Chilling With Zoe

Once again, it’s horribly hot here. For those of you not in South Australia, we’ve been in a 30’s and 40’s heatwave lately. Friday was a doozy, most of the day it was between 40 and 44 degrees. Part of my physical health troubles are that I struggle to regulate my own body temperature, so I really do not cope well with heat. I started the day by throwing up dinner and spent most of it feeling very sorry for myself. I don’t have the best air conditioning in my unit, but I’ve been experimenting with a few different set ups and I’ve got a good spot going in front of my computer, and the bedroom isn’t too bad, at least during the 30’s.

So, in this weather I am generally found indoors, hanging out in front of my air conditioner with Zoe. In the evenings I hang out with friends or go to the beach and go swimming. It’s not such a hard life really. 🙂

Exciting New Blogging Device!

This is my very exciting, brand new portable keyboard! It connects with my smart phone using bluetooth, which means that when I use my BlogIt! app on Android, I’m able to blog and type on a decent size keyboard from my bed, or when travelling! I am very excited about it. I’ve been investigating different types of keyboards online and went into Officeworks earlier today to try a few out and see how they felt to type on. There’s a tricky trade off with a portable keyboard, you want it to be smaller than standard size, because that’s just a pain to lug around, but you also want to still be able to comfortably touch type on it, else what’s the point? You might as well just use your phone otherwise…

I tried a few out, there wasn’t much choice once the field was limited to wireless, bluetooth, and android compatible. This one was hands down the best option, It’s sturdy with an aluminium frame and firm case to protect the keys when travelling. The real big seller for me though is that all of the keys were in a standard keyboard location! I was really surprised by some of the compact keyboards which had bizarre ways of cramping the keys into a small space by doing things like rearranging the punctuation so that the ? is now found by pressing the Fn key and the H… this makes touch typing rather difficult!

This keyboard is partly my way of holding myself off on getting a new fancy, exciting, and entirely unnecessary tablet for the moment. I’m sure the lure of the larger screen will get to me in the end, but for now I’m saving my pennies for other exciting purchases! I am starting to really enjoy being on holidays now that I’ve got past the first couple of days of feeling restless and antsy and I’m looking forward to some travelling and sightseeing and investigating the world around me, once the heatwave passes.

In the meantime I have exciting new technology and am enjoying lugging card and board games with me everywhere to play with friends. It’s great to have a whole bunch of people in my life who like games too! I’m enjoying this vacation enormously. 🙂

What bisexuality is, and 9 things it isn’t

What does it mean to be bisexual? I’ve been surprised by how many people have asked me what the word means. Wiki defines it as romantic or sexual attraction or behaviour towards males and females, which is a good start. It’s probably easiest to define if I disentangle it from some of the misconceptions:

1. Bisexual doesn’t mean wanting to have more than one partner at the same time. This preference is called polyamory, or poly. It’s been a bit startling to have people assume that I’m in an open relationship on the basis of my bisexual identity! Some poly people are also bisexual, others are straight, others are gay.

2. Bisexual doesn’t mean lots of sexual partners. Without judging anyone who enjoys casual sex, these are separate concepts. Some bi people do, some don’t. 🙂

3. Bisexual doesn’t mean that I can’t make up my mind about what gender I like. It doesn’t mean I’m really gay but not properly out of the closet. It doesn’t mean I’m really straight but want to experiment or get into the cool nightclubs. 🙂 Being with a partner does’t mean that I’ve gone straight or gone gay.

4. Bisexual doesn’t mean that I’m attracted to all men and all women, any more than being straight means being attracted to everyone of the other gender. One of the ways I explain what bisexuality means for me, particularly when kids ask, is that I am capable of falling in love with a very few men in this world, and a very few women.

5. Bisexual doesn’t mean being equally attracted to men and women. I’ve read bizarre reviews of openly bisexual celebrities’ lives where the number of months they’ve been in relationships with men and months with women were compared and used to assess that they were ‘really’ gay or straight unless they exactly matched. Let’s put sexual preferences on a scale for a moment – on one end we have entirely straight, on the other, entirely gay. Many people strongly identify with one or the other end of this spectrum. Some people are right in the middle. Some people are more up side than the other, perhaps they mostly date men but have fallen for one or two women. Because there is a political aspect to how we identify ourselves, some people are attracted to men and women but choose to identify with their strongest, primary focus – women who identify as lesbian but have the occasional fling with a guy for example. If being mostly into one gender means you’re more comfortable identifying yourself as straight or gay instead of bi that’s absolutely your right, and it’s an accurate description of your tastes most of the time, even if occasionally you surprise your friends.

However, you can be anywhere in this spectrum between totally straight and totally gay, and identify as bisexual. It’s not something you have to prove by having sex or lots of relationships. It’s not just a dead-centre third category between straight and gay. It’s all the ground between straight and gay, even if that means ‘mostly into guys and sometimes into girls’ or vice versa. You can live and express that any way that’s right for you.

6. Bisexual doesn’t mean sexual predator, paedophile, or sociopath. Enough said!

7. Bisexual doesn’t mean unfaithful. It doesn’t mean ‘pining’ for the gender your partner isn’t. It doesn’t mean being dissatisfied in any relationship. It doesn’t mean betraying and hurting people. Certainly there are bisexual people who do these things, but that is not a result of their orientation. There’s a deep distrust of bisexual women within the lesbian community where being hurt by partners – especially those who have been left for a male partner, has been ascribed to the orientation and led to a lot of distrust and discrimination.

Bisexuality can be difficult. There are some unique pressures, a lot of misunderstanding and hostility from the straight and gay communities. Social and family pressures can lead to poor decisions and hurtful behaviour where bisexual people walk out of same-sex relationships to find partners who’s gender won’t make them stand out for such strife.

8. Bisexual doesn’t mean binary gender. Gender is different from sexuality. Men can be bi. Women can be bi. Manly men can be bi. Femme men can be bi. Genderfluid people can be bi. Trans women can be bi. Androgynous people can be bi.

Bi people can also be attracted to other people who are non-binary. Non binary simply means anyone who doesn’t identify within the boundaries of ‘manly men’ and ‘femme women’. Some bi people are attracted to androgynous men and butch women, for example, or have a particular passion for high femme trans women as well as shy sweet gay guys.

Personally as a multiple, I find people most sexy when they are comfortable expressing a range of gender identities – and enjoy me doing the same. I vastly prefer people who can be masculine and feminine and androgynous and move between them as they want. People who stay with one gender expression all the time kind of bewilder me.

9. Bisexual doesn’t mean being attracted to “only two” genders. There’s a bit of an argument in the queer community that bisexual people are attracted to only two gender identities and pansexual people are attracted to all of them. I’ve been hanging out in the bi community for a few years now and I’ve learned that very, very few bi people are okay with that definition. Which is a surprise as that’s what I thought it meant too, when I came out!

For a great article about this, check out Bisexual vs Pansexual.

A better way to frame how most people use bi-sexual is being attracted to “more than one” gender. There’s so many gender expressions out there! Some of us are super specific about attraction, we have a really narrow band. Think – slender, white, redhead, femme women and men. Or you probably know someone who’s ex’s all look pretty alike. Others of us are attracted to a wider range of qualities – women, however they present, or all genderqueer people. Some of us find specific groups most attractive – eg. femme bi men, ‘bears‘, butch bi women, and androgynous men. Some people describe themselves as ‘gender-blind’, meaning their attraction isn’t geared around bodies or gender, but other qualities such as personality instead. Gender identity has different levels of importance to people when it comes to sparking attraction.

When you explore a little more in the marginalised communities of intersex people (those who have both male and female characteristics) transsexual people (those who have a gender identity different from their physical sex) and transvestites (people who dress in clothes of the other gender), you start to see gender differently. There’s a term for this – genderqueer. It’s a big umbrella term that basically means – anything outside of the gender binary of men born in male bodies  who dress like men and like ‘male’ things and likewise women. A common form of genderqueer you’ve probably come across is people who have an androgynous look.

If you’d like to learn a little more about people who identify as genderqueer, I’d recommend the blog The Felt Fedora. For some more information about the differences between gender identity and gender expression, check out this great infographic, The Gingerbread Person.

Genderbread-Person-3.3

I hope that’s been helpful and cleared up a few myths. People who are bisexual can also be many other things obviously, but it’s helpful to pull apart what the word itself means and what it doesn’t.

It’s been a really interesting process for me since coming out and dealing with people’s reactions, and also learning more about the history of the bi movement and the challenges of being a part of a community that is often invisible. As I am with Rose, I am usually mis-identified as lesbian, which sometimes I don’t mind and other days really grates. Mono-sexualities (straight or gay) are more visible and both can demand that people fit in one of their boxes, or treat people as tourists – gay for the duration of this relationship, and now straight for that one. It’s rather bizarre how often the media labels as ‘gay’ people who have outed themselves as bi, and how often coming out stories are told as ‘then they went gay/lesbian’ when the story really is ‘then they realised they were bi’. So I’m finding myself with a sense of sympathy for a people group who are often struggling in both queer and straight communities to be seen as real and legitimate.

Personally I identify as bi/pan, and genderqueer. I care a lot less about how someone fits into boxes than I care about how they connect with the aspects of themselves that don’t fit. As a multiple, our system spans straight, bi, gay, lesbian, and asexual, as well as male, female, non-gendered, and genderqueer. We chose bi and genderqueer as our group identity because they contain the broadest range, but that’s not a perfect fit and sometimes there’s a need to express and be seen as individuals. Sometimes one is out who is a straight woman and doesn’t identify at all under the umbrella of queer. That’s okay, we can navigate that. 🙂

The comments refer to an earlier edition of this post where I mislabelled bi as being attracted to 2 genders. 

People painting business!

I have been working on promotional material for my face/body painting work. 🙂 Here are the new lovely set of matching products I’ve ordered from vista print: 
This is a small vinyl banner, 90 x 50cm, that will tie onto my fold down table to announce what I’m doing at fairs and suchlike:

And here is the front and reverse of the postcards I can give out to people. I have 100 of these coming my way, assuming the postal gremlins don’t eat them. Very excited about it! I’ve been asked for cards so often and had nothing to hand out.

I’ve listed my other website as that will be my online portfolio and separate from (although linked to) this blog. This site is great but has become very dense with information and I want something very clean and simple for a new person to look through when they just want a couple of bits of information, not my life’s story. I’ve not had much time to work on it yet but the people painting page is up and running with a slideshow of photos and other information. Working on the site is one of my next projects. 🙂 I’m also looking forward to booking in some classes at my local favourite shop www.facepaintforeverybody.com to improve my technique. Once this horrific weather improves anyway. 🙂

Dissociation and tricks of the brain

Something happens when I rearrange the furniture. It’s like part of my brain that was sleeping, wakes up and realises that I’m living in my own home where I can do that now. For a few weeks I look at everything with fresh eyes and find myself stirring out of the numb dissociation and actually paying attention to the miracle that is stable housing. It doesn’t take a lot. I’ve recently moved my bed about 30cm away from the window, and stuck a cardboard box down the gap to act as a second side table. Suddenly my room is fresh and exciting. Today I secreted a few indoors friendly plants in small pots out of my garden and put them on the window sill. My inner house-people, the younger ones who love baking and having a beautiful home, prick up their ears. My goth starts dreaming of painting poems on the doorframes, of wall chandeliers full of candles. I start dreaming of peaceful sleep.

In the early hours of this morning, while it was cool and I could move about without feeling ill, I begun the task of rearranging my studio. This time the entire room is being moved around a single, critical need: that I have only one form of refrigerated air conditioning in my unit, and it is the freestanding kind that needs to be vented out a window. Previously one of my art desks blocked the window entirely. I have also had a lot of trouble with the curtains. The hooks that hold up the curtains constantly snag on the netting behind them when I try to open or close them. If I pull too vigorously, the curtain rod falls down. The netting is too long for the window so it gets caught under anything I put under the desk, and the dog and cat get tangled in it when they try to look out the window, also pulling the curtain down. With the wide desk in front of the window I simply can’t easily open or close them, so they either live open and I vacate the studio once it’s dark and keep the door shut, or they live closed and I vacate the studio during the day. I once lived in a horrible bachelor pad where the house stank of mould from the bathroom, off food in the fridge or from various half finished meals left in bowls around the house, the blinds were rarely opened and the floor stuck to your feet. I was desperately unhappy and constantly trying to clean it up but when your flatmates are trashing it daily it’s not a happy place to be. I now particularly hate having the curtains drawn during the day. I tolerate it during extremely hot weather, but the rest of the time, if I’m out of bed, the curtains are opened. I crave and love the light when it’s there, and open windows letting in fresh air and the sound of birds and traffic and the far off trains.

So I’ve changed things around, freeing up the entire window, removed the netting, and changed one of the curtains. I was going to change both because the original blue were also only just wide enough to cover the window which also made life tricky, but I love the effect of one of each. In theory, once I’ve cleared away the rest of the mess, I should be able to wheel my air conditioner in there, shut the door, and make art in the cool.

It’s not perfect, both tables/desks are awkward sizes, one very long and one very wide, but I think for now it will work. Hopefully it will help me get back in there and get my fingers dirty, seeing the space with fresh eyes and reclaiming my constantly dimming sense of ownership over it can only be a good thing. Either way, it still feels good to have done something.

Recovery from Trauma – Touch

This has been a huge area for me, one I’ve had to re-negotiate throughout my life so far to try and find something that works for me. A lot of us who come through interpersonal trauma – where other people hurt us, are left with major struggles about touch. For me, I found that I’ve suffered when I’m touched, and I’ve suffered from being touch-starved. If you imagine for a moment that in your mind and body, there are three basic types of touch that you register and react to. One is touch that makes you feel good – a little baby holding on to your finger or a kiss from your lover or a hug from a friend. The next is touch that makes you feel bad, such as being hurt or invaded. The last is neutral touch, that doesn’t make you feel good or bad, inconsequential things like sitting against someone on the bus or brushing hands with a checkout operator handing you your bags.

I found this last category of touch collapsed completely for me and has been by far the hardest to get back. When I’m really struggling good touch goes too, but a lot of days when I can still enjoy good touch I can’t cope with neutral touch. I’m very sensitive to touch and it’s like my brain can’t work out how to handle neutral touch and does a very basic ‘what kind of touch is this?’ assessment that goes

    1. ‘does this feel good?’ 
    2. ‘no’ 
    3. right then – ‘BAD TOUCH’

I’ve had to talk myself through re building a sense of neutral touch. It rests on feeling reasonably safe and calm, and for me at least, part of a community. Strangers don’t bother me if I am feeling content and like we’re all just people. Being able to cope with neutral touch is an important key for me to cope with medical and dental appointments, travelling on public transport and in lifts, accessing crowded places, using supermarkets – basic functioning in life.

Touch is actually a crucially important aspect of being human. Newborns need touch after being born. Untouched, they will simply die. Touch changes us on a physiological level, massages support immune function and health for example. Touch is crucial in attachment, in bonding, and in social connection. Touch communicates affection, loathing, power, or love.

As a child and teenager I was ostracised and bullied at school. Touch became a key issue. I struggled to define moral responses to abuse and contempt. I developed a basic set of parameters – that until another person touched me, I would manage the situation verbally. If they initiated contact physically, then I would defend myself physically. It became generally known in the school that I was not to be touched. This decision was to some extent effective in that it relieved me of the chronic anxiety and distress around how I was to respond to relentless bullying. However the unintended downside of this was that I struggled alone, untouched and without comfort. Following a major trauma I was diagnosed with PTSD and in that space – traumatised, alienated, chronically suicidal, and devoured by nightmares, my world without touch became surreal and terrifying. I craved touch, longed to be hugged, my self-made wall designed for protection left me free-falling, alone and outcast. I no longer felt part of the world or of humanity, without touch to connect me. With no anchors, I floated into surreal dissociative states, feeling unreal and chronically numb, punctuated by intense fury, distress, and self loathing.

A few years ago, I turned up to the Mental Illness Fellowship SA activity centre. My life had burned down and I was extremely isolated at the time. I sat on a couch, nervous in a room full of strangers. Someone sat down next to me and I concentrated on not flinching. As I sat there stiffly and awkward and silent, the whole side of my body next to the stranger began to warm. This yearning for contact came unbidden from deep inside me and I realised how solitary my world had become. The loneliness was profound.

Touch is powerful, and for some of us, touch has been withheld and we have starved without it, or touch has been used to wound us and now we struggle to define our relationship with it. Touch often defines power in our relationships – I’ve felt trapped at times with people who refuse me the right to withdraw from touch I do not want. I’ve become more assertive these days as I’ve discovered that if I protect my right to control touch, then my relationship with touch becomes less ambivalent and stressed. My good friends know to check before hugs, and not to take it personally if I don’t want to be hugged that day. Likewise, I do this for them. Because of this, touch has more and more of a place in my life now, which delights me.

People who don’t get this and fight my right to choose who and when and how I am touched are usually excluded from my networks. Some of them are simply bullies. Some are too naturally dominating to consider someone else’s needs. Some are under the illusion that if they impose touch upon me, I will ‘realise’ that it is safe and my boundaries are silly and unnecessary. Some take a preference not to be touched as a personal insult to them. The occasional few are sadists who enjoy touching someone who clearly is uncomfortable with it but lacks the social power to tell them to stop. I have a strong commitment in my life now; that loneliness is better than torture. People who don’t respect me, don’t get close to me.

Developing that power and honouring that need to protect myself has given me a lot more freedom. If I trust myself to protect myself (and my system trusts me to protect them – no accepting hugs if they’re screaming inside me) then suddenly neutral touch isn’t such a big deal. I’m not small and powerless any more, I’m a member of the community. I have a voice and I can take care of myself, which means I can engage. I don’t have to hide, or run, or fight. I can be part of the world when I want to. I talk about the mental flip from seeing other people as inherently dangerous to just regular people in my article Using Public Transport. Here’s an example:

I was on the bus the other day and a man was standing in the aisle next to me when I noticed that he had a big mop of long fluffy white cat fur stuck to his nice dark pants! I suspect he has a lovely white persian cat at home that had been sleeping next to him on the couch. It suddenly flipped how I saw him – from being a threatening man standing too close to me, to just a regular guy with  a cat and not someone to be afraid of.

I crave this freedom. When the PTSD is too bad for me to handle crowds, strangers, confined spaces, being a passenger in someone else’s car, being out after dark, having other people in my home, being touched, new environments, loud environments, and so on, my world is very small, very painful, very lonely. I hate this place, it’s like being in a coffin.

There’s a thrill to being able to reclaim my place in the community. The more I protect myself and make myself feel safe, the more ‘risks’ I can take, like going to a concert I love. As I learn to reclaim touch it helps me manage experiences that typically are nightmares for me – like dental or medical appointments. It also frees me to have the ability to offer touch to someone else in need, to give a hug to a friend who is struggling or hold the hand of a psychiatric patient who is confused and distressed.

Touch is powerful. It can be my biggest trigger for anxiety and dissociation, such as when I get hugs following my talks at big conferences (see The Voices Vic Conference). It is also one of my strongest grounding techniques during anxiety attacks or major dissociative episodes. It’s a powerful way of communicating between people – acceptance, or rejection, affection or loathing, mutuality or domination. If touch is an area that has been damaged for you too, you can change how touch works in your life. You have the right to use it as a tool, to protect yourself from it, to seek out good touch, to be aware of the messages you send and accept through touch. There are more, and better, options than being touch starved or having to put up with touch that you find distressing and disempowering.

Relationships and trauma

One member of a relationship with a trauma background is a challenge. For the non-trauma partner, there is the hurdle of trying to understand and connect with experiences and reactions that are difficult to relate to. Applying the kind of personal wisdom that helps you get through less extreme situations, such as ‘just get on with it’ can cause a lot of stress for people who are struggling with severe after affects of major trauma. There’s two languages being spoken and a lot of work has to be done to get the translation working well and calm the anxieties of both parties. The person with the trauma background often feels ashamed, worried they are too much hard work, scared to trust, scared of being left, worried they’re making a big fuss about nothing, scared of turning their partner off, or of being pressured, that being vulnerable will engender disgust, or that being cared for will make them weak… The non-trauma partner often has anxieties such as wondering if their partner will ever come back from this world of trauma reactions, scared of saying or doing the wrong thing and triggering them, scared of not being strong enough to handle what they’re going through, scared of getting stuck having to care for them, anxious about their moodiness, unpredictability, mania, depression, or temper, anxious about leaning on them too much for day to day issues, and so on. Both partners can easily feel very alone, misunderstood, unsupported, under pressure, and afraid. It takes love, commitment, and skill to navigate complex trauma. I talk about this more in Supporting someone after Trauma.

Two of the biggest issues I observe about this kind of relationship is the difficulty communicating – eg. If I say to a friend who is a fellow trauma survivor or has a mental illness that I’ve had a rough week – they usually get what that means. We’re speaking the same language. Outside of that world, I find I have to spell things out much more strongly. To other friends I may have to directly explain that I’ve been in a self-harm crisis all week and haven’t left the house, or indeed, my bed. The other major issue I see a lot is the risk of the carer dynamic. Having a relationship polarise into the well one and the sick one, the strong/weak, the giver/receiver, the provider/needy can be very destructive for both people. That’s not to say that caring for a partner in distress is not a deeply beautiful and loving act. But rather that those dynamics come with risks that need to be navigated. I talk about this more in Caring for someone who’s suicidal.

Having said that, these relationships can be powerfully strong. The person with the trauma background learns to communicate about their needs and experiences, and has the experience of developing trust, being comforted, and having someone walk with them through their pain. The person without the trauma background learns the nuances of trauma language, how to be with someone in a very painful and vulnerable place, learns to connect more deeply in that very privileged space. These bonds can be strong, having worked hard to build language and connection and safety and fairness, powerful healing and hope can be created.

There’s another kind of relationship with different challenges, and that is where both members have a trauma background (or to a certain extent, a mental illness). Survivor/survivor pairings are not uncommon, and while some issues remain the same – such as feeling alone, others are quite different. I’ve been with my girlfriend for over three months now and it’s been an intensive time of sharing, learning, and finding ways through obstacles. We both have trauma histories. At times, those histories are in the far distant past. At other times, they are painfully present through flashbacks, nightmares, body memories, sensitivity to triggers, and so on. There are advantages in that there is a more common shared language. There’s less work to try and explain what these things are or what they feel like. There’s also more role swapping between who cares and who receives care depending on whose need is greatest at the time. But with this compatibility comes other risks – both are wounded people with needs and limitations. Sometimes the particular vulnerabilities create a painful feedback loop where nightmares in one trigger nightmares in the other, where dissociation in one feeds dissociation in the other and so on. Sometimes both parties are more comfortable giving than receiving care, or vice versa, and struggle to develop skills across both roles. Sometimes competitive comparisons of trauma lead to one person being invalidated and silenced because their experiences are not seen as significant. Sometimes the trauma bond is so intense two hurt people merge into one enmeshed person and neither keep growing back into whole separate people. Sometimes the needs brought into the relationship exceed the capabilities of the relationship. There’s risks.

A big part of the key of what seems to be working for us is being aware that there are a lot of ways our relationship could founder, and talking about them. We know that love is essential but also insufficient. There needs to be enough skills, mental health, and support also. We know that we cannot be ‘enough’ for each other, we need outside supports – friends, professional support. The brutal reality is that with trauma comes limitations. There are times we cannot be there for each other. We are going to let each other down. But there are also skills. People survive different kinds of trauma by developing different skills. Those of us who are more fortunate have a good match between our innate talents and the kinds of trauma we were subjected to. In my case, I’m sensitive in relationships. I read people well. I’m good at helping stressed people to feel safer. (this isn’t some kind of superpower and certainly doesn’t work with everyone) I’m a good communicator. The very history that leaves me with the limitations and vulnerabilities that make it more likely my close relationships will fail, also leaves with me the kinds of skills and capabilities that strengthen and support relationships. Survivor/survivor relationships can also work very well, with deep connections and strength and humility and respect.

We can’t know that our relationship will work out, we can only gently and lovingly build good foundations and try to create safe exits if things become dangerous or destructive. We talk of the future, about hopes and dreams together. We also talk about how to break up the least traumatically if we need to, how to ask for time apart, how to help during a bad night, what our biggest triggers are, who else we have permission to talk about each others past with, how to get through if we’re both in a bad space. It’s not a guarantee, but here and now it’s creating something beautiful and meaningful. There’s safety, awareness, freedom, and love. Trauma takes a lot away from all of us, but there’s still hope for our dreams and things we can do to make that hope stronger.

Poem – Mental Illness

from a 2010 journal

Walking into the adult world
layers of illusions peeling away
and the emptiness beneath us all coming into view
the veneer of our security so thin
we are a lost race on a world
falling into space and our dreams
are a taste of death, first thing in the morning
and the last hour of night
in my minds eye 
everyone I love is gone
it falls away

No island so remote
as to be beyond the touch of tragedy
we destroy it all and it destroys us
we live on borrowed time and the pain
catches up in the end
we pay for all our sweet days
all the debts are collected

There is no peace.
There are moments of joy.
Touch on my skin
love in their eyes
dreams in my heart
but the dark always comes
and the light is so frail
all our hopes unwoven
our allotted happiness
spent like sand through glass
and what does it all mean?
I hold her hand
and I can feel her slipping
night has its teeth in her skin.

We live, we love, and we die.
Each moment is pulled like a cloth
over the emptiness beneath us
over the screaming terror and the helplessness
the hours that torture and the dreams that sustain
we fly a little, and then we fall.

Credibility in different worlds

Working across different life areas the way I do is really interesting and somewhat head-bending. Peer work is already something I consider to have a ‘foot in both worlds’ of mental health ‘consumer’ and ‘staff’. The first time I sat down at a lunch table and heard staff members bitterly complaining about consumers with frustration because they wouldn’t attend a program they’d designed, I was shocked. The first time I sat with consumers who attacked not the practices but the character of all doctors, psychiatrists, staff, I felt my innards knot. Both consumers and staff often distrust me as having a primary loyalty to the other side. Sometimes having a foot in both worlds is painful and lonely, but I’m damn well determined to do it, because I see that as the heart of peer work, to unite what has been divided.

Then we add the creative world I also inhabit where I’m working with artists, poets, and writers. What a different world that is! It’s always funny to me how we build credibility in different areas.

As a peer worker, credibility is everything, it’s the platform on which I stand to have a voice. The usual way you establish credibility in the mental health world is through credentials. “Psychiatrist Gregory Brown says such-and-such.” I don’t have that (yet) so my credibility is based on lived experience, wide reading, and experience as a peer worker. I have to be conscious that my arty tendencies can play against me, that if I look like a hippy when talking to mainstream psychiatrists I quickly reduce my credibility. As a peer worker the message I have to give out to be accepted is that I’m normal, safe, trustworthy, reliable, and informed. Each audience I speak to is most comfortable with me if I appear to  be one of them, if I speak to them with respect, use their language, dress like them, understand their values. This is a world dominated by the tenants of psychiatry and social work, it is about systems and hierarchies, and about moderation and restraint. This is not a world comfortable with passion, excess, or madness.

The opposite applies in the art world. There is nothing so suspicious as someone who appears academic, mainstream, and normal. As an artist the message I have to give out to be accepted is that I’m brilliantly creative, unpredictable, talented, and utterly mad! It’s probably best if I haven’t slept in a fortnight and mainline cocaine. That’s what real artists do. It’s not just acceptable to have weird coloured hair, it’s concerning if you bother to brush it before leaving the house. Turning up on time or at all is problematic, being able to handle money or make any kind of sense in an interview might have your work dismissed as ‘too commercial’. Artists are supposed to be broke lunatics no one else understands.

Sometimes I wonder at the wisdom of trying to work in both of these areas. I have a sneaking suspicion that recognition in one actually plays against me in the other field. I’m trying to show the world of mental health that I’m sane and reliable, and the world of art that I’m mad and talented. Some days I feel like a magician with a sleight of hand trick going on – ‘don’t look here, look there!’ so no one notices this. It is also a source of endless amusement to me, particularly in busy weeks where art and mental health gigs pile on top of one another. I go from mad to sane and back again in the space of hours, like changing my shoes. I get to harangue one audience intellectually, connect deeply with the next, make the next laugh, or think, or see things differently…

This is where it all comes together. Everything I do is about mental health. I can’t help it, I can’t help but think, speak, write, and paint about life, about what it is to be alive, and that is about mental health. And everything I do is about art, about freedom, creativity, expression, connection, communication, about being one of the makers rather than one of the destroyers, about hope, voice, truth. They’re two sides of the same coin, two parts of a whole. I’m not happy in arts alone. I’m restless and discontent when I’m writing and painting alone. I crave the world of mental health, the intellectual stimulation of restructuring the DSM, researching the history of psychiatry, investigating alternative mental health movements. There’s also a passion in me to connect with hurting people, and my personal history has left me fragile, but it’s also left me with a lot of the skills to connect. I sit in my studio and the restlessness is like fire under my skin. I can feel the tides out there, the wave of humans in pain, in need, alone, and afraid, like I have been. I have to be on the front lines. I have to reach out. And I have to be an artist, a poet, a creator. It’s not what I do, it’s who I am, it’s my voice, my name, my identity, my way of speaking and listening, my joy. It’s what stitches my wounds.

I’m so sad sometimes at what straddling these worlds costs me. I doubt, I re-evaluate, I try to find a solution to the problem that I want to do, feel, learn, everything. My voracious appetite for life has only been enhanced by years of sickness and grief. Sometimes I come home from very hard days in mental health and I hate my job. I hate the pain I witness, the secrets I carry, the suffering and the lack of resources and grinding endlessness of it, the poverty and cruelty and savagery of the world. I hate it and I hate my choices, and I cry, and I think of all the books I could be writing, the canvases I could have painted, the films I could have worked on in that time. They are like unborn children. I could have gone entirely into a creative field, given myself up to huge passions and projects that are about life but do not wipe my face daily in the grit and filth of life. Some days I come home spent, empty, lost, burdened by people’s trust, by their pain, by finding in myself what it takes to really look at someone who is suffering, to sit with them. Some days I wish I could be just one thing or the other.

But then, that’s also what it is to be an artist. You are swept up in mad passions, you give yourself to them utterly, you are spent. You sleep, you hide, you grieve bewildered, and a new dream seeds in your heart. This is the nature of creativity and the cycle of life energy. You can hate it, fight it, deny it, but this is where the great work happens. The cost is high but so is the joy. Beneath doubt and frustration and impatience is passion and a profound certainty that I am following a path for myself that is right. I have found my calling. And however much it may confuse people at times, everything that makes me a good fit for the creative world is everything that makes me a good fit for the world of mental health, and vice versa. They just don’t always know it yet. 😉

Saving Christmas

I’ve been sick, my girlfriend has been sick, the week has been challenging to say the least and I’ve been approaching Christmas with anxiety and gloom. We have both improved enough to get last minute shopping, gift wrapping, cleaning, and cooking done, a friend is looking after Zoe (who is getting the chance to bounce around a big jungly backyard with a huge dog friend and probably feels it is a pretty good Christmas) and there has been the addition of cherries, late night ocean swims, sleep-ins, and a break from the relentless cycles of physical pain and emotional distress. I’m so relieved. I’ve been to the carols service of a local queer-friendly church and remembered that joy is the thing I’ve been missing. I’ve been thrilled to catch up here and there with good friends. I’ve been taking some sleep meds to manage the nightmares and the early morning waking which is getting me through for now. I’ve stepped up the journaling and getting hugs from friendly people. Life feels worth living again.

Today was my family Christmas event, united by Skype we opened gifts, shouted at each other through iffy net connections, had a giggle, made and ate good food (most of my people are foodies like me) and dozed in armchairs. It was a good day. Tomorrow will be catching up with various friends and eating a lot of pavlova. I’m really hanging out for the Hobbit on boxing day. 🙂

I’ve had to draw on a lot of skills this week that have been a little rusty, around navigating dissociation, managing flashbacks, coping with unexpected switching and so on. My dissociation level has been very high, bouts where I feel very distant from everything and hazy. I’ve been having increasing difficulties over the past couple of months with phobias, and one of them is around needles/blood which has been very bad lately. I suppressed and avoided the distress during my girlfriend’s recent hospital stay which involved blood tests and a drip and what not, then found myself fighting vivid mental images and body memories everytime I drove home from hospital. There’s only so long you can hold that distress at bay. Sigh. On the other hand, there’s been some useful experiences to refresh my memory and I plan to write some new blog posts next year about managing these kinds of things. I am planning to invest in a small travel keyboard so I can blog on my phone from bed in the evenings. 🙂

Take care, all of you who are struggling over Christmas. It can hurt, can be a stick against which we measure our losses and disappointments, everything in our life that is not as we wish it were. I don’t think there’s anything wrong with that. It’s okay to hurt and mourn. There’s also joy to be found, often in such small things. I went to the beach the other night and there was lightning and the moon was silver and the clouds were deep purple and the sky was vast and beautiful and shining white frost onto the black ocean. Two small boats were anchored by the shore and they danced in the water, the lights on their mast keeping the time of the ocean’s heartbeat, and soothing my own. I hope you find some joy of your own. xx

Shattered

There’s a deep, miserable despair when you’ve been pushing yourself hard, finally get some time off to sleep, and find yourself snatching only hours before nightmares shake you awake. A psychological ambush (just when you thought it was safe to go back in the water) places that should be safe (bed, sleep, your own mind) turn out to be full of monsters. It’s exhausting. Here in the night you remember that you’re wounded too, and without the day, without the structures of the day,the frameworks and suggestions and strategies that belong to the daylight world, there is instead poetry and terror.

There is no betrayal yet I feel betrayed. That rest does not await me, that I do not sleep the sound sleep of the innocent, that there is more to ask of me yet and more to endure. But this is the place where I go to the underworld, and mine is stuffed with nightmares and horrors. This is the price to pay for the daylight hours.

Wrapping Up At Aceda

It’s been very quiet around here lately, because it’s been mad in my life. I’m very tuckered out at the moment. I’ve been working hard at Aceda, caring for my very unwell girlfriend (who’s currently in hospital) and trying to keep my own head above water. I’ve not had a lot of sleep this week!

I’m frustrated to not be getting time to write this blog, it’s an important part of my own reflection on the day and my life and especially my work in mental health. I’m hoping to put some time into more articles next year, particularly thoughts and ideas about eating disorders as I’ve been working so much in that area lately.

This week we got the very sad news that Aceda was unsuccessful in applying for a grant for next year. It’s been frantic at the office as we’ve all scrambled to refer clients to other services. For me especially it’s been busy, Christmas is often a particularly tough time for people with issues around food and I’ve been utterly swamped by people desperate for support and referrals. It’s heartbreaking to be closing our doors at this time and I’ve put in some extra hours to try and make sure people are left with a comprehensive set of referrals, links, and other support options. (if you would like these please email me at sarah@di.org.au) This role has been challenging but I’m very glad to have taken it up. I’m proud of the service and resources I’ve been involved in here. I’ve spent time with some truly amazing and courageous clients for whom I have deep respect. I’ve learned a tremendous amount alongside them and my colleagues. I’m fired with passion about this terribly neglected area of mental health, and furiously angry at the appalling lack of resources and options for people here in SA! It’s been a fantastic opportunity and I’m looking forward to a good break and then using these experiences to inform my peer work in 2013. Mental health can be exhausting and at times infuriating, or distressing, but it is also deeply rewarding, something that moves and fires me. People deserve better and I’m thrilled to be part of a huge movement towards respect, recovery, community, and equality in mental health services. You’re not getting rid of me yet. 😉

The breakfast of champions….

Or rather, the lunch of people who’ve had dental work. My girlfriend suddenly needed to have an infected tooth removed this week so I’ve been putting my considerable experience of dental-pain-appropriate meals to good use! I once spent months on a mushy food and milk shakes diet while waiting to have 5 teeth removed (4 wisdom and a molar) and the post surgery situation was a nightmare of allergies and reactions so it was a very long time before I saw a steak again. Actually that was also the first time we realised that part of my allergic reaction to opiates is liver damage leading to psychosis. I have a very distinct memory of floating out of my body to drift around the room with each dose of digesic, becoming increasingly delusional and anxious that I might float through the window and be blown away by the storm… 
So anyway, this is mashed spud with gravy and mushy peas. We’ve also had custard with peaches, yoghurt with strawberries, potato and leek soup, and tonight I’m roasting pumpkin. It’s been a very quiet weekend. 🙂

Secure Housing

I’ve just signed a 10 year lease with Housing SA for my unit. The relief is overwhelming. I can’t see straight or feel my body. I’m about to go back to bed.

For the next 10 years, unless I really screw something up, I have a home. I also have permission to install a cat run, plant trees, and dig out my front lawn to put in a herb garden. I have made the difficult decision to rehome Zoe through the SA Dog Rescue people although she is still living with me until a new home is found. I’ve been putting a lot of thought into how to modify my situation to reduce stress for me. These are key changes – keeping the cat safe, contained, and away from birds, rehoming the dog somewhere really good, and digging my potted garden in and installing a watering system. I want my fruit trees growing in the ground where they’re easier to keep watered, my herb garden back up to standard, and a patch for veggies. I will have to give some consideration to the possum/veggie situation…

Next year I’ve signed on for three subjects in my visual art degree, keeping my options open. I will keep my ear to the ground about continuing with eating disorders work. Apart from that I will be working on the DI, developing my face painting business, and hopefully taking a day or half day a week to work on publishing booklets of my work. Also finish my online portfolio. That’s really very exciting. 🙂 In the meantime, I have a couple of weeks to get organised for Christmas, I plan to bake and make chocolate truffles of various types. My inner bakers and gift-buyers are patiently waiting their turns. 🙂 I’m also planning some time off in January because it’s been very busy over the last couple of months and I can feel myself wearing out. I want to go camping and get out in the bush again. My soul needs some stars over me, some wind on my skin.

This is my home, this is my home, this is my home now. I can start dreaming again.

Anxiety

I have a rent inspection later today, not just any inspection but my end-of-the-first-probationary-year inspection and my anxiety levels have been sky high. My lawns are cut, my house is tidy, the clothes that have been living in my bath have been folded and put away, my floors are mopped. My backyard needs tidying from Zoe but there’s absolutely no point in doing that until about an hour before the inspection because she will un-tidy it again pretty quickly.

Since going through rounds of homelessness, even a small threat to my housing like this can send me sky high with anxiety. It will almost certainly be fine – but almost is not enough.

When my anxiety is high like this, I feel like I can’t swallow properly or catch my breath. I can’t bear anything touching my throat like a scarf or necklace. It’s very difficult to get or keep food down. I’m tired but can’t sleep, and as a result my fibro pain levels start to spike.

So I’ve had a pretty quiet weekend at home, distracting myself with movies and music, snatching moments of housework every time I feel up to it and crashing back to bed as I feel sick and overloaded again. It’s not a pretty system, but I have to say it’s worked well. My gorgeous girlfriend has kept me company and played rounds of Rummikub and made tempting sandwiches to eat. Sarsaparilla has managed to go a couple of days without maiming any birds, or at least, without bringing them in the house. Zoe tore up one of my couch cushions yesterday but has restrained herself today. My Mum mowed my lawns last week so they look halfway decent now. Impressive teamwork going on at my place!

Looking forward to Monday evening and being able to breathe again. In the meantime, to bed with a book. 

Sculpting the Sea Final

 Finished my third art project this week and handed it in. It’s currently living in the back seat of my car until I find a better home for it. Curse sculpture for the storage problems it creates!

 I’m happy with it, the black is matt and the green is iridescent which has a really striking effect. It’s called Bless all those in storms.

I’m considering de-constructing it into small groups and felting the base so I can set them up on my table or shelf and play around with the arrangement…

In other news, I’m chronically sleep deprived and sulking about the warmer weather. I have a major first-probationary-year housing inspection on Monday so there’s a lot of cleaning and tidying in my future at the moment. Christmas may at some point get a look in but I’m not holding my breath. Grrr.

Tiramisu

Making a small amount of time in my schedule to indulge my passion for cooking… My first tiramisu. 🙂 It has sponge fingers dipped in coffee and frangelico, cream, chocolate fudge sauce, fresh cherries and apricots, and toasted flaked almonds. It was delicious and very, very easy.

Body Painting glove project

This is the final project I ‘submitted’ for my Concept Development class; my own left arm. I decided on a brocade inspired glove with a variegated background and bronze metallic overlay.

This is my first decent size body painting art work and I am hooked. I got a lot of comments and compliments, and a couple of offers to model for me too. 🙂 I guess it’s the weather for that now!

The inside of the glove ‘opens’ to show bare skin and a poem.

 I decided to paint the poem with black skin paint rather than my usual ink. It’s more time consuming but more harmonious. I quite like the script that my no 2. brush creates when I flatten the tip too. I’m learning more with each project about how to handle the brushes and paint. It’s exciting.

The poem reads:
This is my skin
where I keep my bones
where I wrap my dreams
Sometimes it sings
Some days it screams

This is my skin:

It is beautiful.


I must admit the quality of the brush work could be improved, the bronze design changes in size and thickness as I progressed… It must surely be considerably easier to paint other people’s skin, it took a hell of a lot of patience yesterday morning to paint my own elbow in the mirror!! 

Body Painting

So, do we have any Beatles fans in the audience today?
“You’re as bad as your sister, coming home from work all hours as all colours.”

Tee hee hee! This was me at 2am this morning. In some ways, it feels like my entire life has been building to this point: body painting. I’m the oddball kid who used to turn up to church with flames painted in eyeshadow on my fingers. To a casual clothes days at school with dots painted in watercolours on my throat. I discovered that gems can be glued to your skin using clear nail polish (these days I recommend liquid latex instead). I’ve been trialling different colour and poem combinations for my project due in today. I will be submitting my left arm.

I can’t tell you how happy that makes me. Love my life.

This is inspired by my long tradition of writing poems on my wrist as a self harm alternative. I love the idea of combining poems with body paint. It just sings to me.

Finished bamboo cot sculpture

My sculpture class all finished our bamboo furniture projects recently, and set them up in an empty theatre at the college (I adore studying on a campus that is just a huge building dedicated to the creative arts)… to see how they looked when lighted. Pretty awesome is the answer. 

 Here’s the finished cot: I laced string over the plastered bamboo to form the bars of the cot and added a double curl to the base. The word that kept coming to mind while I was creating it was heartstrings.

 Lighting it was pretty effective.

 It also cast some pretty interesting shadows which I was happy about.

If I’d had more than a few weeks to work on this, I’d like to have taken it a lot further… I could envision a series of cots or bassinets, made out of different materials, strung with pearls, or rose petals, or crystals that shone with rainbows, or spider web… bars made from string, from long thorny rose stems, from glass beads… different reactions to the idea of having a child.

Nonetheless. Wishing I was able to spent more time in the sculpture studio. 

Art!

Swamped! Three art projects and two journals due this week, it’s 3.30am and I’ve just finished the second one, due today at 9am. The pain in my back is extreme, but I’m happy with it and hopefully the glue will be dry ish in a few hours after I’ve snatched some sleep… I should have been working on it earlier but there was moving furniture and prep for the rent inspection and going out with friends and so here I am shattered but kinda pleased with myself. This is what I was looking at a number of hours ago:

Now all those waves have been hand painted and glued down. Lovely finished photo coming once I take it. Too tired now, off to bed with a book and ice pack. Nearly finished the term!!

Face And Body Painting Kit

Continuing to develop my face and body painting kit – here is my lovely new palette that folds shut and can be carried flat or upright as you wish. Isn’t it gorgeous!? Not a lot of set up time with lovely tools like this. I’ve cut all these colours into split cakes myself which makes them more versatile. The colours on the left are beautiful metallic and on the right are the strong matt colours. I adore this – with one caveat – I wont be keeping the black in there in the future, I was using it so much I was splashing tiny black drops into the other paints and causing myself all kinds of grief. 🙂Yesterday I was at Bunnings and found this fantastic cooler bag with wheels and a collapsible handle! I’ve been looking for something like this for months to transport my kit in! It’s small, light, easy to pack, and waterproof which makes it easy to clean and stops paint spills from staining. I’m stoked!
It stores my entire kit easily including bottles of water for outdoor events. I’m really pleased with it! Love making progress with things like this – so much happier taking this out with me than the cardboard filing box I used to use! 🙂 Next stop – looking forward to taking some classes on one stroke techniques and improving my line work. Happy happy.

Art from College

Critical Visual Thinking:

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Sculpture 2:

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Sculpture 1:

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Photography Fundamentals:

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Concept Development:

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Drawing 1:

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Drawing Fundamentals:

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Digital Media Fundamentals:

Dog boy

Printmaking Fundamentals:

Scattering Stars

Jewellery Fundamentals:

Rose Petal Pendant

Small Object Making:

Other media

Ceramic Fundamentals:

Ceramics creations!

Sculpture Fundamentals:

Sculpting a skull

Gloom

So I went out the other day to buy emergency groceries with my last $70 and this is what it bought me. Now that is damn depressing. (the chemist packet is anti-histamines. Unfortunately essential)

So it turns out I am a bat

I’ve been experimenting with my sleep patterns since I started the new job with Aceda 6 weeks ago. It has been a continual thorn in my side over the past 6 years that my sleep gears towards nocturnal. It started suddenly after the devastating break up of a long term relationship, I immediately went from being a very morning, waking up with the dawn to have a walk kind of person, to keeping company with the owls and bats.

Many things fed into this over the years, for a couple there I was totally nocturnal, unable to sleep at all until the dawn came and people started to wake up and go about their lives. I kept vigil all the long, lonely nights, baked scones, watched bizarre documentaries on SBS, wrote poetry, wept myself hoarse, and went for long walks when it rained and I figured I’d be the only mad one out on the streets.

When I was very sick with the chronic fatigue and fibro etc getting less than 9 hours would leave me trembling, vomiting, and massively dissociated. Insomnia cycles with nightmares were devastating physically and tipped me into psychosis. The usual treatments for sleep issues didn’t work at all, most sleeping meds do not work on me, the only one that does also leaves me dissociated and half out of my brain for days. Attempting to reset patterns by persistently getting out of bed in the morning and getting in the sun or taking melantonin only made me incredibly ill. I would crack long before any signs of sleep resetting would start.

So, I’ve been quite surprised to discover that I’ve been able to reset my patterns fairly easily over the past few weeks. I’m certainly physically far stronger than I have been, I can even handle one morning a week on a few hours sleep, and I’ve discovered recently there’s one part who seems to exist in a permanent hypo-manic state and doesn’t seem to notice even quite significant periods with little to no sleep. Slightly worrying but also incredibly useful when they’re around…

There’s been a downside I didn’t expect. My mental health isn’t coping with the change at all. Without my late night hours, there are a number of parts of my system who are not getting any time at all. We didn’t realise this. So many new realisations lately.

We are able to get by so much better than we used to in so many ways. One of the big things that has made a difference is the ability to contain distressed parts until we’re safe and alone. So often people say to me “I can’t believe you wrote that post about hating yourself, or painted that image about self harm, you don’t seem that way at all”. And I say back to them – “You haven’t met me at 3am”. How true that is. It’s such a constant surprise to me that people don’t pick that the confident, gracious person who steps onto the stage to read poems about savage pain cannot possibly have written them. When I was younger, triggers would floor me. Vulnerable parts would fall apart in public, switch out and hide in back rooms writing poetry in the journal we carried everywhere. Skinless and devastatingly sensitive we had no capacity to fit in, to conceal our difference or our pain. We’re still painfully raw at times, crying at work, missing the kinds of filters that adults seem to develop where you sit through movies untouched by the world within it. But we’re so much further along than we used to be, and it turns out a huge aspect of this is having hours at night, alone and uninterrupted by the rest of the world, to let out all of those suppressed feelings and those hidden parts.

How much of this is the difference between a child and an adult? How much of this is the distinction we draw between the crazy and the sane? The ‘sane’ still have the capacity to choke it down in public? Something left with which to conceal themselves? No sobbing on the bus, no poetry in the doctors office, mustn’t let them hear you scream…

I need my night hours to be mad. I crave my time in the sun, to be useful, to see friends, to study and work and live. But I need the night. It’s where I do my screaming, where I bleed ink, brew art, it’s the hours where the poems live and Narnia is close. It’s a difficult life to pull off, there’s too many mornings I can’t avoid being sleep deprived and up early, there’s the constant need for vigilence around things like driving and dissociation, cooking and dissociation – another nice burn on the inside of my arm from careless handling of a hot baking tray from a couple of days ago. There’s the risks of sleep deprivation which are serious. It’s a foot in two worlds kind of life, constantly frustrated by my inability to fit properly, to be entirely one thing or the other… It’s also a productive, fulfilling kind of life, sublime and mundane in their proper places, full of art, full of love, light and shadows, the dark and the bright of the moon.

It’s what I have to work with for now. So tonight, I’m a little tired, but I’m sitting up blogging again, past midnight where my thoughts suddenly become clear as snow melt and I feel at home. I belong here and I need this place.