Fuzzballs in boxes

I’m curled up in bed covered in hives and trying not to claw any more skin from my body. Joy! Today I let a woman stick a bunch of pins in my legs and didn’t run away screaming although I did sweat a lot. It wasn’t the worst thing I’ve been through, but I certainly wouldn’t describe it as relaxing either.

I also cooked what I think is the least edible meal I’ve ever made. My sister is recovering from mouth surgery and I’ve been making her soups and mash. Spinach and feta soup is apparently an expensive exercise in making something to fertilise the garden with. Grrrrrr.

Come on antihistamines, do your thing. Heartburn is giving me a bit of gyp too. I’m alone in the house tonight, Rose is off babysitting. Well, by alone I mean there’s two dogs and three cats here. My sisters cat Ceilidh and dog Barloc are staying over for a bit. Two of the cats are flanking me on the bed. One is sulking after going for a nap in my potato cupboard and getting trapped for a couple of hours until I could work out where they were. The dogs are sleeping after going mental earlier when the cricket or whoever set off a bunch of fireworks.

Here’s Zoe, Barloc, and Ceilidh hanging out in my couch:

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The cats are doing well since I realised they were squabbling over prime window positions and the best boxes for sitting in. So I’ve rearranged the window areas and created a number of cat boxes for them. It’s been an effective solution and they’ve been getting along well since. My home now usually sports at least one box occupied by a cat at all times:

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My sister will be moving into her now house within a couple of weeks and taking her fuzzballs with her. It’s going to be spacious and quiet around here by comparison! I might even get some writing done. 😉

Team

Second game of baseball last night. For a newbie I did well; helped get someone out, and held my ground batting. Didn’t actually get a good hit in, but I didn’t swing at the dodgy pitches, which takes nerves. I’m proud of myself. It was such a good tonic. My adrenaline was so high during the game my hands were shaking – there’s a fair bit of pressure standing at the plate and wanting to do your team proud. But it’s like it’s retraining my anxiety, because in this context I’m focused, I’m running around, and the rush of adrenaline had a context and a value and a chance to wash out after the game. So different to the chronic stress I’ve been going through. I’m hopeful it’s helping, at the very least I’m really enjoying it and it’s a welcome break from my own thoughts and fears.

I love my team. There are some more experienced players but many of us are new. We cheer each other on, there’s always someone around to ask about weird rules I don’t understand. I don’t feel like I’m letting anyone down just because I’m inexperienced, they cheer for small successes and improvements. I love being part of it. They’ve nicknamed me Dreads.

I have a sense that the connection I get sometimes when gaming with another person, where we’re in sync and supporting each other and completely focused because the task needs all our concentration – that thrilling sense of being part of something greater that moves fluidly as a single entity, almost a dissolving of self… I think that can happen in a brilliant sports team too, where the mood starts to homogenise and the goals are unified and the focus is present and it draws all these different people in together to be part of a whole. It’s intoxicating. I’d love to experience it in that capacity.

I love Rose, too, she’s on my team and did really well under pressure, hit a great ball into the outfield and ran around the bases. She’s asleep on my left arm at the moment. She’s been back at work since the ptsd like a trooper. She’s made radical changes in her life lately; taking up gym, starting the new childcare course next week. It’s inspiring. And she’s unfailingly kind to me when I’m vulnerable,which has been a lot of the time lately. We’re a good team.

Today we’re both going to my first ever acupuncture appointment, which given that it involves needles I’m nervous about. However I’ve been coping pretty well with my phobia lately so I’m hopeful I’m manage it. It’s supposed to help with maintaining a pregnancy, assuming there’s no severe genetic problems. Our important scan is going to happen right around Christmas, which could be tough if it’s not good again. I find myself hoping things will end quickly if they’re not going to last, less time to fall in love, less time to reset my body back to being ready to try again. But maybe we’ll get lucky. I keep having strange dreams where I give birth without warning in weird places like public parks or toilets. In the meantime it’s the brightest of talismans, the most shining symbol of hope, and Rose and I whisper it back and forth to each other – I’m pregnant.

Figuring out Ovulation

Following my miscarriage earlier this year, my cycle has been impossible to predict. This has been a huge spanner in our plans and we’ve tried a number of things that haven’t worked. You can usually predict ovulation a number of ways, such as charting your temp, tracking mucous changes, keeping a watch for ovulation pain, and using various prediction tests. Unfortunately my cycle length was now swinging from 28 – 39 days without warning, none of our prediction methods were working, and the tests were not helping either. I was not producing enough LH to trigger those tests, and in the combined Estrogen LH tests simply recorded 10+ days of ‘high fertility’ and no ‘peak fertility’. Especially when you’re using a donor, this is beyond frustrating to try and manage.

We did two things that seem to have helped, firstly I started taking 1,000mg vitex every morning, which may or may not have helped my cycle straighten out enough that the prediction kits worked this last cycle.

Secondly I started tracking everything by hand – apps are useless in a situation like this. I charted all my cycles since the miscarriage, and then figured out when ovulation must have happened by backtracking from the next period. Ovulation almost always occurs within a window of days 12-16 before a period. I also tracked my cycle lengths and found my longest and shortest current cycles. Based on that info I was able to predict a large window for our current cycle – my predicted ovulation time for if I had a very short cycle, and if I had a very long cycle. Given that we were using fresh donor sperm and it can live in the body for several days, we could then arrange our insems for every 3 days within that window of a couple of weeks. Frustrating for all involved, but far better than what had been happening where insem dates were sometimes a week away from ovulation dates due to the vast differences in cycle length from month to month.

If you ever find yourself in this situation – firstly, you have my massive sympathies! And secondly, try tracking just your new, post miscarriage cycle and give yourself big windows of possibility to work in.

In other news, we have our first blood test back and HCG levels are excellent meaning that I’m currently pregnant (sometimes a pregnancy test will read positive but you’ve already miscarried), and that I’m low risk for some of the crappy possibilities such as an ectopic or blighted ovum. Excellent news! Possibly challenging is that being around sick little kids is not a great idea, and I had just signed up for childcare training and placement. Something else to figure out. But all things are good so far with our little frog, and our GP is over the moon and being really helpful about how anxious Rose and I are to know things are okay. 🙂

I’m pregnant

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Baby due midwinter 2016. 😀 Rose and I are two happy, dazed, teary ladies. We did a pregnancy test last night and another this morning and both have strong pink lines.

It’s early days. We’re at 4 weeks. If we can make it another 4, and have a good scan, then we’re through the high risk stage. Our miscarriage risk drops to about 2% and stays there for the rest of pregnancy (unless other stuff happens). Physically I feel great apart from being very tired and wanting to eat everything in the house.

Two nights ago Rose went to sing to my tummy like she has been for months and I asked her to stop because it hurt too much. We tested last night after I spent half an hour crying on our bed because it was so scary and overwhelming to have so much riding on it. I’ve been seeing whatever counsellors I can find with fertility experience lately, to help me get my head back together. One told me that the stats are that most couples who stop trying to get pregnant do not do so because there’s no money left or no hope left but because the emotional toll is too much. I completely understand that.

Last night I give Rose the test so she can be the one who tells me. I’m washing my hands in the bathroom and she comes up softly behind me and hugs me gently. She brings the test around so I can see it and it’s a strong positive. We cry and laugh and hug and pull back and hug again. Later she lights up – ‘Hey this means I can sing to your tummy again, right?’ Yes, love. Sing all you want. She hasn’t really stopped singing since.

Introducing player # 17

It’s my first game of baseball tonight. I’m really looking forward to it, although not understanding the rules means it’s going to be especially interesting. I’m on the green team with Rose. 🙂 In fact, it all made the local news – I’m in the photo on the far right at the back!

I struggled through training on Wednesday and pulled a muscle which I’ve been nursing since – Tiger balm is really good stuff for this! Cold baths (I would pull a muscle in my bum, of course) also effective although I did scream a bit more. The bruises are faded out to yellow and today I can walk without limping. Pain from playing isn’t really bothering me, I find it much more manageable than fibro pain, and much easier to ignore. Plus I feel really proud of myself.

I cried my heart out at my doctors yesterday, and she was really kind. She was also excited I’d taken up a sport. I’m thinking of picking up some gym work too to help boost my fitness and mood. Rose has been working hard at the gym and she’s going brilliantly. It’s very inspiring. 🙂 My GP echoed the same situation re my own health – take it easy and be patient. So I’m concentrating on housework and supporting Rose at her work. She wouldn’t sign off on me working or volunteering at the moment. I’m chasing some extra support around fertility and grief and so far I’ve spoken to a couple of people and found that really helpful.

I’m kind of living for the game at the moment. I look forward to it all through bad days. The teams feel really good – there’s a good vibe and lots of camaraderie which is pretty important when you’re as new and bewildered as I am. Even in the short time I’ve been practising I’ve made a big improvement which says a lot for the coaches. Go Green team. 🙂

A year ago with Rose

A year ago, I planned a trip for my beloved Rose. I took care of all the details and kept a lot of secrets about where we were going and why. I put a lot of thought into making it special, which was especially tricky given that her available weekend kept changing, as did our financial situation. But I was determined, and friends helped out with good advice and suggestions. In the end, it was all rather perfect.

I borrowed a friend’s van with a bed in the back of it. I wore the rainbow skirt she loves. We stopped for lunch at her favourite beach and sat on the shore watching the water as she told me stories about her childhood.

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I took us to a forest. It was beautiful, there were birds, butterflies, kangaroos, foxes. Kookaburra’s serenaded us in the evening.

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On the way there, we stopped at a nursery and bought some plants. They now have pride of place in our garden and the roses are in full bloom at this time of year every year.

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This is one of the roses – Jude, an Austin rose. He is stunning.

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That night I laid out dinner – platters of all Rose’s favourite treats. I carefully dropped a towel on the ground near her chair, and rolled up my sleeves so the words I’d written there earlier would be visible. I found the jewellery box I’d been keeping carefully hidden for weeks.

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I went down on my knees and read her my poem in a trembling voice. Then I opened the ring box to show her her silver and sapphire ring.

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She said yes. We both cried. We read the poem again. We hugged and kissed and ate beautiful food and toasted ourselves.

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And she’s stuck by me, through all kinds of calamities. She shines so brightly in the good times, and she’s so tough in the hard ones. I’m so glad to have her in my life, to reach out in the darkest of nights and feel her there, breathing, or even weeping, in the darkness beside me. She is precious, and I’m deeply glad to be her family.

Women’s Baseball League

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Believe it or not, I’m now in a baseball league! I spent this morning running around a pitch with Rose and a couple of friends, practicing fielding and batting. I never thought this would be something I enjoy, but I had a fantastic time! Turns out the experience of sports is completely different if you’re not in high school anymore. 😉 I started to support Rose who was keen to play and also because exercise can play a huge role in improving mood and mental health. While I’m out there I’m so focused on what I’m learning there’s no room for anxiety.

Running around a field in the sunshine with my mates slowly improving my abysmal skills in throwing, catching with a mitt using my left hand – honestly, I’m bad enough with my right and using a mitt feels to me like trying to grab the ball with a waffle iron – and actually hitting the ball from time to time with a thin but of tarted up pipe… well it was awesome. The coaches don’t mind that I’m an unfit total beginner who had never even watched a game of baseball and needed every bit of lingo explained, and the feeling of catching the ball or knocking it across the field was great!

Afterwards we all had lunch and lay around with ice packs. I’ve got a pretty nice bruise from catching balls on my left hand, and some even prettier ones on my arms and chest from not quite catching a few. Unlike fibro pain, which is diffuse, bone deep, and makes me feel sick and exhausted, this is quite manageable. War wounds. I’m kinda proud. Tomorrow may be interesting but I’m planning gentle walks and hot baths.

Being part of a team, learning new skills, running around but enough stop-start for me to catch my breath, and coaches giving great advice at every step… It’s the polar opposite experience of trying to run a small business as a sole trader where there’s no guide, I have to be instantly amazing at everything, and if I’m not sure about something I’d better fake it and hope no one notices. It felt like falling backwards into a big cloud of marshmallow by comparison. Friends! Encouragement! Advice! No one to beat but myself. I think I really like sport. 🙂

The rest of today was blissful laziness watching movies and in a rare fit of American culinary appreciation, having BBQ ribs for dinner. What a great day. I am so pleased. I’ve had a real turn around this week, I’m still often pretty paralysed, but I’m having half days and whole days where I feel like myself again and life is good. I’m coming back.

Trying to get pregnant and breathe

Today, I called the SANDS helpline and spoke to a lovely woman. I so needed to hear that the mess I’m in is ‘normal’. It makes sense. Other people who have been here get it, in all the horrible intensity. Trying to get pregnant again after we’ve lost Tam has bowled me over. I had no idea how hard I would find it. After the devastation of losing Tam, on top of the terrible string of losses Rose has endured, by mid year things felt so right and ready. We had a donor again, I had some fantastic opportunities for my business, Rose was working…

I remember that when we first started trying to conceive, I was haunted by a death sense that took me by surprise. Trying again after loss has magnified that to proportions I can hardly fathom. When Rose crashed into severe PTSD and couldn’t work, and my own business hopes were dashed, I went into meltdown. I fought and struggled and tried to find a way through. In the end I’ve had to accept that I can’t stop it happening and just accept it and be patient.

Some days I shift my sense of accomplishment to things like – well today I’m not in hospital. I’m not costing the taxpayer money for a psychiatric bed. (which would be find if I needed it, of course, but hooray that I’m not) I don’t have a string of medicos giving me conflicting advice. I get to choose my own reading materials from the library and I have control of the remote for the tv. Plus, I’ve showered, dressed, hung out with friends, and have all my pets around.

This week has been a lot better. I’ve had a number of good days, and the bad days have reduced me to ‘useless’ but been nowhere near the intensity of 8 hour crying jags or 6 hour panic attacks. I actually felt well enough to call a helpline today – I know that sounds oxymoronic, but it’s really risky for me to reach out when I’m not okay at all, because there’s an even chance of not getting help and then I’m in terrible trouble. Today I could risk it and it helped a lot.

It feels like my life has stopped. Every cycle we aren’t pregnant feels almost like we’ve lost another baby. I’ve never cared a whoot about my own ageing, but I fell apart in the shower the other night suddenly noticing changes to my skin. I’m plagued by nightmares about my friends and family dying. Sometimes when we’re not pregnant I’m heartbroken and relieved in equal measure because at least that’s a baby I won’t miscarry. I can’t breathe properly, all the time. Remember that nightmare ten days between our ‘it doesn’t look good’ scan and the ‘they have died’ scan with Tamlorn? Like my life is on pause. Just trying to catch my breath, all the time, every day. A scream inside that never draws breath. Trying to force myself to be reconciled to something that everything in me simply cannot accept.

I feel crazy. I’ve been vaguely aware of ‘baby mad’ people from outside and never expected to be one myself. I want to be able to have a life while we try to get pregnant, and that feels impossible at the moment. I can’t fathom how that’s the case, but but right now my reality is that most days taking care of myself – eating, drinking, coaxing myself to sleep, staying in touch with my people, and so on, is all I have in me. I can’t tell you how frustrating, humiliating, bewildering, and scary that has been! It is so incredibly hard to maintain any kind of perspective and it’s unbearably vulnerable.

It’s unbearably painful to keep trying, and it would be unbearably painful to stop trying. I chose this and I felt ready and I thought we could ride the roller-coaster and walk into whatever came without regrets but now – I feel trapped. I can’t breathe. I can’t make it happen. I’m out to sea and helpless. We might get pregnant and we might not. We might carry to term and we might not. All the assurances people give us (it’ll happen when it’s time, when you’re ready, when the universe or God decides it’s right etc etc ad nauseam) belong to another world, an illusionary place where there is justice and fairness and a grand plan and some kind of certainty. I don’t live there! I’ve read the stories and talked to the people and I can tell you for absolutely sure that fertility is not fair and there is no certainty. If I knew we would never bring home a live baby I would stop right now and throw no more of my life away on this impossible dream. No more days just trying to breathe, talking myself gently through every hour, every minute. On the other hand, if I knew we were going to conceive this month and carry to term… nothing in the world could stop me. But I don’t know, and I feel powerless. How to live without regret in the face of such unknowns?

I am so frightened. I’m scared that I’ll never feel better, that I’ll have post natal depression, that I’ll be an awful parent, that we’ll never have a child, that all our friends will leave us, that we’ll have another miscarriage, or a stillbirth, or a baby who dies at 2. I’m scared that I’ll lose my mental health, my family, my tribe, my capacity to work, my lovely partner. What am I willing to give up for this? What if it doesn’t work?

Strangely, just being able to ask these questions helps so much. It gives shape and form to pain and darkness. If I can name it, understand it, share it, it’s not so overwhelming. I spoke to a stranger on the phone today and told her how agonising it has been to watch my beloved Rose suffer through PTSD. Night after night of screaming pain, to be holding her hand when she can’t even feel me there. And somewhere in all my rambling I said the thing I haven’t been able to say even to myself – Rose has loved so deeply and lost so many babies, I am afraid that if we never bring home a little one of our own, her heart will be broken beyond repair and I will lose her. I type that with tears running and my face aching with a scream I can’t sound. She hurts so much and I can’t bear it or take it away.

I don’t know how I found myself here, feeling so stuck, feeling that all my world pivots on a single dream I have so little control over. I can’t go forwards, I can’t go back. I can’t breathe. I’m ashamed and embarrassed and confused. I am good at reconciling myself to terrifying things! I’ve supported people I love through suicide attempts, I’ve built a life from homelessness and isolation, I’ve escaped communities in which I was dying and I’ve been able to grieve my losses without going back. I am good at this!

But oh, watching my love in pain. Oh, oh, my heart. Like an addicted gambler, where the stakes are everything I have done with my life until now – each month I roll the dice and hope. I can’t bring the stakes down, can’t end the game, can’t breathe.

Yes, said the woman on the helpline. It makes us feel crazy. It sends us into breakdowns. It isolates us.

Writhing like a worm on a hook. Silent because too many people already think I won’t be a good parent, or that I’ll regret it, or that I’m not up to it. Silent and frightened and embarrassed as my sense of the world falls to pieces and I’m in the biggest free fall through the deepest black pit.

I didn’t have any idea just how hard the last few months were going to be. I wanted to be able to handle them so much better! I’ve tried very, very hard to do so. And I’ve done a lot even in this distraught place that I’m proud of. I’ve helped my love find the support she needs, held her hand and cheered her on as she’s moved into an incredibly fast recovery and return to work. I’ve supported my sister through a tough time. I’ve not leaned too hard on any one person, but I have asked for help and been honest about how not okay I am. And I’m still here, still with Rose, in our lovely home, caring for our pets, gardening, looking after myself, hanging out with friends. I might have flunked college and given up on my business and not been able to write or paint and have no idea what I’m going to do for work – but I’m still here. My life has  not burned down around me. I’ve read a lot of books. I’ve even joined a baseball team, just last night, with Rose and a couple of friends. I still have my life and I’m starting to come out of the deep darkness. I was lucky enough to have the opportunity to hear a beautiful talk about supporting trans men at a local pregnancy service a couple of days ago and my heart was so buoyed by it – I love work like this so much! I can’t wait to be well enough to get back to it. Our stunning garden blooms outside my window and it feels like a metaphor on a day like today. All that hard work months and years ago, and today when I have done nothing – not even got dressed, I just sit here and watch it bloom. The effort pays off and carries me through the times I can’t do anything. I rest and it carries me through. I rest and it carries me. For that I’m thankful.

At home in the dark

Two full good days in a row… Today was bumpier and harder work but still good. Tonight I’m driving Rose and myself home from a family get together, musing on what this might mean and why – being ‘alternative’ seems to have unlocked something vital in me, being alive at night, ignoring the ‘normal’ world… And we drive into the largest blackout I think I’ve ever been in! The streets are eerie without streetlights and I nurse us through dark intersections with my hazard lights on and creep to the roadside out of the way of emergency vehicles. Everywhere people are roaming out of their houses to see what’s going on and the night has a strange, wild, lawless feel to it.

Back home we settle our animals and find matches and candles. We don’t want to open our fridge so we go to bed with a supper of chips and water. Blackouts were always a special time as a kid, my folks would haul out the camp stove and cook up dinner or hot chocolate or popcorn and we’d sit around candles and play cards or have a book read to us. I treasure these times when ordinary life is disrupted in a small way, like lightning storms or summer rain, they are invitations to step outside of routines and experience something different.

They can be a time between, a place between worlds. This is the kind of place I can live in, breathe in, make art in, make love in, hear my own voice in. In the darkness I’m feeling my way along, finding these strange illuminating moments of clarity, moments when the veil lifts and the pain falls away. I don’t understand it but one day I will, and until then I’ll keep going.

Messages from the underground

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Happy Halloween oddballs, misfits, and freaks. I’m out again tonight, at a goth club this time. You knew what? It didn’t go away with the morning. I slept until midday and woke feeling fantastic, and hungry. Can’t remember the last time I’ve had an appetite. I’ve had a great day, and now I’m hanging out in a black vinyl armchair listening to dark music and watching freaks dance. Perfect.

You know once of the things I really love about goths? Their sense of humour. It’s wild. The guys who run this scene have done the dance from Pulp Fiction for us. There’s plenty of vampires and skeletons here, but there’s also a cute bumble bee and a dude dressed as a tube of toothpaste. Wtf? Goths are natural absurdists. I’ll drink to that.

Here I am, sitting in a tin can

Today has been stupid hard. Took me till past midday to get out of bed and that’s only because I gave up on the idea I’d feel any better at some point, but had at least stopped nearly throwing up.

Now I’m sitting in a pub with my sister listening to Bowie and I feel more normal, more a freak but more sane, than I have in a long time. There’s a bunch of working people letting off steam, singing half the songs and downing cider and craft beers. They’re gorgeous, so much more themselves then they ever are during the working day. We stop being cogs in a machine at night. Sometimes I kind of forget that’s true of other people too. I fall in love with them all, they are human again, shedding roles like dead skin. I wonder if any of them work in mental health and if they’re assholes during the day. By night all is forgiven, there’s a brotherhood here. The more extroverted/soused are dancing by the DJ. I’m drinking a cider chosen for the picture of gumboots on the label.
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The beat thumps in my throat, welcome change from the lump the size of a baseball I’ve been trying to breathe around. I’m wearing eye shadow for f sake, when did I last do that? I’ve spent the last year trying to get pregnant, turning myself into some frighteningly narrow idea of a parent. How can you live for a kid who doesn’t even exist yet? How have I lost my sense of self? Why When’s the last time I did something as myself not as a parent in waiting? What would I want myself anyway, a generic parent starving, or some actual weird-as person being themselves? Easy to answer, hard to do. I’m freefalling without roles and grasping for instructions (someone save me!) yet none of them bring me back to myself like being here tonight. (I promised, no more saviours, still have the scars from the last one) Obedience will make me whole? I f doubt it. Outrageous defiance is a likelier path, love.

I take off my coat just to feel the cold on my skin. I remember there used to be no better protection against the brutal day than black lipstick. Nothing has brought me into line like age, nothing has made me afraid of other people’s opinions like pregnancy and loss. But here? There’s nothing to be afraid of here. We know life is short here, and the world is a mess. Might as well drink. Might as well dance. Might as well sing along in a corner and remember how much I enjoy writing and how comfortable I am wearing the identity of writer like a very worn in coat. ‘Freak’ settles into my soul like a stiff drink. Being alive is such a weird mix of selflessness and self centredness. I have to know what I need and want, have to be able to run from the things that burn and numb. No more making ‘art’ at noon under fluorescent lights. This is better than temazepam.

Like all midnight epiphanies, this will be gone by dawn. I’ll turn back into the broken girl and nothing will make me whole. But I’ve seen something here, some part of my compass that isn’t broken, some sense of self that isn’t ruined. And after the day comes night, always. I’ll find my way again.

A Breath of Fresh Air

I’m just coming to the twelfth hour of feeling like myself again today, and it was blissful. For the past two nights I’ve gone back to sleep after waking early and distressed, and both nights I’ve dreamed for the first time in many months – that’s got to be a good sign! I woke this morning feeling rough and did good things anyway – gamed with my sister and had a hot cinnamon donut for breakfast. I can’t tell you how ridiculous and frustrating it is to be trapped inside a nervous system gone haywire, literally trembling and rocking with distress while doing something I really enjoy… That’s been my world lately, hours and hours of endless distress despite everything being well. But at about noon it switched off as suddenly and without tangible cause as it comes on, and the whole rest of today has been simply glorious.

Rose and I spent the day with friends, we had fun at a ball range practicing our baseball skills, had a picnic, watched movies, ate ice cream, played games, and had a great time. I am so relieved, it’s the most wonderful thing in the world just to feel like myself.

I feel so incredibly fortunate to have friends and family who are comfortable inviting me around and still including me despite the high chance of panic attacks and chronic distress at the moment. I feel so lucky and loved. I’m having to cancel a lot of things I want to do at the moment and I’m so grateful for people who get it and know that I’m not hiding behind anxiety as an excuse to get out of things, that if I say I wanted to come I really did want to be there.

The most terrifying thing about feeling this awful and out of control is my terror that maybe this is ‘me’ now, maybe this is what the rest of my life will be like. Today what helped was deciding that even if that was the case, I was still going to be part of life, to do my best to live a decent life; to be present, to care about people, to limp along as best I can however messed up and broken I feel. This thing that’s got me by the throat and is scaring me out of my mind is not going to win. I’ll fight every step of the way. How wonderful to be rewarded with so many hours in which breathing happened easily and without thought. Please let it happen again, often, please.

Superman Falling in Embarrassing Ways

I had a very dark night last week, unable to calm down intense distress for many hours and terribly afraid for myself. I would use all my skills to settle and even get myself to the point where I fell asleep, only to wake a few minutes later in panic again. I was able to get an emergency appointment with my psychologist and went along – for the first time in my life – in a state of hysteria. She’s diagnosed me with exhaustion, and helped me get a quick appointment with my gp for meds to calm down the intensity of my distress. I’ve now got a script from my gp for anti anxiety meds, however they are not pregnancy safe so they are a last resort.

How can this year have done such harm to me, I asked the psychologist – I’ve had much worse years! You’re thinking in terms of trauma, she said, look at all the loss and grief of this year instead. They are significant. Stop everything and do whatever you need to to rest.

So here I am. Most days have two distinct aspects to them, one in which I’m genuinely fine, even productive, cleaning and cooking and hanging out with friends. The other in which I feel like I’ve fallen off the planet. I can’t catch my breath, all of life feels without meaning or purpose, and I’m tormented by fears and existential questions that strip me to the bone.

I found this lovely series of artworks that resonated with me: Superman Falling (actually titled ‘No. Superhero’ by Ole Marius Joergensen). There’s something so terribly human about this place, this state, a kind of cultural heritage none of us would choose to have. Nobody wants to be quite this human. I certainly don’t, although sometimes I think I catch a glimpse of something beautiful in it all. At times I’m saturated by death, surrounded by the void. I feel very humiliated by it, frustrated, angry, scared.

Sometimes it feels like a punishment for big dreams, for reaching too far above my circumstances, for thinking I had answers or anything to offer other people. How the so called mighty do fall. And how people like me are supposed to conceal such terribly human frailty, such weakness. I am healer, supposed to be above such vulnerability. I also find myself feeling very alive at times, which is jarring in contrast, but refreshing too. Better feeling alive then dead, than numb then dead.

I’m not getting enough sleep, I wake early every night in a rough place and have to find ways to calm down and stop thinking about death and people who have died. I take great comfort from Rose sleeping beside me, and I bring my friends to mind and tell myself I’m loved. I read books by my little book light in bed, or when the anxiety nausea is bad I get up and slowly pace until my gut un knots. Sometimes I lie on the couch so my tossing won’t wake Rose and I pat a cat, focusing on the feel of her velvet fur, trying to be present. I stop myself calling people I love to check they’re still alive or tell them how much I love them which I’m sure would get very old at 3am.

If I still can’t settle I call Lifeline and tell them I need to hear a friendly voice. Sometimes if it’s dark I stand naked out the back and feel the night on my skin. My heart seems absolutely broken and overwhelmingly afraid and I talk to it soothingly over and over, trying to bring it back from a place of despair and terror. Distract, be present, plan. Don’t think about death. Plan the following day, plan dinner, wonder how friends are going, sit and look at our astonishingly beautiful front garden full of roses and poppies and marvel at the abundance. It will pass, it will pass, it will pass.

Today has been long! I made it into college not feeling good and spent the whole day calming myself down. I’d try to talk to my tutor and start gasping and crying. I tried sitting in the sun, reading, pacing slowly around the building, sipping water, a hot cuppa, a lot of gentle self talk, a phone call to Rose, food, changing all the words I was using about the task I was supposed to be doing, sitting with the very nice friends in my class, looking at other people’s work for inspiration, and all it helped a bit. But the moment I tried to do any work my headspace just crumpled into a big pile of trembling, breathless, unhappiness. So after 6 hours of gentle coaxing I gave up and came home. I’m currently hiding in bed, hanging onto the funny side of being someone who can and has coped with some truly terrible life situations and crises, being unable to make a print at art school – that most luxurious of pursuits that many people would give their right arm to have the opportunity to do! It’s like coping with dragons and being undone by a moth phobia. O.o

It will get better.

In memory of our Tam

Tamlorn was due today.

It seems so much died with them. A fork in the road and a different path forced upon us. I don’t know how that can be but it seems it is. Somewhere out there, in a different universe, two happy ladies are so bouyed by the pregnancy the work stress doesn’t tip one of them into ptsd. We don’t lose our donor, we go to the pregnancy expo full of excitement, we don’t push the business hard and wind up falling down a hole of broken expectations and pressure. Such a little thing and yet our whole year is different. Our whole world.

My sense of faith or meaning about life and death, any possible afterlife, has splintered. Sometimes we comfort each other that if they all still exist somewhere, Leanne and Amanda and Grandma would take excellent care of Tamlorn. I can’t imagine three people with more love and skills and care and humour. And maybe all the others I didn’t know so well would help too; Bethy, Tash, Nana, Bradbury, Pratchett… Somehow every possible answer seems to hurt more than it comforts. This loss makes me need a certainty about death I simply can’t have.

We are still trying to get pregnant, and it’s one of the hardest things I’ve ever done. It seems so little, but it’s so consuming! The roller-coaster emotions make me feel crazy and I work hard to hide and suppress them. Rose and I are so gentle with each other, constantly making room for both hope and grief, reminding ourselves life is still wonderful without a child, that whatever the outcome is we have each other, and yet it’s like trying to calm a storm by talking to it. Beyond our power by far! It consumes everything. Our whole world becomes balanced on pinnacles between ecstacy and devastation.

I’m always trying to manage fear. I’m frightened of losing our donor again, frightened Tam was my one and only baby, frightened of getting pregnant and losing another one by miscarriage or stillbirth or leukaemia at 3 years old. Life feels like a lottery and the bland reassurance of those who’ve won and spun it into some kind of ‘just world’ (don’t worry, of course it will work out) is balanced by the raw pain of those who’ve lost and are childless following eleven miscarriages or other patterns of tragedy and loss.

The best feeling in my world is that moment before getting up to do a pregnancy test. Everything glows with possibility. Our bodies fit together, skin warm and soft, and the morning is gauzy with the film of dreams. We promise not to be devastated, that it’s early days only, that it’s okay to grieve, we can do this. We feel strong and settled and ready.

The worst feeling is another negative test. Coming up with all the reasons we might still be pregnant anyway. Trying not to feel that empty pit inside. Patting each other – it’s okay to be disappointed, we’ll be okay, we’ll try again, while inside we’re both dying. Wastelands and ruin and fears that we can’t counter that perhaps all this is futile. It might be. The only thing that would be harder than trying, is stopping trying. What started in joy begins to feel like a trap. We can’t let go of the dream but the dream is all fire and pain. We surface from misery briefly to remind each other that life will still be worth living if we can’t have children of our own.

We claw for balance, serenity, perspective, and it’s a veneer only over so much shameful intensity. We glory in our roles as aunties of others children, come home feeling blessed to be trusted and embraced, remind each other it’s significant and meaningful and worth putting effort into. And cry as quietly as possible when we’re alone, trying not to be ungrateful. We try to protect each other from our anguish and find gulfs open between us that we have to work hard to bridge with something other than raw hurt.

The very worst of it – worse even than platitudes or instructions to worry less or being told it will happen if we’re really meant to be parents – like a divine benediction, like the gods blessing the ascension of kings – the worst of it is feeling so alone and ashamed by how incredibly hard it is, so disinclined to let anyone know because it seems crazy, and if we seem crazy maybe we shouldn’t be parents after all. The pain of longing reinterpreted to prove our lack of worth and fitness. We’re not so far into this that I can’t recall my own bafflement at ‘baby-crazy women’ and wonder why they can’t just live their life and let it happens if it happens. It so seemed like such needless fuss, such obsession, but on this side of the fence it’s the dream that drives you and it burns.

On bad days I’m glad of a negative pregnancy test because at least that means I won’t miscarry again, or break our hearts with a stillbirth, or lose an infant to an accident. I like to take risks where I feel I can survive them not working out and I’m beyond that place at the moment. I can’t bear the thought of another loss and I don’t know how I’ll find any contentment in the moment or belief that things can work out. I read of women who’ve suffered catastrophic losses and their stories leave me gasping for air, completely unable to fathom such grief. I reach out to Rose and she tells me we’ll take this one miscarriage at a time if we must and my throat closes over and I can’t breathe at all.

What helps is sitting in the night with Tamlorn’s ashes or going to stand by their tree. What helps is spending time with other people who have walked this road or walked roads like it and seeing that the trauma and pain and sense of being crazy and need to hide it are nearly universal. They are normal responses, not well understood by those who’ve not been there usually, but very much the norm, especially for those of us with losses, fertility issues, a donor, and a culture that can be harsh about queer parents. Our sense of fear and vulnerability and exposure is strong. Our need for swift blessings to show the benediction of the universe is much higher.

The pressure on us to be highly emotionally invested but at the same look calm, balanced, and even slightly indifferent, is high. We feel crazy counting days and tracking cycles and collecting clothes, and we’re aware we mustn’t look crazy because it’s only recently that queer parents were even allowed to live openly together, to both call ourselves mothers of our children, and that is still being argued in courts of public opinion that talk about deviance and harm to innocents. (homosexuality was only decriminalised 40 years ago in South Australia) We’re still being held accountable for other people bullying our kids because of us. We still get looks of revulsion when we walk hand in hand. And we are some of the luckiest queer women in the world!

We lost so much with Tam, far more than I realised at first. My cycle is still unpredictable, which apparently is common following a miscarriage. We can’t track it accurately at all – on one set of tests I apparently never ovulate or produce any hormone surges, on another I’m about to ovulate constantly – we gave up testing after 9 positive days in a row. My cycle is now a different length each month. We guess the relevant week and scatter insems through it and hope, and try not to think about it. I try to imagine a future where things work out okay, and I stop reading the anguish of the women in my miscarriage support group. Being pregnant was the most wonderful experience. Trying to get pregnant has been a kind of hell. Normally dreams sustain me and only hurt when they fail. This one cuts deep as you hold it, brings life and death unbearably close, gives me joy and takes my breath away with pain.

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White poppy

On Monday this one white poppy bloomed in the sea of red in our garden. Rose found some comfort in taking it as a token of Tam’s nearness. We talk back and forth to our garden, to Tam’s tree. It bloomed with a thousand blossoms, none of which set fruit. Red poppies in memorial, white poppies for peace. Today we’ll take flowers down to the ocean and set them in the water. (we hold hands like widows over graves)

Oh darling Tam. Do we mourn you or ourselves? You were loved every moment of your short life, we tell each other that. At times I think all the ills of the world could be righted if we could but love it and each other the way we loved Tam. In my minds eye I see myself as a bringer of death, my womb as a coffin, a portal through which souls come into the world to die, and there’s a stream of dead babies flowing away from me to the afterlife. My soul is twisted under the weight of knowing I’m not supposed to care this much, think this way, feel these things – and of not wanting to, either. Spare me the burning intensity, the clinging awareness, the cloying emotions. Spare me 3am and nameless dread. The stakes are high, the bets are placed, and each month the dice rattle in the cup like old bones; I wear a scarlet dress to hide the blood.

Darling Tam, who sometimes seems so close, when I close my eyes I can almost see us together in another world. You are nested between our bodies, fat and pink and milk-drunk, with eyelashes soft as moth wings. Our hearts are like ripe grapes on the vine after rain, overfilled and torn open. It’s a sweet pain.

Dearest Tam, tell my people that I love them. Love them fiercely from this side of the valley. Forgive us that we could not keep you here or hold you longer. Help our hearts tear open with love and heal again with the same love, every day. Happy birthday, darling unborn. I hope you are at peace. May we find some too.

I’m still alive

I’m still here.

It’s really hard to fit words to what has been going on.

Things have been really hard. Nothing feels like it makes any sense. Every day I feel like I’ve fallen off the planet. I work hard at it and most days things settle by nightfall. Whatever answers I think I’ve found, whatever peace or acceptance or path forwards, none of them persist into the next day. I fall off the planet again. Whatever worked yesterday or last week or last year doesn’t work today. Nothing makes sense to me. Everything has fragmented and I’m haunted by a terrifying nihilism.

I went camping. I’ve withdrawn from my online world. I eat, I cry, I write, I distract myself, I sit in the garden, walk the dog, cook, read, focus, talk it out, and clamp my mouth over the yawning darkness in me and sit meekly on the edge of the lives of people who are doing okay right now and kind of bask in their warmth. I remind myself that I’m loved, valued, okay, accepted, and deserve to find some peace. I try not to lean on anyone too hard. Other people try to help me feel something, they talk or listen or make suggestions or help me do things. Take me to the beach, or out for ice cream, or share lunch with me or just reach out. I’m being patient because it’s all I’ve got.

I’m not suicidal or starving or self harming or at risk in any of the conventional senses. I’m not sure what’s wrong. I’m anxious and depressed except not exactly. I’ve got ptsd sort of. I’m kind of grieving. I’m going through an existential crisis, possibly. It’s exhaustion, in a way. It’s regression, somewhat. I don’t know. Nothing exactly fits. All of the above. None of the above.

I’m still alive though. I’m having a really rough time. Crying until you throw up rough.

Most days I also find a place where I’m okay – just okay – or even really okay – contented, happy, settled, baffled. I slip into bed between my love and a cat and my skin is thrilled by the soft feel of the blanket and the warmth of cat and skin and I feel nested and safe and loved.

Every bit of perspective I garner is gone the next sleepless morning when nothing can settle me. My vulnerability is overwhelming. I am scared, confused, angry as hell, exhausted, frustrated, and I want my life back. I’m holding onto one college subject by my fingernails. I sold a beautiful painting and felt for the whole rest of the day that everything was going to be okay and I had a place in the world and things would work out. It’s like I’m living a kind of nightmare groundhog day. I spent savings on fuel to go camping because under the stars is my best psych hospital usually and it was great and it was horrible and I think it helped… I got home to sick pets and bad vet bills and sick Rose and I’m currently on antibiotics for a sinus and tooth infection and just had a root canal re-drilled and packed. The garden is glorious. My system feels like it’s been turned inside out and put back together by a 2 year old. Each day I make some sense of things that feel inherently senseless and find a way to live. Each new day I have to find another path. It’s not leaving me much time to actually live, achieve goals, be useful, get my dishes done, enjoy my life, or even connect with people I care about. Reading calms me down, as does watching movies. Both have clear narratives and they are soothing when I feel like I’m freefalling – things are cogent and march towards conclusions.

I’m determined something will change. I will process what I need to process, grieve what I need to grieve. I’ll let go of each tooth and find some humour in my bewildered sadness, let go of my grief about goals like having better health insurance, savings for tooth replacements, a good paying job. I’ll go hunting for more information and approaches to find something that helps. I’m not giving up – I’ve worked so very hard for this life and I want so much to BE here and be able to feel it and connect and be in it. I don’t know what’s gone wrong but I want to come home.

Looking for windows in dark places

Right this very moment in time, I am utterly content. It’s 5am and I’m still not asleep because sleep seems to reset the anxiety and I can’t get bear to let go of this moment just yet. I can breathe. I’m in bed, or rather, I’m on the couch in the loungeroom with Rose sleeping bedside me and the animals all around, because we thought a change of environment night help. It’s dark and quiet and beautiful.

The past 6 weeks or so have been hellish. Stuck in chronic distress all I’ve been able to do is look for windows of time when things are not so bleak and soak up what I can. Rose is on her way up I believe. Not back to her old self yet but certainly her windows of good time are getting bigger and lasting longer. And I think I am too, a bit slower and more bewildered, but starting to come out of it at times. A couple of nights ago Rose sent us to bed alone with journal and pen and candles lit and for several hours we were in no pain at all – gone, like turning off a tap. But that night in sleep it all returned.

Today I had a remarkable conversation with an acting student about the making of art and being centered. She was so grounded herself that just being in her company I felt myself calm and settle into some unreachable peace. When I went back to class the trembling nausea and catch in my throat returned, but the memory of that peace wasn’t entirely gone and all afternoon I cultivated it.

I’ve had the most wonderful evening I’ve had in weeks. Friends came over for dinner and hugs and games. The lovely lady who bought my first print left a beautiful comment on this blog and I felt a tiny flicker of warmth when I read it! Someone asked for a referral locally and I felt a tiny sense of looking forward to getting that professional support referral project up and running for my networks… The joy of that! To feel things again! To care about my work again!

When it’s gone it’s so terribly gone though. A couple of days ago I phoned my mother from bed, so distraught she cancelled her day and came straight over. I spent most of it crying. There’s been many days like that. I coax myself into housework and college and doing my best to function, and I sob inconsolably the rest of the time. Focusing, meditation, conscious breathing, journaling, warm baths, sitting in my garden, distractions, good company, and all the millions of other tools I have to manage tough times seem to do nothing.

Yet, in the presence of someone deeply calm, something in me calms, like a distraught child being taken by the hand and walked through all the dark and scary night back home where it’s safe, and realising on reflection that they weren’t so far lost after all. It’s infuriating. It’s wonderful.

I had a sense today that following my transformations this year, in some ways I’m exactly the same highly strung, passionate, intense persons I’ve always been. But in others I am totally different – approaches that used to nurture me now do nothing, while I find myself deeply moved by approaches that have always been useless to me. Something has changed, and I don’t know it or understand it very well yet. I have the sense of myself – my body and mind, as a new kind of instrument I don’t yet know how to play or care for, don’t yet know how to hear the warning signs of problems, or nurture to get the best music from. It’s been a harsh lesson, like leaving a guitar out in the rain! I’ll learn. I’ll do anything I have to do.

Right now I’m going to surrender to sleep, and try to accept with grace the possibility that tomorrow I’ll be a trembling overwhelmed shadow of myself again. I can feel the lump in my throat, the bite of nausea. It was real, I did find a window, and I will find more. I’m going away shortly, camping with my sister in the hopes that this time my night under the stars will be helpful and reset some of this anguish. I hope the dawn is near for me, I do. I am grateful to be reminded of the humbling sweetness of those who have very little being kind – how few of us who live privileged lives ever get to feel that? It flattens those hierarchies of important people so quickly, stings but only our pride. You can’t look at people the same way when last week you were so broken and they so kind. They become your equals, even your teachers and mentors. Always learning, always something to learn.

Wish me luck.

The red poppy

Yesterday, our first red poppy bloomed. There was a black summer storm and it was crushed and bowed by the weight of the rain. It hurt my heart to see it. Everything hurts my heart at the moment, I look at the world through the eyes of a mother who’s child has died and nothing I do changes that grief or reconciles me to it. I wake trembling with guilt and sorrow throughout the night, find myself grieving for people I have known, people I still know, even for dead characters I have loved in books. There’s no sense to it and I cannot stop it. Cannot catch my breath, except in small windows. I feel Leanne close most days and I know she is only a memory because we understand each other perfectly and never argue. I find I am briefly comforted by the thought that if there is some kind of peaceful afterlife, Leanne, and my Grandmother, and Amanda will take excellent care of our dead babies.

Each day I dress and eat and sit in the sun and go for walks and take myself to places where people are kind to me. I tremble in hugs and hold hands with people who try to help me feel loved and safe. I can’t, and they forgive me for it. I wash dishes each night and feel a small sense of pride, I am useful in some way, contributing in some way to my world. I can eat and I’m not caught in obsessions or strange cravings, I eat simple meals of fruit and bread and porridge and pasta and don’t wish for the comfort of indulgence. I’m near neither self harm nor suicide. I feel closer to the animals, oddly, a little more able to let them in and let myself feel something for them. Sometimes, patting a cat while weeping, or holding my dog with my face masked in tears I think to myself how little they are in the world and yet how much they mean to me, and I hold myself to that scale – so small in the world and yet without meaning to do or be anything at all – so important to those near me. Just by existing. It’s a small comfort.

Today the sun was golden and I wept on and off most of the day, feeling like I was locked out, just out of reach of a feast I could smell and see but not touch or taste. I wept because my life is so utterly beautiful, my beloved who reaches out to comfort me in her sleep, my beautiful home and lovely animals, my dear friends and loving tribe. I wept because I want it to be enough and I want to be at peace. I wept because the pregnancy tests were negative today and in a way I was almost relieved because I can’t believe the next baby will survive either. Today was full of weeping, and it doesn’t make me feel better or worse. I can’t find a bottom to the rabbit hole I’m in.

By evening, most days, I’ve found some calm. I can breathe. The catch in my throat has eased. The hole in my chest is not so intense. Sometime in the night, it all resets. It’s like living in groundhog day. It makes it hard to go to sleep, a little.

Today the sun was golden and I was surprised to walk past the poppies and find the one crushed yesterday and drowned on the pavement had dried out and lifted its head and was glowing with golden pollen. Not such a brief life after all. It was beautiful. One day soon, please let that be me.

Tam’s tree

If I’d been able to put something up here three days ago, I’d have said we were going okay. Rose held my hand through the stall at the Pregnancy Loss walkathon. It was just like old days, her stalwart, me skittish. Not many people were interested in the stalls, but I did sell one print.

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Two days ago I’d have said I think we’ve turned a corner. I let go of all my fears and plans and expectations and found some sense of ground beneath me, the present moment full of light and glory. For a couple of days I could breathe most of the time and coax Rose into doing things that helped us both feel more alive. I so wanted to write that post and share that news. We made each other laugh, even in flashbacks and darkness, and the darkness was less dark, less painful, less total.

Today, I couldn’t sleep for hours. I’d settle then startle awake to some concern, personal or existential. I deeply want to caretake my people and my networks but I’m too heartsick to do it. I can’t get back on my horse. I can’t be inspiring or hold hope or protect or save or make things better. I’m here, in the mud, too injured to climb back on my horse. Here in the mud, knowing that my life is beautiful, my tribe is beautiful, that I’m vomiting pain in a life I’ve worked so hard for and built so painstakingly. I’m peirced through by a sense of failure and loss and my own woundedness. My baby died. My love is hurting. My business runs at a loss. The word ‘recovery’ is like a spear in my side. I want to be riding my horse. I’m just going to lie here and hurt.

I know some of you are in the mud too. Broken dreams and hurting hearts. A memory of strength and energy and courage. And it’s so desolate and desperate. I know I’m not the only one and I’m not alone. Whatever your life looks like on the outside, you can choke on pain. Something inside screaming out for help and nothing you do calms it. Working hard to do things that might help, to shore up the river banks and sand bank the doorways against the sense of self hate and defeat.

The day with my art prints stall was very long. I took some art supplies and started a new oil painting. It’s Tam’s peach tree in bloom.

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Preparing to sell my giclee prints

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This was my rehearsal set up today – Rose and I are preparing for a stall at the Pregnancy Loss Australia walkathon tomorrow, where for the very first time I will be offering fine art prints of my work for sale.

I am anxious and would far rather hide home in bed.

We’re both feeling a little raw, pleased to be involved, inspired, but also vulnerable. Holding each other in tears in the kitchen.

Together we are stronger. We’re both working hard to use humour and everything else we know to help stop the bad hours spiralling into awful days.
I actually slept peacefully last night, for the first time in a long time. I dreamed deep dreams the meaning of which was a gift: that what I have to give to the world has never been much in the way of financial support. It’s always been about kindness and helping people feel more alive. And that’s mostly what my household needs at the moment anyway, so let go of the other ideas and focus on that.

I can see the sky again, can breathe again, for moments. The anxiety is still a herd of wild horses running, but I can steer a little, suggest a little, and today that was enough. Today was a pretty good day.

Tomorrow, because Rose believes in me, I’m going to sit in a tent on some grass with my art, and hope that other people will be kind to me too. Wish me luck.

Happy three years to Rose and I

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Sometimes you celebrate each other from the tops of mountains, when things are going your way and the whole world glows with possibility. The wells are full to over flowing, the larder is stocked, the roads are wide and smooth, the sun turns the world to gold. Love is easy, forgiveness is easy, kindness is easy. All things are in abundance.

Sometimes the path is narrow, twisted, bewildering, faltering into bogs and falling over cliffs.

I love her because even when I’m scared I’m not scared of her.

I love her because even when she hates herself she’s gentle and tender with me.
I love her because when we have very little, what we have she shares with me.

At night at the moment we both toss in the dark, dream-wracked and afraid. Sleeping in shifts between storms of tears, a broken voice crying out, the shudder of nightmares under skin. We bump along like two boats in black water and a moonless night, kissing hulls to be sure there’s someone still there. Over and over we turn to each other, hands reach like a bridge over the gulf, feet tangle like vines around each other, lips touch shoulders and we murmur soothing sounds or sing snatches of lullabies to each other. Stroking fevered faces, calming the hair back against arms, the arched back to rest again into soft bedding. “Love, love” we croon like doves, the inarticulate language of night; sharp cries like gulls, and the hushing of mothers half sleeping, voices a deep soft purr in the chest.

Adventures are tricky things. Reflected on from comfort, the sharp edges dull a little, the black nights turn pearl grey in memory. Here in the moment it’s stark with presence, bright as a papercut, a piece of glass in the shoe. It’s not called an adventure if everything turns out according to plan, if there’s no dark nights, no fears to conquer, no cost.

In the full glory of a spring day, sunlight on her bronze skin, her mouth open with laughter, her eyes full of light, she is beautiful. In the dark hours of the soul’s midnight, her body painted with pain, eyes closed against the burning memories, lips drawn back hard against teeth, she is beautiful. It’s a different kind of love that grows here, threadbare, harsher, there’s pain woven through it, and bone for strength.

She holds me in the shadows, sings peace to fall like rain down upon us both. I have seen the moon bright and full, and dark and empty. I know her in triumph and tragedy. There’s still love, in each place, the thing and the shadow of the thing. The rainbow and the rock beneath.

Places to rest

It’s 5am. I can’t sleep. I have terrible vertigo and hives all over my body. I’ve been reading blog posts by Jenny Lawson and Will Wheaton about depression and anxiety and I’m curled up in tears and feeling less crushing alone in my black pit than I have in days. I’m really, really tired. I’ve been trying so hard to find a way through this godawful smog in my head, looking for hope like a starving person, doing my best to counter the black rain of failure and despair, yearning with everything in me to be able to feel the kindness and love people are giving me. Sometimes I can, for an hour or two. Often I can’t. I want to so badly, I do everything I can to hear and receive and take in and believe, but I’m on the other side of a wall. I don’t mean to be. I don’t want to be. I promise I’m trying, but it’s bigger than me. All the want in the world isn’t making it go away.

Reading tears in rain by Will Wheaton, I felt a sense of relief. That feeling like a failure and being a failure are not the same thing. That people who have successful careers also feel the crushing insecurity I’m struggling with. I’ve collected my box of art prints for the walkathon on Sunday and I think they’re beautiful, and at the same time there’s a kind of violent rejection of them, bile in my throat, fury and exposure and loathing and a desire to destroy them, to burn down all the tiny dreams that are still breaking my heart, still leaving me vulnerable to this feeling of failure, this sense of not ever being good enough. Quivering with distress I step back from them and try to breathe.

Yesterday morning I had terrible vertigo, I was crying out and holding onto the bed because the room was flipping around me like a car being tumbled down a cliff. Rose got me a vomit bag and cold water to sip, then held me tight and sang to be until I went back to sleep.

Last night I filled her water bottle and got her a vomit bag when the flashbacks got bad, held her close and sang to her until she fell asleep. Nights are hardest for her, mornings for me. We’re limping along together. How much I love her.

Two days ago we took a friends kids to the show together and it was a beautiful day, all day. We spent the whole day on toddler time, moving gently, lots of rest, lots of snacks. We got stuck with a half hour wait for the train at the end of the night and each took a girl to sing her to sleep. Rose with the 7 year old cuddled up and dozing under her arm, me with the little one in a sling pacing slowly around them. Each of us looking at the other with stars in our eyes. A quiet place, in the night between trains. No panic attacks and hardly any flashbacks that day.

I can’t beat it from inside. I watch for the windows when it’s less and do what I can then, take in what I can. I’m so tired, and so tired of feeling guilty and responsible. It’s a bit of cruel joke to feel so awful and feel worse about failing to stop myself feeling so awful. I don’t think I’m going to make this better, just breathe inside it, don’t destroy anything, and wait to heal. I’ll bloom again.

It’s not my fault, right? I don’t think it’s my fault. I didn’t mean it. I’d stop if I could. I’d make it all better if I could. I’m trying. And trying to find places I can rest from all the trying.

Trying to find my bearings again

Rose and myself have been trying to gently turn things around on our little street. There’s such embedded hostility here, fights and stupid feuds and all kinds of heartache. One of our neighbours who’s been hard to live with in the past suffered a terrible loss a couple of months ago, when a guest of a neighbour ran over her cat. At the time I offered Sarsaparilla to her as he’d taken a shine to her. The relationship took and they’ve become close friends. He sleeps on her bed most nights, and she dotes on him. He’s sleek and happy. She’s arranged pet insurance for him and he never comes into our house any more. Sometimes when I’m in the front garden he comes over for a scratch under the chin. I miss him a little, but he’s happy, and she loves him.

The neighbour who stabbed another neighbour has not faced jail time. The victim of the crime is being blamed for being hard to live with and causing trouble. Her garden was kicked over and un-potted the other day. I waited to see her for a week and when she didn’t appear, went round there and straightened it up as best I could.

Another neighbour is struggling with arthritis in her hands so Rose and I have cleared some weeds for her and planted out some lilies and geraniums as low maintenance colour. Half the time we spent with any neighbour we are trying to gently discourage them from tearing each other down.

I’m glad my little black jellybean is going well. Today I managed to settle enough of my stress to write some thankyou cards I’ve been wanting to put together for a couple of months. I’m trying to wrap my head around the idea of community that we give and receive with grace and gratitude. That it’s all part of a circle. I feel anxious and undeserving and confused.

People have been kind, which is exactly what I need right now. I’m not suicidal or feeling like self harming, I’m just in overwhelming stress. I’m struggling to think straight, follow writing like books or emails, remember what I was trying to do. I’m noticing my own trauma responses – I’m hypersensitive, startle easily, and feel anxious and insecure much of the time. A kind of cringe, a catch in my throat, total inability to look at my ‘to do’ list. The early morning waking is breaking my sleep – I woke Rose by crying out her name this morning when I startled from a dream in which she’d died. Poor love. All morning, everyone kept dying in my dreams and I’d wake in dread. At least I’ve stopped feeling like I am dying, that was especially hard.

A friend called today and told me my job tomorrow was to be daft and make 47 mistakes. I can do that! I said. Being patient with my incapacity. Remembering it will pass. My lovely sister trying to help me feel some sense of being an okay person, how I’ve helped her and that I haven’t wasted my life or failed or been useless, that accepting help from others is not manipulative or greedy or asking too much. I can remember feeling it, remember that glow of inner contentment.

I miss working for money and having a sense of dignity in my role and feeling that I was providing for my family, and the tangibility of all that compared to sitting up late with Rose through a flashback or waking her up early with my own dread and anxiety. I miss more than anything just feeling okay with myself instead of afraid all the time.

I’ve lost my bearings and I remember how much more fun life is with them! I can’t wait to get them back. There’s so many wonderful things waiting for me. So many wonderful people I can’t wait to see clearly again, to have them morph back from the scary, intimidating overlords who are disappointed in me, and back into my own daft, lovely, imperfect friends and colleagues. I can’t wait to feel like I can breathe again and that there isn’t a hole punched in my gut or a hand around my throat or a forest of dark violent trees with razor sharp limbs in my chest. I can smell it, almost. A place where my body rests when I lie down instead of lying rigid on the mattress, where sleep restores me instead of opening all the cages of my terrors and letting them out to destroy my inner world.

Poor lovely Rose and I, all jangled and afraid. I can see how we’ve needed others to soothe us. I felt so inadequate that I couldn’t stop her flashbacks or even make them bearable. I felt like a failure, like my work in trauma had been proved false and useless, that I was making claims about my ability and ideas that turned out to be hollow. Everything I thought I knew and every skill I thought I had being turned on its head. I have an image of a bird being startled from the cage of my chest and flying in panic about the ceiling. It’s not come home yet but I can feel it closer. What other people are doing to help isn’t something special I hadn’t thought of, it’s just that holding on, telling us things will be okay, that we’re okay, that we’ll make it, that we’re loved. I think maybe we both got a very big scare and it was just too much to make it through alone or even together – we’ve needed friends and therapists and books and mentors and our tribe. We’re not above it, not special, not better, not ‘recovered’ in all the wrong senses of that word. We’re human and vulnerable too, and thankfully not alone. We’re not independent of our tribe, not ministering to them from some lofty position of comfort and security, but living in the real world of light and shadow too, where the dark days are sometimes very dark, where sometimes you have to stop everything and just breathe again.

We’re still having windows of better times, sometimes even whole hours or longer. We’re both looking for those moments where all the impossible things feel a little more possible and doing them then – showering, eating, sleeping, sex, alone time, time with others, housework, admin. Just keeping things ticking along as best we can and staying as connected with others as we can, and enjoying the good moments and weathering the bad. I guess, like shock, if we can cushion it enough it will wear off. I’m stuck by how traumatising trauma reactions are, often far more so than the trauma itself. It will get better again, I will feel competent and like I have skin and a brain instead of raw flesh and a swamp that’s on fire. There will be time to write all the draft posts I have about topics that are more than updates, and my projects will call my name and sing to me and make my heart thrill again. I can’t wait.

Blossom

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Tamlorn’s peach tree bloomed today. We hung the crystal from a stand with a wind chime and in the afternoon, it casts rainbows through the garden and the kitchen.

Today has been hard, flashbacks and anxiety, but full of love from people around us, and animal cuddles. We’ll get through this.

My first gilded prints

The sun is out, the garden is in bloom. Birds are singing and someone is running a bench saw nearby. My lovely lady is rearranging the baby clothes collection. We’ve got up early and arranged for scans and prints of a number of my artworks to display and possibly even sell at the Pregnancy Loss Australia Walkathon next Sunday.

I’m currently working on creating certificates of authenticity for my two beautiful framed, hand embellished giclee print reproductions. I’ve gilded both with 23 karat gold and they look incredibly lovely. This one is going to a new home this month. I’m planning to open an Etsy store and link it to this blog in a few weeks.

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And my love and I are trying to conceive. Adenomyosis is making things very hard for me and will only get worse the longer I’m off hormones – it’s been 9 months now. If circumstances were different we might wait a few months for things to settle here, but they are what they are and we have closing windows of opportunity, and big broken hearts full of love. August is done and left behind us and may September smile more sweetly on us.

Jude Blooms

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Jude, the rose that Rose and I bought on the day of our engagement, has bloomed. He’s so beautiful.

We’re still here. It’s been a long week. I think the downward spiral has arrested. We spent Wednesday night in the ER because Rose was suffering chest pain – almost certainly muscle strain because of her extremely painful flashbacks, but you can never be too careful with sudden chest pain so in we went and they kept us all night doing tests. She got the all clear at 7am. I slept for a couple of hours in the van out the front of the hospital while she napped in a dark corner of the ward.

We’re breaking the new, devastating patterns, with help. Rose has a new trauma therapist on board, I’ve been reading up on Focusing and holding onto my people’s belief in me as a decent person. There are still very hard hours in every day, but at no point in the past two days did I feel like I was dying. I managed a full day of college today, and started a new oil painting tonight, despite some pretty intense anxiety and stress. Art as business is not doing kind things to my head. Last night I went for a late night walk with Zoe and found the world shifted and poetry came back to me.

Dropping the ball like this means a juggling act to keep up with those responsibilities I haven’t dropped. I’ve got major preparation work to do for a stall in a week and I’m worried about it. I am still giving talks here and there – they’re stressful but also like small lifelines for me currently – feeling of use is the strongest antidote to feeling like I’m dying.

We’re limping on together. When she’s happy, she shines. I love her to bits.