Video update about Zoe!

Forgive the amateur quality, this is my first time playing about with new software on my home computer, so the audio quality could be a lot better for a start! I thought it would be fun to try something different to the usual blog post, and make you a video update about Zoe! There’s some gorgeous photos of her and a cute video at the end. I shot it on my awesome phone camera but forgot you’re supposed to always shoot video in landscape mode whoops! Too cute to trash it though. She’s adorable. 🙂

If the video isn’t working for you, you can go view it here on youtube. 🙂

Shifting the furniture

I have a gorgeous new dresser, inherited from a friend who is upgrading. Isn’t it stunning?! Look at all that storage space! Following the DI meet up the other day, a few friends stayed back and helped me move the furniture around. Lovely people. This is my ‘dining room’ space, which I use partly to store everything I can’t fit in the kitchen (there’s not a lot of storage space in the kitchen) and partly as my study area. Lately it’s been a hopeless mess, every surface covered with all the things Zoe would like to eat/chew/hide in the back garden. Now that Tafe has started up again, I really need my study space back so a rearrange was on the cards. I didn’t end up having to get rid of any furniture to fit it in (it is pretty huge), the cabinet that was here was able to be moved into the loungeroom, which has had a big of a spruce up now too. 🙂 
Look, somewhere to store all the lovely winter fruit people have been giving me. I love friends with gardens! Before the warmer weather really kicks in, I’ve planned a gardening day for this weekend to get some work done in my own. 🙂This is the other wall of the dining room now, with a decent study space.I’m not that happy about not having a dining table. I like dining tables. I like setting them, serving at them, sitting and eating at them, having a conversation over them, and using them to make complicated kitchen recipes that are so time consuming I need to be able to sit down for them. But, space is at a premium here and also I haven’t been able to buy any really nice really small dining tables, it seems I’m not the only one looking second hand. 
So for now, my study desk there by the window doubles as my personal dining table. I had breakfast there this morning, watching the rain fall on the garden while I ate my scrambled eggs and toast. Down the track I’d like to create a middle eastern style dining suite in my lounge room with pillows and low tables, I love the ambience and not having a whole room dedicated to a table that is barely used (or if it is used, needs to be cleaned off everytime you want to eat a meal there). In the meantime, I’m itching to rearrange my bedroom and studio and looking forward to getting into the garden. 
I love rearranging things here and there, it sets off a degree of dissociation for me, makes me look at everything with new eyes. I have a home, and a cat, and a dog, and a studio, friends, part of my week spent working towards a degree and part spent doing volunteer work that is deeply meaningful to me… life is pretty damn good. 

Adapting to a puppy

The change from having an elderly, ill, blind dog Charlie, to having a young, energetic puppy Zoe, has been quite significant! Zoe chews everything. I mean everything. I came home the other day to find her standing on my coffee table in the middle of the room, trying to chew one of the legs off. So most of my belongings are suddenly being kept on benches, tables, or stuffed into my studio. I bought this shoe rack online the other day and now at last my shoes are safe and off my studio floor. On the plus side, she is basically toilet trained as long as she get outside. We haven’t yet mastered the ‘whining to get outside because the door is shut and she needs the toilet’ aspect. My rugs are in the backyard having rain wash puppy wee out of them, every few days I do a lap of the backyard to rescue whatever items (cutlery, makeup, handbag etc) she has snatched and hidden out there, and most evenings we curl up on the couch and watch tv together. I love tv on the internet, I don’t even have to tape stuff. 🙂 My garden needs some love and I’m itching to move some furniture around inside but it’s good to be making a start on creating a ‘puppy proof’ home. 

Holding my childhood to ransom turns one

This blog is now one year old!On this day, the 1st of August in 2011, I wrote my first post (entry) on this blog. Wow. Since then, I’ve published 410 posts, almost every day of the year and sometimes more often. I’ve had over 46,000 pageviews, mainly from Australia, the US, and the UK. The most common search words new readers use to find this site are about ink paintings or feeling chronically suicidal. My most read posts of all time have been About Multiplicity, followed by Multiplicity and Relationships, then My short film; Regeneration.

I’ve done three major blog make-overs, changing the format, layout, background image and fonts. I’ve added, edited, and deleted pages as I’ve learned what common questions people have. I’ve carefully grown my lists of topics to make it easier for people to find information in a particular area only. I’ve moved over to smart phone apps for most of my day to day blogging and photography. I’ve handed out a lot of business cards, and emailed a lot of links to relevant posts instead of having to type out all the same information over again for many different people. I’ve started to think seriously about writing a book about managing dissociation and mental health.

I’ve met a lot of other amazing bloggers and peer workers, and received some amazing feedback about the value of an online resource like this. I’m very proud of this blog, and I’m continuing to develop, refine, and improve it.

I am sometimes asked if writing this blog helps me. It’s an interesting question. I have certainly benefited in some very definable ways. The most obvious to me is in my writing. I now type quickly, mentally structure content quickly, and edit much, much more efficiently than previously. Setting myself a deadline of a post each day has streamlined my writing process and more than that, it has made me more mindful of my projects and how I’m spending my time. When I have an interesting conversation with someone about mental health I often catch myself starting to mentally write a blog post about it. Days that used to pass by in a haze of dissociation I can nail down to photos and blog entries. I notice things more.

Forcing myself to coherently explore feelings and ideas here on the blog has also been useful. It’s helped me to make the emotional more tangible, clarified my thinking on many topics, helped me to understand my own feelings and reasoning better. Some of the conversations and comments, particularly on facebook where they tend to be livelier, have been extremely interesting and useful. Feeling that I’m helping people, that I’m making progress on goals such as humanising and destigmatising people with poorly understood conditions such as DID has been sustaining. It’s also been a useful platform to explore or explain things to groups of people at once. As a peer worker there are certain questions I am very often asked, such as ‘How can I help someone after a trauma?‘ Writing these into this blog not only frees me from constantly reiterating the same information, it helps to get it out there for those who don’t ask but were hoping someone else might. The internet is an amazing tool to offer support for those who are silently searching for hope at 4am.

I’ve used this blog to broaden my own connections, and recently, to out myself publicly about multiplicity and bisexuality. The blog has been a very useful instrument in helping me achieve my goals of living openly. It’s also saved me a lot of awkward individual conversations with everyone I know, or the bluntness of outing yourself through a facebook status. I’ve made (and occasionally lost) friends through this blog, and I like that new friends can come here and learn about my life and passions.

Perhaps most importantly, this blog is one of the key ways I feel I have a voice. A few years ago I accepted labels like ‘mentally ill’ and ‘consumer’ without rancour. I have experienced some of the best and worst of the mental health system, I know what it feels like to have no power, no voice, no credibility. For far too much of my life, my opinion simply hasn’t mattered. Today, I hate the term mentally ill, and I refuse to be a ‘consumer’ anywhere that doesn’t treat me with respect. I’m tired of being on the bottom of the hierarchy. So I’ve left it behind and created a new life. In my world and my resources, it’s okay to be queer, okay to have a trauma history and some emotional vulnerabilities, okay to disagree without being attacked, and okay to be friends. The values behind the groups I facilitate, such as diversity and acceptance, are those I try to live by in all my life. This blog is my territory, where my values inform it, a place I can explain the reasoning behind all the arguments I lose in my life – that traumatised people are not a minority, that DID is not always iatrogenic, that those of us who struggle with suicide are not merely selfish. Conversations I’ve had where I’ve been dismissed, overruled, or intimidated by those with more social power but perhaps less experience or compassion don’t silence me any longer. I pick myself back up, from the crushing submission to authority or the instinctive rebellion against being belittled and dehumanised, and I gather up my thoughts and piece together the argument and the explanation I was trying to give, and I post it here. Where the other vulnerable people, who are also crushed at times by a ruthless culture or insensitive health system can find a different way of looking at their lives. That means a lot to me. There’s a phrase I keep coming across that captures the massive social and technological changes in our time; ‘We are the Media’. I like it.

Bridges Birthday

The Dissociation support group I co-facilitate and helped found has been running for a year now and today we are celebrating. During group we are planning a Mad Hatters Tea Party, with cake and chocolate and cucumber sandwiches. And some pretty incredible hats I might add! In the evening we’ll be having a campfire, I hope, if the weather holds. I’ve been cooking and preparing, I now have a type of rice pudding called arroz con leche made up:


Some lovely mini lemon meringue pies, starting with the pastry shell in my mini muffin tray:


Then filling with homemade lemon curd and piped meringue:


Then finishing in the oven until browned:


I also have ingredients for spiced hot chocolates, smores, and baked potatoes. I may have got a little carried away. 🙂 It’s nice to get carried away from time to time. Shame the kitchen’s trashed!

Art degree started again

I’m doing 2 subjects this term in my bachelor of visual arts, one is Sculpture, the other is Concept Development. C-D seems to be an extended journal making process, which I thought I’d enjoy as I like to journal and keep track of my concept development work in my own arts practice… We were told our journals need to be uniquely our own, to reflect our interests and passions rather than our ideas about what the tutor might like, which is great. Then we were given quite an extensive list of things not to include in the journals as the tutor doesn’t like them. Our topic is food, but we’ve been told not to do anything about starvation or eating disorders, only the lighthearted side of things. And not cut outs from Women’s Weekly magazines. Or recipes. Or food art (art make out of food). And so on. Awesome. Considering the rates of eating disorders in our culture at the moment, I’m kind of blown away by the insensitivity of the choice of topic. At least two or three of us in every class will be struggling with our relationship with food, or very close to someone who is. Fortunately for me I’m a mad foodie so I’m not expecting to have a lot of trouble with it.

Sculpture this time is about making and using moulds, so for the first time I am actually slightly ahead of the class. I used to work in a statue factory, painting the concrete statues. I didn’t make the moulds but I’ve seen it done and have made plaster casts and wax moulds myself before. We’re learning a process using silicon which is really exciting, once you can replicate a sculpture the possibilities are pretty unlimited. I’m looking forward to sinking my teeth into the project. I’ve borrowed some books from the arts library and read a couple already, it’s going to be a good term. 

Zoe & Sarsaparilla


Both critters are going well. 🙂 They are even starting to get used to one another which is really exciting, as until recently I’ve had to divide time between them on some kind of strange pet share system. Last night I got home very late after an extraordinarily long day and was able to watch Dr Who with both of them curled up on my lap! Admittedly, Zoe went a bit odd and at several points tried to curl up to sleep on my shoulder like a very large excitable parrot, and then when she settled for sleeping on my right arm she’d pretend to accidentally roll over onto the cat, but he was feeling safe enough to give her a hiss and a swipe for the first time instead of bolting so I’m rather excited!

She’s almost due for her last shots and ready to go on walks 🙂 Hurrah! Toilet training is coming along really well and some commands like fetch, toilet, sit, and down, provided she’s not too manic to think straight. It’s been truly wonderful to come home from hard days or be dealing with difficult things and have warm furry bodies to cuddle or sleep by. I feel very blessed.

Another coming out

For a blog that covers some madly personal stuff about my life, there’s a surprising amount of things going on that don’t end up on here. I live a very complicated life, and I’m always mindful of both my own sense of exposure anxiety, and that it is at times difficult to tell your own story without telling parts of other peoples. Who didn’t start a blog or ask to be included in one. So I’m trying to be open but discrete and honest but useful.

When I gave a workshop earlier this year about starting a blog, I found myself explaining to various people, usually of an older generation, what a blog is. A number of them referred to it as an online journal. For some blogs that is true, and some of those blogs are simply amazing. For me, it is not. I keep journals, and I write in them regularly too. For me a blog is an entirely different thing. Everything that is posted here is run through a specific set of filters, and the most important one is “Will this be helpful to other people?” So while I’m doing my best to be honest and honour the dark, painful, and anguished aspects of my journey, I’m careful about how I do that. I don’t write posts about, say, suicide, when I’m feeling deeply suicidal. I write them when I’m stable, have some perspective, and can hopefully write something that is both authentic and uplifting. Raw distress and confusion can go into my journal but usually not my blog. There are certainly glimpses of it at times but I’m very aware that some of the readers are in bad places and I don’t want to drown anyone. Plus I’ve found that sharing about things I’m currently struggling with instead of those I used to struggle with often makes people uncomfortable, and some reduce that discomfort by imposing advice. Which I hate. So I’m cautious about how I engage that whole area.

This year has been a very big year for me. I moved into my own secure, stable unit. My dog and cat died. I got a puppy. I’ve been giving talks locally and interstate. And on my birthday, I came out as bisexual to my family. That is my group identity. As I’m multiple, the reality for me is straight and gay parts.

It feels like such a cliché to be struggling with sexuality. Many years ago I was in a community health centre and saw a poster that initially made my breath catch in my throat. It read “Is being different getting you down?” I went closer to see what they were offering. The small print read “Some girls like other girls. Some guys like other guys. Some like both.” I was so disappointed. It’s been such a long road to work out why I felt so different, what that meant and where I could find peers. Multiplicity and dissociation have dominated that process. Sexuality hasn’t had much of a look in.

I grew up in a highly homophobic, at times violently so, environment. As a young person I deeply buried these feelings that would have marked me for rage and abuse. As a young adult I suffered from chronic nightmares that were creative and horrifying. I described them at the time to a psychologist I was seeing as torture. Every night I went to sleep and was tortured in my dreams. Eventually we realised there was a lesbian part who had been totally cut off, buried, and denied expression. When we reached out to her with acceptance, those particular nightmares immediately stopped and have never returned. They were part of me screaming in the dark totally alone and rejected, who no longer screams.

Accepting the group identity of bisexual has been both challenging and liberating. I deeply fear homophobic reactions from others, and while I kept my own sexuality secret, I could also maintain a distance from the homophobic abuse of others. Now, it is personal. To read about a gay teen being bashed I no longer feel angry and horrified like I used to, I now feel afraid and loathed. That has been a difficult transition. I don’t cope well with feeling loathed. With a history that includes being stalked, I also don’t cope well with predatory advances. Revealing a queer identity as a women can bring out  distressing responses from some straight men. As someone who loves children I’m painfully aware of those who see all differences from the norm as ‘deviance’ and who confuse minority sexual orientations with paedophilia. To be thought of as a monster is horrifying.

Encountering the stigma specifically surrounding bisexuality has also been very difficult. I am afraid of rejection from both the straight and queer community, there is at times a sense of not belonging properly to either. When I go to queer events I am always assumed to be lesbian and find myself constantly correcting people and wondering why I bother. I have been stressed by the discomfort of some of the straight community and find myself constantly assessing my behaviour to make sure I’m not being misinterpreted. Giving flowers or a hug to another women is not simple anymore. It has been a huge process to reconcile the fundamental difference of some parts being attracted to men and others to women, and to work out how we could possibly date and love someone without hurting them or being hurt by them.

The conclusion we have come to for us is that being in a straight relationship is deeply distressing to gay parts at the moment, while being in a gay relationship does not distress the straight parts. Getting into chat rooms online to find lesbians talking viciously about bisexual women has been confronting and painful. To be stating our group identity as bisexual when we are not looking to date men is frustrating and sets me up for stress. But identifying as lesbian when that is not how all of us feel is merely swapping one closet for another, and I am so tired of closets.

I feel deeply resentful that I have both the multiplicity and the sexuality to come out about, that feels too much a burden of mis-perceptions and stigma to handle. I want to be out, that is the kind of life I want and the values I have. But I am also rocky and scared and have needed to break the whole process up into small steps to keep it manageable. I am also deeply frustrated that these characteristics become all consuming, totally defining who I am for some people.

So this year, when I turned 29, I woke up that day and decided I was not going to reach 30 and still be hiding this. I’m tired of secrets and the shame that glues to them. I’ve been reaching out to the queer community and making new friends, which has been wonderful and difficult and left me feeling like the world has turned upside down. I still can’t quite believe that I’m allowed to be attracted to women and no one is going to hurt me for it. I went to a “Rainbow service” at a church over easter and sat towards the back, sobbing my heart out and trying not to show it. It’s been an incredibly difficult process even though it’s what I want, even though I believe no one should be ashamed of their sexuality, and I’ve done it at my own pace. I still find myself lost for words, overwhelmed, remembering the speaker at my Grandmothers funeral using his time at the podium to sneer that in her time “we didn’t have homosexuality”. The ridiculousness of that statement is blatant. So is the contempt, and it makes my heart curl up and wither.

Bizarrely, despite how incredibly difficult this journey has been, accepting my attraction to women feels like somehow taking the easy way out, after having spent so long suppressing it and keeping it secret. It’s such a relief, such a sense of coming home. To have escaped the world I grew up in and navigated my own fear and confusion and the mess of labels and stigma, to be finding a place where I can just exist as I am, it’s like flying.

So here I am. Many of my favourite artists and musicians are bisexual. I’m part of a diverse community. Bisexual is not shorthand for faithless, promiscuous, damaged, or untrustworthy, although bisexual people may certainly be any or all of those – like anyone. As an artist I find bodies beautiful, vulnerable, and deserving of being seen through romantic eyes, not shaming or judging ones. I’m angry that so many people are struggling with things that leave them excluded, secretive, ashamed, and lonely. I do not believe that is right. I now co-facilitate a fortnightly group The Gap, for same-sex attracted women aged 25 – 40, not because I have extensive networks and experience in queer culture but because the group was short a facilitator and closing down. I believe that we all have the right to choose our own words and labels that feel most comfortable and not to be defined by other people, and that we have the right to live whole lives, free from shame, fear, stigma, abuse, and isolation. I want to be free, authentic, to feel like I can breathe, that I am whole, I want to love and live in the sunshine and drink the night and be fully alive. And I want to help other people find those things too.

Projects

I have been enjoying the Tafe holidays over the last couple of weeks but today everything starts up again! The Semester 2 classes I can enrol in were a bit of a disaster timetable-wise, so today at 9am I will be in the sculpture studio, pretending to be awake and hoping that small part of my brain that records conversations for me to listen to later on will be functioning. It is sculpture however, so maybe the sheer manic excitement that produces in me will offset the sleep deprivation… yet to be seen…

I am enrolled in two classes this term and three the next, part of my cunning plan to crowd out my week slightly and prevent the peer work side of things from taking over entirely. Fingers crossed it works and doesn’t just exhaust me considering the rest of my schedule.

I hit organisational overload a few weeks back and got to the hiding under my desk stage so the work on the not-for-profit org the Dissociative Initiative has stalled slightly. I’m planning to get back into the swing of things with that within the next few weeks and actually start answering email/my phone again.

I’ve been working on a project for Radio Adelaide, they have a program called F Sharp which is about women and music. I’ll be a co-presenter/producer for their next two shows on Wednesday at 3pm (101.5FM) which is great because it’s a pretty low key way to brush up my skills a bit and feel more confident in the live studio.

I’m also starting to work on a new network, we do not have an official branch of the Voice Hearing Network here in SA so I’m working on putting together a website and linking in with all the other branches around SA to help people find our local resources more easily.

The group The Gap is starting to grow which is exciting. I’m chuffed to meeting so many new people and making new friends, also through another group Trinity Sistas, which thankfully I am not facilitating.

My work on setting up the studio so it is easier to make ink paintings is paying off, I finished another 4 a couple of days ago which is damn exciting. I have a paper I am loving that is archival quality, torn up into different sizes and shapes and stored in a box. When I feel like painting one I rummage through the box and take out the piece of paper that feels like the right size. It’s almost as easy as painting in a journal except this way I can hang the pages to dry and keep painting on a new sheet if I’m in the mood. It’s a good feeling.

Bridges is almost at the one year mark! I am extremely proud of this achievement, it’s been running almost every week and has grown into a strong, caring group of very diverse people who are very accepting, supportive, and have a great sense of humour together. This week we will be celebrating with a Mad Hatters Tea Party and we are all planning chocolaty treats and outrageous hats.

So, plenty going on as usual, all the groups going strong and in exciting directions and lovely new art projects to sink my teeth into. Hoping it all gets off to a good start this week.

Zoe At The Beach

Zoe is settling in well. She’s working out the idea behind toilet training, is slowly getting the rules about not chasing cats, and getting as many cuddles as one puppy can manage. However, keeping an active puppy home all the time is hugely challenging and she is chewing everything she can fit into her mouth.

So the other day I took her to a quiet beach with no other dogs around. She was a bit anxious at first.

But it was a beautiful day.

A sea breeze was blowing foam from the water.

She isn’t a water baby at all, the waves freaked her right out. The foam was blowing in big piles onto the sand.

And that she thought was fantastic, she chased it up and down the beach, trying to eat it and getting foam on her nose.

That night she rewarded me by tearing madly around the house at 2am, leaping over furniture and colliding with things. I’m not making as much progress as I’d like on wearing her out! She’s not got the idea of sleeping through the night either, so she’s banished from my room at the moment, she can amuse herself until I’ve had some decent shut eye. It’s going well though, I’m very attached and loving the company, and she’s clearly very happy and feeling at home. 🙂

Baking Day

I went to the dentist again yesterday morning, and had the rest of a root canal done. I never enjoy dental work, although I don’t find it as harrowing as things involving needles. I’ve been trying to work on the needle phobia in therapy lately, there’s a lot of things driving it for me which complicates the process somewhat. But we must be on to something because I was able to relax so deeply at the dentists today I dropped into a light sleep and started dreaming while he was cleaning out my roots. So I’m feeling very thoughtful and interested in learning more. I wish I could afford more frequent appointments but at least medicare covers some.

Anyway, my face is sore and I’m short of sleep so I took the day off. Lounged about, tried to nap, had a bath, did some laundry, then decided to bake. I made double batches of chocolate – banana cupcakes: tangerine cupcakes: and coconut cupcakes: I’m hoping to have enough to take round to all my groups over the next couple of days. 🙂
Looking good so far 🙂 Shame about all the dishes though!

Recycling from the hard rubbish

I have spent all of my adult life being pretty broke. If you can pull together some skills and resources, it’s surprising what you can manage on a low income. This is especially true if you’re able to go and rummage through the left overs of the wealthier folks, because what they throw away is often the kind of stuff that is perfectly serviceable for the rest of us.

Here in Adelaide, many of our councils run a hard waste collection a few weeks a year. If you need some furniture or homeware, like I did when I moved in here, you might find it useful to learn the etiquette of recycling from the kerb.

  1. Firstly, find out when the collections are on. Most councils list on their website or have pamphlets printed each year that show how the collections will be run. Usually the collections are staggered, a certain area will have a collection on Monday, the neighbouring area Tuesday, and so forth. Find out where and when these collections are and put them in your diary. Prioritise upmarket suburbs because they tend to upgrade and so give away nicer items. Most councils allow householders to put things out for a collection a day or even a week early so don’t wait until collection day!
  2. Arrange some transport if you can. I am very fortunate in that I have access to a van, but other people use cars, trolleys, bike trailers, wheelbarrows… If you really need a new wardrobe you will want larger transport, if you’re hoping to find some craft supplies not so much.
  3. Find a friend to go with you if possible, especially if you’re going out after dark. Take a torch and some gardening gloves too. A thermos of hot drink is especially nice in the cold weather!
  4. Think tetris. Harness your ability to pack lots of things in together. Take along some old blankets to wedge between or around fragile items, or bags to wrap smaller items.
  5. If it’s been put out on the kerb during hard waste collection, feel free to take it home. Politeness dictates that if the home owner is around you double check with them that the items are rubbish. Be careful not to confuse someone moving house with a hard waste collection.
  6. If you’re feeling keen, check in boxes, wardrobes, and drawers. One time I found a whole decent set of saucepans in the big box that the upgraded set must have come in. 
  7. Be careful of surprises. Some items have been left in sheds or on porches. There may be spiders and other bugs, there may be sharps under cushion seats etc. Always check items thoroughly and carefully! Give everything a really good clean and/or sterilizing (boiling water plus sunlight is easy) before using it.
  8. Items can be broken down into components. Old ugly dressers are often snapped up by crafts people who want them for their gorgeous walnut wood. 
  9. You can use items for temporary purposes. I once helped a woman pack 18 chairs into her car because she had a party that weekend. 
  10. Don’t feel like you’re stuck with the items. You might be desperately broke and have no armchairs. There are always armchairs out in the hard waste! Take home a couple that are solid, even if they are ugly. In a couple of months when you’ve more money, then you can look at something you like. The next step up from the hard waste is often buying on eBay, from second hand shops, garage sales etc. Often you will get a much stronger, hardier item second hand than buying from the cheapest range of new gear.
  11. Some things are almost never in the hard waste. If you want a bookshelf, you’ll probably have to buy it. Apparently no one ever throws them out! Don’t be discouraged if there are days you don’t find much. It’s a bit like fishing.

Things I’ve collected from the hard rubbish; 2 two-seater lounges, rugs, carpets, books, magazines, a box of bottles of white wine, a hand mower, a wardrobe, armchairs, crockery, saucepans, paintings, canvas, old mirrors, dressers, an aquarium, a terrarium, a vivarium, bird cages, outdoor furniture, garden tools, whitegoods, old tv’s, empty garden pots and saucers, useful boxes and storage, candles and so on.

If you’ve ever had money, or you have friends that do, scrummaging like this can feel really humiliating. There’s a big shift between creating houses that look like magazine entries and those where the decor was what we found on the side of the road. You are actually helping out in that it’s far better for the ‘rubbish’ to be recycled than go on to landfill. It doesn’t have to be horrible, you still stamp your own personality on your home with what you have chosen, how you use it, care for it, arrange it. The effect of the whole is a lot more important from the point of view of actually living in it. It doesn’t matter if your ‘coffee table’ is actually a cardboard box with a scarf over it, it works! I’ve found that it takes the sting out to be proud of my resourcefulness and to recall how much of the world is living in the kind of conditions where my humble home is a palace of luxury. With running water, heating, cooling, glass in the windows, several rooms, a roof with no leaks, and money to buy soap, food, and medicine, there’s a lot to appreciate. It’s often also down to values, where you want to spend the little bit of money that you have. It’s appropriate for your health care to be more important than a new rug, or to want to put some money aside for a kids birthday rather than buy a new bed. I’d rather have a dog than a dishwasher or a dining suite. The odd person might disagree with your choices or sneer at your home, but it’s your life and your values and their approval isn’t relevant.

Zoe

When I left home yesterday, I decided to keep Zoe indoors while I was gone because she is only a puppy and does make a bit of  a fuss when I leave her. Don’t want to upset the neighbours any more than they already are. The downside is I’m not sure my furniture will still be one piece when I get home, plus toileting indoors. Sigh. Poor darling, she’s so keen and excited but she has a case of Kennel Cough she caught while in the pound. That means she’s contagious so I can’t take her for walks. She also isn’t due for her booster vacs until the end of the month so until then she’s also vulnerable to catching things like Parvo from other dogs. So, she’s been learning to fetch in the backyard instead. 

She is keenly chewing on everything including my couches, books, boxes, tables, paper, tissues, cardboard rolls, and anything else she can reach. 🙂 Training is continuing and she is doing very well with the exception of toilet training. The cold, wet weather has dissuaded her entirely from toileting outdoors. I am having an indoor puppy litter tray delivered, hopefully we can work this out in stages. She is such a sweetheart, she sits for her meals now immediately, she’s bringing a ball back nearly every time, she’s learning she’s not allowed to bother or bark at Sarsaparilla, pretty incredible work for a stray puppy who’s only been here for a week. 

Back to ink

I spent wednesday at home weathering a lousy day. I have a neighbour making my life difficult and that’s done my brain over a bit. I was looking forward to a shrink appt in the morning, but unfortunately they were sick so the brilliant timing of ‘depressing problem’ + ‘person to talk to’, turned into a frustrating morning of ‘up unnecessarily early’ + ‘can’t think straight’ instead. I have admin tasks banking up again I’m too anxious to handle and I’ve stopped answering my phone. A couple of persistent people are calling me several times a day. I’ve stopped carrying my phone around with me too. I’ve been having trouble with minor vandalism and some thefts happening when I’m away so I didn’t leave home all day. I did manage one critical admin task – to ask Australia Post not to leave parcels on my doorstep anymore, and to tuck my mail all the way into my letter box. Hopefully no more mail going missing now. So far $25 worth of inks have been stolen.

I tried to paint my journals today, I’ve been looking forward to that all week but when I’m not in a good head space sometimes it doesn’t work and just increases my stress. Today was one of those days so I stopped part way through when my head started to crash out.

Went to inks instead. I don’t know why, but even when I’m distressed I can usually make ink paintings. I ended up making three, and then cuddling up with Zoe on the couch to watch some sad movies. I’ll keep my head down until things settle internally. I have to leave the house tomorrow as I’m out of a medication that reduces pain. 

Adventures with Zoe

Isn’t she gorgeous? Making choices over things like pet names can be a little complicated when you’re a multiple. There needs to be a consensus for it to work. I came up with a list of 16 possible names, and went from there. I’m 90% sure Zoe will stick. Zoe means life, which seems very appropriate, is short, feminine, beautiful, and the name of two characters I love. Zoe is a strong, loyal crew-member aboard Serenity in the film of that name and related series Firefly. Zoe is also the name of the little girl who narrates the story of Quidam, my very favourite Cirque du Soleil performance.

She is so bouncy and excitable, and very intelligent. She already knows she is not allowed on my bed, she sits on command to be fed, and is learning how to fetch. She’s not yet reliably house trained but I don’t anticipate that being an ongoing issue. She is full of beans and chews like a little four legged buzz saw! Finding dog chews and toys that are tough enough is proving to be more difficult than I expected!


She made pretty short work of these toys! I have a few new ones that are so far holding up a little better, touch wood.

The bad news is that it seems she contracted kennel cough while in the pound. She’s not desperately ill but the cough sounds pretty terrible. That means a trip to the vet tomorrow. Fortunately the RSPCA offered to pay for the vet/treatment costs if she came down with this due to being in their kennels. Hopefully all will be well.

I have a new dog :)

Sorry about the missing post yesterday, I had a busy day and was ill all evening. One of the busy things I did was go down to the RSPCA and buy a puppy!

I’ve been keeping an eye here and there on the dogs available locally on various online sites but no one had really stolen my heart. A couple of days I hopped on and this gorgeous little white and red dog was there. I thought she was absolutely beautiful. I slept on it overnight and then late the next day I phoned the RSPCA to see if she was still available. The first person I spoke to sounded irritated, couldn’t find the listing, told me she must have been adopted and was not particularly helpful. I hung up and cried. Then I decided that wasn’t good enough and I called back. This time I got someone a lot more helpful who loaded up the website I was looking at, worked out that there’d been some data input issues, and that the dog was in fact, still available. First thing Wednesday morning I was down at the shelter, meeting this bouncy sweet little 12 week old girl, torn up over all the other lovely dogs I couldn’t rescue, and trying to make it out of there without buying every dog toy in the place. My dishwasher savings have been demolished, but I have a dog at home again!

She is a lovely cross breed, Bull Terrier cross Red Heeler. Both breeds have loads of energy so I expect to have some difficulty keeping up with her until she grows up a bit. They are both extremely loyal and devoted however, and Bull Terriers in particular are my all time favourite dog. I grew up with a lovely Bull Terrier called Samantha, I think they are the most beautiful dog in the world. I will certainly also feel safer home alone or walking at night with her when she gets a bit bigger. 🙂 She doesn’t have a name yet, although I’m down to a short list now. 🙂

Saraparilla is not thrilled but as he is still getting pride of place on my bed it’s not all bad news. I haven’t had a puppy since I was very young, they are really not my preference, I’m quite happy with an older dog. However, with such independent, stubborn breeds like this it is an advantage to start training and socialising young. I am in for a lot of work though! She makes a dreadful racket when left home alone (she shouldn’t keep that up though, they’re not yappy breeds), is very full of beans, and chews everything. I have been madly puppy-proofing my house, which roughly translated means putting everything below 2 feet high into my studio. I bought her a ball, a kong toy, and a chew rope, but considering the short work she’s made of the ball and rope, I think I’m going to need some more toys! I think she’s buried the kong toy because it’s vanished for now. She’s not housetrained yet either. She was found as a stray and taken in to the shelter. No one claimed her so she’s been de sexed, vaccinated, and microchipped. She has a bump on her nose that is healing and needs to go back to the vet shortly to have her stitches removed. I’m thrilled and anxious and slightly overwhelmed and very happy all at once. 🙂

I hate hospital

Yesterday, I spent the morning in the RAH Rheumatology department having made the effort to get there on time for a 9.30am appointment. I think they are in cahoots with the horribly expensive carpark out the back because I then got stuck in the increasingly crowded waiting room for a few hours before anything happened. It’s been ages since I’ve had a checkup for the Fibromyalgia and other issues so my doctor wrote a referral. I was surprised to find myself on the verge of a panic attack in the waiting room – as sick, distressed woman after woman shuffled through the doors to be stuck in the waiting area. I remember when this was my world, and that dead end road of hoping that one more test would make sense of it all and give me a treatment that would give me my life back. Nowadays I feel like hospitals are dangerous places, as if I’m going to get beached there and not be able to get out again. The appointment was embarrassing and miserable, I got poked in a lot of painful spots and told my fibro is still active, with a general air of ‘what do you expect us to do about it’ and trying to come up with interesting new symptoms which was all they wanted to hear. I hate hospitals.

Someone asked me where I worked and when I said mental health they told me all about a time they were assaulted by a patient with a mental illness. I really wish people wouldn’t do that. They were also baffled by the concept of peer work, that I was working with ‘sick’ people despite ‘having no qualifications at all’?! Some days I just want to crawl under a rock.

The stupid ticket machines in the carpark both refused to read my credit card, ditto the machine behind the counter with the operator – baffling as I tried it again tonight and it worked just fine. I pulled out my eftpos card only to be told they couldn’t take that and there was apparently no eftpos machine around for miles. I pulled out all the change I had and was two dollars short, which was kindly donated by the gentleman standing behind me in the line, and I felt so embarrassed I couldn’t even look him in the eye when I said thank you and then when I walked away I felt bad about that too.

That kind of set the tone for the day really, I got home too late to try and nap before group, my face and teeth still hurt, and later I went out in the evening to a party where I didn’t fit in and had the most severe anxiety I’ve had in awhile. I’ve done some training with Radio Adelaide, the local community radio, which is awesome, and I’ve been developing some great skills that are very useful in my peer work. But I’ve been struggling to find a program to work with and then horribly sick for weeks and flaking out on them all over the place. It was the stations 40th birthday today and I was really pleased to go along and celebrate, but also feeling stressed from the morning and somewhat of an impostor since I’ve barely done any work with them since graduating from my course. I don’t fit the existing programs that need new people on board very well, so I’ve been feeling guilty and insecure and anxious as hell.

‘I hate myself’ ran on a hideous loop in my head all evening and I spent most of it hiding in corners and trying not to cry. Tonight I felt very limited, painfully aware that I didn’t fit in or feel at ease at all. Several people who had clearly met me before said hello and I didn’t recognise any of them, which was really distressing. I organise a lot of my life very carefully to avoid being incapacitated by awareness of how physically sick or ‘mentally ill’ I am, the reminder this evening that in new territory and among a lot of new people I am completely lost memory-wise was painful and humiliating. Stigma bites hard and I’m trying to hide how stressed I am, afraid of being labelled as the ‘mentally ill’ one, even though in my working role I’m happy to stand up in front of rooms of people and tell them I have a mental illness. I felt like I’ve been able to find a niche in art, where I’m just excited and content, and mental health, where I’m passionate and feel competent, but that out there in the rest of the world I’m still a fish out of water.

I also finally realised that one of the issues that stresses me about volunteering at the station is just about mobility. It’s not on my local bus route, and there’s often no nearby parking available. While I am mobile these days, I still have limitations. On my good days I can walk from my bus stop to the station. On my bad days I can’t. Without an easy access point it is always stressful trying to get there, trying to gauge how much extra time I need to leave early by to get through the door when I’m supposed to be there, or if I’m well enough not just to make it there, but to cope with the walk back again. I don’t think of myself as someone with mobility issues but they do affect my life and in a situation like this I’m stressed and frustrated and taking it out on myself for not being organised or committed enough instead of recognising that mobility issues are a difficulty for loads of people and not something to feel bad about. My poor brain gets all tangled.

So I’ve had a pretty lousy day. I’m glad to be home. I’m glad to have art projects to focus on. It was nice that various people who may or may not have ever met me before were friendly and nice to me at the party. It was a relief that I don’t think anyone picked up how stressed out I was. I feel like I live in a bubble world where how I function is normal, and it’s painful to smack into the rest of the world where hearing voices is freaky or not being able to remember someone is rude as hell. I am so grateful for the bubble though, I didn’t used to even have that. It means the world to me that I feel at home and like I belong and can be the best I am, somewhere on this planet.

Now, to just stay out of hospitals.

And for those of you who seem to get confused about this; sharing these experiences is not an invitation to tell me how I should be thinking, feeling, or managing any of my life ‘better’. To all the rest of you lovely people, especially anyone feeling neurotic – I’m not barking at you. 🙂

All quiet on the western front

I’m feeling so much better than I have been and my mood is great, but I’m still sore and tired. Yesterday was my last day on antibiotics which I’m thrilled about! I’ve been hanging about the house, too wiped out to get up to much but pottering around.

Yesterday I gamed for a couple of hours and killed something like 1,000 zombies, finishing the last level I had yet to achieve in Left for Dead 2. 🙂 It was very satisfying. I thought about gardening and decided I wasn’t up to it. I thought about cooking and looked through some recipes and decided I wasn’t up to that either. I had frozen fish and chips and peas for dinner. I looked up interesting rainbow coloured foods and clothes on the net to amuse myself. I got my new external DVD player out of its packaging and used it to install my backup copy of Microsoft Office 2010 onto my little netbook. I uninstalled various other useless programs from it, fiddled around with my modem when that stopped working, sat and admired the beautiful sunshine through my window with a cup of tea, read a bit more of a book about attachment and mindfulness, played with Sarsaparilla, tidied one of my studio desks, re-organised my ink samples into a larger box and colour coordinated them which was very enjoyable, arranged my nail polishes onto a bookshelf in rainbow colour order, thought about washing the dishes and changed my mind, had some lovely conversations on skype and facebook, considered going grocery shopping and put it tomorrow’s goal list, enjoyed wearing my favourite rainbow beanie and extra warm socks, watched Wallander and fell in love with Kurt, decided I’m going to watch Kenneth Branagh in Roman Polanski’s four hour movie of Hamlet again soon, and how much I love the empathy and compassion of poets, enjoyed some chocolate custard, and am going off to bed in a moment to read a Terry Pratchett novel, and journal, and sleep.

A good day

Ha haa ha haa! I have had a strange and wonderful day, and I am slightly out of it. I went off to see my long time dentist this morning for a second opinion about my dead tooth and how to tackle it. I was expecting a brief appointment where we talked over my options and I went home again to agonise about my decision and try to scrape together money. The talking part was over in about 2 minutes and I found myself undergoing a root canal on the spot. He condensed procedures normally spread over several appointments to save me money, and cleaned out all the nerves in my tooth. I came home feeling like I’d been hit by a truck (again), had a nap for an hour, got up and tried to look presentable for the rent inspection I’d almost forgotten about, and tried not to accidentally walk into the walls. The inspection went off without a hitch which was fantastic, and I’ve been thrillingly happy and a bit out of it all the rest of the day. There’s lots of little lights in front of my eyes and I am still not driving. But – I’ve just been saved from months of sickness, med reactions, and dental work, AND passed my rent inspection! Hurrah!!! In a couple of months I go back to have the rest of the root canal finished by putting a filling in it all.

I had nightmares in my nap, in one of them a huge storm blew away some beautiful balloons that had been handmade for me by friends and I cried. I woke with a start and realised the storm was trying to tear my back screen door off its hinges, and the new cafe table umbrella in my backyard was in danger of ending up on my roof.

Painfully, my sculpture class all met for the last time tonight to share their amazing final projects and I missed it! I am so frustrated and upset about that, I really wanted to see what everyone came up with! I sat at home with a hot wheat bag on my jaw, watching pretty lights that no one else could see float about the lounge room instead. Damn. 😦

I am excited about getting back into the swing of things, I have a list of artworks people have commissioned, work to do on new group The Gap, DI work to do, a new talk to write, Radio Adelaide things waiting for me to get back to them… the art book project I’ve been wanting to do for over a year… So hard to be patient! And at night, in bed, I find myself weeping because it has been too long now since I’ve made any art, too long since I had ink on my fingers and I feel like a part of me can’t breathe until I get back into my studio. It suddenly looks like I wont spend the next several months recovering from dental visits after all and I can make art instead. I am almost too excited for words as I sip my blended soup. 🙂

Appreciating the personal

Another day done and I am still improving which is very exciting, although still quite ill. Before I got out of bed yesterday morning, I lay there filled with relief that I had woken feeling improved and wondering if I was well enough to try and get my final sculpture project done in epic time. Then I got up and staggered about the house for a bit and my heroic dreams vanished. That happens a lot with fibro, sometimes I’ll wake and feel quite awesome until I get out of bed.

A few years back I shared a couple of poems with a writer friend for their opinion. They were helpful and complimentary except about a poem I’d written sharing my feelings about what it felt like to be sick and envious of my well friends. They said that one made them uncomfortable and felt like it belonged in a journal and shouldn’t be shared. I was really curious about this reaction. Partly that poem wasn’t written as well, but there was this also this sense of a breach of social norms. Like I was allowed to write poems about heartache but not sickness. Loneliness but not envy. Definitely not wheelchairs. I felt part of an underclass, hidden and secret, not allowed to share these experiences under the guise of privacy. I felt silenced and like these experiences weren’t ‘normal’, weren’t going to be shared with other normal people. I had an image in my minds eye of all us sick people in the shadows, somehow being convinced we weren’t part of normal life and our experiences didn’t get shared. I resolved not to stop writing about them.

Later I came across a style of poetry called ‘confessional’. Simply put this style is painfully personal to the point that it often makes readers uncomfortable, and feels rather like reading someone’s personal diary. Ah hah I thought. So that’s what I’ve been writing! There’s nothing wrong with it, its just a style that, like any other, isn’t to everyone’s taste. I like rawness and intensity, not all the time, not in everything, but certainly they’re qualities I’m drawn to. I like art and poetry that let you find the artist within them, that hold keys and shadows and aspects of them. I like the deeply personal. I guess when I look at it all that way, suddenly its no surprise I’m writing this blog. 🙂

Blogging is strange

I’ve been writing this blog, updating daily for more than 10 months now. During that time I have gradually revealed more information about myself, and wrestled with different inclinations about things like being honest vs exposure stress. As I work independently, I’m free to work according to my personal values and beliefs – this means things like I choose to create opportunities for mutual relationships and friendships with ‘consumers’, people the rest of the mental health sector tend to treat as the untouchable ‘them’, against whom inflexible impersonal boundaries must be maintained. This is so important to me. I can’t function within systems that don’t match my values, I crash so fast when I feel I am being forced to be part of processes that are dehumanising. I understand that good people take the harsh edges off bad systems and I am so grateful to those who have done this for me, but I just can’t be one of them. I function in this ‘zone’, this strange tightrope walk where I can do things other people find hard, and can’t do things other people find easy. The downside of this independence, is that every day I make major choices and decisions about who I am and how I will operate. I was at a face painting party recently and someone asked for my card. My business card has this blog address on it. How many Mums looking for someone to face paint their kids are going to choose the artist who talks about hallucinating on her blog? Sometimes I think I’m totally crazy revealing what I have, and sabotaging every career possibility that is open to me. Weeks like this when I’m facing expensive dental work and don’t have enough money for groceries again, the cost of my limitations and my choices really hurts and I doubt everything.

Then there’s the groups – I am so passionate about my groups, and I say ‘my groups’ not in a proprietorial way, they also belong to every single member of them, they are our groups, but they are also ‘my groups’ in that I am also a member, deeply invested and excited and proud and at times exhausted and full of doubt and uncertainty. The government doesn’t fund groups at the moment. They are out of fashion in the mental health world, apparently the concept of groups brings to mind a bunch of confused people whining about their circumstances in a pointless repetitive self-re-enforcing cycle that supports no one. So they are a labour of love, no payment is coming there. The feedback from the people who attend is divided between those who didn’t find it helpful and look elsewhere, those who find it helpful but overwhelming, and those who would lynch me if I tried to shut one down as they love them that much. 🙂

Talks and workshops on the other hand, are taking off. The recent abstract accepted in Wales is a huge boost, really positive feedback that what I’m doing is good quality, professional, useful work. I’m also giving talks locally and being approached by other organisations interstate. This is simply thrilling!

I feel this sense that what I’m supposed to do now, the road in front of me is to work on creating a professional image. It’s critically important to maintain a good reputation for reliability before an organisation is going to front out money to bring over for a talk. They don’t risk this if there’s an even chance you’ll have a psychotic break or drug binge or get appallingly ill out of the blue the night before the big event. I’ve been working on getting myself more set up to make travelling and giving talks easier. I bought an external DVD drive for my netbook (mini laptop) recently so that I can install Microsoft Office 2010 which will allow me to last minute modify a powerpoint presentation or even hook the netbook directly to a projector on the occasion that there are hardware or software incompatibilities. My phone upgrade allows me to access the net, my email, and skype much more easily which helps me stay in touch with those who support me in the stress before or the depression following exposing talks. I have an app that allows me to update in blogger on the go without a computer. You get the picture.

In the meantime, when I’m sick like I have been recently, I write about it on my blog. Instead of creating a slick, professional image I write miserably about how stressed and scared being sick makes me feel. In those days I can feel the whole tone of this blog change, suddenly become more intimate the way personal blogs of people sharing about illness or tragedy are. This scares me. I feel like I’m building a career with one hand and tearing it down with the other. I feel like everytime there’s a clear path in front of my feet I resolutely head off into the jungle instead. I feel like I keep dragging everyone over to the corner and pointing at the terrified little man behind the curtain.

Creating a ‘public profile’ is extremely weird. Going to a conference to give a talk, it is the strangest experience to me when I sit down at a stranger’s table afterwards to be friendly and have them thrilled I did so. I bounce between being a nobody whose opinions don’t count and feelings don’t matter in the worst of the health system, to being a somebody people are excited and grateful to talk to, or hurt and disappointed if I don’t make time for them. It really spins me out and does my head in. It’s scary as hell! And yet I’m doing it. And I doubt that call every week, doubt my motivations, doubt the results, wonder why the hell I’m doing something I find so frightening and challenging, answer that question for myself, and then ask it all over again.

I’ve recently come to the conclusion that I can’t do this process with any kind of dignity. I was hoping the talks would get easier, that I would develop the thicker skin or professional exterior that would allow me to cope with stresses without howling my eyes out on the floor of my supervisors office. I find my vulnerability and sensitivity on the one hand make me good at what I do, and on the other hand are so painfully out of place in a corporate culture, painfully embarrassing. I’ve been waiting for it to improve, but it doesn’t seem to be happening. I just keep pushing myself out of my comfort zone, setting my sights higher. The minute I can cope with what I am doing I add in something else. It feels like training for the olympics, as soon as I can jump that high I set the bar higher. My supportive network appear to be resigning themselves without chargrin to the idea that I quite regularly wipe out into neurotic self doubt and terror, and given some TLC I pick myself back up and get on with it. It’s not a perfect system but it seems to be working.

The process of presenting my ‘best side’ to the world, creating an image of myself that I ‘market’ and ‘manage’ bothers me almost as much as the weird over-exposure and faux intimacy of revealing deeply personal information about myself does. Other people have smuggled personal experience into their professional lives secretly, like Marsha Lineham, who struggled herself with borderline personality disorder as a young person, found some answers, and kept it all quiet as she then worked her way to a PhD in Psychology and developed Dialectical Behavioural Therapy. It has been incredibly difficult to build credibility within the mental health system if you are known to have a mental illness yourself. Lineham is an amazing person who recently ‘outed’ herself at 68. I could have gone down this road. It’s a viable option and one many other amazing people have done. However I’ve rather shot myself in the foot if that was the plan. I have in fact done the opposite and been building my credibility on my lived experience, and not ‘long in the past’ experience but ‘oh last night there were some interesting black creatures scuttling about on my ceiling that only I could see, and how are you?’ kind of experience. I rather resent this; on the other hand people often tell me that it’s a relief to see someone like me being open about my struggles. People feel less alone – which is always what I’ve been trying to do.

Which brings me back to my original point. I guess I keep revealing my vulnerabilities and struggles, even those I feel like I’m not supposed to talk about – like how hard the talks can be, because the alternative, the creation of a public persona that is dazzling and free from all of my limitations, that also feels de-humanising. A different kind of trap to the misery of the ‘consumer’ label I have finally had enough of and turned my back upon, but a trap nonetheless, a place I can’t be who I really am, where secrets lie under all my words and pain is hidden beneath silence and smiles. So I guess I’ll keep muddling along, whether I’m building credibility or shooting myself in the foot. Weeks like this one I remind myself that my backup plan is Frida, who when bedridden with pain, painted onto a modified easel by her bed. I’ve heard of worse plan B’s.

I am on the improve at last. Facial pain is reduced although the skin infections are troubling. I had a rough night full of nightmares and limped out to see my counsellor today. She let me just fall in a heap about everything I’m scared about, overwhelmed by, confused over, and not have to present my ‘functioning side’. It’s a rare gift those people who let you fall apart and still treat you with respect and dignity. I must have drained half my sinus infections, I covered half her coffee table with nasty tissues. (which I threw out afterwards, I don’t hold with the idea that the counsellor has to clean up used tissues!) I came home feeling a 100lbs lighter. It’s so nice to have spaces where I don’t have to know what I’m doing or be competent or calm. I felt like I was drowning without a raft, and no one can take that away really, but it does help to be able to cry about it. Tonight I celebrated feeling a bit better by having a meal that wasn’t blended! Hurrah! A bit of soft fish, mashed spud with garlic, mint peas, and slightly soggy (so I could eat them) sweet potato chips. It was very, very exciting. 🙂

Sick and unhappy

I’m off the stronger painkillers now and kidney/liver function is bouncing back which is great. I’m having trouble coping with the antibiotics though, and I’m only a quarter through the course. I’ve got a full compliment of quite severe side effects, some of which trigger other allergies I have. The upshot is that my tooth hurts a lot less, my sinuses still hurt a lot, I have new ulcerating skin infections that hurt and itch. So I am feeling in less pain but very miserable, uncomfortable, and depressed. At least off the opiates the hallucinations have settled down. It was a busy couple of nights lying in bed listening to nonexistent people trekking through my unit, using the appliances. (Get your hands off that, that’s MY microwave!) Man it’s a good thing I’m an old hand at this. I’m irritable and stressed and fed up and desperately want to get back to feeling useful and happy and productive and not wanting to crawl out of my skin. Sigh.

Pictures to warm you up

Still sick and miserable. Not taking any more painkillers now because I’ve hit all the warning signs of liver and kidney stress. The levels have reduced enough to make this manageable. My world is currently my bed, my armchair, the tv, and my very nice new phone which I’m terrified of dropping. I’ve signed onto a contract and hopefully will manage not to lose, drop, soak, or otherwise destroy my very fancy new phone before the two years are up! Today I had enough energy to shower and put some pears and cardamom on to stew in my rice cooker. As long as I keep heat and gentle pressure on my face, things are okay. Sarsaparilla is being smoochy and adorable – today I discovered that he loves to have his chest and tummy scratched. He’s never rolled over for a rub before, he really seems to be blossoming. I need to buy a cat tree for him however, as he’s taken to amusing himself by clawing up my nice rug and chewing all the plastic ends on my shoelaces. I have watched a lot of people running around on tv (still can’t focus well enough to read) and amused myself by taking photos with my phone. 

Not in hospital :)

I’m still here. 🙂 not the happiest of munchkins but hanging in there. Got the cat scan results back today and there is infection throughout my sinuses, in my cheeks and forehead, with the drainage on my left side completely blocked. That means double the time on antibiotics to clear it all. I’m coping okay with the stronger pain relief, being very sparing and cautious. I can’t see straight or walk in a straight line, but I didn’t have any marathons planned anyway. I’m not getting much sleep, I toss all night and trek back and forth to the microwave, reheating my wheat bag. Friends have been looking out for me, which is lovely, and my brain has settled down a bit. I don’t know how I’m going to manage anything in the longer term with the dental work etc yet, so I’m not thinking about it. Just riding it out.

Health update

Ran around the place having tests done yesterday, the results are in. It turns out I have an infection in the nerve of a back molar, which sits right next to the TMJ joint, hence the similar kind of pain. It has killed the tooth and spread into the surrounding tissue, infecting my sinuses on that side also. So that explains the severe pain. I’m now on antibiotics, which I don’t react very well to, but which should kill the infection and therefore the pain, hopefully starting to feel some relief in the next couple of days. The pain relief is inadequate so tonight a locum doctor came out and we’ve decided to risk the allergic reaction to a stronger opioid. I usually get 12 – 24 hrs before my liver starts shutting down, and at the moment I need that window desperately. If I start to react badly I’ll go into hospital. In the meantime I’ve taken one tonight and it has helped a little bit although I am disappointed at how much pain I’m still in. The antibiotic reactions may take a few weeks to clear up, not dangerous but painful as I tend to ulcerate. The tooth needs to be either extracted in a week, which is cheaper but will mean I cannot chew at all on my left side, or I need to go through root canal work and then a crown, which is expensive and I have no idea how I’m going to get through it without decent pain relief. I had five teeth extracted at the same time once, and a salivary biopsy, and the experience was horrific. After 24 hours on an opiate that barely worked I was psychotic and my liver was crashing so I had to go cold turkey from then on, then reacted to the stitches which had to be cut out and replaced, I was ill for months.

So I’m kinda shattered. There’s no way I’ll be in next Wednesday to do my final art project, if I’m lucky I’ll be able to keep the impact down but my savings will be demolished and this could be a rough time. Having said all of that, I’m not in danger, just very miserable. I will go to hospital the minute I feel unsafe. Please don’t worry, it all really sucks but I will get over it. I’ve come through worse. x