Special FX Workshop

Today I went to a workshop on creating artificial injuries. We used latex and other products to create wounds, cuts, burns, and scars. I’d been at a fancy dress party that afternoon, so I turned up looking like this:

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And did this to my hand:

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I’ve learned some great techniques for kids undead or zombie parties too. I’ve been doing a few workshops lately so I need to spend some time practicing all the new techniques and memorising how all the products handle.

I’m starting to drive again after the difficult week. Still feel quite fragile emotionally and struggling with little lingering after affects such as a strong feeling of being watched when I’m alone, and a sense of disconnection from all my friends. It’s hard to know how much to stay with my usual routine, and how much to just bow out of life while I’m feeling so raw. It’s good to be able to look at the night sky and see nothing. To have the shadows go back to being empty.

 

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Speaking at the World Hearing Voices Congress in 2013

I’ve received an email to say that my paper “Supporting someone through a dissociative crisis” has been accepted as a 20 minute talk, and I’ve been asked to create a poster form of “About Multiplicity” for display at this years World Hearing Voices Congress. Hurrah! You can read the abstracts I wrote here. The conference is being held in Melbourne in November. I’m really excited to go again and meet up with some of my amazing online friends. I’m feeling isolated here in SA and I really need the boost – I need to spend time with other people as passionate about mental health reform (and, perhaps, as cynical about the effectiveness of mainstream services). I need to feel part of a worldwide movement. The last time I was able to attend a Hearing Voices conference it had a profound impact upon my mental health work. Because I’m not part of a big organisation I can feel very alone at times. It makes me incredibly sad to see the same myths and misinformation over and over again, to hear the same stories of shaming, alienation, and indignity. It starts to feel like moving a desert with a sieve.

I’m feeling more and more settled about the job choices I’ve been making this year. Crazy as it seems to be focusing on a job in the arts world, it’s easing a sense of exhaustion I’ve been feeling about mental health/community services work. I still care passionately about these fields, but building a home in arts to make a difference in the world feels like a much better fit than trying to build a home in the world of mental health, at least for now. It’s not like mental health is going anywhere… I’m tired of working in such a conservative, conventional sector. I’m tired of being the outlandish one. In art I don’t stand out so much for being alternative. I don’t feel like I’m working so hard to function in an environment that’s basically alien to me. I don’t have so many arguments about boundaries being too harsh, and the need to treat people as equal humans.

Rose says I often come home from peer work shattered. I tend to come home from a day face painting in pretty awful physical pain, but otherwise elated. There’s a joy in it for me that’s very simply about creating something beautiful and making people happy. For now, that’s good enough for me. I’ll work and save to send myself over to Melbourne. I’ll keep the DI Inc running as best I can, with the various groups. And I’ll keep looking after myself.

Minor floods and other news

Sarah K Reece - flooding the unit

This was my evening yesterday… It turns out my bathtub cannot be emptied in one fell swoop without water coming up through the shower drain. Due to the unusual sloping of floors in my unit, this water will pour out of the bathroom, through into the studio, into the bedroom, and then run under the bed against the far window. There was a lot of mopping and wet towels going on last night. On the plus side, my floors are clean!

I’m planning another trip to Broken Hill next week to spend some time outback with my sister and some of my favourite poets. I’m hoping to be well enough to share the driving, generally speaking time in nature is very good for my headspace. Rose won’t be able to come due to work, sadly. She’ll be looking after Zoe back home, in an act of devotion that deserves a lot of flowers!

In other news, I’m very excited to have received my order of gorgeous little gemstones in the post.
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These are for use in my face and body painting. They are not the top quality swarovski crystals, but they are beautiful with an Aurora Borealis finish and affordable enough to use on children. (not under three, obviously)
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Here they are in black, I love the peacock tones. 🙂 This is fire red:
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I’m taking things gently today, washing a lot of clothes and wet towels, hoping to do some dishes before spending some time with friends this evening. I have a special effects makeup clad this weekend I’m really looking forward to.

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Poem – Delicately balanced

From early journals, I think around 2001. Brought to mind by my recent brush with psychosis.

Delicately balanced
I
s my mind
The precision of a fractured instrument
The constant slight shudder
Threatening to fall completely
And shatter beyond recognition.

Some days the feeling
Of being slightly out of kilter
Is almost buried
As if the fractured world
For a moment moved upon its axis
To my degree, and with that tilt
Things seemed almost right
But the limping sphere
Moved upon its course
And left me, leaning my head slightly
Trying to make the images line up.

Other days I wake

And stagger, feeling the whole machine
Sliding, tilting
Feeling pieces fall
From the edges of my mind
Until I fall into the darkness
To the sound of glass breaking
And the whole broken mess
Slices through my face
Leaving me blind, deaf, and mute
Lost in the shadows
With my hands full of broken glass.

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Psychosis

I sometimes have issues with temporary, stress related psychosis. This is very common in many conditions such as PTSD. In my case, I tend to hallucinate. My reality testing is usually intact (which means I’m aware that what’s happening isn’t real). I also become quite dissociative, have panic attacks, and may struggle with mild paranoia. All these things tend to feed into each other – eg the more anxious I am, the more psychotic experiences I have, and the psychotic experiences I have, the more anxious I get. I can struggle with this because of physiological stress such as bad reactions to meds, or due to psychological stresses.

Last night was a very bad one for me. Working out what the triggers are for these sudden degenerations can make a very big difference to my ability to predict and manage them. I’m frustrated but hopeful that this will be the case with this situation.

I think that interpersonal stress (eg conflicts in my important relationships) might be another really vulnerable area for me. There’s been a few lately, and yesterday just happened to involve another four conflicts to navigate in relationships important to me. By evening I was shattered and worn out. I went to bed to watch the other half of a movie I’d started last week; Solaris. Last week it was exactly what we needed, thoughtful and soothing. Last night different parts were watching and it fed straight into the high stress.

My peripheral vision filled up with shapes. There was a strong sense of being watched, or of something being behind me. I became profoundly afraid of the dark outside my room – which is unprecedented as a adult. I was afraid of the dark as a child but since PTSD feel safer hidden in the dark than I do trying to sleep in a light room. My anxiety went into overdrive, which is also unusual for me. I’m used to minor hallucinations, they don’t usually come with emotional distress. I did a massive skin flair and broke out in huge hives that antihistamines made no difference to. Insect bites from several days before suddenly swelled up to the size of golf balls. The sense of panic was intense, I was choking on a scream for hours. I struggled to calm myself down but none of my usual approaches worked. It felt like reality was dissembling around me. Knowing that it was me rather than the world that was falling apart had no comfort.

Things moved in my house in the dark beyond my room. If I looked at the dark, nightmares coalesced in front of my eyes. I found myself passing out for micro-sleeps and waking with a scream. My skin prickled and rippled with terror and all my hair stood on end. I felt nausea and  I knew that sleep was critical, if I could ride the adrenaline it would start to ebb and I’d probably sleep deeply at that point. Lack of sleep amps psychosis. I just needed to stay this side of total terror, otherwise I’d have to get ACIS or someone else to intervene. I was close to that point. I was able to fall asleep in the end. I woke to my alarm for a planned meetup with friends today to sort out my paperwork. It turns out it had been cancelled due to illness, which is probably for the best. I wish I’d had the extra sleep.

Rose turned up this morning and I didn’t recognize her. I knew who she was but she had no familiarity to me at all. I explained what was going on and told her about all the relationship conflicts. She’s supported other people in this place and knows how to connect and be calming. When I close my eyes, I start dreaming immediately, seeing things in the dark. I can’t look at a dark room without seeing things in it. I’m dreaming while awake, which is still the best description I’ve ever heard of psychosis. I stay in bed all day, talking with Rose. She brings me small meals of things I can keep down. Food is also essential to reduce the impact of psychosis. We keep the room light, we talk about the future, about good things I’m looking forward to. She’s not afraid of me. The fear eases. I try to nap, but when I close my eyes the visions start instantly. I lose my sense of place, feel like I’m falling, like I’m fraying apart. When I check facebook, I see a friend struggling with psychosis. I message them with these suggestions, a few possible different ways of engaging a psychosis:

1. Grit your teeth, keep your head down, and get through it, because it is temporary and will pass.
2. Do major stress management; take time off work, go for longs walks, hot baths, go away for a few days (tell someone if you’re going to do that!) whatever would reduce stress for you
3. Get help to break the spiral of high stress > poor sleep > psychosis > high stress… Anti psychotics are actually major tranquillisers, they can be really helpful in the short term to get some rest and break the spiral. Any other things that help you to get decent sleep and keep decent amounts of food happening will also help you to not spiral and heal instead.
4. Emotionally connect with others to communicate emotional distress, which often drives this stuff, and to get safe reality checks.

I read some James Herriot to Rose – it’s gentle and has no supernatural themes. I have a horrible headache. I drink a lot of fluids and take mild pain relief. The fibro pain is bad. Rose rubs pain relief gel into my back very gently. When the anxiety gets low enough I find I can lie next to her and close my eyes. The visions don’t frighten me, they’re just dreams. I fall into them and sleep for a couple more hours. It helps.

My mind feels like it’s made of crystal, fragile, humming with it’s own energy, needing to be held gently. I feel calmer, fragile but calm. My peripheral vision is still full of shadows. I’ll sleep with the lights on tonight. I keep the tv running. It will pass.

Follow up – Where does my psychosis come from?

Zoe and Family

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I’m down at the local dog park with Zoe at the moment. It’s dark, there’s no lights in the park, and we’re the only ones here. The above photo is from a short camping trip we did recently; Zoe, myself, Rose, and my sister. It’s the first time I’ve been camping with her, she really loved it. Sharing the responsibility between three of us helped no end as well. She’s been going pretty well lately. There’s a bit of a routine settling in, she gets a lot of walks or run time each week. She’s still not as happy as I’d like to see her, but with my small yard and no other dogs for company, I think this is as good as it gets for her for now. Hopefully in the future her world will be a bit brighter…

Change is afoot. The three of us (well, and Zoe) are talking about moving in together. Rose and I want to share a house and settle into living together as we make plans for a baby in the future. My sister is a wonderful person and loves kids too, having her so close could help so much to stabilise and strengthen our family. I’ve been reading lately about different family structures, families where kids have two mums, or two mums and a dad, or two mums and two dad’s all living together or close by and all sharing the load. It’s really exciting to me, this shift away from a single person or pair being responsible for everything about a child. We used to have extended family networks involved, a whole tribe of people present and invested. Blood family isn’t always a good option for that. Being able to form your own tribes makes all the sense in the world to me.

The choices before us about housing are difficult. There’s very few ways we can move forward and all retain some housing security. Moving my beautiful, hard working, slightly vulnerable girlfriend into my little unit with my homophobic neighbour is a poor option. Bouncing between two houses with both of us working so much at the moment is getting harder and harder. She was going to visit tonight but didn’t sleep well after a night shift. So I’m here at the dog park in the dark, while she’s at her house trying to get a few more hours at least until she’s safe to drive. I don’t have enough money for fuel to collect her. I wish we were close, wish I could just sit in her bed and plait her hair. I wish I wasn’t looking at giving up a ten year lease in my unit for the hope of a future that might collapse in so many different ways. I wish the risks were smaller.

For now, we think, and plan, and dream, and look around at how other people are doing this, the many creative ways families are made, love patchworking our fragmented culture back together. Somewhere between the love that binds us and the need for freedom there is a way to love and be loved with integrity and creativity. For now, things are good.

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Happiness

Lying in bed with Rose, in the middle of her big weekend of birthday celebrations, talking about the future. This is happiness. Her party yesterday at Monarto Zoo was amazing, I made an incredible cake and sent the guests home with glitter tattoos. My system is happy, little kids have been bursting out full of excitement and tickle fights. The dreamers are dreaming and the artists are full of art and the dark ones are full of poetry.

New aftercare cards!

Just arrived in the post! I’m so excited! Now I have a very pretty one suitable for kids or adults who get face or body paint, and the orange one is for glitter tattoos and all temporary at made with skin safe adhesive. Whoo hoo! They are both easy to read with quote large fonts for this size card, and the orange one I was a little worried about is fine!

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Yesterday I just ordered a new one for the temporary tattoo inks I’ve been learning to use too… It’s all happening! I’ve also secured public liability insurance, so making headway on the long long list of admin. I love the feeling of making progress, keeps me motivated through the drudgery. I’ve also ordered some sweet little party gifts for children’s birthday parties but they’re a surprise so no sneak peak photos ;-). Now I’m back off to bake the truly incredible six layer birthday cake I’m working on for Rose’s party this weekend. Loving all the creativity in my life at the moment. Happy sigh.

Ink tattoos

I’ve been working very hard again on my admin list. One of the more fun things I did today was finally spend an art voucher I won for an ink painting last year, on a new set of brushes for temporary skin tattoos. Then I sorted a box and a set of holders for them.
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Very swish! The tattoo i created on myself in the workshop is still going strong, ten days later and a camping trip included!
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In other news I accidentally whacked my face on a gate handle the other day and feel like someone hit me with a steel pole!
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I’ve had a lot of trouble with my blog all of a sudden and had to migrate it across to WordPress while I try to fix things. The links may or may not work for you but at least the content is safe. It’s my lovely girlfriend Rose’s birthday today and I’m making the cake so I’ll probably be around Facebook more than the blog for a couple of days. The recent camping trip was great but tiring, it’s a lot of work for such a short stay. I’m hoping to get back to Broken Hill shortly to catch up with my favourite poets. One last photos for today: Rose bought me a beautiful rainbow swirl hand dyed bedspread which has just arrived in the post… Tonks approves too.
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Holding my childhood to ransom turns 2!

Wow, I’ve just noticed that it was the 2 year anniversary of this blog yesterday! I’ve so far published 684 blog posts, and had 137,500 page views. I currently average about 8,000 page views a month.I’ve become a lot more erratic about publishing this year, I used to be a reliable, publish every day blogger, but my life got more complicated, more people are in it who I don’t want to expose in my blog, and I’ve had less time to think carefully and edit ‘opinion pieces’ about mental health and suchlike so I’ve slowed down a lot. This kind of frustrates me, but it’s just how things are at the moment. I’m thinking about how I want things to be here for the next year.

My most popular ever posts (in order) are:

The most common search keywords that bring people to my blog are about dissociative identity disorder, self harm, and suicide. My primary audience is people in the US, followed by those here in Australia, followed by the UK.

It all started with this post What am I up to at the moment? as I intended basically to share the development of my art projects such as my first pair of painted shoes called Happy Shoes. Within a few days I’d realised that I could use the blog to share mental health information. Bridges, the peer-led support group I help run for people with dissociation and/or multiplicity, started at the same time as this blog, so I started sharing the topics I’d developed to discuss in the group on this blog. The first one was on Managing Triggers. At the time I was a full time carer for a family member who was suffering from severe ‘mental illness’ and chronically suicidal. I chronicled my hospital visits on this blog in posts such as Planning new shoes, and then later shared my thoughts about being a carer with posts like Caring for someone who’s suicidal.

I lost my rat Pippi, my dog Charlie, and my cat Loki. I lost my foster cat Abbie, and fostered until their adoption Cleo and Tiger. I got my dog Zoe, my cat Sarsaparilla, and my kitten Tonks.

I was allocated a unit through Housing SA. I came out as multiple and bisexual and shared my early experiences connecting with other queer people. I reflected on the blog turning one. Bridges celebrated it’s first birthday with a Mad Hatter Tea Party. I started dating online. I fell in love.

I developed the logo for the Dissociative Initiative, helped write the constitution and founded the board. I shared my personal library of mental health books. I started getting angry about the lack of conversations about sex and mental illness. I started writing a series of posts about emotionally safer sex.

I spoke with the Prime Minister, at Parliament House, read poetry in Broken Hill, exhibited a poem for the Ekphrastic Exhibit, had a paper about managing dissociative experiences published, and put on my first solo art exhibition. I gave talks about Creativity and Mental Health, about Recovery to Tafe students, about DID at Mifsa, and about Voices and Dissociation at the Voices Conference in Victoria and others.

I started a degree in Visual Arts, finished a Cert IV in Mental Health Peer Work, a Cert III in Microbusiness Operations, and part of a Cert III in Media, as well as a number of short courses.

I facilitated The Gap for same-sex attracted women aged 18 – 40, Blue Skies for people with food and/or body issues, Sound Minds for people who hear voices, Bridges, and several online groups.

I shared quick tips for bloggers and suggestions about starting your own blog and reflected on the process in blogging is strange, and why bother blogging. I started face painting, and then turned it into a business. I met my beautiful god-daughter Sophie. I baked airplane cupcakes. I turned 30. I struggled with depression and found my way through. I got sick often and then got better.

I shared a lot of art, my journey at college, wrist poems, mental health articles, and poetry. The ‘voice’ of the blog changed over time as who in my system was writing changed.

It’s been an interesting and productive couple of years! I wonder where I’ll be by year 3? Thanks for reading, commenting, sharing, and walking it with me. xxx

Safe Sex 6 Communication & Consent

I come from a highly conservative background where our sexual health information was entirely about abstinence, and based on fear of pregnancy, disease, and shaming. Sex was talked about as sacred, but basically seen as a commodity that had the highest value the first time you traded it, and depreciated rapidly. We did the whole ‘hand a rose around the room and fondle the petals until they fall out’ exercise my school. I was never supported to develop a language to feel comfortable communicating about sex, because the model of sex I grew up with assumes that I would never need it – I would remain a chaste virgin until I was married, then I would instantly become happily sexual and permanently available for sex with my husband. There was an assumption that ignorance about sex and an inability to communicate about it would possibly more likely keep me from having it until marriage. This model lacked the idea that I would still need to be able to communicate consent, comfort, pleasure, enthusiasm, or any other needs or feelings even once married. I once sat through sex education at a camp, as a ‘youth leader’, listening to the talk for the young boys, which was outside, round a campfire, with a bunch of adult men basically saying “Sex is awesome, don’t do it until you’re married”, and then to the talk for the girls, which was inside, everyone sitting at individual desks in a classroom, while the adult women said “Sex is risky and you could get pregnant, don’t do it until you’re married”. I was so angry that we were not telling girls sex is awesome, that they got the ‘sex is scary’ story, that I folded the paper handouts into airplanes and threw them at the presenter until I was thrown out of the room. I had no language other than this to communicate my frustration and distress.

Many of us grew up with variations of these ideas where communication about sex is unnecessary, and they have been cast in a romantic glow – that if it’s ‘real love’ your partner will just ‘know’ what you want and like, or that a ‘real’ wo/man knows how to satisfy a wo/man. That if you’re in love you will be perfectly sexually compatible and never need to negotiate that. That all ‘decent’ people  like the same sexual behaviours and therefore never need to communicate about their desires. On the other hand, sometimes these ideas have been taught to us with a brutal resignation – I was once advised by a female friend that “it takes a long time for women to get used to sex, and I don’t think they ever really enjoy it”. Tolerating miserable sex is seen as being grown up and understanding that real life isn’t like the movies. This is really sad.

These kinds of ideas can make it challenging to communicate about sex! But, there is a big difference between privacy and shame. The former is a part of our healthy function as people, the latter is painful and destructive. Many of us (me included!) feel embarrassment and uncertainty when we try and talk about sexual stuff. That’s okay! My experience has been that if you can untangle embarrassment from shame then it’s not such a big deal. I talk about sex quite a lot, here on my blog, in my relationships, and in appropriate ways with people I help support in my mental health or queer supports work. In fact, it turns up as a topic all over the place, even in my work as an eating disorder peer worker. Sexual health and needs are not side issues in our lives, they are often key foundations in our relationships and health and happiness. However, I still get embarrassed! I still blush – I’m part German and have fair hair and white skin, my blush response can be pretty incredible! You don’t have to be some kind of emancipated modern person to learn how to communicate about sex. 🙂 It does get easier with time and practice.

Part of this is about education. I started reading and learning about sex, anatomy, being queer, child development, and so on as a young adult because I needed a broader framework than I’d been provided with in my upbringing. I remember the intense shame and self loathing I experienced as a young person, and the fear that myths and misinformation created in me. I had a vision of a future in which I would not be trapped anymore in the shame, terror, self hate, loneliness, and awful double binds about sex I had been living in. I was taught women are not interested in sex – so when as a young person I naturally started to mature sexually, I thought of myself as deviant and evil. I was taught that being gay is wrong so I feared and suppressed my natural interest in other girls. I was taught that once a man is aroused he “reaches a point of no return” where he cannot stop sex, so I learned that I was not permitted to stop or change my mind once a sexual act had begun. I was taught that after marriage a woman’s body belonged to her husband, so she cannot deny him sex. I was taught that if an adult man touches a girl child that is abuse, but if the genders are reversed no harm can be done. I was taught that men cannot be raped, and that women cannot be sexual abusers. I experienced peer based sexual abuse that was not seen as abuse by anyone I sought support from because the others involved were also young people, so I learned that what happened to me didn’t count, and the trauma reactions I suffered were simply me over reacting or being a drama queen. I witnessed sexual abuse, the entangling of sex and violence, sex and shame, punishment, sadism, entitlement, and humiliation. I became a repository of horror stories as other people confided secrets to me. I became a silent witness to peers helplessness in engaging their own sexual abuse, unwanted abortion, and incest. I was trapped in a nightmare mess of conflicting messages about sex through which I attempted to mature into an ethical, passionate, adult sexual woman. The result was disastrous and life threatening, an intense inner conflict and self hatred, warped frameworks about sex, relationships, and consent, and a clash between unbounded desires and terror. All of this happened in secrecy and silence, without a language to communicate, with no way of understanding what went wrong or how to set things right.

What I did have was this vision of myself as someone who was no longer afraid. Someone who could use correct anatomical terms without stuttering, who was comfortable with their own sexuality. Someone who might even have great sex, who could talk about it, ask for what they wanted, navigate consent, explore, explain, support, nurture, and adventure. It wasn’t a clear vision and I couldn’t believe in it all the time but by this star I set my course and began to inquire.

We need a language to be able to even think clearly about any of these areas. Communication and consent are profoundly connected ideas, without the ability to communicate, consent is not possible, and without the knowledge that we are allowed to express or deny consent, we have no foundation for our communication skills. So where do we start? Building communication skills in this areas started for me with a language I could engage.

Find a language you like for everything about sex. When you spend time with a sexual partner, work on a language you both like! What words do you both feel good about for your bodies, for different sex acts, for toys, lubes, for asking if the other person is interested in sex, for boundaries around what you are consenting to, the whole works. For some people this is pretty easy and there’s not a lot of hassle. For others many words or terms are highly negatively charged and you may need to be creative to come up with ways of communicating about sex that are fun, respectful, useful, and don’t increase stress. It doesn’t matter if this private language makes no sense whatever to anyone else, as long as it works for whoever is involved with sex with you.

You need to be able to clearly communicate nuances, because sex and consent is more than yes/no! This is kind of frustrating considering that a whole lot of our culture hasn’t really wrapped their brain around the idea of yes and no yet! There’s a whole conversation here, the need to be able to communicate things like “It’s late, let’s go to bed, naked is good, lets kiss and cuddle but I’m not in the mood for anything else” or “Yes, I’d love to have sex, but I feel like this or this and not that (kind of sex) today”, or “How do you feel about trying this new (toy/position/game/whatever) today?” or “I’d really like to sleep alone tonight, don’t take it personally, I’m not upset with you and I’d love to have you over again on Friday if that works for you?” or “I know you’re not feeling into sex tonight, but I’m really worked up, do you mind if I take care of myself in bed while you hold me?”. If you’re not used to this, these conversations are hard at first. Whether you’re setting the scene with a new sexual partner or trying to introduce more communication into an existing relationship, it can be scary and awkward and stressful. But then, so can sex without communication.

People who engage in types of sex that are risky use back up forms of communication to make sure everyone stays safe. This might sound a bit silly, but if you have any concerns about communication this can be a wise idea for any kind of sex. Some of us struggle to say things clearly. Terms that require a high level of confidence and assertion can be difficult. They can also be tangled with unintended meanings. So, where ‘stop’ might be difficult to say, and feel confronting and rejecting when all the person is trying to say is ‘please pause for a moment, I need to gather myself’, or ‘sit up a bit, I can’t breathe well’, a safe word can be less challenging.

Practice it! If you have high anxiety or difficulty with boundaries, you may really struggle with this. So, silly as it sounds, practice it with your partner or with each partner. Sit on the bed, have a massage, and say your safe word. Touch stops, and then starts up again when you ask for it. If verbal communication is sometimes compromised – due to disability, anxiety, dissociation, switching, or anything else – have a ‘safe touch’ that is used the same way. It needs to be easy and simple – a pinch, tapping the other person twice, clicking a ring against the bedhead… This is especially relevant for any form of sex where you can’t see other person’s face. It can be difficult to tell sometimes if the breathing or sounds are pleasure or distress, and that uncertainty can add a lot of unnecessary anxiety to sex. You need easy ways to check in that don’t feel too awkward – “Are those happy sounds?”. Especially if you or your partner have a lot of stress around sex and communication issues like this – checking in needs to become the norm to keep sex emotionally safe.

Don’t let anything make you feel awkward because of this, I know that we never see this in movie sex or sex in books. It is critical that you both want what is happening, that neither has frozen and that sex is not migrating between consensual and abusive. We as a culture are still struggling to understand that this happens, and we don’t give people the tools we need to navigate sex and keep it good. Safe sex doesn’t just mean stopping when they say no, it’s about not doing anything they haven’t said yes to, and about learning how to communicate no, and yes, with enthusiasm and without shaming.

This isn’t the final word on this topic, in fact it barely scratches the surface. Communication about sex is linked to but also distinct from our communication skills in other areas. Assertiveness is part of this but also insufficient – we shouldn’t have to be highly assertive, we should be working to create safer environments where it’s easy to communicate even if we’re feeling very vulnerable. If you’re interested in exploring ideas about the nature of consent further, I suggest reading “Yes means Yes: Visions of Female Sexual Power and a World without Rape” by Friedman and Valenti. I hope that my simple, if unusual, suggestions might start you thinking about these topics in your relationships, and help you come up with creative ways to build in more, and easier, forms of communication about sex.

This article is part of a series about emotionally safer sex. Try also reading

A Day at the Beach

Today kind of sucked, fibro pain levels were bad, I didn’t get enough sleep, and Rose is all tied up with night shifts on the weekends at the moment and we’re missing her. So my sister and Zoe and I went off to the beach. It was really nice. My admin is still terrifying since I’ve been sick so much this year and I’m really behind. Some days I’m making good progress with it, other days if I even look at my to do list I’m going to spontaneously combust. Today was the latter. So we hung around down at the back with capsicum dip and a block of chocolate. 

I was feeling a bit bad lately about how I’m posting up photos of Tonks but so few of Zoe or Sars lately. Then I remembered that Sars visits for about 1/2hr a day total (3 ten min visits generally to eat) and Zoe is bloody difficult to capture on film, even with the sports/action mode. I took about 50 photos today to get a few good ones of her, and that was with my sister holding her on the lead! Here’s a small sampling of what my usual efforts to photograph her look like:

Now I’m going to think about dinner and putting colours in my hair. 

Hair

After a couple of rocky days today has been mostly better. My system is settling down a bit, Rose and I spent a bit of time apart because we’d got into a spiral where we were setting each other off badly with trauma stuff… a lot of the time we can take turns who does the caring and who does the crashing but sometimes we’re not in sync and we’re spiraling. It was good to reconnect. My sister came over too so we took the day off and did our hair at home together. I’ve done a basic hair cutting course at the WEA a couple of years ago, and plenty of home bleach and dye jobs over the years. So I did a cut and colour for them both, and for me I’ve done a bit of a basic trim on my own and shaved off both sides over my ears. Then we’ve bleached the middle strip of long hair. Tomorrow I’ll throw some colours through it. So far it looks like this:

Happy to have it alternative again. Just taking things gently at the moment. Grieving a dead friendship and a bit stirred up, in a vulnerable kind of space. For now though, bed and Bradbury and poetry and sleep… if I’m lucky, strange dreams where the world is entirely different and I forget who I am for a little while.

Retail Therapy

I had a hard day yesterday, so I bought myself a present. This little guy had been hanging around the chemist for a couple of months, and it’s hard to go past a rainbow dinosaur on a rough day. I didn’t even try.

Back In The Saddle

Still alive, sorry about the radio silence. I got back on my feet just in time to hit the school holidays and I’ve been flat out painting at the local zoos. It’s been frustratingly quiet on the wet days but overall I’m happy. I’ve honed my skills, made some great contacts, painted lots of faces on the sunny days, fitted out my kit to offer glitter tattoos, given out lots of business cards, and uploaded loads of wonderful photos. Happy camper. 🙂 Also very happy to be having a much quieter week now as I’m seriously behind on the admin that’s banked up while I’ve been ill. There’s a lot! I’ve been working on some basic housework as well as essential business stuff which is time consuming but frankly, rather fun. (the business stuff, not the housework) I love my job!

I’ve made the call that with my health the way it has been this year and the demands of this business, I’ll leave the awesome Queer Women’s Support Worker job alone… which is sad. But also feels right. I think if I had to drop the face painting or the queer support job, in a few years time it’s the face painting that I’d be thinking of wistfully and regretting passing up on.

I’m making a lot of plans for the future which is wonderful. Hopes and dreams abound. I’m writing poetry again. I feel… full of life. Anxious too… dreams are scary. They make you take risks, and the thing about risks is that sometimes you fall.

But for now, there’s no falling. There’s hope and hard work and plans and new skills.
image

Writing at my favourite cafe after a counselling appointment yesterday.

Abstracts for the World Hearing Voices Conference

Later this year this amazing conference is being held in Melbourne and I’m determined somehow to go. Last year it was in Cardiff, and I had an abstract accepted but was unable to fund the trip. I’ve just submitted this bio and these three abstracts… wish me luck. 🙂

Bio

I’m a poet, writer, and artist living with ‘multiple personalities’. I’m co-founder and chair the board of non-profit organisation The Dissociative Initiative. In the past few years of work in mental health I’ve been developing peer-based resources, facilitating groups, and giving talks and presentations about dissociation, trauma recovery, and voice hearing. I’ve also been a full time carer for others with ‘mental illness’. I’m passionate about creating alternative frameworks to that of mental illness and reclaiming madness as valuable.

Voices as parts: Understanding multiplicity and other dissociative experiences

Dissociation is often misunderstood and ‘multiple personalities’ is seen as rare and bizarre. Some voice hearers are struggling with dissociative issues and/or experiencing some of their voices as parts. These are commonly interpreted as psychotic experiences and can be confusing and distressing, such as the sense of being possessed. I will share some of my personal experiences of how dissociation affects me, what it is like to have voices that are parts, and strategies I have used in my own recovery. I will also share a framework for making sense of the array of dissociative experiences, including multiplicity. My experience has been that multiplicity is a spectrum, and I will explore common forms of multiplicity we can all relate to in a non-sensationalist way. I do not locate these experiences within the ‘mental illness’ paradigm, but nor do I minimize the suffering they can cause. For people who hear voices that are parts, there can be additional challenges to recovery such as conflict over control of the body. Parts can present a voice hearer with an additional threat to their sense of identity, and their exclusive right to determine the course of their own life. I will explain some basic principles of working successfully with parts and living as a multiple. I hope to inspire people to feel more comfortable and confident in discussing and navigating dissociative issues, and encourage people that it is possible to live well with voices who are parts.


Embracing Diversity – Life as a Tribe

I will share my experience of living with voices who are parts – from confusing childhood issues, diagnosis within the mental illness paradigm, to my current passion for peer work. A personal sharing of my own movement towards greater understanding and self-acceptance, and my rejection of the mental illness model in favour of “a grand adventure of self discovery”. I’ll share sad and funny life stories about multiplicity that will help people better understand the experience and reflect upon their own identity growth and relationship to community. Drawing upon my skills in the creative arts I’ll share some of the pain and joy of life as a tribe. This talk will invite audience questions and welcome friendly curiosity about the nature of multiplicity.

Supporting someone through a dissociative crisis

Despite the psychiatric tendency to divide experiences into discrete categories, we are becoming more aware that experiences such as anxiety, psychosis, and dissociation can commonly occur together. We now have Mental Health First Aid training offering suggestions to support people through various common crises such as a panic attack. However, few of us know how to recognise or support someone experiencing a dissociative crisis. I will discuss common experiences, an understanding of triggers, and the role of trauma. Common problems for people with parts in crisis will also be touched upon such as major internal power shifts, abuse between parts, vulnerable or child parts getting stuck ‘out’, and chronic cries for help. Harmful coping techniques will be explored in the context of an attempt to manage and gain control over these experiences. I will demonstrate how to understand and map these harmful approaches, such as alcohol abuse or self harm, in a way that opens up many other possibilities for effective grounding techniques that are individual and specific. The protective role of dissociation will also be discussed, and the need at times to trigger or increase dissociation both for safety and to make possible deep emotional renewal. 

Glitter Tattoos

I’ve been experimenting with the application of temporary glitter tattoos and today I bought my first professional quantity for public use. In fact, I’ll have them available at the Adelaide Zoo today where I’m booked to paint. I’m pretty excited and a little bit nervous… 🙂 I’m expecting to be able to expand my range in the near future to metallic temporary tattoos, henna style, imitation tattoos painted with skin safe ink, and art transfers I’ve designed… it’s a pretty exciting time with the business at the moment and I’m fortunate to have some great opportunities and good support from people around me. If you’d like to see more of my latest designs, come and check out my People Painting facebook page here. Or, come along to Adelaide Zoo today!

Safe Sex 5 Reset the norms

In our culture we have the idea that a relationship is a linear progression from strangers to intimacy, from distance to closeness, from a touch on the hand to ‘home base’. We also think that you never lose ground you’ve gained. Once you’ve reached second base, second base is always available. Once you start having sex, or seeing each other naked, or kissing in public, those are now always allowed and to be expected. This does not make sex safe. If one or both partners have any kind of anxiety around sex, this pressure, the awareness of these norms being set to new places, dramatically increases the stress because even after a great time together, they will now have to either put up with contact they don’t want, or fend off a partner who thinks this is the new norm, whenever they don’t feel comfortable with it.At the extreme, this assumption of the new ‘normal’ between you, what is okay and acceptable and to be expected, becomes a sense of entitlement. We might not mean it that way, or think very much about it, but it’s pretty easy to start making assumptions and to treat sex like something we are owed. People who, for whatever reason, already feel anxious or unsafe about sex, can be highly sensitive to this dynamic. It may not stop them having sex, but it can certainly stops sex feeling safe.

I’m not being naive here, and this is not about desire discrepancy – the partner with a higher sex drive is not bad or wrong. This is about the way you engage sex. This is about both of you always having the right to say no and not be shamed, as much as the right to suggest sex and not be shamed! This isn’t about building sexual rejection into your relationship. It’s about not building in entitlement, unawareness, or distress. We do not have the right to coerce our partners into having sex with us. We have the right to feel desire, attraction, and arousal. We have the right to want sex. We have the right to make choices about who we want as a partner, who we want to be sexual with, how we want that relationship to work, but I do not believe we have the right to demand sex, from anyone, ever. That belief and those values are part of what help me to be a safer sexual partner, and to require emotionally safer sex from my partner.

Sometimes when I talk about this idea with people, there’s fear. People get anxious that if their partner is truly that free to refuse sex, they would never have sex. People get anxious that if they refuse to have sex with their partner, their partner will have it with someone else, or leave them. There’s ideas about owing each other sex, that having sex once implies a contract that you will have it again, or that certain types of relationship choices – such as moving in together – mean you are now permanently available for sex and lose your freedom to decline. Push these ideas a little further and we move into rape apologist territory – that what you wear signals that you’ve decided to have sex, that the person who pays for the night out is owed sex, that if you’ve kissed you’ve offered an un-revokable consent to sex, and so on. I get some of these ideas and how pervasive they are- mainly because I’ve been severely tangled in them at times myself. And I’ve suffered, and I’ve hated myself. I know what it feels like when there is terror, shame, self-loathing, guilt, obligation, rebellion, recklessness, misery, and humiliation choking me during sex.

Here’s the nub. If you or your partner feels like this during sex – it’s not really sex. We have other words for sexual experiences where one person enjoys themselves while another one screams inside. I’ve learned that not having sex is far, far better than having bad sex. Sometimes people are shocked by my many years of voluntary celibacy. It’s almost a taboo in our culture to make a choice like that – not for lack of opportunities, or for lack of desire, but to chose to decline sex. (Of course, there’s nothing particularly special or holy about it either, and it’s certainly not better than anyone else’s choices. It was just what I wanted at the time.) I’ve made stupid decisions in the past that any sex was better than none. I’m old enough now to be wiser about that. I’m wise enough to want no more bad memories about sex.

There’s another way, and it might feel frightening or radical, like it opens the door to rejection or a total lack of sex. I’ve found that for me, it has the opposite effect. Sex is not a contract but a song, a dance, flight.

So, try to reset the norms each time, back to dating, back to checking. It might feel stupid, as we have almost no cultural support for this idea. The higher the level of anxiety and the more communication difficulties you or your partner have, the more important this is. Don’t assume anything. Sex last night doesn’t mean sex tonight. Nakedness being fine yesterday doesn’t mean you can wander in and brush your teeth while they’re in the shower the next morning. Don’t force a stressed partner to constantly say no. Assume no first, and check to see if it might be a yes. This approach also gives freedom for people to have difficult reactions after sexual contact. Even if the experience is wonderful, it can stir things up. Breathing room is critical at times. Allow the relationship to move between romantic and platonic. Last night was hot sex. Tonight is cuddles while wearing pajamas. With safety comes freedom. Unless you make it very easy and comfortable for your partner to say no, you are not having safe sex. Unless you make it safe to initiate sex without being shamed, you are not having safe sex.

As a multiple, this need to reset norms and check again is especially important, as I switch to non-sexual parts or to child parts. Properly covering non-sexy clothes or PJ’s are worn on nights when my child parts are around, or are kept next to the bed in case they turn up unexpectedly on other nights. Nakedness does not cue sex – sometimes it is platonic. For my system this is critical, it reduces shame and stress about sharing a bed, a bathroom, and life with another person when some of the time Sarah is a child, or a guy, or someone who’s not in a sexual relationship with my partner.

Resetting the norms doesn’t have to be horrible – anxiety ridden, stressed, depressing. It can be sexy as hell. If you’ve never done anything like this it will take time to find your rhythm and get comfortable but it does get easier. Talk it through. Find what works for you both. Own your own desires and let your partner own theirs. Lean over and whisper “You look incredible tonight, can I kiss you?”

You might like this video that links the idea of having sex to music jams:

This article is part of a series about emotionally safer sex. Try also reading

About Eating Disorders

There’s more than one way to get an eating disorder. Eating disorders are another mental illness that, to my mind, are poorly defined or understood, often mis-characterised and stereotyped, and far more complex than most people realise.

The DSM has a truly bizarre way of classifying eating disorders, with single symptoms such as weight or menstruation sufficient to bounce you out of one category and into another – and back again should those symptoms change. I don’t find this useful at all. I prefer not to use the clinical terminology and the irrational clusters of symptoms. I prefer to talk about food and body issues. This is a big category, there are many different ways these issues are expressed, and many different reasons people find themselves struggling with these issues. Our classic perception is a young woman starving herself because she fears getting fat. This is real, it happens. But the field is so much broader than this too, and the complexity of people’s distress so much more than we, as a culture, really understand.

The categories I find most useful are simply descriptive of behaviour or compulsions. Some people are not eating enough. Some people are eating more than enough. Some people are purging what they eat. A lot of people are doing two or all three of these. So we have restricting, binging or overeating, and purging.

These issues are prevalent! They are under-resourced – in SA we have only 2 inpatient hospital beds to support people with eating disorders – for our entire state. In my work as an ED Peer Worker I have often discussed and supported people to travel interstate to Victoria or Queensland for inpatient treatment as the wait list here is so long. We recently also lost our free counselling service for people with eating disorders that was running through Women’s Health Statewide. And yet, Eating Disorder are significantly on the rise in our population, and they carry the highest mortality rate of any of the mental illnesses. The risk of suicide is high, and the physical complications of disordered eating can be severe.

But the community perceptions can be appalling. It is assumed that people who restrict food are the most ‘serious’ and have the ‘real’ problems, whereas some studies have found that the mortality rates are actually highest for those who have a mixed condition. These people may not appear particularly underweight or unwell and as a result may not be taken very seriously. When resources are scarce, these are not the people who find themselves prioritised for treatment. The common myth is that people with eating disorders are vain young women who need to wake up to themselves. The reality is that anyone can struggle with disordered eating. The shame around these issues mean that most people struggle in secret, they feel deeply distressed, they lie to those closest to them and find their relationships cracking, they are infuriated with their own ‘weakness’, they internalise all the cultural myths about being weak, selfish, self-involved, vain, and useless, and they find themselves struggling in quicksand and going down.

I haven’t come across one ‘classic’ presentation of a person with an eating disorder in my work. I’ve come across a whole range of reasons people find themselves struggling with these issues. Most of us at some time in our lives will find ourselves struggling to maintain a healthy relationship with food. For most of us, fortunately, this will be fleeting. We’ll struggle for awhile then settle back into good routines again. 

For some of us, we get stuck. We get stuck in different patterns and for different reasons. Some of us are deeply concerned about weight gain and desperate to be thin. Some of us have severe food issues but don’t own a set of scales or count calories. There are many different ways that an eating disorder can start, and many different reasons people can find themselves having struggles with food. Distress in areas like body image isn’t always in play, and it’s a terrible dis-service to people to not believe them – or have anything to offer them, if their food issues have a different cause. Here are some commons reasons people can have major issues with food:

  • Body issues such as a desperate fear of gaining weight, pregnancy, menstruation, onset of puberty, and so on. These can be very complex and arise out of other struggles with life, relationships, and self.
  • Obsessive compulsive issues, for example around issues with germs, or extreme religious fasting.
  • Developmental or neurological challenges, for example only eating foods or a certain colour, or having nutritionally limiting requirements about texture or patterns of eating.
  • Psychotic issues, eg refusing to eat for fear food has been poisoned, or contains microchips.
  • Pica – the appetite for non-food substances such as dirt.
  • Mania changing the appetite. Some people eat voraciously when manic and do not feel full. Others forget about eating entirely. Some people do a bit of both in a binge starve cycle.
  • Depression changing the appetite – see mania.
  • Anxiety issues. When someone is afraid, the body goes into ‘fight or flight mode’ and directs energy away from non essential areas like digestion. People with chronic anxiety may find they are not hungry, have dry mouth or heartburn, and feel sick or involuntarily purge if they make themselves eat.
  • Dissociation issues. Chronic dissociation can blunt sensations such as hunger. People may not dislike the idea of food, they may simply be unable to feel hungry and forget to eat. It can also blunt the sensation of fullness so people may overeat or binge. For some people overeating or starving to the point of pain triggers dissociation in a way that is soothing.
  • Multiplicity issues. Some parts may not ever eat, so if they are out for a long time the body starves. Some people have difficulty with many parts coming out over the day and all of them eating, or none of them eating. It can be difficult to coordinate things like food intake if there’s a lot of switching and a lack of communication or co consciousness.
  • Self harm issues. Binging or starving to the point of pain is a way some people inflict pain on themselves. Denial of food or forcing unpleasant purging can be a method of punishment or self torture.
  • Abuse issues. Some people disconnect from their bodies following abuse and find the idea of caring for it and feeding it appropriately very alien and difficult. Sometimes food is part of abusive behaviour or strict punishments, where it is withheld, or a child is forced to eat when they don’t want to, or forced to eat food they dislike, overly hot or unpleasant food, or non food items. This can lead to enduring patterns and problems with food.
  • Addiction issues – for some people food issues are part of a broader pattern of addiction and difficulty with regulating impulses.
  • Drug issues – many prescription and recreational drugs alter the appetite or metabolism.
  • Social issues such as isolation, bullying, or domestic violence can disrupt healthy eating patterns and a good relationship with yourself and your body, or can lead to extreme weight management as a perceived solution eg. a preteen boy teased for being chubby may focus on starving and weight loss as a way of preventing bullying and gaining social acceptance.
  • Grief often changes eating patterns for a while. Some people go on to struggle with food or their body in the longer term.
  • Health problems – any number of physical conditions can affect your appetite, energy, metabolism, sleep patterns, and digestive health! Physical conditions can also link into other issues, so what started as vomiting due to Irritable Bowel Syndrome, may become purging as a way to manage chronic anxiety. Nausea, pain, digestive problems and appetite changes should always be investigated rather than assumed to be psychological.
  • Psychosomatic distress, where food or digestive problems are part of a bigger picture of emotional distress, for example involuntary purging that settles down once other major emotional stress is reduced.
  • Attachment issues. For example children who have experienced huge stress such as being moved into the foster care system may have an unusual relationship with food, stealing or hoarding it, refusing to eat when watched, keeping food that has gone bad, or binging when food is available.

These difficulties can also tangle together, so someone may be struggling with a combination of thyroid issues, a recent bereavement, and long term self harm issues, all of which is presenting as disordered eating. The most useful approaches for some of these concerns is quite different from others – there is no one size fits all cure. But having said that, my experience has been that the basics behind the Recovery Model and Trauma-Informed Care were a good fit for most everyone no matter where they were coming from. People were all different – some were in denial about their food intake and I spoke with deeply distressed family or friends instead. Others were very aware of how wrong things had gone for them and desperate to find a way out. Some people were at the start of their struggles, others had been fighting a war for years. People wanted to be heard, and to be treated with respect. Those who were not struggling with body issues were desperate for someone to believe them that weight was not their focus. People needed to hear that they were not weak, vain, or pathetic. They needed to hear that there was not one way out of an eating disorder, but that there is a way out!

I asked a question of almost everyone I was in contact with in my role as an Eating Disorder Peer Worker, which was – “Have you ever met anyone who has recovered from an eating disorder?” Almost everyone had not. To me, this is huge. People need to see that other people have recovered. We need to be able to meet them, read about them, learn from them. We need to see there are roads out, and not one road but many! We need to be given the freedom to try different roads, different approaches, techniques, and frameworks so we can find our own good fit. We need to talk to people who get it. We need a way out of shame and isolation.

We really do deserve better. We deserve easy to access, good quality supports that understand issues with food can be complex and arise for many different reasons. We deserve clear information about these reasons, access to peers in a safe and supportive way, and the opportunity to try different approaches. I’m frustrated and distressed that this is not the situation we are in, in large part I believe because the community perception, and therefore the perception of funding bodies, are two commonly believed myths – that eating disorders are just about vanity, and that people with eating disorders never get better anyway so there’s no point in funding services. Rubbish!

If you or someone you care about has an eating disorder, I’m sorry. You deserve a lot better. But, there is hope. All over the world, people are navigating their distress without amazing services. People who hear voices are escaping the clutches of hospitals and talking to each on the internet about how to cope instead. People with PTSD are running their own support groups. People with sensory issues as part of mild autism are discovering they’re not alone. You can seek therapy privately, read books, reach out to recovered/recovering peer workers, and fumble your way through to your own needs and solutions. You are not alone. You have nothing to be ashamed of. You are stronger than you realise. You deserve a good life. You can recover.

Face paint and kittens

I’ve been busy painting at zoos and working on my paint kit and website lately. The business is going well, particularly considering that winter is the quiet time for this kind of work. I think I’m going to be very busy with it this summer! There’s a 2 days a week job that I’ve been keeping an eye on for ages and now I have to decide whether to go for it or not… it’s a hard call! The job is working as the women’s worker supporting newly identifying GLBTIQ people… pretty much my dream job… but I’m very busy also getting a new very exciting small business off the ground, and I have a lot of art projects I’m keen to sink my teeth into soon. Hrummmmm.

I keep thinking about Neil Gaimon’s advice in an awesome speech he gave (here) about how to reach your dreams – to treat your big dream (like, say, I want to be a professional artist) as a mountain you’re heading towards. Every time you have to make a career or life decision, you ask yourself if the choice in front of you is taking you closer towards, or further away from, your mountain. I think one of my challenges is that I currently have about 20 mountains… which is awesome… but does make decisions like this difficult.

So, thinking for now, and working on the People Painting business. I’ve revamped the website, updated photos, rewritten my rates information page, and added a whole new page for party theme ideas! I’m pretty damn proud of myself and have a lot more ideas buzzing about my brain. Actually I’ve been either buzzing or asleep lately, somewhere between exuberant and slightly manic. It’s fun but also a little wearing.

I painted at the Adelaide Zoo the other day, with a price set for me of $3.50 per face. That’s very low, and meant I needed to create a host of simpler designs that could be painted more quickly. I was a bit stressed about it but also kind of enjoyed the challenge. I wound up painting the most amazing collection of neon rainbow animals… the panda in particular looked incredible!

It’s a beautiful day out there… and I  have so much admin and so many errands to run. But I’ve had only one hours’ sleep and I’m fading fast, so I think I’m going to leave it all behind and go and hide out in bed. I’ll leave with one last photo of kitteny goodness. 🙂

Oh, all right, a bunch of photos then… Tonks is going great. His sister, who has been named Kiki, comes over for a visit regularly and they have a great time chasing each other around the unit. Here he is last night, exploring the awesome new cat tree Rose has let me borrow. 🙂 Zoe is doing much better now I’ve been able to get her to the dog park for a good run a couple of times. She’s still restless but it’s taken the edge off. Sarsaparilla is fighting every cat in the neighbourhood and constantly coming home wounded. I’m desperate to put together a cat run to keep him in. He hates being trapped in the house and cries at the door for hours, and then seriously gets destructive. Hopefully I can pull that off for him soon.

I’m Back

And things are happening! I made it to the Pink concert, courtesy entirely of Rose who almost had to carry me there. It was awesome and brilliant and hugely fun. I want a wire thingy in my house to zip around on.
My health started to improve just in time to pull off a day off work at Monarto Zoo, cleared of being a contagious risk but still exhausted, so Rose kindly drove me there and back. It was a quiet day due to wet weather but I was so happy to be back in the saddle.
Friends have been very kind in bringing me soup and tissues and helping run vital errands for me which has made all the difference in the world, especially when I’ve been feeling so lonely and missing out on so many wonderful things… Like my college classes. Term finished last week and I’m going to fail my classes as I simply couldn’t get there for weeks. 😦 I’ve been worried that the depression would return but it seems not, which is brilliant and a little surprising. 🙂 I have a lot more days of work lined up over the next few weeks and I’m determined to make it to all of them. I’ve been working more on my kit and business stuff, my new lovely ‘aftercare’ cards for the face paints have now arrived!
The business is going well and I’m still very excited and inspired by it.

My sister has arrived home from a 5 year stint overseas, and I’ve been almost hysterical with excitement. We’re close friends and I’ve missed her terribly. We’ve had a great time hanging out this week and she’s got to meet Rose and Tonks and Zoe and some of my other friends. We also kept our arrangement to go out clubbing last weekend despite her being jetlagged and exhausted and me being really rather unwell still… We dressed up and went off to a trash glitter themed night at the local goth club.
I’m continuing to practice applying face paints on myself in the mirror and I’m not bad at it!
I restrained myself to dancing to five songs only and having only one drink, and enjoyed listening to the music and taking some surprisingly good photos with my phone camera.
It was an awesome night. 🙂

Health wise I’m continuing to improve! Most of the infections have cleared up and I’ve finished the antibiotics at last. The fibro is still really rough and the jaw pain likewise. I have physio and dental appointments lined up soon, which will help and make it worse respectively. I’m still very, very tired and prone to weakness and dizziness so I’m still not driving yet. I’m hopeful and being patient. More difficult is my sleeping, I’ve become completely nocturnal, not getting to sleep until between 6 – 8am. I’ve been unable to shift the pattern which is giving me some grief, particularly when I’m getting up at 8 to go face paint for 5 or so hours. 😦 I’m not having much success at napping either so I’m struggling with sleep deprivation.

Psychologically I’m going pretty well. The sense of excitement and creativity and optimism about my business, relationships and future is really high considering the rough couple of months I’ve had. I’ve missed a lot of shrink appointments and I’m keen to go and talk again, but there’s no sense of crisis. My brain is pretty busy, ticking over a mile a minute, I’m writing again and coming up with creative ideas and things I want to do when I’m a little better… There’s still a sense of freedom and joy inside which is kind of amazing.

Zoe has had a rough month with very few walks. She’s been destructive and whining and barking and generally driving me mad but I know she just needs a walk and I’ve been really good at being able to keep my cool. I’ve booked her for a full day of doggy day care this week as a treat. Sars is fighting every cat in the neighbourhood and constantly coming home with scars and fur missing and sometimes a nasty wound gone ick. I’m really keen to get him settled in a cat run while he still has both his ears! Tonks is going great, his little sister cat visits with my sister often, which he loves. He’s very spoilt by me, Rose, and my friends, one of whom is his godmother and brings gifts and plays with him. 🙂 He’s sweet and adventurous and usually sleeps on my knees or curled up on my pillow.
So, you’re up to date now I reckon. I’m buzzing with art project ideas and looking forward to rearranging the house and enjoying the face painting gigs and patiently getting better. Hurrah for that.

Reporting a suicide threat on Facebook

I’ve just had to swing into action and find out what to do when someone posts on Facebook that they have overdosed and are dying. I had crept into bed, written in my journal, rescued Tonks from his own tiny cat collar when he managed to get his bottom jaw under it, had a mug of warm milk with cinnamon and honey, and was just closing down my light on my phone when it popped up in my feed. Now I’m out in the lounge on my computer, feet frozen, sticky with sweat in my dressing gown, exhausted beyond bearing, and too dazed to sleep.

I’m the sole admin for the DI open group on facebook, which currently has about 150 members… between that at my personal friends most of whom have mental health stuff and some of whom are going through seriously nasty crap, this was bound to happen sometime.

In case it does happen to you, here’s the link to report it urgently to facebook: https://www.facebook.com/help/contact/305410456169423

You can also call people, in Australia try

  • Lifeline 13 11 14 (free from landlines and mobiles)
  • ACIS 13 14 65 for mental health emergencies
  • Kids Helpline 1800 55 1800 (for young people aged 5 to 25)
  • Or 000 for an ambulance if you know the person is in life threatening danger and where they are

In America they have the suicide prevention lifeline on 1800 273 8255. If the person has posted stuff about suicide on a different type of website eg tumblr, here’s links to report to other emergency suicidal content people: http://www.suicidepreventionlifeline.org/GetHelp/Online

If you’re affected by suicide – either yourself or by someone else and need to talk, I’ve also found the suicide call-back service helpful – obviously these ones aren’t for immediate crisis stuff like this. http://www.suicidecallbackservice.org.au

So, I’ve done what I can. It’s been a long day. I’m still very sick. Some of my friends are going through terrible things and my heart is broken for them. Other things are wonderful, like my dear sister returning from a long stay overseas, we were able to catch up a little tonight for dinner and I was so happy to see her. I haven’t slept much in days, my system has been a riot with so much going on, and the internal noise is almost unbearable as we all start to feel a little better and chatter away to each other… sleep is hard to come by.

I had hopes for tonight, until this.

It’s now 5.30am. I’ve just had a gentle conversation with a chap on lifeline… sometimes it’s just unbearable, I hear so many terrible stories of pain and suffering and because of confidentiality, they all stay with me, locked inside… sometimes it’s unbearable not having the power to make things right, to make doctors care for suicidal patients they are throwing out of hospital, to take away stigma and discrimination and violence and cruelty and poverty and loss… to be left simply with the role of being a witness, of standing vigil and saying – I see it, and it is not right, and I see that you suffer, and that is not right… to not turn aside or pretend or downplay or victim blame, but to bear to see and hear and know of these things and to stand with the people that endure them or are broken by them…

…It is wrong and I cannot make it right but I will bear witness and I will remember…

…and then to somehow let it all go, to let the pain flow through me and past me, to let go of the rage that makes me want to wake the world from their beds and scream at them – can’t you see what is happening here? How can you sleep when people are suffering like this? How can you be at peace when such injustice is being done? There’s a rage in me that wants to torch buildings and set trees burning as beacons in the night. My people are being destroyed, they are suffering, they are humiliated, abused, powerless, they are dying. We need to hear their stories. We need to know the results of our indifference, the ends of the systems and structures we create.

I feel sick.

I must stand strong, and I must let go.

There’s a sad, sad song in my soul tonight. For all the ones that life ran over, all their bright dreams turned to dust, their hopes ashes, bitterness and humiliation and grief in the night, the little people who did not have power to make it better or to have a voice or even to speak the things that went wrong for them, the way life became brutal, stuck in the throat, clawed their breath. For all the ones who find ourselves on the shores, watching other people’s ships sinking, we who love, and grieve, and despair, we who weep and watch, who mourn with them and feel their heartache in our hearts and carry their sorrows like black crows on our souls, we who remember their ancient joys and hopes with bitterness, long after they have passed. We who are witness, bound by love to not turn away. We who carry burdens of guilt and longing and regret, with tears that never entirely stop flowing, hands wrinkled and crusted with salt, gifts of love in our mouths like bright oranges, like birds that take flight over storms. We know that love is everything and that love is also not always enough.

There’s a sad song in my soul tonight for how hard life can be, how lonely and painful and desolate, and this is a truth that nothing else changes, all the joy and hope and brightness in the world does not alter even a little, a shadow that lays beneath all hope, a river that runs under rock. Life is beautiful and life is anguish. This is a truth in my left hand and a truth in my right.

There’s a sad song in me tonight, if I sing it, if I let myself cry, if I can but reach out and touch it, it may sing me to sleep, it may sweep me down that dark river to some kind of peace.

Baking Adventures

Back before I decided to personally host half of the infectious diseases known to man, I baked. Time to share photos! One of my close friends, who’s been a part of Bridges since the very first group meeting nearly two years ago, recently celebrated their birthday and I was invited to make the cake. It was a surprise cake and wonderfully fun! I created a secret board on pinterest and pinned loads of ideas and recipes to share with my co-conspirators. We narrowed the brief down to some specific ideas:
1. Chocolate cake, but not too sweet or rich
2. Pink!
3. Butterflies
4. Glitter
I started by making the butterflies. These were mild chocolate, with purple coloured white chocolate wings, and edible holographic silver glitter. The chocolate was flavoured with kahlua essence. The first lot I made didn’t work because I’d stored my chocolate for too long but a trip to the service station fixed that. It’s good to be near local stores that are open weird hours when you’re prone to nocturnal baking!
You can make them with the wings upright like this by first making just the wings and letting them set, then peeling them off the baking paper, putting folded baking paper in a folded cardboard v, and piping in a little butterfly chocolate body. Then rest each wing gently until it touches the body and allow the butterfly to set.
I made these a week in advance as they keep really well. The cake was a plain simple chocolate cake recipe from one of my decorating books. I baked three flat cakes in three identical tins. I was really not impressed with this recipe, the mix was really stodgy and the end result wasn’t inspiring. Not inedible, but not great. Nevertheless, it did the job.

For a filling I settled on a recipe for creme parisienne, which is a chocolate ganache, cooled and whipped. Wow, did that work well! It became basically invisible once sandwiched between layers of chocolate cake, which was a shame as part of the fun of a layer cake is the stripes, but the taste… Mmmmm.

I carefully chose a buttercream recipe that incorporated cream cheese for better flavour, and added wilton pink gel food colouring for the outer icing. I’ve been working more with fondant lately, which is fun, but the flavour – ugh. And definitely not suitable for someone who wants a less rich, sticky cake.

I iced the whole cake and decided to pipe some basic shells with the extra icing. I’ve not yet much used my exciting set of icing tips so this was new and great fun!

Next, add the glittery butterflies on the side and the chocolate words on the top – they read “Happy Birthday dear friend!”

Then the really fun bit – my first attempts at piping buttercream roses! They were far from professional but they did look like flowers so I was really happy with that. I made large dark pink ones and smaller violet ones.

Then added leaves, dots, and candles. These were cool rainbow candles where the flame was supposed to be the same colour as the candle… it was kinda hard to tell truth be told.

Last step – add all those chocolate butterflies. Viola!

Here it is on my very sweet new white cake stand – purchased as EVERY store I went to looking for a simple cake board that weekend had sold out. Still, it’s gorgeous and I’m sure I’ll use it again. Icing around the little sparrow was a little tricky but… Mmmm lovely.

There you have it. Things I get up to when I’m well. 🙂