us colluded in a bunch of ideas such as they knew more than I did, and that their opinion was more informed, more rational, more accurate than mine. I’ve learned a lot since then. I’ve learned the language, and I can use it with the best of them. I’ve learned about factions, arguments, reforms, and a complex if very short history of the field. It’s been highly empowering. I still have those two basic reactions- attraction and hostility. There’s great wisdom in it, and terrible harm and ignorance. Knowledge has given me what I need to be able to navigate it and choose what I will take on for myself.

In art I’m terrifyingly ignorant. I was the first ‘PES’ art student in the 20 year history of my school. I got a perfect score, but with almost no education in art history. I did patchy research on Dadaism and Van Gogh, but had no broader contexts, no frameworks for my understandings. Later in my first aborted attempt at uni, I found the lecturers deeply embedded in a Post Modernist framework that utterly alienated me and I dropped out after 3 weeks of being told that any art that has been commissioned is not ‘real art’, and that technical skill is irrelevant.

I like frameworks. They are how I make sense of my world. Understanding the ones I’m using and the ones other people are using and where they come from and how they intersect is incredibly useful to me. It maps the terrain and gives me information about perspectives, motivations, and the massive and all too common communication challenges when we’re all speaking different languages and making different assumptions about the world. In art and the art world, I’m blind. I don’t understand the territory, I haven’t known the history, and therefore I can’t navigate. My most important goal of operating ethically cannot be achieved if I can’t articulate the context of my choices. When faced with moral problems in the field – should I accept money from drug companies? Is my work sufficiently useful to the community to accept grant money from councils? and so on- I can’t make decisions because I do not know what the broader implications will be. Without a clear framework for ethical action, I freeze up and withdraw. I can’t engage if I can’t engage ethically.

So I’m loving art history classes, because I’m starting to see the broader context and the frameworks that underlie my confusion. Yesterday our researcher part turned up and read half the internet looking for answers to two simple questions – what is art, and what is an artist. Fascinating. I’m working on a thorny essay question that sounds simple at first:

Investigate the available data on the visual arts as part of the wider arts industry in Australia. From your research, how do visual artists fare financially compared to their fellow workers from other areas of the arts? What strategies have been applied to help remedy this situation? What additional initiatives could be used to improve the financial outcomes for artists?

Dig a little and you’ll find an embedded series of assumptions that direct the way people even think about this question. Question those assumptions and the whole field really opens up. How do we define an artist? How do we define a professional artist? How do we define the arts industry? Why should this ‘situation be remedied?’ Who by?

What is art? What is an artist? The answers are implied but there’s so much more to explore. What I’m finding is that the answers to those questions are dependant on the context in which you ask them. Art has many domains, some entirely distinct, and some overlapping. As I tease them apart and articulate them individually, so much of what has confused me becomes clearer. I’m starting to understand the territory, and with that, starting to gather the knowledge I need to act, to position myself, to function in relationship to it.

Do you need a ‘DID expert’ therapist?

This is an assumption I come across a lot. People with dissociation or multiplicity are supposed to need extensive, painful therapy, by an expert in the condition, to stand any chance at a decent life. Hogwash!

First, the caveats: can therapists be awesome? Oh you bet your last cup of coffee they can! Can experts who have trained highly in their field, who are passionate and informed, be a huge damn relief to talk to and learn from? Hell yes. I’ve already written a little about what the point of therapy is and how to recognise good therapy.

Having said that, I tend to beat the drum of ‘you don’t need a shrink to have a life’ quite a lot for a person who sees shrinks. Why? Isn’t this ridiculously hypocritical of me? Do I just not want to share my shrinks? Well, it goes like this. I used to see shrinks because I was scared and overwhelmed and had no idea what the hell was going on in my head/relationships/life. It was SCARY. Super scary. I was terrified of everything about the process and used to sit frozen on my allocated seat, hanging on every word uttered by the shrink who was almost godlike in status and had the power to uplift or doom me with a word. I discovered over time that the idea that psychiatry is a science, that diagnosis is an accurate and sensitive tool, and that shrinks are infallible and highly knowledgeable about the complexities of life and how people work on the inside is pretty laughable. I collected diagnoses like some people collect shoes. Pick your shrink’s speciality, pick your diagnosis. I’ve seen a lot of shrinks over the years. Some have been great, some have been average, some have been horrible. Most have been at least a somewhat mixed experience – partly helpful and partly not. Horrible shrinks have been as much, if not more of a threat to my mental health than other horrible people in my life.

Going off to see shrinks meant I had ventured into a world that was selling me a bunch of ideas about myself and my life such as: I was sick. That someone else’s ideas about me (after a 45 minute conversation) were more accurate than my own. That all shrinks should be trusted, immediately, and any reluctance or failure on my part to engage in that proved that I had problems. That massive power imbalances in relationships are helpful for people with trauma/abuse backgrounds. That having a good shrink is the most important thing you need in order to have a decent life after crap has happened (not friends, or housing, or access to a really, really good library, shrinks). That I needed ‘expert therapeutic help’ to be able to function. That I needed someone in my life who could take control away from me and put me into hospital. That multiplicity meant I was broken, damaged, or in some way inferior to other people. That someone else can heal my pain. That my history and pain is about my choices and my reactions rather than a broader social context. That my suffering is caused by a random breakdown in my brain.

I haven’t found any of these ideas to be at all helpful. I see shrinks now, because I value having a safe place to talk about really tough or very personal things. I love to team up on thorny issues, to pick their brains about information I don’t have, and to explore difficult territory without shame. I do the same things with some of my closer friends.

I don’t give shrinks any power over me. If I disagree with them, I argue. If I’m not happy with their approach, I leave and find someone else. If they’re ignorant, narcissistic, or in some other way a person I really don’t like the idea of spending an hour with, I don’t hang around and let them start playing with my brain. I run the show. I choose who, when, and how to engage. My shrinks don’t cure me. They join me in my process, or they get out of the way. I employ them to help me achieve my goals. They are equals on an exploration, they are not a surgeon with a patient waiting numbed beneath the knife. Am I discounting their skills in describing them this way? No! It takes a lot of skill to be an explorer. Any old hack can cut into a vulnerable person, and every other bugger is convinced they can run anyone else’s life better than they can. But exploring? Now THAT takes skill. You have to be able to not know answers, to explore new territory, to listen – really listen, to be equally vulnerable and human, to be able to be present in the face of pain, to construct theories and ways of understanding the world, and be willing to turn them inside out when they don’t work. Good shrinks are highly skilled, wonderful people, and I love working with them. I’m aware of the context of the relationship – that is, the ideas embedded in psychology/psychiatry/counselling etc that I disagree with, and I make efforts to prevent them from taking up residence in my brain.

Frankly, interacting with shrinks takes a lot of skills, and this is often not acknowledged! You need to be able to tolerate the power imbalance. You need to be able to assess them for safety. You need to able to walk away from the bad ones. You need enough assertive skills to be able to give them feedback about their approach. You need enough articulation to be able to communicate with them. You need a whole stack of courage, a whole huge stack of it, to actually make therapy useful by being willing to get into some tough stuff. You need the ability to be able to keep seeing the shrink as a human being – either when you feel dependant on them, or pissed off with them, or really excited about them (or in love with them), it really helps the whole process if you can not turn them into angels or demons in your brain. (in some therapies, I grant you, that is the process) Basically, you do a lot of work! In fact, there’s a tenant of therapy I love which is ‘Never work harder than your patient’. The person who does the work, has the power. As imbalanced as the relationship is, it is still a relationship. Some of us are better at eliciting useful responses from our shrinks than others. This is also a skill. You also need to be able to grieve everything your shrink is not and cannot be for you, that they can’t be your parent or partner or lover or take away what you’ve come through. Sometimes this grief is so intense it overshadows every other aspect of the relationship.

Therapy is not useful for everyone, and not useful at every point in life. Even the very best therapy. Nor are support groups, or books, or meditation, or almost any approach to pain except keeping on breathing. Therapists are human. Even the best ones make mistakes, have areas they don’t know much about, or use frameworks and ideas that get in the way instead of helping. I’ve learned a lot from the good shrinks I’ve seen over the years and I really appreciate that. But no shrink has had all the answers or all the skills. I’m glad I’ve seen a few, as frightening and stressful as it was to lose or walk away from a good one. It’s been liberating to discover that I can find new good shrinks and get something useful from their different approach, and that I can cope without a shrink and look after myself.

I’m often contacted by people who are frightened they can’t navigate DID without a shrink. A good shrink will help this a lot, yes, but no shrink is way, way better than a bad one. If bad ones are your only options, get the hell out of there! It’s messy, but frankly, so is therapy. If you think trying to make sense of DID on the back of your book reading, some rudimentary peer support online, and a lot of slowly learning about yourself is really hard, then spare a thought for all the people dealing with involuntary hospitalisations, parts who hate the shrink and go berserk whenever an appointment comes around, and littles who bond to them as if they’re parents and are heartbroken when they can’t come over and hug them after a nightmare… it’s not all roses! Having another person involved with your system can be tremendously supportive, but it’s also a whole additional person with their blindspots and history and reactions and crazy ideas to deal with.

I’m often asked what kind of therapy is best for DID… and I can’t answer that question because there is no therapy for DID. There are a bunch of therapies for people. Some of them help shrinks to be better, more courageous, more patient and inspired shrinks. Some of them have frameworks and approaches that are more useful for more people. Often the type of therapy is way less important than your relationship with the shrink. Some of the most useful therapy I’ve had was counselling through a sexual health clinic, which has nothing to do with DID and yet – conversations about shame, development, desire, abuse, power, and love – everything to do with DID!

Experts are also often not all they’re cracked to be. Being an expert in something sometimes means it’s hard to see everyone as new and different. You get used to seeing the same patterns and using the same frameworks. You have blind spots, which over time you become less and less aware of. What was once a guide, over time hardens into dogma. As an expert therapist, you speak with authority, so less people turn up in your office and contradict you, so you don’t get exposed to new ideas. People get used to your ideas and approach and don’t feel like spending money to sit in a room with you and be told their approach is wrong. The expert position can be an ego boost, and a pretty comfortable chair to sit in. Dismantling it from time to time can take a fair bit of energy and courage. Great experts do this! They are proud of their work and passion and history with the topic, but they wear the label of expert pretty lightly, and they keep in mind that none of it outweighs the expertise in their own life of the person sitting in front of them!

One of the psychologists I saw for a year had no expertise in DID. I spent about the first 6 sessions having to reassure her that this wasn’t a problem. As I said to her – you don’t need to be an expert in multiplicity – I am! Sometimes there’s advantages to learning with a shrink, because you find and fit frameworks to your experience, instead of the other way around. Good shrinks that don’t know anything about multiplicity but are willing to engage it anyway are worth 100 experts who don’t click with you, listen to you, or understand your unique quirks.

So, by all means, go hunting for a therapist if you want one. 🙂 Look for someone who has heard of the word dissociation, and who can spell it… But don’t panic if you’re among the masses of people who can’t find this, or can’t afford it. You have lived with this a long time! You have a massive store of wisdom within you, and clearly, a will to survive. And if you’ve found someone good but totally out of their depth – great. Go exploring together. Don’t believe everything you read, try stuff out, be open to new ways of thinking about things, and go make a life. If you’ve fallen on your feet and have a great shrink who is helpful and knowledgeable about DID, awesome! I hope it’s brilliantly helpful, try not to be too surprised if things don’t go exactly as you think they will, and don’t be too scared if you lose them or things change at some point. Get the most out of it while you can. 🙂

For more information see articles listed on Multiplicity Links, scroll through posts in the category of Multiplicity, or explore my Network The Dissociative Initiative.

Spring has sprung

If nightmares in any way predict reality, I’d like to suggest steering clear of four-wheeler motorbikes, underground earth caverns, and singing ghouls that turn up during storms and if you hear their song it kills you and turns your soul into part of their undead cohort.

In other news, Spring has sprung. My plum tree has dropped its blossoms, my poppies are blooming, the roses have come out in leaves, and the nights are warm enough to change the sheets back to cotton. Transformations are taking place! Yesterday Rose and I packed down the studio and brought it home. A sad, failed venture. Business, like life, is full of so many of these. Rose and I did a lot of talking about the structure of our households and family. I culled half a wheelie bin of worn out clothes, made room for the studio things, and re-organised drawers of clothes and art supplies. I’m eyeing my bookshelves next for a cull. If I’m going to fit Rose, and her preposterously large furniture, into this unit, I’m going to have to make a lot of space. I’ve lived in a caravan and the upgrade to the size of a unit was huge for me. Rose has come from house-sharing massive places with two lounge-rooms, a shed to store things in, and entire rooms set aside for formal dining areas or kids play spaces. o.O Merging households is going to be challenging, to say the least. We’re moving very slowly and doing lots of groundwork.

There’s a shift in me that’s making this process easier. I’m filtering everything through the eyes of a parent. Some things I needed as a single, childless person are not important anymore. Other things are very important, such as having an art studio, but something has to give so I’m having to be creative about the use of space and resources. The psychological and physical preparations are also progressing. I have one more big fertility test to undergo, and I’m waiting on the results of another one I’ve had recently. So far there’s mostly highly positive results, with some questions about a possible condition that’s been missed. That’ll be ruled in or out shortly and I’ll know where to go from here. I’m still waiting to be rescheduled for my sinus surgery and there’s been no news. I chased up the cost to have it done privately, but it’s $7,500. There’s no guarantees when the public system will catch up with the backlog. Rose and I keep brainstorming ways of raising the money to do it privately – there’s no way I can try to get pregnant until I’ve had the surgery, but at the moment it looks like we’re stuck waiting. In the meantime we’re adding to our stocks of baby clothes and supplies. On our recent holiday we collected this little gem – a baby hammock. I used a makeshift one of these with much success when I was caring for a disabled gosling. Crazy as it sounds, the needs of human and goose infants are not that dissimilar. We’re going to have a couple of ceiling hooks put in at strategic places in the unit so we don’t need to set up the stand.

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It’s Spring. It’s a good time for cleaning and clearing out and nesting. 🙂

Wrangling eating disorders

Wednesday
I’m sick, not, hopefully, with gastro like Rose, but with the pain and misery of too much work on not enough sleep. I hate Wednesdays and I’m under pressure to stay in the morning classes that are so distressing and exhausting me.

Thursday
Today I wrote and worked more on my business site, attended a morning and night class and an apt with my disability employment provider. I’m shattered. I’m in so much pain I’ve been doing that awful gasping breathing for hours. I updated the About Sarah K Reece page on this blog, and suddenly felt over exposed. The thought of business clients coming here is powerfully silencing. Something in me growls and I found myself writing as very dark bio indeed, like marking my territory… All that out there might be brought and cheerful and child friendly but here things are said as they are… Four more edits later and it’s still dark but doesn’t actually bite anyone on the throat.

What the hell am I doing?

And then my business cards turn up in the post, and they’re so beautiful I can’t stop looking at them. To see my own artwork on them, my design that means so much to me, all my skills listed together and unified… This new business model I’ve worked so hard on and that feels like such as risk… It’s so powerful and moving. I get excited on Facebook and people kindly write to me inviting me to send them some. I have no idea what I’m doing but I seem to be muddling through.

Friday
My exercise program is working. My capacity is far improved, I’m building muscle tone and losing weight. Irritatingly I can’t track the latter well as none of the scales at my doctors office work or agree with each other. I’ve been tempted to buy a set for myself, the first I’ll have owned since I really struggled with disordered eating. I’m telling myself I can manage, that I’ll hide them and only check once a month, but the massive emotional high of stepping on them and finding a lower weight is telling me otherwise. The huge low if the number is the same, or higher, is telling me I’m not as far away from trouble as I think.

It takes huge effort to confess this to Rose, to talk honestly about the battle in my mind, how there’s such a desire to restrict food a and how difficult it is at times because it’s so tempting to let that disordered eating self (ED) take over the weight loss and then try to stop it later on… But when I ask myself questions like; how much food should I eat today, ideally, and find the answer is ‘none’; or what my ideal weight should be, and find the answer is ‘less than the last time I weighed myself’, I know there’s nothing more dangerous than letting those ideas take hold. I could look like I’m doing everything right, get all the kudos and compliments, but actually be moving into seriously unhealthy and dangerous territory.

So, I won’t buy the scales. That’s so hard, and the fact that it’s this damn hard tells me it’s the right call. I’ll keep walking and exercising. I’ll keep trying to listen inside and identify the different voices – when it’s my healthy self saying I don’t really want that treat, and when it’s my ED self saying I don’t want to eat at all. Talking with Rose the other night, for the first time it occurred to me that I might have some very healthy impulses wired into my ED self. I want to defy my father, who spent my teenage years telling me I’d get fat as I got older. I want the limberness of a thinner body, able to sit on the floor with little kids more easily. I want to be able to buy nice clothes without having to pay three times the price at specialty stores. Some of these desires have been cross wired into my ED self. For the first time it’s occurred to me that I can work on reclaiming them, that I can undo some of the things that give my ED self such power. Issues like self hate I’m still working on and obviously that plays a role, alongside anxiety and dissociation and shame and having been badly bullied… But where those are vulnerabilities I’m trying to strengthen, these other drives are strengths I want to reclaim, want to guide back into becoming strong, useful, motivating forces for health in my life. That’s a very different perspective for me, and a much more hopeful one.

Gently does it, gently does it.

What Do I Do? Booklet

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Still working hard on business and marketing… this is the latest project, a laminated flip book of my services. There’s still a few pages to be added, and I’m still tinkering with my website so that everything matches up, but I’m super excited and think it’s looking a lot better than my previous design… this is about the only way I’m actually able to get anything done – not trying to make it perfect, just better than what I was using before. I guess in a small, diverse business like mine, tinkering while I get feedback and a response (if any) from the market is going to be the norm, it’s probably for the best if I’m not massively invested in the idea that my current approach is perfect! 🙂

I really like this. It’s easy to swap out/update a page if I want to, it’s mainly pictures which is always more interesting, and it’s pretty clear. I’ve used a much less professional looking mini photo album without any of the mental health stuff in it for this job before, and people do always pick it up and look at it.

I think it’s also child friendly and shouldn’t freak out any but the most conservative of people, who are not really my client base anyway. Goddamn I hope so! image

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Hills & valleys

It’s been a wild few days here. Rose and I ran away to Remark for the weekend to celebrate our two year anniversary. We had an awesome time, sleeping in a van, cooking on a BBQ by the river, swimming and reading and talking about the future and investigating second hand shops and eating something approaching our own body weight in delicious dried apricots. I don’t know why we find it so hard to get away at times, once we’re out there everything is awesome and we have a fantastic time. Everything is tinged with the rosy glow of hoping that we’ll come back sometime soon with our kid/s.

Home again was brutal, Rose has gastro. We did a long trek back across the state for a funeral, punctuated by emotional breakdowns and major stress. Last night was vomiting and broken sleep, today was major dizzy spells and exhaustion. I’m not feeling awesome, but I’m definitely the brighter member of this relationship at the moment, so I’m doing the driving.

Business building is still going well. Today I laminated an updated flip book of the services I offer, especially to have on my table during big public events. It’s looking really good. It all links up to my website, one page in the flip book is one page on my business website (in a very condensed form for the book, obviously). I think it looks excellent. I need to add a few more pages but it’s looking really professional and with the lamination it should survive all the handling my stuff gets with kids around at face painting gigs. Making progress, making progress…

With any luck the next few days hold some decent sleep and regaining equilibrium for us both.

What is it to have child parts?

It’s many things; funny, beautiful, inconvenient, sad.

This morning it was waking when the front door clicks shut,
to realise she’s leaving like the last ship
pulling away from shore.
There’s a teddy left on her side of the bed and a house
so stuffed with emptiness I can’t breathe.

It’s calling out her name and running
to the door to blink through tears
and try to memorise her face, to beg
a last cuddle before she walks into her day
and we creep back to bed
where the nightmares are waiting.

It all comes together…

Tired but happy. Business building continues to go well. I’m a little obsessive, but that’s not the end of the world. My to do list is manageable. Pending a couple of questions to be answered by my accountant, I think I’ve finally finished all my tax paperwork for the past 7 years! This has been a mammoth project that has taken months of work. My filling cabinet is sorted. My computer files are well arranged. Business admin is current and easy. And it’s growing! I feel about 1,000 pounds lighter in spirit. It’s working, at last! I’m figuring it out and it’s becoming easy, even pleasurable.

I’m still terribly anxious about mixing my mental health work with the face painting and accidentally killing off my only current paid work due to stigma… I can’t tell if this is going to work or not until I try it. I’m ecstatic to be pulling my networks together, they are alive and safe and going to keep running… That makes my heart so happy. Hard at work at the moment, growing growing growing it all. Nearly ready to order the new business cards… Putting finishing touches on the first flyer… You can see the website here: sarahkreece.com.au hopefully looking bright and friendly and very child safe, which of course I am.

I’m so happy to see it all coming together. It’s really the culmination of years of work and volunteering. There have so many low points, failed ventures, terrible illness, phobias, and sheer hard work, but this part is just a pleasure. Maybe I’ve finally reached the point where I’ve learned enough and failed enough to pull this one off. I really, really hope so!

What is Pre-Conception Care?

It’s come to my attention that I’ve been throwing this term around without explaining it! Oops. Simply put, it’s the preparation you do before trying to have a baby. It can take many forms, depending on your situation, gender, family type, & and if you or a partner will be carrying the child or if you’re approaching parenthood via surrogacy, adoption, or another means. Some folks have surprise pregnancies and shuffle the pre-conception care side of things into the pregnancy or early years. Some folks find conception very challenging and the pre conception stage can go from exciting to agonising. Everyone puts their own emphasis on the areas that are important to them, and completely skip other areas they don’t feel are necessary, or don’t think about, or are too overwhelmed by. Here’s some rough areas people may work on during pre-conception care:

Physical Health

Your health impacts everything – your chances of conception, rates of miscarriage, how tough you might find labour to be (birth mums and everyone else in the room!), attachment to the baby, managing sleep deprivation with a wailing person in the house, and keeping up with small terrors who have something like 10 times your energy levels. 🙂 Rose and I have been working a lot on health, particularly as we both have diagnosed fertility issues so the scales are already tipped against us. In our case, we’re working on improving our diet to be primarily home cooked, with a focus on fresh fruit and veg and good intake of red meat. We’re spending more than we used to on food to make sure there’s healthy snacks and things to take for lunches, we’ve moved to low fat dairy products and we’re trying to avoid transfats. We’re doing this very carefully as there’s a lot of vulnerability around food and body image. There’s no point at all in losing weight at the cost of physical and emotional health.

I’m doing a lot of work around exercise, and I’ve taken up walking as regularly as I can manage. The key is being gentle, building up gradually, not pushing myself to walk when I’m just not well enough, and for me – tracking my progress because that makes me feel awesome. 😉 On my good days I’m building capacity. My longest walk so far is 3.6km. I’ve walked a total of 41.7km over the last 8 weeks. Whoo!

Health is also about things like – reducing or eliminating risky habits such as smoking. Finding alternative meds for those you need but that aren’t safe to use in pregnancy. Getting fertility issues properly assessed and if needed, treated. Getting on top of chronic issues as best you can. I’m still waiting for my sinus op, and I won’t be trying to get pregnant until it’s happened, because there’s no way I want to risk bad liver reactions to anaesthetics and pain relief when I have a baby on board.

In my case, this is also about looking at pregnancy and parenting through the lens of disability. One example is that my fibro leaves me vulnerable to higher levels of pain and fatigue in doing certain things. (this is different for everyone with fibro, and good days vs bad days are also different) In my case I recover much more quickly from an hour of gentle walking than an hour bending and digging and weeding in my garden. Something I’ve noticed from looking after my gorgeous goddaughter is that the lift/bend/twist action of putting a child into a child seat in the back of a car is hard on me. 2 door cars are way worse than 4 door, and seats by the edge are harder than seats in the middle (where I can rest on a knee on the seat). So with this in mind, Rose and I are working on fixing up and selling my car so we can buy a 4 door. This consideration is also guiding our choices around housing, bedding, choice of a nursing chair, and so on.

Mental Health

All the risks that poor physical health can increase also apply to your mental health. Some people have to figure out the risk/benefit ratios of psych meds that increase miscarriage rates. Sometimes they can swap to a less harmful med, sometimes they can taper their dose, sometimes they can get off the med entirely, sometimes they stay on it and deal with the consequences. I’m personally not only any psych meds so I don’t have anything to worry about here.

Do you have good supports and resources if someone struggles with post partum depression or other challenges? Are you able to recognise problems developing early and communicate about them? Is anyone likely to be struggling with complex responses to a pregnancy or baby – such as, people who have previously suffered pregnancy loss, are currently grieving a dead or terminal friend or person, were abused as a child and are likely to find some trauma things resurfacing, have existing relationships with abusive people, or are facing other major life challenges in the domains of health, housing, employment, poverty and so on? Giving some thought and preparation time to this can be the difference between a challenge met well and a quietly unfolding crisis, kept secret through shame.

In my case personally, there’s been a lot of hard work to build the kind of life stability I want and need. Housing is secure, income is low but safe, I’m building a business, my disability is well managed, my relationship is solid, and my mental health is in a good place for the massive amount of dedication and devotion needed to care for a child. This isn’t a guarantee that things won’t change! We’re all vulnerable to bad luck and difficult circumstances, none of us are beyond the reach of tragedy. But I’ve done what I can to set myself up.

Household

Babies have profoundly different needs from adults! Some won’t become apparent for awhile while others are really important to have ready before they arrive – like making sure your pets are child safe. Transport, location, house layout, safety, and extra resources can all also be given some thought to early. Rose and I have a pretty awesome collection of baby clothes, baby wearing wraps and carriers, we’re travelling out country shortly to buy a baby hammock, and we’re starting to keep an eye on key furniture in second hand shops and over eBay.

Structure

Every family is different! Time to talk about how you want to do things can help you to think more creatively and not just do what ‘everyone else’ does whether it suits you or not. How are you going to divide household tasks? Keep income happening? Do you have good routines for maintaining a home? Do you have any experience with children or babies? Do you communicate well? Are you going to involve anyone else? eg extended family members or friends who will live with you or nearby or offer support on an emergency or regular basis. Do you have enough skills to keep things running if something goes wrong? Can you adapt when things don’t go to plan? Can you support each other through grief? Are there good support people around you that you’re both comfortable with? You’re a team! Who’s on your team? How does this team work? What’s important to you, what don’t you care about, what skills do you need to develop more?

Family

If you don’t already think of yourselves as a family, planning for a child shifts all that. In our case, Rose and I are making a lifelong commitment to each other as co-parents, whatever might happen within our romantic relationship. We are building a family in which our devotion to this/these children is the foundation, our commitment to set up a safe, fun, loving little culture, to the best of our abilities. Our family is not just an extension of our romance, it’s separate from it. That doesn’t mean we don’t expect to stay together or that we don’t think having love and affection are important – we’ve been inspired by families where parents have changed their relationship dramatically but maintained their parent role with devotion, such as parents who split up but stayed living in the same house with the kids, and down the track each had their own other partners who visited but the family home remained intact. Others who bought a unit and the parent who wasn’t working with the kids that day would move to the unit, instead of the kids moving between houses. There are many aspects to my relationship with Rose, we’re friends, lovers, sometimes carers for each other, and soon, hopefully, co-parents. Each of these domains can shift and change with life, without destroying that last one.

Setting up a new family can benefit from some reflection at every step of the process. Each family has its own culture – values, rituals, norms. Preconception care can be about starting to define your own family culture. This can be about discussing family of origin and childhood experiences… what were the best parts? The worst? What do you want to replicate? What are you scared of replicating? Part of this process can also be your current relationships with friends and family. For troubled families, you need as much time as possible to start working on healthier dynamics. If there are big problems around abuse, distance, or power issues, it’s often more effective to start early and make gentle changes than suddenly try and change how you respond once a baby is here. If you want to build some more closeness with someone important to you, start now before you’re tired and need all your attention for a baby. If you need to set up some better boundaries and practice some communication and conflict resolution skills, ditto.

You all need to talk about safety and make sure children are never going to be left unattended with anyone either of you know is likely to harm them. That might sound obvious, but in complex families it can start WW3 to privately decide that you’re not going to leave a baby unattended with grandma because you have some bad memories about her when you were young that you’ve never shared with anyone else. For some families, the idea that you have the right to restrict power over or access to yourself or your children is a new and explosive idea. Of course, especially when there have been issues in the past this can also work the other way, and people can be terribly distressed when an over protective new parent cuts out loving people they suddenly see as a threat. It helps to start having these conversations early and often, and being very honest with your partner or co-parent in them. A baby can change everything, and things you have been tolerating or ignoring for years can suddenly become important to manage when you realise they will impact a tiny person who has no say about any of it. Safety is one of the most basic rights a baby should be able to expect.

In our case, another aspect of this is navigating a relationship with a known donor, making sure that we have sound legal advice, that we are open about our hopes and circumstances with them, that neither we nor the donor are in a vulnerable place where someone can be exploited, and that there’s a clear understanding of how this new family will be set up. 🙂 Whoot!

So there you have it. Pre-conception care can be as broad or narrow as you need it to be. As a general rule, those of us with fertility issues or in same-sex relationships put more time into this, and that can be a wonderful thing. It can also shift your whole life into a state of perpetual readiness that can turn into agony if a child takes a long time to come or never comes at all. For some of us, facing grief, loss, heartsick longing, and insensitive people can be a critical and deeply challenging part of pre-conception care. But nothing is wasted. All efforts to build healthy families are valuable, and it is not children who make a family but love. Any people who love each other are family. If you’re on this path, best wishes! And wish us luck, we’re exited and hopeful and anxious and positively quivering with anticipation. 🙂

I love public speaking

Wow, what a day. What a week! Today I went off to talk to a bunch of students about my experience of mental health recovery. I do this particular talk about every 6 months to the new group of students, and as I’ve been giving it for a few years now, it’s really interesting to notice the changes. I reworked a lot of it this morning and updated both the artworks used to illustrate it and the poems used. I remember the day I decided to be open about my experiences of DID, instead of talking only about PTSD. I remember deciding to openly discuss the contradictions about my story and experiences that are so easily missed in a snap shot presentation of my life. Today I pulled out my diagnoses as a focus and talked instead about key experiences – dissociation, multiplicity, voice hearing, psychosis, trauma recovery. I am really comfortable with the development I’ve done.

It went down really well. This one’s a long talk, over an hour, and that can be insanely dull, especially if everything’s done in chronological order or read off a power point. No matter how many times I’ve shared, it’s still an intense experience. My hands shake and my heart races. I remember good advice from an amazing public speaking trainer I saw once – ‘don’t interpret those reactions as fear, think of them and speak of them as excitement’. Fear freezes us, but we can ride the adrenaline waves of excitement. It works for me. I concentrate on not talking too fast (I’m so bad at that, especially when the time frames are tight), making eye contact, being present. People watch me avidly. Sometimes they cry. I’m so moved. I want to hug all of them. I want to sit them down and listen to their stories. I want to hear why they’re in this course, where they’ve come from, what they’re scared of, what they’re hoping to do with their lives. They all have stories.

I can’t talk about the past without going there on some level. I read poems about homelessness or loneliness and there’s a cry in my chest and a cold wind that blows through me. I take people there and I walk them back out again. There’s a lot of courage needed for people to be willing to walk down that path with me, a lot of trust that I won’t leave them in the pit with the bodies, that I’ll help them make some sense of the pain. People are amazing.

I’m home now, on a high. This is predictable, there’s a euphoria for me in connecting with a bunch of people like this, in such intimacy with strangers, in sharing what had been the nightmares and the failures of my life and in doing so, transforming them into sources of wisdom and hope and inspiration. It makes meaning for me. 

A crash usually comes later. At some point, there’s the predictable exposure stress, the sense of rawness and loss, the shattering impact of finding that meaning and hope and connection do not erase pain, that I’m still vulnerable and still haunted. I know it might be coming but I’m still flying, soaking up the high for as long as it lasts. 

This time it’s special because I’m working so hard on my business at the moment and talks are a huge part of that. Getting such warm feedback is a huge boost that I’m on the right track and this is possible. I’ve been quiet on the blog this week because I’ve been so busy writing new content for my websites and working on promotional material for my talks. It’s a huge project but I’m well into the zone, working every moment I get on it all and feeling it all flow. It’s coming together in my mind so well, what’s been confused and chaotic is becoming clear and I can see the next steps. That’s amazing, because I’ve felt lost and stuck since I started at NEIS and found myself embroiled back in the admin based assessments of the small business cert 4. Now I’ve hit the wall and put that to one side, I’m flying again and the business is developing daily. 

If you want to check out my works in progress they are all linked to from this hub site: sarahkreece.com

  • My Business Site – I’m taking a leap here. This is the site for all my face painting and custom art, I’m planning to properly add all my mental health/queer/community sector talks and workshops here. At the moment that aspect is undeveloped because I’m still working on the final draft of my master version of the pdf that will be used to advertise my talks. Once it’s more complete, I think I’ll make this my official hub site and close the other page down, or redirect it there.
  • The Dissociative Initiative – many of you are familiar with this, but it’s been in stasis since my board collapsed. I’m updating it and linking it to everything else I do.
  • The Hearing Voices Network of SA. I’ve wanted to start this resource for years, and tried to pull together interest from local people without success. So I’ve decided to host it myself and then liaise with the interested parties. Why not? There’s nothing to stop me, and we need it!
  • Homeless Care – This one is actually my partner Rose’s fault lol. She got inspired and started a facebook group then picked up lots of work and got too overwhelmed to do anything about it. I’ve decided I’ll take it on as I’m feeling pretty comfortable about being able to hold the space – assemble the website and start some gatherings to work on resources and projects. 

Feedback is very welcomed, as is any assistance for the free networks. Or passing on my details to anyone who might want to hire me. 🙂 I don’t know if I’m going to be able to achieve my goal of self sufficiency, but I’m going to work on it. At the very least, I now have the dignity that comes with having a public identity – an answer to the question ‘What do you do?’ that doesn’t involve talking to strangers about chronic pain and illness. (I try to never ask this question, it always hurt me so much. I try to ask about people’s interests/passions/hobbies instead. Sick people still have those.) And at last, I can see how to support my free resources, keep them alive and gather support for them. I’ve had so much trouble feeling uncomfortable about marketing myself, about asking for money and moving into a ‘small business’ mindset, but I’m starting to see that for someone who is disabled and dependent on welfare, this is also about dignity. I have a right to use all the skills I have to make myself as independent as possible, to care for my family and prepare for my child. It’s not greedy or grasping, I’m not cheating anyone or looking for pity. It’s not my fault that industrialisation has changed the nature of ‘work’ in ways that are extremely difficult for ill or disabled people to fit. In a different time I would live in a family or tribe and help out as and when I was able to, and give my all when I was well. (assuming I didn’t just die of course) In my own way, I’m doing my best to be part of good changes in the world. I will do what I can, and what I can do will be enough. 

Poem – Finding the end

Sometimes I must let thoughts swirl all unformed, nebulous, stars seen through water, no patterns or constellations, just points of light.
I wait and I follow
One thread and then the next, one path
Then the next through the labyrinth, as
The kaleidescope gently tilts and the light changes to green
Then amber, as floor becomes wall and then ceiling.

I found a limit this week, an end of myself, of my capacity
To believe, to hope, to conceal my terror like stuffing all the things
I don’t know what to do with into a spare room and closing the door
Like so many times before it isn’t like the ending of a film
Or a piece of string or the daylight but
Like stepping out of bed in the dark and padding down the hallway
Opening the kitchen door to find
A gaping hole where once there was a floor
A cliff that tears downwards and a dark wind rushing up with the smell of water
The house, the earth, the country itself all fallen into the sea.
That is the coming upon the end of my strength.

At first I am hysterical.
I howl like a dying animal and force my palms into my eyes as if to stop the rain
I take my body and my mind like they are metal I can beat upon an anvil, hot with self hate, and turn into a bridge between
Who am I now and who I wish to be
Who I owe to my loves to be, to my child yet unborn, to the world.

Sanity returns as we start to topple.
I do what all do who stand upon cliffs, and become still.
And there’s a place on the edge that’s without pain
Or joy or hope or love. Blood no longer runs in veins,
There is no more screaming. I look
Perfectly normal. Where my heart used to be
Is an empty restlessness, the dangerous torment of the numbed.
I am alone on a dead planet.

Later I take a step back. My thoughts return
Like gulls wheeling over me. All the threads snapped. Only fragments remain. A memory of skinned
Raw anguish from which all decent people flinch.

I draft no plans and write no treaties
Just rest in the night with the gulls wheeling over
Listening to the tiny whirring of the compass inside me
That will say ‘that way’ and then there’ll be
No night or cliff or screaming in my mind
Just a path and the moon and the next step waiting before me.

Staying a person within the mental health sector

I’ve just read this article 20 Ways to Combat Rankism, by Robert W Fuller, and it resonates with me. I’ve been talking about this issue of what I’ve called a class divide in mental health. I’ve watched organisations that started as peer based, consumer-led, with a lot of flexible cross over between the service users and service providers become dramatically divided into distinct classes. The service users and providers become totally different from each other in dress, language, culture, attitudes, expectations of behaviour, and places they are permitted to access. Most of the power in this unequal relationship resides with the providers, who also bear responsibility for ensuring good outcomes to justify funding. These groups become rapidly polarised when mutual relationships are not holding them both aware of their shared humanity. The roles of provider and user can each be rigid and dehumanising. Those of us who are service providers find ourselves trying to achieve two contradictory aims – preserve the system of professional divide between users and providers, and build and strengthen communities.

Please don’t misunderstand me. We’ve created our therapeutic distance for very important reasons. Whether the system actually works is another conversation, but the needs and challenges are very real. I don’t have simple answers.  But I am deeply disturbed by the divide. When I started working as a peer worker, I thought this was an answer, that we would be able to bridge this divide, those of us who are both service users and providers. That we would bind the two communities back to one whole. But that’s not what I’m seeing. What I’m seeing is a whole community of peer workers who are paralysed by their basic human need to keep their own job. Who are being asked to be braver and wiser than everyone else in the system who has more voice, more power, more status, and more money. I’m also noticing the change of the idea of what a ‘peer’ is. I’ve sat in meetings where Peer Work was described as a career path. As it’s fitted to the mental health model and turned into a job, it’s being torn away from its roots; a place of shared humanity. Back when Soteria was running, the peers who supported people having psychotic experiences did not themselves have to have experienced mental illness. They were peers because they were people.

I wrestle with all of these things because I’m no more immune to their influence than the next person. Do you not think that after years of being poor, bullied, marginalised, and homeless that I cherish having a voice? An income? That somewhere inside I laugh when people who ignored me as a patient pay money to listen to my ideas now that I’m refashioned into a public speaker? I keenly feel the paradigm and the tension of my place within it, allied to both groups and refusing to rescind my membership with either. I was told by my PHaMs worker once that my attempt to insist on my right to maintain the friendships I had with other service users was pointless as it was clear that I was nothing like them and would “leave them all behind” as my career developed. The last time I sat talking with a friend who works at a local NGO mental health org, a staff member popped their head around the door to inform us we needed to leave as we were the last people present and it was now against organisational policy for a staff member and a consumer to be alone on the premises. I had not until that moment considered that I was in that context classified as a service user. I have tried to create change within these systems as a service user, but the total lack of power and voice, the constant dismissal by those who could make changes but do not have any comprehension of the subtle violence their systems do to people finally convinced me that it was not possible to do what I was trying to do. The system does not accept dual citizenship – I may train all I like and create and maintain as many services as I wish but if I fight for my right to make friends with whomever I choose and if I regard service users as my peers I am never to be one of them.

So we have two groups of people, disconnected from each other. They do not use the same entrances to the buildings. They do not share the same toilets. They do not lunch together. One usually arrives by car, the other by bus. On one the burden of healing the sick is placed. On the other, the burden of recovery. There is often conflict between the two, sometimes subtle, sometimes open abuse or violence. Those who seek to bridge the gap are often alienated by both groups and exhausted. Many leave the system. The culture is fatally flawed.

I go and give big presentations in front of important people in big shiny buildings and I feel the lure of power. As a young peer worker, some of my work was being done while at night I slept at the local backpackers. The divide in my world, and in my mind, was overwhelming. One moment I would be treated as a loser, a failure, a pathetic social parasite by a bored, tired, angry worker at the local welfare office. The next I would get a standing ovation and a hundred hugs from an audience. My life flickered between being nobody and somebody. The experience was agonising and illuminating. I also felt the structures, the hierarchy, the expectations and the culture, set itself up in my head. I started to see people through this lens of nobody or somebody, to try and attract the somebodies, to give less time and attention to the nobodies. And to panic that this would cost me, that success in my goals, of employment in mental health, would undermine my values and turn me, slowly, into somebody I do not want to be. I’m not strong enough. Some people are, but I imbibe the cultures around me. I sink into them and they into me and years and years later I’m still crashing into them into my mind. I adored my local Hearing Voices group because I walk into that space full of people without power or voice or money and we would be kind to each other – nothing more, and I would feel like a human again. Not a nobody or a somebody. Just a person like them. It was like being able to breathe again after coming off some hideous drug. It makes me cry to think of it. They became my grounding point, a place where I felt real again, somewhere to return to after debasement or accession.

Now I’m in the NEIS scheme, working to set myself up as a freelance artist/writer/poet/community builder… And I don’t know what I am. I’ve investigated my insurance options as a freelance mental health worker and it’s possible. Mind blowingly expensive but yes I could set up privately to do my talks, workshops, groups, even one to one support. It’s about 3 times the cost for me than for someone who has a degree in the field. And for awhile I wondered if I should go and finish my psych degree to make life easier. Then I realised, I don’t want to be a psychologist, or a psychiatrist, or a counsellor. I never really have. I want the information, the access to materials, but I don’t want to practice the way they do. I don’t want to do therapy. In fact, I’ve been fighting for the right not to have to for years. I don’t want to take my place in this hierarchy presented me. I don’t want to choose between being a user or a provider. I don’t want to pick which side I’m allowed to find my friends from. I want to be an artist. I want to help people be more free, more informed, and more connected. I want to be a peer worker. I want to be a member of any group I help to run. I’m tired of the roles and being dehumanised by them. I don’t want to be a somebody or a nobody, I really just want to stay myself. I want to help other people be their own selves. That’s probably not very useful to write on my professional indemnity insurance application. But I guess I don’t want to be a professional. On the other hand, I do need to make a living. And there’s the clash. I do need to understand and work within the legal and cultural frameworks I’m presented with. I haven’t found a path yet. I’m still hacking at the jungle and hoping there’s a way through. I’m still trying to get out from under the paralysis that trips me up when I feel like success is as much a threat to me as failure.

Sarsaparilla online

Wednesday’s are currently my crazy day. I start the day online at 9.30am for my Cert IV in Business, and finish it at 8.30pm at College for a Drawing class. Inevitably by then I am exhausted, sick, and in awful pain and very sad that I’m not enjoying a class I would usually love. I’ve been working hard on making Tuesday evenings restful and taking time off between my classes on the Wednesday to reduce the impact. Being able to borrow a car to get to my evening class, or beg a lift from someone kind also helps. Today is extra challenging as I’d cancelled both classes expecting to be in surgery! But it’s going well so far. The morning class is over. I went for a walk to the Post Office with Zoe and a friend. I’ve received a package of items for my face painting business that must have been held up for weeks in customs – they were so delayed I was sure they’d been lost or stolen. Given that it cost $150 I’m pretty ecstatic they’ve arrived! I went for out for coffee and a chat, ordered a tablet online to replace my smartphone, and signed up the SA Writer’s Centre to see if I can get some help laying out my book ideas. I’m a little bit excited about that. I’ve got dinner sorted out, and I’m about to have a bath and a rest (nap if I’m lucky) before heading out for the evening again. The dishwasher is unpacked, and life feels more under control again.

A friend posted this cute link about cats on dating sites and I thought I’d join in. If my cat Sarsaparilla had an honest online profile, I think it would read something like this:

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  • 7 Year Old Male 
  • Seeking occasional companion for warm naps 
  • Spayed 
  • Body type – fit and muscular
  • Breed – domestic shorthair
  • Hair colour – Black & White Tuxedo
  • Catnip – not interested, can’t detect it. Don’t like any cat toys at all, or cat beds, cat scratchers, and so on. Will sleep on books, newspapers, homework, keyboards, laptops, and sleeping people.

More about me: I live a peaceful life of roaming. Can’t tie me down! I come and go as I please and eat the best of the treats on offer from any family who’ll give them out. I love sleeping in the sun, separating the other neighbouring tomcat from a decent amount of his fur. When I’m super happy I purr and dribble at the same time. I can be skittish. I do not recognise my own humans if they are wearing new shoes, jumpers, or a hat I haven’t seen in a while. I loathe and avoid dogs and pretend they do not exist. All cat doors in any houses are a personal invitation. I love pigeons, rats and mice, particularly the middle bits. I leave the end bits like feet, tail, feathers, and beak, for my humans. I am adept at hiding my gifts beneath the middle of the queensize bed where they cannot be reached. I love to sit on sleeping people’s chests. If extra happy, I will paw their faces and dribble onto their necks. I’m not sure why they don’t enjoy this. I lead a simple, happy life, with the occasional dog chase over a fence to keep me in good shape. 

Seeking: You must not be clingy or nervous, or I will panic. I can mewl for 12 hours straight if I’m upset about something. I do not adjust to being kept indoors. I can be upset about something for 4 months straight without adjusting to it. I have a very small, high pitched squeak for such a large cat – you should never draw attention to this! You will allow me to enjoy my wayfaring lifestyle, and never ask for cuddles unless I initiate. You will not pick me up, you will not put me in cat boxes, you will never take me to the vet, you will not give me tablets or pastes or treatments of any kind. You should keep a towel handy to put over your lap for cuddles or I will add a complex poem in Braille punctures on your thighs. You should understand a guys need to dribble with happiness from time to time. You will not own a dog. Other cats are okay provided I am given lots of treats and a couple of months to adjust. They should be smaller than me. If you really love me, you will let me eat rats in the bed and piss on your clothes and/or curtains. As you can see, I am fairly poorly treated by my current humans who do not appreciate any of these things. They are lucky I still choose to visit.

Medicine for a bad day

It’s not been a good day. Robin Williams has died, and my online world is flooded with unbearable sadness. People are asking what hope there is when someone so inspirational, wise, and successful, couldn’t find a way to make it through the night. I shared a post I wrote in the wake of the loss of a friend of mine to suicide, with my thoughts about grief and loss.

My surgery was cancelled at the last minute, so all the plans Rose and I have made, gigs cancelled, days taken off work, study arrangements and so on have become moot. I’m back on the wait list and told I’ll be mailed a new date sometime in the next several months. I’ll have to cancel a whole new round of my work, and go in again for another 3 hours of pre-op tests and appointments. I’ve called the private hospital this afternoon where my surgeon works, but apparently they are taking weeks to months to get back to prospective patients with a quote for the surgery. The wind has been taken right out of my sails. I’ve mucked up my week, Rose’s week, friends and family who were making soup or picking me up from hospital, and all the clients I’ve pointlessly cancelled on. The careful effort to  have my system in the right place to cope with the surgery and the anxiety around my allergies goes up in smoke and is replaced with massive stress and upset. A couple of hours of crying later, and reading the entire amazing Hyperbole and a Half book, which was being saved for post-surgery depression, and I’m feeling less overwhelmed.

My car isn’t running. My phone has suddenly died. My home phone only works erratically. My caseworker is away sick, I’m two weeks behind on homework, the house is messy, and all the plans are awry. I’ve bought a new season of Flashpoint online, because nothing puts a bad day in perspective like watching someone else’s really bad day handled with care, and I’m trying to navigate options for phone and selling the car.

Into all this, a friend contacted me to offer commiserations, and in the course of the conversation asked me for some blog posts on a particular topic. I’ve spent a happy half hour looking a collection up and improving their backlinks. How wonderful to feel that something I do matters. It takes so much of the bite out of a bad day. I feel so much calmer and able to cope. Meaning and purpose and connection – how much they can ease our pain.

Learning the business language

So, I’m knee deep in study again, and falling horribly behind as my sinuses continue to prove the upcoming surgery is sorely needed… I’m working really hard on being able to undo the blocks in my mind and understand the terms. I’m not stupid but wow I’ve found this hard. I hate so much about the corporate and bureaucratic worlds, and feel so out of my depth in them that my mind just shuts down. I’m trying to figure out what I need to be able to engage with it all. So far one little useful shift has been to see it all as a new language that I’m learning. It really is in so many ways – a whole bunch of new words, or new meanings for words, and a whole underlying world-view and series of assumptions that I find subtle and often very distasteful, such as the idea that everyone wants to make massive amounts of money. I’m coping better if I think of it as a new language and culture – I need to learn it to be effective in my freelance work, to navigate the complex world of organisations and legislature. But learning another language doesn’t mean I have to go ‘native’. I can choose to retain my own values and frameworks. It’s a huge challenge for a mad artist to venture into this world and try to find things of value when my overarching response falls somewhere between suspicion and terror. But there are others who’ve walked this path before me, and often humour is the way they’ve coped with the hypocrisy, inefficiency, and dehumanisation that are so often part of these processes. That is a comfort to me!

Happy Birthday to Rose

It’s the birthday of my beautiful girlfriend Rose. 🙂 What a wonderful opportunity to appreciate this lovely woman! She’s worked so hard to be here, lived such a complex and challenging life. It’s left some scars, but it’s also brought out such wonderful traits. She’s kind, loyal, brave, fun, generous, and complex. I’m so fortunate to have her in my life. So much has changed since I met her. I’ve found whole new directions, doors opened that had been closed, deeper understandings of worlds I’d not been to before. Sometimes we go and sit by trees she once slept in when she was homeless. At night we take turns reading Harry Potter to each other. Some nights she talks to me in her sleep. My inner children trust and love her. They play with her, cuddle up to her, cry in her arms when they’re scared or sick. She knows us, she picks switches, uses our names, knows the right pronouns. We’re so different! She loves Hilltop Hoods, I’m into David Bowie. She struggles to get her motor running for work. I struggle to turn mine off. I’m into anime and foreign films, she’s… coming around ha haa. We’re so similar too, both with our dark, wild sides, longing for the domestic but also needing to run free under the stars, to remember that we’re strong.

It’s not always been easy to build a relationship between us. We’ve both worked hard, paid attention, learned a lot. We’ve come through a few ‘shall we call this off?’ conversations. Building a relationship is complex. It’s like a whole additional person, separate from each of us, that we’re both constructing. The dynamics have a life of their own. We each bring ghosts with us. At times we can barely see each other because our memories are in the way. At times words are too hard, or closeness is unbearable. But we’ve kept building, because it’s been worth it for both of us, our connection makes our lives better. We’ve made something that works, that shelters us, that brings out our best, that gives us the freedom to keep rebuilding it as times and needs change. We’re a good team, and that’s a precious thing. We’re family, and I adore her.

I’ve changed. She’s made my heart bigger. I’m gentler than I used to be, more careful. I’m angrier too, more protective. My life is so different, full of all her networks too, the people she loves and the children dear to her. We can’t go anywhere without running into someone she knows some how. In my tiny art class at college, 2 of the 7 other members know her – from different times and places. Her networks are as vast as my own – but where mine are often online, hers are local and often part of her long work history. She teaches me too – her passion for all things child related is without rival. Where my knowledge was abstract and book based, she has shown me how to baby wear a child, check if a nappy is dry, keep a restless young one entertained in the car without taking your eyes off the road. We’ve each been the foundation for each other. I help with lunches and early morning starts with her job. She drives me to far away gigs and washes out my brushes afterwards. We each play supporting roles in each other’s lives, no one person the sun around which the other orbits, but an exchange of energies. We watch and try to tend the change which bringing our lives together creates for all our other relationships. We nurture those who are loving and allow to fall back a step those who cause pain and chaos. Everything changes with the start of a new family. Our friends rejoice in it and become part of it.

I’m a small part of Rose’s story, but I hope to be a good one. She deserves such devotion and care, a safe place to be vulnerable, to be flawed and human, to make mistakes and learn and have your best efforts and good intentions count. She deserves the things I’ve been seeking, real attachment, empathy, honesty, a place to be real, to know and be known, a place to grow love. I’m not good enough. Sometimes I’m mean. Sometimes I’m intrusive, or demanding. Sometimes I’m exhausted and have little to offer. It’s been a journey to process her grace in the face of my flaws, in her love I find moments of being able to accept them in myself, to draws lines between intent and effect, to be humbled without being debased. To be able to accept my failures and own them, and say sorry without collapsing into terror and self loathing. I find I have to accept the limits of my role. I am a partner, I cannot make up for the tragedies of the past. I cannot make her happy. I should not fight her battles for her. I am on her side, on her team, a retreat from the world, and I can love her and do my best to meet her needs and bring out the best in her. I can let go of the rescue fantasies and help us both to be a great team. I can help us to navigate the disastrous risks of the roles of carer and caree when one or the other of us is sick. I can accept that she too is human, that she cannot take away my pain or erase my past or meet all my needs. Sometimes that’s laughably easy. Some times, at 3am, when reason has fled and the world is dark, and our partner it cast in the role of the only fire at which we can warm our hands, that’s difficult.

How fortunate I’ve been! To get so close and spend so much time with such an incredible person! How wonderful to be able to spoil her a little, to know enough about her to be able to put together good gifts, and gentle care for the sadness of a day that’s also an anniversary of pregnancy loss, so often forgotten about in the excitement. I love her tremendously and can’t wait to be by her side for another year. 🙂