Holding my childhood to ransom turns 2!

Wow, I’ve just noticed that it was the 2 year anniversary of this blog yesterday! I’ve so far published 684 blog posts, and had 137,500 page views. I currently average about 8,000 page views a month.I’ve become a lot more erratic about publishing this year, I used to be a reliable, publish every day blogger, but my life got more complicated, more people are in it who I don’t want to expose in my blog, and I’ve had less time to think carefully and edit ‘opinion pieces’ about mental health and suchlike so I’ve slowed down a lot. This kind of frustrates me, but it’s just how things are at the moment. I’m thinking about how I want things to be here for the next year.

My most popular ever posts (in order) are:

The most common search keywords that bring people to my blog are about dissociative identity disorder, self harm, and suicide. My primary audience is people in the US, followed by those here in Australia, followed by the UK.

It all started with this post What am I up to at the moment? as I intended basically to share the development of my art projects such as my first pair of painted shoes called Happy Shoes. Within a few days I’d realised that I could use the blog to share mental health information. Bridges, the peer-led support group I help run for people with dissociation and/or multiplicity, started at the same time as this blog, so I started sharing the topics I’d developed to discuss in the group on this blog. The first one was on Managing Triggers. At the time I was a full time carer for a family member who was suffering from severe ‘mental illness’ and chronically suicidal. I chronicled my hospital visits on this blog in posts such as Planning new shoes, and then later shared my thoughts about being a carer with posts like Caring for someone who’s suicidal.

I lost my rat Pippi, my dog Charlie, and my cat Loki. I lost my foster cat Abbie, and fostered until their adoption Cleo and Tiger. I got my dog Zoe, my cat Sarsaparilla, and my kitten Tonks.

I was allocated a unit through Housing SA. I came out as multiple and bisexual and shared my early experiences connecting with other queer people. I reflected on the blog turning one. Bridges celebrated it’s first birthday with a Mad Hatter Tea Party. I started dating online. I fell in love.

I developed the logo for the Dissociative Initiative, helped write the constitution and founded the board. I shared my personal library of mental health books. I started getting angry about the lack of conversations about sex and mental illness. I started writing a series of posts about emotionally safer sex.

I spoke with the Prime Minister, at Parliament House, read poetry in Broken Hill, exhibited a poem for the Ekphrastic Exhibit, had a paper about managing dissociative experiences published, and put on my first solo art exhibition. I gave talks about Creativity and Mental Health, about Recovery to Tafe students, about DID at Mifsa, and about Voices and Dissociation at the Voices Conference in Victoria and others.

I started a degree in Visual Arts, finished a Cert IV in Mental Health Peer Work, a Cert III in Microbusiness Operations, and part of a Cert III in Media, as well as a number of short courses.

I facilitated The Gap for same-sex attracted women aged 18 – 40, Blue Skies for people with food and/or body issues, Sound Minds for people who hear voices, Bridges, and several online groups.

I shared quick tips for bloggers and suggestions about starting your own blog and reflected on the process in blogging is strange, and why bother blogging. I started face painting, and then turned it into a business. I met my beautiful god-daughter Sophie. I baked airplane cupcakes. I turned 30. I struggled with depression and found my way through. I got sick often and then got better.

I shared a lot of art, my journey at college, wrist poems, mental health articles, and poetry. The ‘voice’ of the blog changed over time as who in my system was writing changed.

It’s been an interesting and productive couple of years! I wonder where I’ll be by year 3? Thanks for reading, commenting, sharing, and walking it with me. xxx

A Day at the Beach

Today kind of sucked, fibro pain levels were bad, I didn’t get enough sleep, and Rose is all tied up with night shifts on the weekends at the moment and we’re missing her. So my sister and Zoe and I went off to the beach. It was really nice. My admin is still terrifying since I’ve been sick so much this year and I’m really behind. Some days I’m making good progress with it, other days if I even look at my to do list I’m going to spontaneously combust. Today was the latter. So we hung around down at the back with capsicum dip and a block of chocolate. 

I was feeling a bit bad lately about how I’m posting up photos of Tonks but so few of Zoe or Sars lately. Then I remembered that Sars visits for about 1/2hr a day total (3 ten min visits generally to eat) and Zoe is bloody difficult to capture on film, even with the sports/action mode. I took about 50 photos today to get a few good ones of her, and that was with my sister holding her on the lead! Here’s a small sampling of what my usual efforts to photograph her look like:

Now I’m going to think about dinner and putting colours in my hair. 

Hair

After a couple of rocky days today has been mostly better. My system is settling down a bit, Rose and I spent a bit of time apart because we’d got into a spiral where we were setting each other off badly with trauma stuff… a lot of the time we can take turns who does the caring and who does the crashing but sometimes we’re not in sync and we’re spiraling. It was good to reconnect. My sister came over too so we took the day off and did our hair at home together. I’ve done a basic hair cutting course at the WEA a couple of years ago, and plenty of home bleach and dye jobs over the years. So I did a cut and colour for them both, and for me I’ve done a bit of a basic trim on my own and shaved off both sides over my ears. Then we’ve bleached the middle strip of long hair. Tomorrow I’ll throw some colours through it. So far it looks like this:

Happy to have it alternative again. Just taking things gently at the moment. Grieving a dead friendship and a bit stirred up, in a vulnerable kind of space. For now though, bed and Bradbury and poetry and sleep… if I’m lucky, strange dreams where the world is entirely different and I forget who I am for a little while.

Retail Therapy

I had a hard day yesterday, so I bought myself a present. This little guy had been hanging around the chemist for a couple of months, and it’s hard to go past a rainbow dinosaur on a rough day. I didn’t even try.

Back In The Saddle

Still alive, sorry about the radio silence. I got back on my feet just in time to hit the school holidays and I’ve been flat out painting at the local zoos. It’s been frustratingly quiet on the wet days but overall I’m happy. I’ve honed my skills, made some great contacts, painted lots of faces on the sunny days, fitted out my kit to offer glitter tattoos, given out lots of business cards, and uploaded loads of wonderful photos. Happy camper. 🙂 Also very happy to be having a much quieter week now as I’m seriously behind on the admin that’s banked up while I’ve been ill. There’s a lot! I’ve been working on some basic housework as well as essential business stuff which is time consuming but frankly, rather fun. (the business stuff, not the housework) I love my job!

I’ve made the call that with my health the way it has been this year and the demands of this business, I’ll leave the awesome Queer Women’s Support Worker job alone… which is sad. But also feels right. I think if I had to drop the face painting or the queer support job, in a few years time it’s the face painting that I’d be thinking of wistfully and regretting passing up on.

I’m making a lot of plans for the future which is wonderful. Hopes and dreams abound. I’m writing poetry again. I feel… full of life. Anxious too… dreams are scary. They make you take risks, and the thing about risks is that sometimes you fall.

But for now, there’s no falling. There’s hope and hard work and plans and new skills.
image

Writing at my favourite cafe after a counselling appointment yesterday.

Face paint and kittens

I’ve been busy painting at zoos and working on my paint kit and website lately. The business is going well, particularly considering that winter is the quiet time for this kind of work. I think I’m going to be very busy with it this summer! There’s a 2 days a week job that I’ve been keeping an eye on for ages and now I have to decide whether to go for it or not… it’s a hard call! The job is working as the women’s worker supporting newly identifying GLBTIQ people… pretty much my dream job… but I’m very busy also getting a new very exciting small business off the ground, and I have a lot of art projects I’m keen to sink my teeth into soon. Hrummmmm.

I keep thinking about Neil Gaimon’s advice in an awesome speech he gave (here) about how to reach your dreams – to treat your big dream (like, say, I want to be a professional artist) as a mountain you’re heading towards. Every time you have to make a career or life decision, you ask yourself if the choice in front of you is taking you closer towards, or further away from, your mountain. I think one of my challenges is that I currently have about 20 mountains… which is awesome… but does make decisions like this difficult.

So, thinking for now, and working on the People Painting business. I’ve revamped the website, updated photos, rewritten my rates information page, and added a whole new page for party theme ideas! I’m pretty damn proud of myself and have a lot more ideas buzzing about my brain. Actually I’ve been either buzzing or asleep lately, somewhere between exuberant and slightly manic. It’s fun but also a little wearing.

I painted at the Adelaide Zoo the other day, with a price set for me of $3.50 per face. That’s very low, and meant I needed to create a host of simpler designs that could be painted more quickly. I was a bit stressed about it but also kind of enjoyed the challenge. I wound up painting the most amazing collection of neon rainbow animals… the panda in particular looked incredible!

It’s a beautiful day out there… and I  have so much admin and so many errands to run. But I’ve had only one hours’ sleep and I’m fading fast, so I think I’m going to leave it all behind and go and hide out in bed. I’ll leave with one last photo of kitteny goodness. 🙂

Oh, all right, a bunch of photos then… Tonks is going great. His sister, who has been named Kiki, comes over for a visit regularly and they have a great time chasing each other around the unit. Here he is last night, exploring the awesome new cat tree Rose has let me borrow. 🙂 Zoe is doing much better now I’ve been able to get her to the dog park for a good run a couple of times. She’s still restless but it’s taken the edge off. Sarsaparilla is fighting every cat in the neighbourhood and constantly coming home wounded. I’m desperate to put together a cat run to keep him in. He hates being trapped in the house and cries at the door for hours, and then seriously gets destructive. Hopefully I can pull that off for him soon.

I’m Back

And things are happening! I made it to the Pink concert, courtesy entirely of Rose who almost had to carry me there. It was awesome and brilliant and hugely fun. I want a wire thingy in my house to zip around on.
My health started to improve just in time to pull off a day off work at Monarto Zoo, cleared of being a contagious risk but still exhausted, so Rose kindly drove me there and back. It was a quiet day due to wet weather but I was so happy to be back in the saddle.
Friends have been very kind in bringing me soup and tissues and helping run vital errands for me which has made all the difference in the world, especially when I’ve been feeling so lonely and missing out on so many wonderful things… Like my college classes. Term finished last week and I’m going to fail my classes as I simply couldn’t get there for weeks. 😦 I’ve been worried that the depression would return but it seems not, which is brilliant and a little surprising. 🙂 I have a lot more days of work lined up over the next few weeks and I’m determined to make it to all of them. I’ve been working more on my kit and business stuff, my new lovely ‘aftercare’ cards for the face paints have now arrived!
The business is going well and I’m still very excited and inspired by it.

My sister has arrived home from a 5 year stint overseas, and I’ve been almost hysterical with excitement. We’re close friends and I’ve missed her terribly. We’ve had a great time hanging out this week and she’s got to meet Rose and Tonks and Zoe and some of my other friends. We also kept our arrangement to go out clubbing last weekend despite her being jetlagged and exhausted and me being really rather unwell still… We dressed up and went off to a trash glitter themed night at the local goth club.
I’m continuing to practice applying face paints on myself in the mirror and I’m not bad at it!
I restrained myself to dancing to five songs only and having only one drink, and enjoyed listening to the music and taking some surprisingly good photos with my phone camera.
It was an awesome night. 🙂

Health wise I’m continuing to improve! Most of the infections have cleared up and I’ve finished the antibiotics at last. The fibro is still really rough and the jaw pain likewise. I have physio and dental appointments lined up soon, which will help and make it worse respectively. I’m still very, very tired and prone to weakness and dizziness so I’m still not driving yet. I’m hopeful and being patient. More difficult is my sleeping, I’ve become completely nocturnal, not getting to sleep until between 6 – 8am. I’ve been unable to shift the pattern which is giving me some grief, particularly when I’m getting up at 8 to go face paint for 5 or so hours. 😦 I’m not having much success at napping either so I’m struggling with sleep deprivation.

Psychologically I’m going pretty well. The sense of excitement and creativity and optimism about my business, relationships and future is really high considering the rough couple of months I’ve had. I’ve missed a lot of shrink appointments and I’m keen to go and talk again, but there’s no sense of crisis. My brain is pretty busy, ticking over a mile a minute, I’m writing again and coming up with creative ideas and things I want to do when I’m a little better… There’s still a sense of freedom and joy inside which is kind of amazing.

Zoe has had a rough month with very few walks. She’s been destructive and whining and barking and generally driving me mad but I know she just needs a walk and I’ve been really good at being able to keep my cool. I’ve booked her for a full day of doggy day care this week as a treat. Sars is fighting every cat in the neighbourhood and constantly coming home with scars and fur missing and sometimes a nasty wound gone ick. I’m really keen to get him settled in a cat run while he still has both his ears! Tonks is going great, his little sister cat visits with my sister often, which he loves. He’s very spoilt by me, Rose, and my friends, one of whom is his godmother and brings gifts and plays with him. 🙂 He’s sweet and adventurous and usually sleeps on my knees or curled up on my pillow.
So, you’re up to date now I reckon. I’m buzzing with art project ideas and looking forward to rearranging the house and enjoying the face painting gigs and patiently getting better. Hurrah for that.

The Convalescence

I’m still awfully sick, but I think I’ve hit the bottom and started to come up. I’m having some difficulty processing the meds so I’ve cut them back to the basic essentials. There’s been a fun evening of mania/weird meds high which is admittedly better than abject misery but as it usually indicates major liver stress it’s important to ease that before less fun symptoms, like half my skin falling off, show up. The upshot of this is I’m less giggly than I was last night but the pain level is a fair bit higher than I like. The throat and kidney infections seem to be improving, the chest infection is persistent but not degenerating into pneumonia, which is great. I’ve got an orchestra of bells, whistles, rattles, and wheezes in my lungs but I don’t feel like I’m drowning all the time. The fluid and pressure in my ears is still causing me troubles and wrecking my balance and sense of space. So no driving. In fact, still not a lot of walking. I’m prone to random collapses when the room suddenly flips upside on me. Mood wise I’m erratic, happy one moment and sobbing my heart out the next. I hate being sick! I’m dogged by a sense of misery and failure. Today is supposed to be my final class of Photography at college – I need to call them as I only managed to actually make it to two lessons and certainly can’t catch that all up now. 😦

Ah well. Tonks is delightful, the abscess on Sarsaparilla’s ear has healed up, saving me a vet trip thankfully. Salt water washes and betaine did their job. Zoe is miserably cooped up without her regular walk. Friends have been helping out with meals and chores as they can. Rose helped me find and clean the large puddle of kitten pee from behind the couch. I’m sleeping okay, just not at night. It could be worse!

I’m planning projects for when I feel better – I want to finish planting out all my new little seedlings, hopefully before they die. I’m terribly excited about my sister coming home from her 5 year stay overseas – she’s in the air as I type tonight! I’m planning a re arrange of my house with quite a major reshuffle of my sleep area. I currently have a queensize bed tucked into the small bedroom of my unit. It just fits by being pushed right against the wall on three sides. This has been okay-ish, but I’ve had enough of it. Rose is doing night shifts with her new job, I’m noctural and ill and spending a lot of time in bed, it’s a pain to make it when you can’t walk around it, whoever sleeps against the wall has to climb over the other person to get in or out… and more importantly sometimes the sense of being trapped is just too stressful for either of us to be comfortable in that spot. There’s been a couple of memorable rough nights with screaming nightmares and totally disorientated wakeups that I’m pretty keen not to repeat. We do have the lounge as a backup place to sleep for those nights that trauma stuff or multiplicity stuff makes sleeping in the same bed a bad option, but it’s not our preferred option and some nights we’d like to be in the same bed, we just need to both be able to easily get in and out to be comfortable. It’s worth the upheaval to me to be able to accommodate this kind of deep seated trauma stress.

So, tonight I was roaming my unit with a tape measure, trying to work out where else I could fit my bed. As it turns out, not many places. The master bedroom or the loungeroom are my only options. I’m loathe to pull my studio space in the master bedroom apart, but the lounge presents issues of its own. I’m thinking at this point that I may separate my studio into a couple of different parts and that way be able to move it into different areas. There’s the storage aspect – big shelves of boxes of supplies – I don’t need these to be immediately to hand. It’s sufficient to go and grab the box of supplies for that project at any time. I wish they could go in the shed but unfortunately, it’s not very large, not tall enough to fit the shelves, and most importantly, not waterproof and prone to flooding in winter. Then there’s my ‘wet’ table and big easel – these are for my paints and other wet messy types of art such as gluing or plaster or polymer clay work. Lastly there’s my ‘dry’ table. This is for everything where a perfectly dry, smooth surface on the table is essential, such as ink paintings, and needlework. I’m thinking that the inks for my arts and my journals could all be put together in the bedroom space as I usually do a lot of writing in bed and sketch with inks in my notebooks likewise. It’s a space for poetry and haiga and ink art and wrist poems. Then perhaps the wet art could happen in another area of the house… I’m somewhat tempted to pull all my collection of bookshelves into the small bedroom and turn that into a library/cat tree/nook. It’s got terrible light as the shed blocks the window so it’s not suitable as an art space at all. I do love light and windows, and I’m keen to use mine to their best. I’d love a spot to eat breakfast by a window (in bed is fine!), and a place for art by a window with good light.

Lastly, I need to move my computer area from the nook behind my front door. This is the draughty-est place in my home and I spend too many hours here in the wee morning hours, chilling. Fixing the draught isn’t easy due to unusual design of the door and I’m restless for a change anyway so I’m looking around. Perhaps a computer/library room? It’s fun to plan, even though at the moment the walk to the sink to refill my water bottle is as much as I can manage. Thankfully I still have library books, and a kitten is a constant source of either cuddles or diversion. Life goes on.

Terribly Sick

My health has crashed. My doctor reckons a virus has knocked out my immune system, so I have a host of secondary bacterial infections kicking me in the head. I’m battling bronchitis, laryngitis, and sinusitis, two ear infections, fluid behind my ear drums, one of which is threatening to rupture, and the start of a kidney infection. My fibro is bad with constant pain, and both TMJ (joints in my jaw) have inflamed badly causing pain and limiting my ability to chew food. I am so, so miserable.

I can’t drive, the bronchitis is contagious so I can’t have human company, and life is not currently worth living. There’s major stress or illness for many of my friends this week, which is distressing me. I feel useless, disconnected, lonely, self hating, and overwhelmed.

Zoe is bored and miserable. Left outdoors she is barking and whining incessantly. Indoors she is destroying anything in her reach, including her dog harness. I’m so exhausted. Maybe I shouldn’t own a dog, it’s so hard when I’m sick.

Sarsaparilla has an ear abscess which I’m cleaning with salt water and betadine, but it’s getting worse so I’m trying to find a way to get him to the vet. Finances are painfully tight, I’m having to cancel work which is distressing and awful and I’m trying to cover bills and still afford meds and food.

I’m on steroids, antibiotics, vitamins and whatnot. Hopefully they’ll work fast and well because this is hell.

Play

I have a kitten, and a chest infection. Life is awesome, and it sucks. I’m sleeping in my armchair tonight because I’m in danger of drowning when I lie down. Somehow I’ve graduated from breathing air to a mix of razor blades and wall paper paste. I’m mostly doing ok except for moments when I run out of patience with all this and curl into a small ball to cry. Rose took Zoe and myself to the dog park this afternoon (trying to make sure the pre – existing pets don’t feel left out) where a great dane harassed her. He’d flip get onto her back and nip at her stomach, growling. It didn’t get real bad but she was stressed so we put the lead back on her to maintain some level of control in splitting them up. She was snarling and unhappy with hackles up, ears back, and tail tucked tightly between her legs. The owner of the dane was ignoring it. Frustratingly the folks there harassed us instead of helping out. Several told us off for having her on the lead and one tried to tell us the lead was the problem. Felt painfully visible as a ‘gay couple’. Zoe was interacting fine with all the other dogs but it wasn’t playful with the dane. We left and walked her in a park on lead instead, then took her to another dog park we hadn’t tried before. That went well, when a couple of the dogs got a bit stressed with each other, both owners split them up and put them back on leads for a few minutes until they were settled and distracted. Then they played fine. I think we’ll be going back there instead. This is what most of my attempts to get a photo of Zoe at a dog park look like:It’s startling how vulnerable I felt at the first dog park tonight, that sense once again that I live in a bubble where it is normal to be gay, mentally ill, disabled… And outside that bubble are people who don’t like it, accept it, understand it, and wouldn’t protect me. Some of whom would hurt me.

Dog parks are a mixed deal. To let Zoe run off lead and pay with other dogs is a joy! Nothing in the world makes her happier. But things go wrong too. There’s a lot of dogs who don’t know each other running around. Some people bring intact dogs and bitches in heat to parks. Some people just let the dogs go and do no supervising. Occasionally things get out of hand and sometimes dogs get hurt.

I’m watchful with Zoe, she’s a boufy bouncy pup still and can scare little dogs. If she’s playing roughly I put her back on a lead, so the smaller dog can run up to her to pay, and get away from her easily if it’s getting overwhelmed. It’s worked well so far and she’s been great. This dane is a big dominating dog who picks one dog out of the park to chase down, and will continue even if the other dog gets really stressed. I’ve watched it bowl a dog over to chew playfully on its ears for an hour until the other dog was really unhappy. I’ve seen it bail a stressed dog up on the table where the smaller dog has hackles up, is snarling, barking, and whining. It’s play for him, if he wanted to hurt them they’d be hurt. But if it’s not play for other dog anymore, it’s not play. It’s not fun, it’s not okay. At some point a stressed smaller dog will really bite him, and then things will go downhill badly. My job is to keep Zoe out of that kind of situation. It was kind of scary to have a whole group of dog owners there who didn’t get that.

Makes me think how often we’re still trying to get that message across in so many different areas of human life – play is only play when both parties are having fun. If only one of you is having fun we call it other things.

Introducing Tonks

Rose and I have celebrated our 9 1/2 months together by getting a kitten. =) Meet Tonks! He’s going to live at my place. 

 He’s 8 weeks old, and kittenish. Playful, adventurous, gets through surprisingly small holes, and sleeps a lot. We’re using his cat carrier as a bed which he loves.

I am shattered today after an awesome night out celebrating a friends birthday. I expect to be worse the wear for a few days yet, but it was absolutely worth it! Today had been planned as ‘kitten day’ however, and fibro pain/hangover was not going to get in the way of that.

 This is his favourite toy mouse.

Sarsaparilla is less than impressed at the moment. The kitten has been contained in the lounge so Sars has the dining room, kitchen, laundry, studio and bedroom spaces just for him. Nevertheless he feels quite encroached upon so I’ve taken all the photos and books down from the top of the bookcases to give him a place in the lounge-room to sit and stare daggers at the interloper.

Zoe is mad with excitement and is taking a lot of energy. Rose and I are taking turns – one of us babysits the kitten, the other sits with Zoe. She is being kept in her pen with her bed and toys, and treated whenever she settles. The high pitched excited whining she’s been doing for most of the evening is not making a restful night’s sleep particularly likely. o.O Here’s hoping.

Life is good again

I’ve turned a huge corner with the depression, finally. I wake up feeling excited about life again. 🙂 I’m happily obsessed with my face painting business, enjoying many creative projects, and coping a lot better with the chronic pain. There’s still a lot of hours or even days in bed while the fibro is so severe, but my headspace is so much better it’s manageable. I’m even planning to adopt a kitten with Rose. 🙂 I’m missing out on a lot of art college, which is frustrating, but hopefully next semester I can re evaluate it all. For now – things are good. There are pansies blooming in my garden, a kitten coming home soon, time to hang out with friends… I’m able to keep on top of jobs about the house with the extra time at home, and doing lots of thinking and journaling to make sense of things. I’m fragile and being careful, but things are going well. 🙂

Celebrations

Today I went to my doctor to follow up on some enquiries we’ve been doing this year. She told me that, despite having endometriosis (a painful condition often compromising fertility) all the signs are very positive that my fertility is good and if I want to try for a baby I have a comfortable 5 year window in which to do so. There are few words for this feeling. I had previously been given a ‘start trying by 30 or forget it’ window. (I turned 30 recently)

On the way home, to celebrate I stopped by Bunnings and bought flowers for my garden. Purple pansies, stock, foxgloves, poppies, all my favourites. They are useless, they offer no shade, you can’t eat them (mostly), but they make me smile. I’m so happy.

Letting go

I’ve had a surprisingly okay… even going hesitantly to day ‘good’… couple of days. Yesterday, I went off to counselling appointment on about 3 hours sleep and no breakfast. Wound up switching appointments with someone in need and so found myself there a couple of hours early. I sat in the library and read some interesting books. One on the relationship between being queer and depression, which was a welcome counterpoint to the ‘I came out and all my problems went away’ common narrative that’s been dogging me a bit lately. The other I’ve borrowed to digest more slowly; a book on narrative therapy that spoke deeply to me. I’ve been playing over the past couple of days with completely reframing my situation. Recently I thought about my common belief – things are chaotic so I must be doing something wrong. I found myself wondering if in fact I am I doing everything ‘right’ in a difficult situation. The thought has stayed with me.

After the session I treated myself to a large chai latte and a sandwich at my favourite nearby cafe. With some filched scrap paper and a pen I caught at the thoughts swirling around inside me and sketched ideas of what might be going on with me, why I’m sick again, what I need to do about it. A line from a book on psychosis came to me – “Is it a breakdown, or a breakthrough?” I had a mental image of a horse growing from foal to stallion, and another of a caterpillar working hard in a cocoon. Sometimes growth is a natural development of what you have already been doing. Sometimes it means pulling everything apart and putting it all back together again. I asked myself if my distress was completely internal, or mostly being caused by my new inability to maintain my involvement in things in my life or to meet my expectations of myself. What happens if I let it go?

What happens if I accept that for the moment, I am closed for refurbishing?

I have used a framework, a series of approaches and values over the past few years to guide me out of a very lonely and desolate place. I’ve driven myself very hard, constantly forced myself to do things I found very difficult, reached out for anything and everything that interested me to learn about, joined every group, offered every assistance, made friends with everyone, and PUSHED so hard to make my life different.

This isn’t working anymore. I need to consolidate what I’ve gained now. I can’t keep expanding my responsibilities, networks, study, projects. I need more time to contemplate, to find new ways to approach life. I need new frameworks to support me. I need time to adapt to the massive shifts in what I’m working towards. Putting motherhood back in the picture as a possibility shakes everything up. It’s something I’ve wanted since I was 15. It’s also something that only last year, with fertility issues and approaching 30, I’d started reading books on grieving your infertility and letting go of that dream. Everything is changing and I’m struggling to keep up. I’m struggling to care for all my parts in a massively shifting world. I’m struggling to hear that tiny voice of the soul that helps me yearn towards those things that are truly important, those things that nurture me, all of us.

Maybe the depression, the getting sick, the distress of it all doesn’t actually mean anything is wrong.

I stopped off on the way home and browsed some shops. I bought a very nice pair of shoes from the salvos. I came home and took Zoe out to the dog park – not because I had to but because I wanted to. She loved it. I came home and looked up more interesting ideas about face painting. I made a decision about how I’m going to display photographs of my designs at public events. I had dinner and chocolate icecream and watched tv and did some of the dishes. Rose came by after a late shift at work and I painted her. I’ve been practicing my little white flowers and they are nearly perfect now. I was going to work on inks today but I tuned in to myself and noticed that I was feeling disappointed because I really wanted to body paint instead. I followed that feeling.

I’m thinking of getting a kitten. A friend of Rose has kittens they need to find homes for. There’s many reasons not to. But I’m home a lot, and in pain, and another cat would be wonderful company. I’m also considering signing up to foster dogs until homes can be found for them, to provide Zoe with some friends to play with. She loves other dogs so very much. I’d like to garden but the fibro pain is too severe.

I’ve read aloud case studies from the book on narrative therapy to Rose, and cried through people finding new ways to think of themselves – instead of as hopeless failures. I’m letting it all sit and filter. I’ve been involved in planning a party with a friend. I’ve got excited about buying UV reactive face paints to use at a goth nightclub next month. I’ve crept gently into bed with a glass of warm milk with honey and cinnamon, and a good book by Terry Pratchett.

I’m not in agony. There’s turmoil and unbalance and storms rumbling, but no screaming in my head. I’m thankful. I’m moving slowly, reaching out for help, withdrawing from obligations. And yesterday was a good, gentle, thoughtful day. Today was similar. I feel less destroyed, less overwhelmed. Letting go and tuning back in to that small voice. At midnight I took Zoe out to a local park, and stood up on the playground, looking out over the lawn like a green lake, and the structure beneath me a boat sailing smoothly upon it. The wind was up, cold on my skin and singing sweetly in the leaves of the trees. It feels right. It feels like coming home.

No Self Harm

There’s no self harming here in my home tonight… Pulled out my face/body paints for some practice instead. My technique is definitely improving. I’ve been up all night watching YouTube clips of designs and reading face painting forums. It’s inspiring 🙂 I’m planning to buy some UV sensitive paints next, to use on my next night out at the local goth nightclub. Also some better sponges, to make bases easier. I’m still trying to problem solve how to manage a pay per face event as madly busy as the balloon regatta the other day… I would like to make up more booklets of designs to use, that’s certain. In the meantime, there is practice and learning. It’s nice to have something else to think about.





Cool hey 🙂 and I took Zoe to the first dog park either of us have ever been to… It was nerve wracking but wonderful and she had a great time. I’m hoping to go back often. Rose helped me get out of the house and down to some markets this morning. It was good to get out into the sunshine, felt a little weird and surreal. I’m sort of ok and sort of wildly fragile at the moment. I cooked tea last night, a type of cabbage soup, for Rose who found herself working an 11 hour shift when things fell through at work. Then I made her life easier by becoming genuinely hysterical about being so sick at the moment. After pain relief, the distress settles. It’s a pattern we’re seeing a lot. So it was nice to plod about the markets instead. I bought a warm winter jumper with some face painting money, and a scoop of ice cream. All in all it hasn’t been a bad day.

Priorities of sickness

There’s this frustrating domino effect that happens when I’m not well. Take today as an example. I’ve been holed up in bed napping with bad fibro pain from painting yesterday. I’ve dragged myself out of bed with thoughts of a hot bath. Then I’ve looked at the trashed kitchen and decided I’d clean it up and wash the dishes first. Lovely Rose has just had her work shift today extended to 11 hours which is a little brutal for someone who was up at 6am this morning to start work. I want to make dinner for her tonight. So I’ve looked up recipes but can’t find anything nice that only uses what I have in the house. That means getting dressed to go to the shops. I’ve dug sausage out of the freezer and set it to defrost and tidied the kitchen. I’m thinking – shower, dressed, shops. I’d like to go to the coles a little further away to buy some nice bread to bake with the soup. But I have huge difficulties sticking to a budget in the shops, and the bigger the shop, the bigger my problem there. Plus it’s further away. So, local shops. Oh wait, if I’m going local I should fill that script. Oh and I need more pain killers. I wonder where that script is? I’ll have to find it. :/ Then I’m adding in – oh if I’m going to the shops I should take Zoe, she’s had so few walks lately while I’ve been sick. Then I’m thinking wait I need to get this on quickly because it takes a few hours in the slow cooker and it’s already afternoon. No, wait, I need to wash the current dishes before making new ones or I’ll get overwhelmed and won’t touch the kitchen for days. I really don’t have time for that. Maybe I’ll leave the dog home, drive to the shops and walk her later. (I know I wont) Maybe skip the shower, throw on any old clothes, shop, cook, clean, then have a bath. (I know I wont dress then undress for a bath then dress again, once I’m dressed, the inertia factor is too high when I feel crook) Right. Bugger it. Forget the bath, forget the dog, forget the script get to the shops, buy spuds, cabbage, pain killers, and come home and cook. Oh, and get dressed first.

Go to the bedroom to get dressed and realise I haven’t even had breakfast yet and shouldn’t drive before I’ve eaten.

Facepalm. Too hard.

Meltdowns And Split cakes

Yesterday was hard. I had a semi public meltdown, spent most of it sobbing in bed before a friend collected me and took me to group for the evening. In my pj’s. Work on the DI had ground to a halt this year as I’ve been so drowned. I’ve been hoping to get better then take on the task of restructuring how it works and either cutting back my responsibilities, or breaking up my role and parceling bits of it out to other people. No such luck, I’m going to fall apart first. I’m not making it out to college, I’ve closed off my other groups, withdrawn from a lot of my volunteer work, at the moment I’m down to the face and body painting business, running Bridges, and trying to keep my head above water. The cracks are showing and the boat is going down. So today I drew attention to the little green man behind the curtain and said help I’m not making it. People have swung into action to take various important DI roles and tasks off my shoulders or support me in carrying the load. Thank god for that.

So by the end of the evening I could breathe again. I’m off to the county today to paint faces at a hot air balloon festival, which I’m looking forward to. Particularly as Rose is kindly coming with me to help out with the driving. So I sat up all night working on my paint kit. A while ago I had the idea to stripe one side of my hand made split cakes so I have a bigger range of rainbow splits for painting, but still big patches of solid single colour paint for sponge work. So this morning I converted all my solid colours into multi split cakes. It was very calming and peaceful. I’ve been researching skin inks and free form glitter tattoos and other temporary body modifications lately and getting very excited about them. I’m booked into an upcoming workshop on creating temporary tattoos on skin, unlike face paint these are made with inks that stain the skin for a few days or up to 2 weeks! I am bursting with ideas and excitement, there’s so much more scope for artistry with these tools and I’m really looking forward to the workshop. It’s nice to have something on my life to focus on that feels peaceful and uncomplicated.

Pictures of Sophie

Sophie, my beautiful little goddaughter, is growing up. Rose and I visit every week for a shared dinner, to give Sophie’s hard working Dad some time for adult conversation, and as many cuddles for Sophie as we can fit in between her naps. She’s 7 months old now, and every week has learned something new. She’s very alert, studies her world intently, loves to lie on her back and kick her legs, hates being put on her tummy, loves to stand up if she’s supported, and babbles to herself provided you don’t try to talk back too much. I love her to bits. Here she is with her pants on her head:

 Discovering the joys of sucking on her own feet:

 And learning to turn (read ‘scrunch’) the pages of her bed time story books:

Books and the smell of quinces

Hello from the strange world of persistent sinus infections! I’ve not turned the corner yet, but permission to does up on ibuprofin has lifted my spirits no end. Rose is continuing to improve and hoping to take on some shifts at her new job, which is very exciting! Her other ear is now playing up though so I’ve got my fingers crossed that she can pull it off without a second major infection.

I didn’t make it to college again today, which is frustrating. But I’ve had a good day. I had a very good appointment with my psychiatrist, whom I’m still getting to know. We’re on about the 5th appointment now, today is the first time I switched during the session. I’m not sure if she picked it up or not, and it doesn’t really matter. It was good to talk about where my head has been at and she’s a keen listener.

I also got a massive bag of laundry done – including the curtains the cat peed on so I’m pretty proud of myself for that. Did a bit of admin and paperwork, washed my dishes, and I’ve currently got some pear-and-quince paste bubbling away in my slow cooker, which is making the flat smell incredibly delicious.

I’ve been so lucky with the bags of books I borrowed from the library recently, there have been some utter gems, a really good catch! If you’re interested and looking for great YA, SF, or Fantasy to read, check out my newest listings on Goodreads. For those with an interest in multiplicity in literature, The Spiral Labyrinth is gorgeous. How I adore a good book, it takes so much of the sting out of difficult circumstances. My mind flies free in other worlds so real to me I dream about them, live them, they let my heart breathe.

So, yeah, still sick, but in good spirits. More books to read!

Double dose of misery

Rose and I have both been sick. My 6 weeks of sinus infection has settled in to chronic pain and inflammation in my face and jaw. Rose is prone to rapid, devastating ear infections of the kind that wind up with her writhing in agony in hospital. So it’s been a fun weekend. Both of us sick at the same time is bloody difficult! There’s been vomiting, screaming, crying, drug allergies, hospitals, sleeping, giving all our money to the chemist, trying to get blood out of clothes (accident with the jelco), eating dinner in pjs in the carpark of fast food joints, enough pain killers to make you rattle, and just for fun, some messy trauma reactions in the middle of the night.

Rose is on the improve thankfully, I am still very sore particularly with the jaw pain, which I suspect may be separate from the sinusitis and possibly my tmjoint in my jaw playing up as well. Oh joy!

I am not in too bad spirits at the moment, I’ve watched a lot of movies, killed orcs in my new favourite computer game Orcs Must Die 2, read some really awesome library books, and napped a lot. Sarsaparilla has had a lovely time snoozing on my bed and cuddling up to my little teddy bear, Joe.

Bless ‘im. 🙂

Pets and sanity

Today I made it to college class. Late, with no homework done, but I got there! I’m currently studying Photography fundamentals which is very interesting. I need to buy some more light sensitive paper to work on funky projects like making pictures with handmade negatives.

I also bought a new toy for Zoe to try and reduce her anxious skin licking and foot chewing (on herself, not on me) which so far she seems to love:

And this blog post was bought you by the letter Q, the number 4, and the cat who helpfully sat on my keyboard for most of it:

He’s still pissing on things in the house. It’s a good thing he’s so adorable really.

Tearing out the lawn

Yesterday I spent some time in my front garden, which hasn’t happened in ages. I hate spending time out there when my neighbours are being horrible, but they’ve been keeping to themselves lately which I’ve very much appreciated! So, I bought a few plants from the Diggers Club recently and decided I had enough health/energy/strength to dig them in.

 I’m slowly digging out my lawn and replacing it with a garden bed full of herbs, roses, and other useful plants. Bottom left is my rosemary, clockwise at 9pm is a perpetual basil bush that almost died off in the pot, 11pm has a thriving pomegranate plant, 1am is a tiny sage replacing the potted one I killed, and 3am is a new lemongrass.

 Half my roses are already dug in. I’m going to dig in all the rest of my pots except for my citrus over the few weeks (I hope). The citrus I’ll up pot to much bigger pots and put on a dripper system. I tend to kill plants in hot weather as I’m also too sick to look after them. I enjoyed it. I’ve decided to dig out the garden and work on it despite thoughts of moving away sometime. Gardening isn’t a destination it’s a journey for me. I love the process as much as the result, and its good for my health, physical and emotional. If I move, I’ll save up for all these plants again and put them in at the new place. In the meantime I get to do something I love and the plants thrive instead of struggle in pots. I’m happy with this call. The plan is to dig in everything, dig out the lawn, cardboard the whole sheebang, and mulch the lot. It will be beautiful, low maintenance, and much more useful!

I also made soup from this awesome pumpkin a friend grew by accident and gave to me. Now I have roast pumpkin and chickpea soup, and ham and pea soup in my fridge for this week. Wow, I feel organised. I’m also starting to make plans to rearrange every room in my house (in small parts, and with some help), to ‘move in again’ as it were and start afresh with this place. I feel a lot better about it. Except for all the joint and muscle pain today anyway. I’ve just got out of bed at 4.30pm and damn does it hurt! Totally worth it!

Small Voices

This is a reserve I discovered with Zoe a couple of days ago. I took washing down to the laundromat and went exploring with her while we waited for it. There were a couple of ovals with guys playing soccer or practicing their skills. It was dark and wet, we walked in the shadows at the edges of all these strangers lives, the houses with curtains pulled shut and glowing, gardens looming under streetlights, children’s toys left discarded in the yards. A possum ran across our path, from one tree to another. It’s another world, for me. Not just my neighbourhood at night, but a different place entirely. Different parts of me come out, different rules apply. The trees breathe, the moonlight sings on my skin. This is a place I knew intimately as a child, the world outside my window, behind the glass. The place the rain fell and the night had a scent like rain and earth and lilies.

This morning I wake thoughtful from strange and portentous dreams. I feel, deep inside, that call from my deeps, to find somewhere shadowed today, to find a different world and stretch my wings within it even if only for a moment. And also as I wake, returns to me the memory of lists, of things that must be done, to support my life. There’s a rickety complex of things that hold up my life, that stop me falling into destitution. A number of tasks that keep my world going, bills that need paying, food to prepare, arrangements for college and health and friends. So many needs.

The pull towards the shadows is a small one. One voice among many. Not the loudest or sharpest. Just a pull, a need, a drawing of my heart. It is the voice of my soul.

This morning it occurs to me that most of the voices get louder as the need grows stronger. I cannot do everything I have set out to do. Trying to keep house and make art and study and work, to connect with friends and care for my pets and look after my garden and keep my house. I constantly leave things undone, important things, like tax paperwork, like emails from friends I care deeply about, little things that cost me like books that must go back to the library like the need to buy more cat food or save for car repairs.

Most of the voices get louder as the need gets stronger. I don’t think the voice of my soul is like that. I think it gets softer as it gets weaker.

Constantly neglected and ignored, it fades. I wake restless less mornings. I stop hearing it. I forget about it. I get sicker. My heart feels old and dusty without moonlight to renew it. My candles lie disused. There is no pull in me towards shadows or poetry or other worlds. I stay in my little box, mouse in a wheel, running and running. I forget my name, my names, my other names that live in other worlds and drink the night and are renewed. I feel lost and empty and cannot remember why. When all falls silent in despair, there is no voice left for me to follow.

Maybe this one needs to be more sacred than the rest. Maybe instead you tune your ear to it, to the needs of it, the little pull inside, drawing you out of boxes, of lives, of worlds, and into a different place. Maybe each time you listen it becomes stronger, easier to hear, easier to follow. I remember that it was for me, that I would wake with the need to climb a tree, or find water, or with the song of a particular poem vibrating in my heart. I would stand in graveyards and cry, would creep towards ink and paint like they were blood and I’d been bled almost dry. I remember it being strong, and easy, a shining thread that led me out of labyrinths of other people’s makings, out of nightmare homes and schools that were like being trapped in someone else’s dark dreams.

I spend too long in the normal world, learning that language, speaking those words, playing those roles, responding to those names. I am becoming good at it, better than I was. I am learning to find places I fit better. But still I need to step away, to cross the glass and follow a different song. To be torn in two. Dual citizenship. To tune my ear to that small voice of longing and find strength and resolve to follow it sometimes, out of the day, out of my world, my name, my roles, and into the shadows, the other places, where I can eat the food, where I can breathe, where all the world speaks poetry. The light and dark of the moon. Where I find wholeness, self, possibly even god.