Gilding

So, yesterday morning I was eating a bowl of porridge in front of a financial counsellor as we tried to look for ways to keep supporting the three of us on the two incomes we have at the moment. (welfare are still dragging their feet about their obligations to Star, so nearly 4 months together we’re still struggling financially) I’d used breakfast time to put on loads of washing. Rose was home sick in bed following a night of asthma attacks and nebuliser. Star was sick at school and I was on standby to go and pick her up if she didn’t improve soon. And I was trying to have breakfast and get through all my errands without dropping any balls. Ah, the life of a parent!

Today I’m home. A whole, uninterrupted workday is music to my ears! Working from home when we’re all sharing the same space and my art studio now doubles as my admin space, the dining table, and study space for others is frankly painful. Getting things done while my household are out studying is my best bet, but it’s also prime appointment time which means hours stuck in waiting rooms and driving or bus-ing around the countryside.

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Mid-afternoon and my table looks like this. I’ve been able to gild all the prints that have been ordered for Waiting for You. I’ve also spent some time researching and testing a few different gesso/size products (these are the ‘glue’ that binds the gold leaf) to see how they work using different tools and papers and which might be most suitable for various applications. I haven’t been successful yet in finding anyone to teach me gilding techniques in Adelaide, so I’m learning from reading online, youtube videos, and trial and error. I’m extremely tired but happy with my work. It’s a joy.

Following up Waiting for You

I’ve been working on filling the art orders from the opening night of my exhibition Waiting for You. The exhibition is only open for another 7 viewing days (Mon – Fri 4-6pm), so if you haven’t made it in yet you’d best get your skates on!

I delivered this beautiful notebook today to a lovely person who was at the opening and particularly fell in love with this artwork. I ordered it in especially and was really happy with how it turned out on this blank notebook, just beautiful. 🙂

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Of the prints I’ve had ordered for embellishment – in this case the customer asked for a print to be made much larger than the original so they could see the tiny details better. This is about 1 and a half times larger and it’s stunning. If I’m able to hold this exhibition again I think I will display this artwork at this size instead. I’m planning to do all my embellishing of prints tomorrow so that I can send the prints that need it in for framing next. Everything is on track to be ready by the close of the exhibition on May 20th.

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I’ve also created a keepsake for the exhibition, this little booklet. It’s free, on display at the exhibition (or I can send you one). It contains a short biography, description of the origin of the exhibition, price lists of the art, information about the artbook Mourning the Unborn, and links to Sands and other online resources.

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I’ve also placed free brochures for Sands on display by the exhibition for guests. There’s also a little visitors book for people to leave thoughts and messages.

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I’m speaking for IDAHOT

Edit: Sadly this event has been cancelled 😦

Come and join us for International Day Against Homophobia, Transphobia, and Biphobia (IDAHOT). SHineSA are hosting a ReFRESH forum in the afternoon of May 17th in Woodville. There will also be an interactive panel, resources, and most importantly of all, rainbow cake. (although I’m not baking this one) There is a cost and you do need to enrol. You can find all the details in a print ready pdf here and the enrolment online system, which is still open, is here.

“Sarah is an amazing individual who is part of the queer community, a consumer of mental health services, and also a worker in the sector. With an open and creative approach she will take a fresh look at self-care – we all hear about it as workers in regard to ourselves and our clients, but how useful is the way we frame it? When self-care becomes more work which is measured in terms of success or failure, and carries with it notions of obligation and shame, can we take stock and look at it in a different way?

The forum on 17 May at Woodville will explore mental health and LGBTI people, with particular reference to some of the people who exist at the intersections in the community: nonbinary/genderqueer people and bisexual/pansexual people.”

I’m very pleased to be speaking at this event, self care is an important topic and one that is often not well handled. I’m also proud to be a visible part of the queer community, speaking to inclusion and diversity in that space.

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My Rainbow Cake for Rose’s birthday a few years ago 🙂

Guest Post for Sands on Mother’s Day

This year I was invited to write a guest post for Sands Australia for Mothers Day, which I was delighted to do. I decided to share some experiences and photos that I haven’t put on this blog before. It’s been a day that Rose and I have struggled to navigate for many years, so I wanted to talk a little about that journey and how we’ve changed our approach over time. You can find it here; Untold stories of Mother’s Day.

This year, Rose, Star, myself and other friends are away camping for the Medieval Fair, which is very tiring but very lovely.

For all those of us for whom this day hurts or brings up complex memories or feelings, I wish you kindness and gentleness. I hope you find places where it is okay to hurt, people who treat you with understanding, and some compassion towards yourself. It’s okay to grieve, okay to be angry, okay to be confused, okay to ignore it completely. Do what you need to do to find some kind of grace, or peace, or way through. With much love xx

Peace

Everything is quiet. The house has been put to bed, the dog put to bed, the lights turned off, the trash taken out, dinner put in the fridge. My people are quiet now, sleeping or close to sleep. Tears dried, cats curled at the foot of beds, appliances turned off. The dishcloth hangs wet over the sink. The moon sets slowly in the kitchen window.

I lie in bed, baby kicking. My lover’s hand rests upon my back. My mind is roiling with the plans of the week. I talk to it soothingly, like a puppy that needs to settle. Time for sleep now, come home. Come back from the world of ideas and into this body. Feel how sleepy it is, how heavy with fatigue. How much it wants to let go and rest, let the night dim the fire in our joints a little. Feel the baby moving, dancing in their world under my skin. They’ll be here soon, so rest. Breathe the night air, deeply, taste the shadows and the dust. Sleep now, be at rest, be at peace.

27 weeks pregnant and rearranging the house

Today has been brilliant. Rose, Star, and I all slept in then spent the day working on the house. We have rearranged sheds, sorted boxes, and changed around furniture to make room for the baby. I’m now in my third trimester! I’m very excited, a bit anxious, very large and awkward, and baby is kicking like a horse. This is what we did today:

Added extra chests of drawers to my study area. Hurrah!
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Took all the dead flowers out of my birthday bouquet.
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Replaced the chest of drawers in the hallway with a much better, prettier one we found on the side of the road awhile back.
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Admired the dryer I was given for my birthday eeeee!
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Installed a new tallboy in our bedroom. Rose picked it up for free and we turned the broken drawer area into a shelf. It is packed full of baby clothes, which is what happens when you have 7 older siblings I guess.
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Moved the bookshelf out of the bedroom and into the dining room and put all my art on it safely away from the dog. Moved the old one cabinet onto the front porch and put all our gardening supplies into it. Sorted the massive collection of gear on the floor in the dining room into the sheds.
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Rewrote the home page on this blog and my Face painting website, edited my Sarah page, changed my Projects page to a Community Networks page, and added an Exhibition page.

Redesigned my business cards, tshirt with logo on it, after-care cards for face painting, and various other marketing things.

Created a final design for a logo I’ve been working on and emailed it to the client.

Sent a blog post out for a guest post I’ve written.

Generally been brilliantly productive and inspired. I am blissfully happy tonight, thrilled to not be sick today and able to be part of the nesting. 🙂 ❤

Beautiful Review of Waiting for You Exhibition

The most lovely article about my exhibition has been written up by artist Julia Wakefield for the Weekend Notes. She attended the opening night and has snapped lovely photos of me and guests and the embellished prints. I look very pregnant and fairly exhausted but the art is glowing. 🙂 She describes it as “a courageous, beautiful exhibition about a taboo subject” and writes about the history of how it all came about as well as her impressions. It’s gorgeous to read and so good to see some photos of the night! I brought my good camera but left my SD card home, so I don’t have a lot of pictures to remember it by. I very much appreciate an article like this! ❤

www.weekendnotes.com/waiting-for-you-art-exhibition-about-pregnancy-loss-and-motherhood-at-the-box-factory/

Sarah K Reece, miscarriage, pregnancy, art, art exhibition, mental health, SANDS, loss, grief, mourning

More positive feedback is coming in from people who couldn’t make the opening night but have attended the exhibition, which is very heart warming. Some people from further away or interstate have expressed interest in an exhibition local to them, which I shall look into the logistics of. The embellished prints I currently have on display are continuing to sell too, which is very exciting! If you’re planning to attend do sing out, if I can I’m happy to meet you there. 🙂

Wonderful Arty Things

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My lovely exhibition Waiting for You is still on display at the Box Factory in Adelaide until May 19. (details here) As I can’t attend every day, I’ve been working on setting up materials that will be helpful to those who couldn’t attend the opening night. Today I finished the final draft of my brochure about the exhibition and had a collection printed, it contains information about me, how the exhibition came about, the artbook Mourning the Unborn, and prices. I bought these stands today, and they are now on display alongside brochures from Sands, all free for anyone. There’s also a display copy of the artbook for people to have a look at.

If you’d like a brochure yourself, Sands have theirs on their website, and I can pop one of mine in the post for you – those of you with orders will get one with your art as a keepsake. 🙂

I’ve also been to the printer this week and placed the opening night orders for art and frames, and the printer there loves my work and has offered to display some framed on his wall, for sale to his customers. How wonderful!

Tomorrow I will be working on a guest post for the Sands blog for Mother’s Day, which I’m very pleased to have been invited to write.

There’s also a review of the exhibition by artist and writer Julia Wakefield, which I feel very fortunate about and will share with you very soon. 🙂

It’s wonderful to see this exhibition/community event continue to grow in various ways beyond the opening night.

Tonight I attended the Healing Voices film and was once again struck by how tremendously important artists of all kinds can be in creating community and bringing issues to light. While many other people did the hard work of organising the screening, artsy people wrote and directed and edited and created the beautiful content that spoke to people. I still lament that there has been no real home for me in mental health locally, but I am feeling great hope and strength in standing on the platform of arts to be part of change in the world. A friend from down south was lamenting the difficult hours that Waiting for You is being exhibited currently, and asked me if I might be interested in finding a hanging space for it in her area sometime. I think that would be a fantastic idea and I am keen to explore other opportunities for the exhibition beyond May.

I’m also quietly giving some thought to World Hearing Voices day coming up later this year and what I might be able to do as an artist to raise awareness and be part of that. There’s a place for me somewhere.

25 weeks pregnant and a week of birthdays

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What a week. Rose and some friends organised a surprise birthday camp-fire night for me a couple of days after the exhibition opening. Once I got over feeling embarrassed and a little overwhelmed, it was the nicest evening. Everyone else did the cooking and organising and running around and I just lit a fire and sat next to it. It was so peaceful and relaxed. We ate baked potatoes and chocolate cake and sat around in the dark telling stories and jokes and listening to songs on the guitar.

I’ve been taking things very gently since the opening night, a fellow artist kindly warned me in advance to expect a crash so I blocked out a number of days to just rest. I thought I would be very emotionally down after the big high, which often happens for me with personal talks in mental health. This was a very personal talk, I read poems about mourning Tamlorn. I’ve never openly wept in front of a room before like that, nor made so many other people cry with my sharing. It was a very precious space.

But the surprise for me was that the crash has been physical with severe pain levels. I must have been more tuned out of my body and pushing it harder on the lead up than I’d realised, because the moment the last guest left the opening night, it hit me so hard I could barely walk. I’ve done not only all the art and framing and hanging work, but so much admin and organising. I cooked two huge pots of soup for the night so had big blisters on my hands from cutting loads of pumpkin and peeling a big bag of potatoes. I was very lucky to have so much help with the set up and pack up from kind friends.

I spent all next day in bed, getting up for short hobbles around the house every 45 minutes to stretch my joints. Since then I’ve spent until noon or later every morning in bed just managing the pain. I was talking to another pregnant woman today who is a few weeks further along than me, and she told me that yes, at 30 weeks she’s just reached that point where the pelvic pain is kicking in and getting a bit uncomfortable. I bit my lip.

So it’s been pretty wonderful to have the recovery time from the opening match up with people being extra lovely to me for my birthday. I’ve been very spoiled and nurtured which has been very appreciated. I’m calling this whole idea of an exhibition for my birthday a win. I’ve been far less stressed than usual about an upcoming birthday, I feel incredibly proud of myself for pulling off such an important event and bringing to life a dream I’ve had for many years, and the opening itself was a tremendous success. I shall definitely be doing it again.

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In the meantime I’m working on the admin and orders from the opening night and doing all the follow up and finish off work to tidy the loose ends. I’ve been debriefing and reflecting on what worked well and what I would do differently next time and capturing as much of that as possible so that it will be easier to do this again. I don’t know if this was a fluke or the start of something great in my life but I’m hoping to build on what worked. It’s the first break I’ve caught in a long while, the first work related endeavour that has turned out well in a long time! I’m celebrating that. And I figure that one of the indicators of a successful project is that in the aftermath of it, I’m actually excited about the next one. ❤

SA Film Screening ‘Healing Voices’

If you’re a South Australian local and interested in mental health, this Friday April 29th is a free/gold coin donation film screening you’ll probably be interested in. All the details in the Hearing Voices Network of SA newsletter here.

First newsletter out in almost a year… Haven’t done one for the DI for the same amount of time. I miss my networks. I wish I could get paid for running them, and wish I had my little team of three to bounce ideas around with… as I’m getting back on my feet and having to pay for domain names being annually renewed and suchlike I’m starting to think more about what to do next and how to support these. Friends came over last night for the most wonderful campfire evening and it was so lovely… and made me miss being able to hang out with my local hearing voices group around a campfire without all the politics and crap about who is allowed to be friends with who… I deserve to be paid for my work, and I have the right to identify as I truly am and be friends with people from whichever category I wish.

I don’t know what the way forwards is yet, but I’m starting to be able to think about it again without being overwhelmed by a sense of failure, anger, pain and loss. Maybe that’s what the Waiting for You exhibition has done for me – given me a sense of having a place somewhere in the world. Maybe I was never meant to live in the world of mental health the way I was trying to build my career. Maybe there’s a home for me in art and a way to do this work that doesn’t exhaust and exploit me or force me to compromise my values. Maybe…

I don’t know. Nothing has worked so far. But I’m learning, through each loss and each dashed dream. I’m trying different approaches. I’ll unlock that door and crack it open a tiny bit, and back away quietly. Maybe some idea will come to me about how to grow these precious networks. Or maybe I’ll find some other, more sustainable way to make a difference in the world.

The Opening Night was incredible

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I’m home in bed, tucked up under an electric blanket to ease the very bad pain I’m in, reflecting on a whirlwind evening. It was an amazing success, whichever way you cut it. The most amazing group of people attended. I sold a lot of art. My talk and poetry were very well received. And the food – and cake especially – were incredible! (thankyou M!) Friends and family pulled together around me, efficiently sorting out the background work. I was stunned by how busy I was, I thought I’d have much more time to talk to everyone. My sales paperwork wasn’t as helpful as I’d hoped it would be, and I was the only one who could work the card reader for most of the night so I was doing a lot more admin and less connecting than I’d hoped… But a self hosted exhibition is a steep learning curve and I have learned so much for next time.

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To everyone who came – thankyou! Thankyou for being there, for crying with me, for buying art, for your gifts and hugs and stories and connection. You have moved me deeply. I sincerely hope that everyone who wept felt safe and accepted, that the pain we touched tonight was healing rather than traumatising. I think we did something special together. I know it was very hard for some of you, very risky, that it took courage and trust in me. I honor that. It was very hard for me too, but very beautiful, very precious. Thankyou for doing it with me.

I know a lot of people couldn’t make it – the exhibition itself is still on for another 4 weeks until May 19th. I’m also going to be getting the rest of the prints up in my online store over the next few days, my artbook is already available and I’m more than happy to sign a copy for you and pop it in the post.

With love xxx

Food, kids, etc – last minute questions

Opening Night!

Tucker:

Yes, there will be food. Myself and other friends are bringing platters of veggies and dip, hot soups, breads and cake. One of the soups is gluten free, dairy free, vegan, and actually still quite tasty. 😉

There will be spring water, juice, and fizzy drinks. This is a alcohol-free event. I can’t drink as I’m pregnant so I don’t see why I should pay for liquor license for you lot to have a glass. 😉

Kids:

Are welcome! Obviously depending on their age you might need to explain some of the topic or discuss some of the artwork with them to help them understand or process. Some of the images are paintings of nudes (not graphic or sexual), there are some stylised depictions of blood, and some are very sad – it’s up to you what you feel is appropriate for your child.

Gifts:

Yes, this is my birthday celebration, but please don’t feel like you have to bring a gift or card. It’s completely fine to just turn up. If you like giving gifts or cards however, then please don’t feel that I’m going to set it on fire if you do. You’re welcome to. If you like the idea of a gift but are short on time or not sure what to do, please consider buying some of my art, or making a donation to Sands SA, who will be there on the night. 🙂

Shopping:

The embellished prints on display are all available to buy, and there will be many other options such as unframed regular prints, and my artbook which you can take home on the night. I can accept cash, card, and paypal. I am also adding content daily to my Etsy online store.

Access:

This is a wheelchair accessible venue with a lift and accessible toilet. There is street parking all around the area on Carrington and Halifax Streets. You can’t drive from Regent Street North to Regent Street South, but there is a path for access on foot if you park on Carrington St.

Freedom & safety for a charged topic

My Waiting for You exhibition opening night is just around the corner and I want to speak briefly about creating safety when dealing with such a painful theme.

For many of us, this is a really charged topic. It’s painful, intense, deeply personal, and may not be something we’ve ever really had a chance to process – much less to engage in a public setting. Breaking taboos can be liberating but also triggering and incredibly distressing. I’m deeply aware of this, because Rose and I are in this place in a very real way, right now. I want to share publicly the same conversations I’m having with her, because I suspect she’s not the only one feeling conflicted. I want to speak into the heart of that conflict because it’s what hurts so badly and makes it so hard for us to talk about these things and know what we need. We often feel pulled in contradictory directions – needing to talk about it/see it in public/bring it to light, and also needing to hide away from it and deal with it in privacy. It can be really hard.

I have taken a number of steps to help the opening night to be a safer space. You can help me with this in how you treat the other guests and yourself. Here are some guidelines and values I’ve set for the evening:

Freedom

  • You are free not to come! I won’t be upset with you if I know you personally. You are not under pressure to attend to support me.
  • You are free to be ambivalent and unsure. It’s okay to decide at the last minute if it feels like a good idea to come. It’s okay to change your mind. Please don’t force yourself to do anything that doesn’t feel like it’s right for you.
  • Free to leave any time you need to. It won’t be ‘rude’ to step out or leave early. No judgement. You’re also welcome to step out for a bit then come back.
  • Free to decide you’d rather attend privately instead of for an open night with other people around.
  • Free to buy something that speaks to you to take home, and free to find the art confronting or disconnected from your experience, and support me in other ways if you want to.

Feelings are okay

  • It will be okay to feel things. It’s okay to cry, to be moved, to remember, to talk about things.
  • It will be okay to feel good, or sad, or mixed up, or lots of things at the same time.
  • It will be okay not to feel things, to be numb, or not in that space, or not public about it.

Resources on the Night

  • Sands Australia will have a representative at the evening who is more than happy to talk to anyone looking for information or support. Sands provides a helpline and other resources around miscarriage, stillbirth, and newborn death. She will also have brochures and information you can take home and look at later.
  • Tissues and friendly people around (my tribe is full of good people) who can give you space or a hug. Some of my friends are champion huggers, so just sing out if you need one.
  • A place to be involved. Rose and I have created a small installation We Love – providing a space for you to participate and recognise your own losses. You can write names or something meaningful to you on papers provided and have a time to reflect.

Art can be powerful. It can bring the private into a public space. It can help us to speak about things its difficult to find words for. It can help people not to forget that behind silence and cultural taboo are real people who need and deserve safety and connection. It can express and share our unbearable experiences in ways that help make them bearable to look at. This kind of art can be a speaking back to silence, a way of documenting things that were erased from our lives and never allowed into our histories and family stories. These things happened. We felt many things about them. They changed us. They are important. We deserve space to share our stories, mourn our losses, and rebuild our lives – without secrecy, without shame. In community; with connection, privacy, and love.

Waiting for You Exhibition is Open

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It’s up and beautiful and ready for viewing! The theme of pregnancy, loss, & motherhood is so special to me. The works are joyful, heartbreaking, raw, and tender. For those who missed my heartfelt radio interview about my experiences of miscarriage and this exhibition, it is now available as a podcast through Radio Adelaide here.

The Exhibition

Open between April 19th – May 19th, Monday to Fridays, 4-6pm.

It’s at the Box Factory, 56 Regent Street South, Adelaide. (map) This is a wheelchair accessible venue. All works are available for purchase.

If you are on Facebook the event details are here.

The Opening Night

Was a wonderful success. 🙂

There were prints and cake because this was my birthday celebration this year. I launched my beautiful artbook Mourning the Unborn. As I was dealing with a charged topic, I took care to create a safer space – read about the values and resources.

Last minute questions about food and kids etc.

My Online Store

Especially for those further afield, I have just opened my Etsy Art Store and begun stocking it with prints from this exhibition, and my artbook Mourning the Unborn. It won’t be quite as lovely as seeing these beautiful gold embellished prints framed and displayed, but you will still be able to see the artworks and buy a regular print yourself.

I’ve turned 33 this year, and I’m glad to use this moment to put my work out into the world, and honored to include everyone it speaks to in some way. ❤

Listen to me talk about miscarriage and art on Radio

I was interviewed recently about my experience of miscarriage, my upcoming exhibition Waiting for You, and the launch of my artbook Mourning the Unborn. It’s a very personal interview and lasts about half an hour, with the lovely Jennie hosting on Arts Breakfast. If you’re local you can tune into Radio Adelaide at 101.5 FM, Saturday the 16th April at 10am.

It’s now available as a podcast online here.

I gave the interview yesterday, which was an incredibly hard day for me. I had a fall the night before going out to a date night with lovely Rose. Walking in the dark I turned my ankle in a pot hole and went down a bit hard. Yesterday baby didn’t do the usual morning kicking, and by 3pm they still hadn’t woken up despite me walking, resting, drinking cold water, and eating something sweet. I got a bit worried.

So, following this interview Rose picked up Star and I and we spent a long evening in the hospital waiting to make sure everything was okay. We’ve just got the last test result back this evening, and everything is looking fine. But needless to say I was feeling a bit raw and don’t actually remember much of the interview itself.

I feel it was very good, true to my experiences and work. It’s also exposing and personal and I feel a bit daunted by being so public. I hope it’s valuable and I’m looking forward to meeting people on the opening night and getting some feedback about this whole idea in person.

Rainbows in the morning

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It’s beautiful here. I slept without meds and woke early after a sad dream. Last night I changed the bed to winter bedding, warm flannel sheets, my electric blanket, and Rose got the winter quilt with my favourite rainbow cover out of storage. It was a gift from her, I love it, so bright and warm. The morning sun streams in this window and I can hear cars and birds singing. My lovely girls are up and getting ready for their day, our baby is dancing inside me.

Rose and I have a wonderful date night planned as our teen – she’s chosen the nickname Star for this blog, will be away tonight and these days date nights are precious! I used to show my love for Rose by packing a picnic dinner and taking her to the beach to watch the moonrise… Now more often it’s by sorting the bills out and doing three loads of laundry. It’s not quite the same… I miss dining and dating my lovely lady. Cuddled up to her this morning while my tears dried, I felt my heart swell with love. We had a counselling session yesterday that went so well, I felt like a huge weight of black fear lifted off my heart and the light is shining through again. I adore my family, we are making something very special between us.

I’ve lost a couple of weeks of preparation time for my exhibition which is hard, but I’m finally starting to feel just better enough to be able to tackle some of the tasks again… Last night I framed all the gilded prints that are ready to go, and they look beautiful. Today I’ll be working on price lists and paperwork that needs to happen – no matter how beautiful and creative the project there is a lot of non creative background work that has to happen to make it all shine!

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Yesterday Rose and Star gave me this lovely little rainbow dragon to say thank you for the work I’ve been doing and admin I’ve taken on for our family. Aw man, there’s nothing quite as soothing to the soul as appreciation. 🙂 Life has been such hard work lately, but it is pretty amazing to see what we’re creating. The sheer misery of illness is starting to fall behind me, and while we’re waiting for things to break – for Rose to get work, or welfare to finally get sorted out, and so many other important things that are squeezing us all badly – there are still thankfully, days like this. Mornings with rainbows. ❤

23 weeks pregnant and sick as a dog

Rose is sick, I am sick, bubs is doing great. We’re both on antibiotics for bacterial infections (tonsillitis for her, sinusitis for me) and I have been so sick and sleep deprived this week I’m desperately looking forward to feeling better. With my drug allergies plus being pregnant there’s almost nothing I can take to help reduce the pain or get me to sleep and I’m now very worn out. Food aversions are even more severe than usual and I’m struggling to eat and keep down fluids, which is scary and stressful and makes me feel like I have an eating disorder and worry about developing gestational diabetes. Every time I read about the importance of a balanced, pregnancy safe diet and regular exercise I kind of want to scream because at the moment I can hardly walk 50 yards. The sheer misery of chronic pain is hard to overestimate, I cry a lot, I’m very irritable, and I feel completely exhausted. I’ve also stopped sleeping, which may be sickness or may be pregnancy insomnia…

Just when I think I’ve learned all the horrible things pregnancy can bring with it, I stumble across something else. Frankly right now I’m wildly over all of this and feel like I’ve been sold a load of rubbish about what pregnancy would be like. I kind of can’t beleive I actually wanted to experience this, was really excited about it and chose to do it. The lovely moments of joy at feeling baby move simply don’t stack up alongside months and months of being madly unwell. I’m perfectly capable of being really excited about feeling my baby move in Rose’s tummy, thankyou very much. I hate complaining because she’d love to carry, and because people sometimes think that means I don’t want to be having a baby or that I’m not grateful we are expecting. But hell this has not been fun!! Fibro and pregnancy and sinusitis especially are kicking my ass and it’s not fun or exciting or joyful or glowy, it’s just stressful and exhausting and bloody miserable and yes I chose this. Argh!

Fortunately froggie is pretty unaware, kicking away every day, especially in response to Rose singing to them. Thankfully! Our GP got out the doppler today and that wonderful heartbeat, so strong and rhythmic, it’s such a relief to hear. I finally have an appointment to meet my midwife for the first time next week, which is a big relief because the bloody hospital has been confusing us no end with all manner of contradictory information.

I am, as you can hear, pretty overwhelmed. Rose has been superb. Pain overwhelmed me last night and she rubbed my back and talked me through a visualisation where I hadn’t spent the day crying on the lounge, sleepless and exhausted, but instead we went out together on a picnic through the beautiful autumn trees. And the pain stayed there in my body and face but for a little while I went somewhere else, with Rose, somewhere peaceful and beautiful where everything was okay. And I saw the wall I have to jump over to reach that place – grief and hurt for every night I’ve ever spent alone with such pain. But last night she took my hand and I lept the wall and away we ran; into the red and golden leaves, into a place of quiet and promise. Into a world where my body is whole, and we sit beneath the trees by the water together, red velvet against grey stone. Her hand in mine, her beautiful hair snagged with a tiara of leaves. She is my home. She is my peace.

My Artbooks have arrived!

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Here they are, all ready for my launch. They are lovely! Full colour, high gloss, very beautiful. I’m into the final preparations for the exhibition side of things. The last custom frames will be finished this week, and all the prints are in.

I’m sick with a sinus infection, bad fibro pain and very irritated skin. Rose is down too, she started with a sinus infection and tonsillitis, but today it’s developed into a chest infection and the tonsillitis has gone bacterial and nasty. So we’re both pretty miserable!

I’ve only got a couple more weeks before everything needs to be finished and ready to hang. The last key orders for custom sized matting for the embellished works need to be put in this week, so I’ll be home for the next while, covered in gold fragments and sizing while I get them all finished. I’m gilding the tenth work tonight before bed. It’s a relief to see it coming together.

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Poem – Terror

I am terrified.
I try very hard not to be.

Everything I build is a bright island
In a black sea
One day
There will be a storm
The water will rise
Or the land will sink
the sun will go out of my world again
not dead, or lost, or drowned
still shining somewhere else
but whatever blessing I was living on
will be withdrawn.

There will be no sense to it.
There will be nothing I did, or did not do.
It will follow no pattern.
All that is bright in the world
will be a memory
everyone I love will die
everything I care about will drown
beneath that black water
life will be unbearable pain.

Over and over again.

1 in 135 births is still born.

Even if the light shines on me
someone else goes home drowning
the simple arithmetic of loss
someone will get their heart broken.
I’m 23 weeks pregnant
and drowning in survivors guilt.
Terrified of the future
And I still can’t talk to the baby.
Oh Job, did it work for you?
Can you really give back children after taking them?
Or did you howl in the bitter hours of the better days too?
Like all of us who love from brokenness.

The sun is shining
and the sun is shining
and I’m not afraid
and there’s no darkness coming

The sun is shining
and it shines for me
because I’ve done the right things
and I’ve figured life out

Nothing bad is going to happen
Night will never fall again
Everything is under control now
Life gives us what we deserve.

How do we live without our lies and illusions?
How do we face the sun when we know it’s dying?
I crawl from my broken place, over to you love
touch your face, and it’s wet with tears too,
kiss your wet face with tears in my mouth
the sun on our faces shining
The sun shining on your glorious face
The glorious sun shining on your tears.

Criticism Fatigue part 2: Criticism is essential

Here’s a fun paradox: as I’ve explored in this first post about criticism fatigue, as a mental health service provider and peer worker, criticism is risky to me, my job, and my organisation. It makes me feel stressed, threatened, and unsafe, and at times it is all of those things especially when it crosses the line into abuse. However, I feel quite the reverse about being able to make complaints. It’s very important to me that my right to criticise is respected and supported. I want to be able to make a complaint easily, without penalty, and to feel listened to, taken seriously, and even see change happen as a result. Being able to criticise limits the power of people and services to abuse and harm me – as a consumer, a carer, or a peer worker. Being able to criticise helps me be safer. But receiving criticism threatens that safety and wears me out. How do we manage that reality?

If I believe that consumers deserve to have a voice, which I do, then I believe that criticism must be part of the process of service provision. If I believe that staff deserve to be safe from abuses by consumers or other staff, which I do, then I believe that criticism must be part of service delivery. If criticism is so essential, maybe we need a better approach to it in services – something that makes it less threatening and less risky.

Let’s look at the bigger picture for a moment. Criticism can be conceptualised as a form of ‘feedback’. Feedback is the process of sending a message back after an action, to modify the next action. It’s a form of communication, and it is incredibly important to the functioning of all organisms, eco systems, and structures made up of smaller components. This is moving into the territory of systems theory, a fascinating field of study that explores the relationships between individuals/units/components within a larger system. The nature of feedback is that it creates regulation – it gives information about the effect of an action so that future actions can be modified to achieve the desired result. Without feedback, there is no regulation, and without regulation, function and survival are threatened.

In relationships between people, feedback is essential to connect and to pursue goals. Feedback in the many complex forms of signalling contentment, distress, praise, criticism, and so on all set the boundaries and define the power balance in the relationship. 2 way feedback means that these signals can be sent and received by both parties in both directions – person A can tell person B when they are comfortable or irritated or hurt, and person B can do likewise with person A.

In systems where this feedback is inhibited there are higher risks of problems. If a consumer can’t complain to or about a staff member, they are less likely to be consistently engaged with in ways that meet their needs and don’t hurt or frustrate them. If a staff member must not have complaints made about them/their services then they are under pressure to meet consumer needs without being able to clarify when their efforts are not effective, and without being able to take risks that may not work out – bearing unfair responsibility that presumes mind-reading and infallibility. If a staff member can’t complain about a consumer but the consumer can complain about the staff member – or vice versa, there is a significant power imbalance at play that can allow harm to happen to the more vulnerable party.

Criticism is also essential in a less personal sense – we need to criticise services, resources, ideas, ideologies, approaches, politics. In a similar way that feedback regulates relationships, it regulates ideas. It is not possible to create anything that is perfect, static, unchanging. The most elegant and beautiful idea can be misconstrued, misapplied, inappropriate in context, overcomplicated, oversimplified, accidentally destructive, and deliberately twisted to cause harm. It is not only appropriate but essential that we debate, discuss, and explore our ideas. In the case of services we need to hear from all people. It’s not good enough to say – well ‘most’ people find this approach helpful so we don’t have to listen to those who find it harmful. It’s not good enough to assume that good intentions will prevent harm. It’s not good enough to create highly risk averse structures to prevent criticism and then take the lack of criticism as a sign that all is well.

Criticism is part of learning. It is a signal that we have made a mistake, and propels us to greater understanding. As Bradbury colourfully put it in Fahrenheit 451

You’re afraid of making mistakes. Don’t be. Mistakes can be profited by. Man, when I was young I shoved my ignorance in people’s faces. They beat me with sticks. By the time I was forty my blunt instrument had been honed to a fine cutting point for me. If you hide your ignorance, no one will hit you and you’ll never learn.

Criticism is also inevitable. Do anything at all in life and you will have critics. Some you need for their useful ideas and input, and some are just the price you pay for being active. Criticism can help to expose you to ideas, experiences, and perspectives you could simply never personally gather in your own lifetime. My experience of setting up resources in mental health and doing consultation to garner what is most needed, where the gaps are, and the best use of resources has been that getting that information in advance is often very difficult from more than a small portion of the community. However, once a resource is running, criticism will abound if it fails in some way – and the resource can then be modified in the light of that. It’s often difficult for people to articulate what they need until they’ve started to see some options (show me a menu! I don’t know what to order) or started to have some experiences (this bit was great, that bit made me really uncomfortable). It would be a whole lot more comfortable for me if I could gather that information in advance and set up ‘perfect’ resources, but that’s more about my fear of criticism than it is about the back and forth of real community engagement. Accepting and being willing to engage with criticism has worn me out and led me to struggle with criticism fatigue, but it has also honed my ideas, challenged my ignorance, and made my resources better.

Criticism is also inevitable because of the massive diversity in people’s needs, values, and beliefs. It is simply impossible to perform any public action that meets with 100% approval. Some people are adept at criticising from their armchairs without ever risking getting involved. Some feel threatened by anything that brings an unpleasant reality to their attention, or that reduces their own power or comfort in any way. A local organisation had to fight an extensive court battle to open a respite facility for people with mental health problems when many members of the local community tried to block it on grounds such as their perceived risk of violence from the members, and possible lowering of house prices in the area. Most community services aimed at vulnerable, stigmatised populations face similar challenges with harsh criticism. Anyone who works in retail or any customer service role with the public has stories of people’s bizarre, confronting, irrational, and impossible expectations, opinions, and behaviour. The comments section on internet videos and articles is often testament to exactly how ugly ‘the public’ can be. People are highly diverse, not always rational, and not always community minded. Criticism can reflect human diversity, and it can be a weapon of human perversity and cruelty.

So, if criticism is risky, but also essential and inevitable – how the hell can I engage with it? The approaches we are inclined to when experiencing criticism fatigue are so harmful and create many more problems than they solve. Increasing control, reducing transparency, filtering access, giving up, hating ourselves, refusing to listen, and attacking back all deflect, avoid, and weaponise criticism. What are we left with? What does it look like when we engage with criticism as a healthy and essential part of communication? How can we recognise our own limits and vulnerabilities around criticism fatigue? How can we support ourselves to engage criticism in constructive ways? I am no expert for sure, but I have been lucky enough to have some good mentors and read some interesting books in this area which has helped a bit as I’ve fumbled my way through peer work. Something to explore in my next post.

22 weeks pregnant

I’m on the upwards swing of my mood cycle, and enjoying it immensely. I have DONE things and FINISHED things and I am back for a little while in the place where hosting an art exhibition actually seems like a good idea. This is unlikely to last so I am getting as much mileage out of it as I can. 🙂

Last week I learned that Centrelink (Australian welfare) had given me until today to gather a very important assortment of supporting documents from individuals and organisations. Considering the Easter long weekend knocked 4 business days out of the already tight timeframe of one week, I have been a very busy person. It’s like war, really. Of paperwork. The most stubborn and well informed person wins, if you don’t starve to death or beat your own brains out against your desk in the process. At least, that’s my take on things. So today I uploaded a stash of documents and I am hoping that I’ve made some pencil-pusher somewhere very happy and they can photocopy them in triplicate and file them all to their heart’s content. I’m done!

Yesterday I picked up a second big collection of prints for my upcoming exhibition and spent the evening cataloguing them and filing the originals safely away. Very time consuming process, but also exciting and satisfying! They are sooooo lovely. I am very excited about showing them to people. And I’m hoping like crazy that my catalogue will make re-orders much easier for me, and adding new information a simple process… please?

I was recently introduced to trello.com and I’ve trialled it this week to help me keep track of my various to do lists… I am managing the household admin for my family, a lot of admin for our amazing teen, everything for my exhibition, and my own personal stuff that needs doing. I’m loving trello. Managing multiple projects is much easier when I can update and modify things online instead of endlessly rewriting my lists as they get harder to read over time. I am taking on admin better than I ever have this year, I’ve accepted that it’s just going to be one of my roles in my family and the faster I adapt to that and the more skills I develop the less stressful it will be. There’s still days I want to set my desk on fire, of course, but I am delegating more and accepting that my fledgling organisational skills are needed and necessary and help my family run more smoothly. I’m also finally counting the admin as ‘housework’ and not double loading myself trying to make sure I do lots of that too- I think growing up it wasn’t treated as a real thing that actually took time and effort and skill, like lots of the things women traditionally did for their families. Repositioning it as important (and something no one else wants to do) and acknowledging that it takes dedication on my part is helping. We keep tinkering with new structures for housework and bedtimes and homework and sharing the very small space we live in now there’s three of us here and bit by bit I feel like we’re muddling our way towards approaches and systems that work for us.

Pregnant still at 22 weeks now. Bubs kicks and does back flips and wriggles around every day, mostly just a nudge here and there, but sometimes a good hour of frenetic dancing I can’t sleep through. It’s pretty awesome to have that constant reminder they are alive. Both Rose and I are still struggling with pretty intense anxiety about them, personally I feel almost obsessed by my fears about having a stillbirth. I still haven’t heard from my midwife despite many phone calls and messages left for her. I have a letter from the hospital telling me she will be in touch sometime, and reminding me that until I have that all important first meeting I’m not officially in the program or allowed to ask for support from them. So irritatingly I’m trekking off to my GP for hand holding and advice about horrible itching (which can be a sign of important things going wrong, or can just be my usual unhappy skin being extra unhappy) and so on. I know having a midwife doesn’t magically make anything safer or better but as the weeks go by it’s getting harder not to resent not having her on board or take it all personally or feel a bit overwhelmed by the fears of something glitching with my health and being kicked out of the midwife program anyway. There’s a whole lot of things I can’t control and won’t be given a choice about, and having that restrict any further is a possibility that feels suffocating.

Health wise I have a lot more energy, thankfully, and the nausea is much rarer. Food aversions are in full force still and unpredictable. Cravings are starting up, so far I’m fascinated by coffee which is unusual for me. I’m restricting myself to 2 cups a week but those I am very much enjoying. Possibly linked to that is that the fibro pain levels are high, and my mornings and nights are nasty. I can barely walk most evenings due to severe back pain and uncooperative nerves that don’t want to bear weight on my legs. Mornings I wake up feeling like I’ve been kicked a few times by a horse. My life currently puts deadlines in front of me that require I drag myself into the world of the living and make things happen. Once the deadlines have passed I usually need some days of seriously not adulting very much at all to recover. Tomorrow will hopefully be one of those days.

Tonight, I’m loading up an online game to reward myself, and in the background I can hear Rose singing our stressed teen to sleep. I adore my peoples. ❤

New prints for my exhibition (this is awesome)

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Yesterday, I collected about half the prints for my exhibition Waiting for You. Eee! I have discovered that there are many differences in the way printers handle things, even when using the same place. If I haven’t specified something each printer has a slightly different take on things. Which has made me realise that I need to be keeping much better records (ie, any records at all) about what I’m doing so that I can reorder items easily and see what’s going on with my collection.

So the other thing I’ve done is started my art catalogue. It’s hard to find out how other artists do this, but for me I’m putting everything into an excel spreadsheet, and coding each artwork with a number, and each print work a corresponding but unique number too. Then I have a folder for each artwork with certificates of authenticity and descriptions for when its displayed other bits and bobs related to that work. Most important in the folder is the master document that corresponds to the catalogue number and name, and contains all the specifics like the size of the original and exact details of any prints I’ve ordered…

Between these I can easily see what’s going on with that work, when I made it, if I still own the original, what has sold and what hasn’t (for stock taking) and I can easily reorder something. It’s slow and painstaking work, but I’m also finding out very satisfying. Seeing my work in a new light – just how many exhibitions I’ve been part of and work sold.

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Today between errands I’m working on price lists and trying to figure out how I’m going to frame things when I’ve run out of budget. First self hosted solo exhibition means going through the creative process steps 1-6 around once a week, if not once a day. o.O Hard work but satisfying.

20 weeks pregnant and date night

Half way there! Woooooo! Rose and I are out on our first date night in several months (I’m waiting for her to come back with food, and taking the opportunity to blog), our teen is hanging out with friends, and all is briefly right with our world.

There’s been so much going on this week and a lot of it hard or sad. Rose has had a death in her family which was quite sudden and very sad. Friends and family have supported us with some other tough situations and difficult admin, which has been so appreciated.

But for tonight we’re at a Bowie evening with ice cream and taking some time out to hold hands and not problem solve anything. ❤
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Our bub is growing well – we had our important morphology scan this week and everything was looking good. Rose was thrilled but I went into a weird headspace with the words from every stillbirth or late term loss I’ve read about ringing in my ears ‘everything was fine, we don’t know why they died’. Sometimes you just don’t react the way you think you’re going to, and it’s a jangly, confusing place to be in. But bubs is healthy and big and moving around every day. We have a ritual every morning and night where Rose feels the bub moving and talks or sings to them. Whatever else has happened, it’s a good way to bookend the nights and days.

Precious growing family. ❤

You’re Doing It Wrong: Criticism Fatigue and Peer Work

Part 1. Criticism is Risky

Criticism fatigue (a term I’ve appropriated from the idea of compassion fatigue) is one of my vulnerabilities. As a peer worker I’m partly a ‘service user’ and partly a ‘service provider’. I have to deal with criticism in both roles, but the latter role brings special challenges that I’d never expected or considered before I took it on. Criticism fatigue is where I feel overloaded and want to respond to criticism in ways that are destructive. I might attack back a person I feel is attacking me, or feel so discouraged that I withdraw and stop doing what I’m trying to do or close the resources I’m offering. I might look for support among my peers in ways that re-enforce an ‘us and them’ dynamic, tightening our ranks or even having others step in to harass or rally against the person criticising. I might turn on myself with self-loathing. I might simply turn off my hearing and stop listening to ‘the haters’, taking in only feedback which is encouraging and positive. All of these ways of responding are risky and destructive. They contribute to worker burn-out, ‘class wars’ between different groups in the mental health sector (volunteers vs paid staff, management vs front line staff, consumers vs service providers etc etc), and the slow, gradual restructuring of services to reduce the incidence of complaints through a variety of ways that significantly decrease the value and increase the likelihood of harm created by the service. The risks of risk averse services have been well documented and elaborated upon by people such as Mary O’Hagan.

A number of things make me at higher risk for criticism fatigue. One is the idea that the service that has the fewest complaints is the one that is running best. This is a bit counter-intuitive, so bear with me. It seems so obvious that if you are choosing between two say, mental health support groups to fund, and you learn that Group A has about 30 formal and 60 informal complaints in a year, and Group B has 2 formal and 4 informal complaints in a year, then it seems pretty clear that Group B is by far the better run, more useful and safe service. And that might be true! But sometimes the stats are misleading.

Group B may have shaped its service to prevent engagement with those most likely to struggle with authority, structure, and diversity – some of the most challenging areas of group engagement. It refuses to allow people with diagnoses such as BPD into the group. It limits membership to those with strict ideological similarities. It places significant obstacles to join that preference long term service users who are familiar with the nature of such resources and tend to be more institutionalised – ie. highly medicated, passive, compliant. (eg. setting is socially degrading – attending meetings via collection in a van with the words ‘mentally ill’ on the side, needing permission or referral from carers or treating doctors to join the group, the group is only advertised in highly restrictive environments such as inpatient units etc)

Group B is run in a highly authoritarian or charismatic manner so members self-select rapidly and those who are not comfortable with this style of leadership leave or are asked to leave. There are elements of Stockholm syndrome or trauma bonding within the group, with an emphasis on how fortunate the group members are to be involved and how grateful they should be. Group B has a complaints process that is intimidating, difficult to find or access, or penalises the complainant. (eg one local homelessness service had a two strikes and you’re out on your ear policy, and explained to any consumers who wished to make a complaint that a staff members word would always be taken over theirs because staff were so valuable and difficult to secure, while consumers were desperate for a place – so any complaint they might make would automatically result in a black mark against them) Group B maintains its superb record through a kind of subterfuge, not by offering a better service but by being selective about the membership and making the complaints process fraught.

There’s a context of course, which is that Group B has been created in a culture of funding instability, high levels of criticism and conflict about what resources are needed, how they should be run, and where money should be spent, and the belief that staff are experts who can make people’s lives better rather than mediators who help people access resources. Media is another part of the context – negative media attention can be unexpected, unfair, and highly destructive. Criticism can cost people their reputation, their jobs, their funding, even entire organisations can die on the back of it – sometimes totally unfairly.

Other things increase my risk for criticism fatigue too. Most service providers are trained staff who have been educated with ideas that make them vulnerable to creating resources like Group B – firstly that high levels of regulation and restriction are ‘natural’ and best practice for ‘vulnerable populations’, second that recovery or assistance is about putting the needy people in contact with the ‘experts’ who’s job it is to improve their lot in life in some way, third that complaints mean you are doing something wrong (or that the person making the complaint is wrong) and that the least complaints possible is the best outcome. So staff are cast in a parental role of responsibility that is inclined to over-control, infantilise, institutionalise, take too much responsibility for outcomes, and have a frightened and defensive response to criticism. The more I take responsibility for things I can’t possibly control, like someone else’s recovery or experiences, the more I try to be perfect and infallible, and the more I try to control things I simply can’t control the higher risk I am for criticism fatigue.

Peer workers come from a different background, may or may not be trained, and use their personal life and history in their work in ways that are often very different to other staff. There’s an extra history around criticism, at least for me, that impacts my vulnerability. As a ‘consumer’ or ‘carer’ I did and do plenty of criticising of the mental health system, and so I should. As the most powerless and impacted people within that system I deserve to have a voice and speak out about abuses of power, poor practices that are doing people harm, and advocate for better. I’ve very rarely experienced having criticism received well. Despite considerable effort to criticise in constructive, non-threatening ways, using the language of the people I’m trying to speak to, making sure there is significant acknowledgement of successes and efforts to do well, almost all of my experiences of making a complaint have been futile or even destructive to me in some way.  This is a history that compounds, making it less likely that I will criticise in the future, and less likely that when I do, I will do so in a respectful, unbiased, appropriate way – because I carry all the previous experiences with me and they radically impact my emotions, clarity, confidence, and expectations of success.

As a consumer, I’m also very accustomed to being criticised, fairly constantly, sometimes in quite subtle ways and sometimes very overt. As a consumer I face comments from staff such as being ‘too low functioning’ for a service, ‘too combative’ when I stand up for myself, ‘not committed enough to recovery’ when I’m struggling, ‘not compliant’ when I disagree, and so on. Much of this kind of criticism dis-empowers and belittles me in some way: makes me doubt myself, costs me credibility, and makes it harder for me to see myself and be seen by others as an equal adult who has a right to an opinion about my care.

As a carer my experiences of criticism were more randomly intense and contradictory, I found that I would often be criticised for being over-involved and under-involved with the ‘sick person’, by the same staff member, within the same conversation! Frustrated staff vented in ways that made no sense, and as a carer I was either totally ignored, or a convenient person to dump those frustrations on.

When I transitioned into peer work (or consumer consulting, or volunteering, and so on) I recall vividly each of the first times I was myself criticised for my ‘services’. Going from passionate consumer to a service provision role, I was naive. On some vague level I hadn’t thought through very much, I thought that my fire for good services, my willingness to listen, and my strong sense of identification as one of the ‘sick people’ not one of the ‘experts’ would all mean that I wouldn’t be criticised because I wouldn’t do anything that anyone would be upset about. Clearly, I hadn’t worked a lot in retail or with the public at that stage! I would use my power and my role to empower and be an advocate for fellow consumers who would be appreciative and thrive. Looking back, I sounded exactly like the most optimistic of any new staff member in the mental health/disability/community services sector, and I was in for the same disillusionment process.

Criticism when it came from other consumers was a huge shock. At times it was delivered in the most distressing ways. I was told I embodied words that cut deep, totally contrary to all my values and hopes, things that stayed with me and resonated inside me, playing over and over in my mind at night. Insensitive, dangerous, thoughtless, patronising.

Sometimes more aggressive. Bitch. Stupid. Fat. Psychopathic. Sadist. C*nt.

Often coming out of left field – from totally unexpected situations and people. Taking me completely by surprise. Having totally misread a person or situation, or having someone keep their feeling very hidden until a big blow-up.

Sometimes without any basis whatsoever – coming from delusions or psychosis that I’ve somehow been linked into without any involvement on my part.

Sometimes specific to my experiences, borne out of and riding on cultural stigma and fear about my identity – eg. as a same-sex-attracted woman, or someone who can experience memory loss when stressed.

Mostly coming with assumptions that I had intended to hurt or even harm, that I was deliberately doing so, totally aware of it and even revelling in it. That I simply didn’t care and deserved to be punished for my indifference, or harmed in return to ‘wake me up’ to what I was doing.

Sometimes then, criticism coming over and over again from the same person, so that each interaction with them was harder to force myself into because I now knew that at some point it was coming. Feeling trapped in a relationship with someone who clearly hates things about me and what I do, or is transferring a stack of unfinished business onto me. As the service provider not feeling free to leave them the way they were to leave me. Feeling myself walking on eggshells and doomed to fail.

Sometimes physically scared. Having to call security, standing up to someone enraged and a lot bigger than I am. Encountering rage, contempt, revulsion, dehumanising, and total indifference to my own needs and vulnerabilities.

Sometimes not being seen as sincere even when I desperately was. Having a heartfelt apology rejected. Finding that there seemed to be nothing I could do to help the other person see that I was human too, had not intended to hurt them, and was trying to reconcile.

Sometimes not being given the chance to reconcile. Criticism followed by cut-off where I could not address misunderstandings or respond to accusations.

Sometimes being esteemed too greatly by hurting people for a little while could see only my strengths and the good, comfortable aspects of the resources I was involved in. When my feet of clay became visible, experiencing the dramatic flip to being totally devalued and despised. Learning to be as cautious of compliments as I was of criticism because they sometimes had a close relationship.

Sometimes losing my consumer status with other consumers. Feeling rejected by ‘my people’ who no longer saw me as ‘one of them’.

Finding that taking on any authority role at all meant that I picked up the tab for how everyone in authority had previously treated this person. Being tarred with the brush of those who came before me. Finding myself tempted by all the responses I had so hated in others –

  • denial
  • minimising & downplaying
  • distancing myself from ‘those others’ who had treated people badly
  • refusing to engage or take responsibility for the privileges of authority

Criticism fatigue puts me at risk of behaving in highly abusive or destructive ways.

As a peer worker, I was stunned by how something that would have felt monumental to me as a consumer felt so incidental to me as a worker. It was incredibly challenging to pay attention to this. I felt like I was walking back and forth between two windows, looking at totally different perspectives of the same view – through the consumer window it was a mountain, and through the worker window it was a molehill. I began to understand the distortions that come with having any kind of power – how difficult it is to give credibility to the perspective of the person who doesn’t have it.

Where having power over others was almost invisible to me while being highly visible to them, I was exquisitely attuned to those in power over me, and how little I had in the context of the hierarchy above me. Hyper-awareness of my own vulnerability and sense of powerlessness went hand in hand with a new blindness to the vulnerability of those in my ‘care’.

As I flinched from these experiences and started to struggle with criticism fatigue, an opposite process also kicked into gear – compassionate consumers who needed to make a criticism of some kind became afraid of hurting me and self censored. Dehumanised and lashed on the one hand, and caught in silenced and distorted relationships on the other, it was easy to see how quickly my world could polarise into my detractors and my supporters, those who savaged me, and those who never questioned me. Caught within that framework I would be set up for increasing cognitive distortions and corruption of my goals and values.

Criticism from above was also different as a peer worker, and often centred around being too like consumers, and needing to show that I was ‘one of them’ a real staff member. (even if an unpaid volunteer with almost none of the benefits of being a staff member) Criticism often dovetailed. For example, a complaint from a consumer in a resource I was running would often need to be dealt with at the same time as triggering a review process from those in authority over me who needed an explanation. This could be very stressful for a number of reasons, my own issues with authority figures and massive anxiety about these kinds of conversations, huge ideological gulfs between my approaches to criticism and those of the team leader/supervisor/manager wanting the problem resolved quickly, and often an adversarial approach to challenging situations – time pressed and overloaded management unable or unwilling to explore the complexities of situations and finding myself with two options only – either I am right, or the complainant is right. In those situations if I want my job or I want my resources to keep running, I had better make sure that at the end of that 20 minute review my boss thinks I am right.

So I’ve found myself tap-dancing, trying to show that I haven’t done something horribly wrong where I should be reprimanded, that my resource is valuable to many and shouldn’t be closed, and at the same time trying to advocate for a consumer who is making complaints about me – because unbeknown to them they are being branded a ‘serial complainer’ and the organisation is considering banning them from all resources on the basis that they are wasting a lot of time and tying up resources that could be better used on other, easier to deal with people. Where I’m trying to show that a compassionate and engaged response to a person in terrible pain with a horrible history of having power over them abused IS one of the functions of a good resource and organisation, not a waste of time. Trying to operate with integrity under these conditions has been extremely straining.

As a service provider, I also get criticism from those outside of my resources. I once had a psychiatrist at a social gathering tell me they would be forbidding any of their clients from accessing my resources because they believed that they, and I, were dangerous. I’ve had this blog listed as an example of a dangerous and ignorant person perpetuating the myth that DID exists. Yesterday I received an email telling me I am eyesore on the face of the multiplicity community, that my approach is harmful and gross and hurting people with DID, and that it’s clear I don’t care. It would be easy for me to immediately conclude that I have spectacularly failed my aim of safely resourcing people in need and should shut down what I’m doing, but actually this is quite normal in mental health. (that doesn’t mean I get to ignore it either – but to take it on uncritically is also naive) One psychiatrist rails against the inpatient unit of another psychiatrist. Whole committees argue intensely about the definitions of disorders and what counts as real. Working for a little while in the eating disorders sector was like jumping into a shark tank of furious hostility about what defines an eating disorder and which approach was best. People’s lives, futures, families, incomes, professional reputations, jobs, and funding are at stake. It’s an intense arena for criticism, which is often lobbed like bombs across enemy lines. It’s easy to feel under attack from all quarters.

And people think peer workers burn out because we’re juggling a job and a mental health problem!

Criticism can of course be warranted and useful and even experienced as helpful! I’m using the term broadly here, encompassing complaints, corrections, and even abuse. Their unifying feature is how uncomfortable they can be and the way we are likely to perceive all of them, on some level, as a threat. We work hard in our lives to prevent, avoid, or protect ourselves from threats. Experiencing criticism as a threat is, to my mind, the highest risk for me to move into criticism fatigue. And the difficulty is, this is not always an inaccurate perception – some forms of criticism, and criticism in some contexts is a threat – abusive, costly, and unfair. All these experiences also accumulate and inform our response to criticism which tends over time to become more avoidant, defensive, or aggressive. Even gentle, respectful, and totally warranted criticism can easily be highly threatening, because it challenges my perception of myself (and others perceptions of me) as a good person and my resources as valuable and helpful.

So, this is the context and these are the risks. When I wake up to hostile Facebook messages or group turmoil and I simply want to lash out or run away, how else can I approach criticism? What reduces my risk of criticism fatigue? For me, the first step has been to explore what criticism is and go beyond my sense of being under threat. Which is a topic for my next post: Criticism fatigue part 2: Criticism is essential

 

Anniversaries of loss

Today is the one year anniversary of our first scan with Tamlorn, the one where we found out they were not okay and we would most likely lose them, which we did. I wrote here on this blog on March 13th in 2015; Some days are just sad. This week, Rose and I celebrated 3 & 1/2 years together. Rose has had a couple of anniversaries of miscarriages recently. Later this week we will have our morphology scan to check the health of our little froggie. Today I learned that another of my lovely friends on the other side of the world has recently suffered a miscarriage too. So much. Everything overlaps like currents in a sea.

I am creating my first self hosted solo exhibition and some days the doubts overwhelm me. I’ve learned to stop working on any artwork for a day or two at the point where I’ve come to hate it. Putting together a whole exhibition on a theme is new territory – exciting but also new. Mortifyingly exposing and personal. An exhibition about grief and loss feels like the strangest birthday party I could possibly arrange. And yet… it also feels right.  There’s so much grief in the background of my life at the moment, under the surface, forming the soil from which my new family is growing. I’m working on new artworks to balance the exhibition and they are a fitting way to mark these painful anniversaries that come towards me like trains, and slip past me like leaves in a river. There’s not enough time in the world to weep all the tears, instead they flow quietly from my brush in a corner of my lounge room late at night.

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A sample of an ink painting I’m working on for the exhibition

And the strings of heartbreaking stories like strands of pearls that unfurl in the threads following declarations of loss call to me. Some days I struggle with feeling my exhibition is silly and pointless. Then I’m reminded so many people have suffered this way, without acknowledgement, without funerals, silent and nameless and secret and broken.

So, it’s a little thing I can do in a big world full of hurt. Make a place where we can remember, where the grief is shared and public and accepted. It’s not much in the big scheme of things, but it’s something I can do, and maybe those who need it will find it.